Great progress, can't believe this

I didn't know whether or not to post this here, because I know that there are so many of you who are suffering and have not been able to find a treatment for your pain, and I didn't want to seem like I was bragging. But I am just so excited about this and I have to tell someone but I don't have anyone to talk to in real life about this stuff.

I have been taking amitripyline for a long time now, since last summer I think, and I have been raising the dosage gradually. I am now taking 60mg. I had been taking 60mg since December, and for months it still wasn't working the way I wanted it to. It was reducing my pain, but not nearly enough. I had booked another appointment with my gyn in June, and was planning on asking if I could further raise the dosage. She had previously told me that 60mg was the limit though, so I was worried about what I would do if she said no.

However, since April my pain seems to have reduced to the point of being almost completely gone. I can't believe this. Every time I raised the dosage my pain was reduced a little more, but I never ever thought that 60mg would be enough for me. However, it seems that it is. My pain is provoked, so it only hurts upon penetration, and I regularly test myself with dilators. Before, I was only ever able to get up to the third one, any more than that and I needed to use lidocaine to numb the pain. But now I am able to use them all with no lidocaine! This is unbelievable to me. Sometimes I struggle with the biggest one and have to use the lidocaine, but even then the amount of lidocaine I'm having to use now is miniscule -- before I was having to use the ENTIRE syringe to manage just the smallest dilators.

I am so thrilled, and I'm praying this isn't just some kind of short-lived phase. The first time I managed the fourth dilator with no lidocaine, I couldn't believe what was happening, it just slid in with no pain. I thought it was too good to be true and wouldn't last, but so far so good.

That is great news, so happy for you!! And of course you should post about it, it's always encouraging to hear a positive story x

Hi lolainslacks

I was just wondering how you were getting on with the amitriptyline? Is you pain gone completely?

Yes amitryptine and dialators helped me massively too! yey

Wondering how you are doing now and if you are still taking the medication?