The surgery

Can anyone who has had the surgery please reply. Please let me know if it helped, made the pain worse or didn't
help at all. I'm really tired of having this shitty condition.
Thanks

I would also like to know about the surgery. I am going to a vulvodynia clinic in May (believe it or not they have one of these in Seattle, it is a vestibulitis clinic and it has recently opened up). I hope to get some answers on options. Gabapentin has not really helped me but I have started it at a very low dose (100 mg once per day). If they tell me the surgery has a chance of helping I'll wave my arm to get in line to have it done, and I'll let you know!

It Hurts wrote:I would also like to know about the surgery. I am going to a vulvodynia clinic in May (believe it or not they have one of these in Seattle, it is a vestibulitis clinic and it has recently opened up). I hope to get some answers on options. Gabapentin has not really helped me but I have started it at a very low dose (100 mg once per day). If they tell me the surgery has a chance of helping I'll wave my arm to get in line to have it done, and I'll let you know!

Thanks so much for responding to my post. I've gotton so depressed with this and how it hampers my life.
Sometimes it's hard to accept this and move on knowing you really can't have a lovelife. I'm not sure how
to do that. How do you girls deal with the depression? ( I have dealt with depression most my life ).
Have any of you heard about support groups where perople actually meet up and talke about this?

I have had the surgery twice. Once by a doctor in the state I lived in. And then I traveled out of state to have it done again by "One of the best" doctors in the USA for vulvadynia.... It did not helped me at all. My pain in mostly unprovoked constant burning. It did not make it worse, but did not make it any better. It was very very costly and painful to recover from. I was extremely upset. I still have not anything that helps. I have read that the sugery DOES help some people. But mostly if your pain is in a localized area and only happens when provoked. Hope this was somewhat helpful.

Hello,
I'm not sure what "the surgery" is that you're referring to, but if it's vesitbulectomy with vaginal advancement it worked well for me to treat primary provoked neuroproliferative vestibulodynia. I recently posted my whole story and won't repeat it here, but just point you to my post in the "Your Story" Forum, titled "Success Story - Recovery via Vestibulectomy."

If you are considering the surgery and would like more information about how I came to my decision, details of the recovery, etc, feel free to send me a private message.

Good luck!

Vulvarpainsurvivor

I know this is an old post BUT I did have the surgery and I had amazing results. I had localized provoked vestibuldynia and had the surgery last year. It wasnt a horrible recovery and I would definitely do it again if I needed to. I am able to have sex tho when I first start it does hurt if I'm not totally relaxed but nothing like before. More like muscle cramps. If anyone has any questions about it I'm open to discuss. I was scared to death to try it but am so thankful I did it. It beats the endless painkillers/antidepressants/creams and crap that I was forced to endure.. a doctor had even put me on herpes meds (I don't have herpes) because she didn't know how else to treat it. I was willing to try anything. Turns out I'm allergic to those pills hope I never get herpes! But seriously, I was just done experimenting tho I realize the surgery is experimental if it does work you will be do excited!