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» 7 months since the diagnosis
How did you find this forum? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
How did you find this forum? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
How did you find this forum? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
How did you find this forum? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
How did you find this forum? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
How did you find this forum? EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
How did you find this forum? EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
How did you find this forum? EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
How did you find this forum? EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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How did you find this forum? Empty How did you find this forum?

Post  Sebby (Admin) on Sun Aug 01, 2010 4:36 pm

Please state which search engine, forum or directory you found this forum on...fanx!


Last edited by Sebby (Admin) on Wed Mar 02, 2011 10:27 pm; edited 1 time in total

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Sebby
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Post  naomi on Sun Aug 01, 2010 6:04 pm

I put 'other womans forum' but im not sure as I saw Sebbys link on the Daily Mail online on the health section. I hope thats right? Shocked
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Post  Sarah001 on Sun Aug 01, 2010 6:10 pm

Google for me Sebby and I see you've got to grips with the scrolling text function!! Laughing
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Post  naomi on Sun Aug 01, 2010 6:13 pm

I know! Im dead impressed with this site Sebby! You should pat yourself on the back!! cheers
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Post  Sebby (Admin) on Sun Aug 01, 2010 7:08 pm


awww fanx guys lol.... I had the scrolling text whizzing by at one point..like far to fast for anyone to read! hahaa

Yes Naomi you got it right, I fink I had posted it in the womens health section?

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Post  key_lime_teddy on Thu Oct 07, 2010 12:32 pm

Google... I just google the word online support groups for vulvodynia... and here I am.. But if you google the opposite way, then you will not find this site..
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How did you find this forum? Empty Re: How did you find this forum?

Post  Sebby (Admin) on Sun Oct 10, 2010 8:46 am


Thanks and welcome key_lime_teddy

I have tried to put as many link words a I can think of for search engines..I would probably have to pay for anything more specific..

I will take another look though and see If I can make it more specific without paying lol
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Post  Sebby (Admin) on Tue Nov 16, 2010 9:23 pm


Hmmmm it seems the search engine is doing an ok job lol that why I see the Google bot hanging around ere! lol
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Post  jules on Mon Nov 22, 2010 4:36 am

it's been awhile. i remember doing a Google search. i looked up vulvodynia support groups

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Post  Sebby (Admin) on Mon Feb 14, 2011 10:09 pm


Got to grips with the whole bloody meta tags thing Shocked a little confusing lol but am deff getting more hits so its working great on Google Very Happy
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Post  itchyandscratchy on Wed Apr 27, 2011 5:50 pm

Googled "vulvodynia forum".
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Post  Sassymel on Sat May 07, 2011 10:49 am

I was googling looking for anything about vulvadynia and tampon use...and suddenly came accross this as there was a post about tampons hehe!

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Post  riv on Thu Oct 27, 2011 8:04 pm

I searched vulva pain forum uk on google

glad I did! got diagnosed today and very happy to find other people to speak to about it

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How did you find this forum? Empty Search Engine Reply

Post  Aceladi on Mon Oct 31, 2011 4:47 pm

I belonged to this site years ago and check every once in awhile but couldn't sign in as a member so signed up again... with remembering the website name.

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How did you find this forum? Empty Finding this website

Post  Aceladi on Sat Nov 05, 2011 4:06 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!


I'm pretty sure I found this forum through Google. It has been about 8 years at least. Not sure if this is the original but seems to be pretty much the same. I had some trouble navigating it at the time but did read much of the content that pertained to my situation... Millie

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How did you find this forum? Empty found it through google! :)

Post  sadone on Tue Jan 24, 2012 4:03 pm

google

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Post  Tinabeauxbina on Wed Jan 25, 2012 11:38 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!
I found this forum listed on a Wikipedia article on Vulvodynia and I used Google to get to Wikipedia. Very Happy

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Post  Sabrinalaura on Tue Jun 18, 2013 11:53 am

Through a doctor

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How did you find this forum? Empty Google

Post  Jenn89 on Mon Aug 19, 2013 1:23 am

I began typing in Vulvodynia support... and vulvodynia support forum came up, and this was at the top of the search results!

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Post  fking on Sun Sep 15, 2013 8:01 am

I found this forum from goggle. I have been suffering from vulvadynia in awful pain until i was diagnoised a few months ago. I wanted to speak to other people who suffer from this.

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Post  lonelyone48 on Wed Dec 04, 2013 3:46 pm

I googled vulva pain.

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Post  mary jane on Wed Dec 04, 2013 7:42 pm

I googled "persistent vulvar pain", although the first result was pudendal neuralgia
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Post  nanmark3 on Tue Mar 25, 2014 12:09 am

Today I googled "Vulvodynia support groups" I like what I see, thank you for all of your hard work!

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How did you find this forum? Empty Google

Post  sammykramer on Fri Jul 04, 2014 12:45 pm

Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!

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Post  mrs.optimistic on Thu May 14, 2015 8:20 pm

Google search!

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