Vulvodynia Support
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» Hope to all my suffering ladies
Am I ready for tricyclics? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Am I ready for tricyclics? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Am I ready for tricyclics? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Am I ready for tricyclics? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Am I ready for tricyclics? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Am I ready for tricyclics? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Am I ready for tricyclics? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Am I ready for tricyclics? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Am I ready for tricyclics? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Am I ready for tricyclics?

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Am I ready for tricyclics? Empty Am I ready for tricyclics?

Post  penfebruary Fri Mar 16, 2012 12:11 am

So I was diagnosed with V back in September and tried hydro cream for like, 2 days before quickly giving that up due to the pain.. since then I have only used lidocaine gel, which has been semi helpful for me. Went for another hospital visit this week and I am now being prescribed amitryptaline.
I am just wondering if this is a big jump? Having researched tricyclics, the side effects and inability to drink alcohol etc are worrying me - I'm only 20, and committing to taking a drug conceivably for life, or at least for a few years if it works, is worrying me quite a lot.
Are there any steps that should come before this? Or is it really time for me to take this medication? To be honest, if I got to be pain free.. I wouldn't care what else I had to give up.

(Please no personal stories about how ami didn't work for you - everyone is different, I'd like to go into this positively if it is the right option for me! Thanks Smile)
penfebruary
penfebruary

Posts : 39
Join date : 2011-12-14

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Am I ready for tricyclics? Empty also 20..

Post  ilovebaxter1 Sun Mar 18, 2012 12:46 am

hi Smile i am also 20 and suffering from a v disorder that ive had for over a year..i have inflamation and irritation of my vulva (vulvitis) and when my inflamation goes down i am also going to be going on a tricyclic to treat the irritation. I've also had the same concern about not being ready to commit to not drinking/smoking since we are both sooo young and aren't even 21 year ya know? just letting you know youre not the only one and i think if it helps itll be worth it Smile I've also read that taking ami only makes you a light weight when you drink and you get more dizzy? im not sure though lol if you end up going on it please keep us posted id like to know if it works!

ilovebaxter1

Posts : 47
Join date : 2011-09-13
Age : 32
Location : Boston

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Am I ready for tricyclics? Empty Re: Am I ready for tricyclics?

Post  ButterflyLiz Sun Mar 18, 2012 9:21 am

I would say ami isn't necessarily a big jump. It was the first thing I was offered & the first thing I tried. The only other major thing I can think of is maybe physio but you could always do that at the same time as taking ami. It's a difficult decision but on the balance of things, wouldn't it be wonderful if it worked for you? After all, if you get up to the highest dose and it doesn't help you can just come off it and try something else, or give your body a break for a while. I probably shouldn't admit this but I'm sure I had the odd sneaky drink when I was on ami...

Hope it works for you if you go for it! xx
ButterflyLiz
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK

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Post  JemimaSurrender Mon Mar 19, 2012 3:48 pm

Amitriptyline was one of the first things prescribed for me too. I think it's pretty standard to go for it early on, although I'm not too sure why, I don't know if there's a high-ish success rate for it or not???

As for it being a big jump... My GP, and every other doctor I've spoken to, was more concerned about me having Pregabalin than Ami, so I don't think it's too much of a big deal. But I guess it depends how high you go up. I tried it for 3 months at 30mg a day, which was a lot more than they were happy to give me, and came off it cold turkey without any problems. And no one told me not to drink on them (this is the first I've heard about it!) and I didn't notice any difference when I was drinking.

I wouldn't worry about it too much though. I just ask for whatever they'll possibly give me, regardless of concerns, anything to get this gone!

I hope it works for you!

P.S. I'm 22...

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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