Vulvodynia Support
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» Hope to all my suffering ladies
Quick question - peeing EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Quick question - peeing EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Quick question - peeing EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Quick question - peeing EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Quick question - peeing EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Quick question - peeing EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Quick question - peeing EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Quick question - peeing EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Quick question - peeing EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Quick question - peeing

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Post  penfebruary Sun May 06, 2012 5:29 pm

Does anyone else find, I think its pretty common, that staying very hydrated helps with pain and inflammation? I do and if so, does this mean that the pain is viral? With UTIs etc I know its important to stay hydrated so would this indicate some form of subclinical infection? I've tested negative for all these types of problems but don't really believe a word the doctor says any more. Thanks
penfebruary
penfebruary

Posts : 39
Join date : 2011-12-14

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Post  Sunflower82 Sun May 06, 2012 6:38 pm

Hi,
Yeah I find the more I drink the better I feel, I'm not sure why I suffer from the burning pain after I wee, on days where I run around like a headless chicken at work and I don't drink enough I get a stabbing pain in my tummy and down below. I am really careful to just drink water and only have the odd cup of coffee and drink decaf tea, once went through a phase of liking chocolate soya milk, vey bad burned even more when I went. Also milk chocolate makes it worse ! I'm not sure that will be the same for everyone but it is for me.

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

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Post  smile22 Mon May 07, 2012 10:20 pm

Hi, I also have this trouble, and I never really get thirsty so I kinda forget to drink enough most days :/. I think that its something to do with the urine building up inside being too..concentrated/strong (if they're the right words to use!) and then it stays there til theres enough to make you need to pee, which must irritate the area even more.. especially if you don't go as soon as you need to pee, which obviously is sometimes hard if you're not near a toilet or busy or whatever. I also think that it may be linked with cystitis, as the pee being a really high temp must make the vulvodynia burning worse. Sorry if this message doesn't really make sense, I'm not too good at explaining what I mean!! But just wanted to say I know what you mean and that's my very unscientific theory as to why ha ha!! I always think right I'm gonna drink 7-8 glasses of water tomorrow and I never manage it, I pretty much only drink water, but like 2 glasses :/ not good at all considering how bad my pain is I really don't help myself do I!!

smile22

Posts : 51
Join date : 2012-02-07
Location : England

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