Physiotherapy and Botox

I have always had vulvadynia since starting to have sex. Pain is usually only present with touch or penetration. Have tried various treatments such as biofeedback, psychotherapy, Endep medication, low oxalate diet, antifungal medication and had various tests including thin prep (multiple and all clear), blood tests (no STDs) ultrasounds (all clear) and an MRI (all fine except prominent vascularlity along the pudendal nerve and bulky pelvic floor muscles on the right side even post botox).

Two months ago I had botox injections to my pelvic floor muscles and am doing 30 minutes of exercises with dilatators every day and seeing the Physiotherapist every three weeks. Botox has worked very well, for the first time I can actually stretch the muscle and give me some form of fighting chance to stretch the muscle out before the botox wears off in the next few months, in the hope that the muscle retains some of the stretch

I have recently confided in a few friends but they offer limited to no support, I don't think they understand how damaging this is to my self esteem and my potential relationship future. I haven't entered into a relationship in a long time, because I just can't handle the stress of it all.

Has anyone done Botox with exercises? I'm getting to the larger sized dilatators and the pain is returning somewhat, it was almost totally absent with the smaller dilatators. Previous to Botox the pain was INSANE, even with the smallest dilator.

Hi! I was wondering if you had any success with the botox? Did you have localised provoked VV? I do and I'm considering trying it. Thanks!

Hi,

Yes I have provoked localised V, I am coming up to 8ish months post botox and I can use the largest dialator with no muscle pain now but I believe the botox is still working on my muscle. Currently I am only left with the neuropathic pain/sensitivity around the vulva and burning. The true test will be when it has worn off and if the muscle can still remain stretched. You need to do a lot of stretches and daily, so it is hard work and expensive! For the moment it has been worth it. Botox doesn't work for everyone and also depends on the skill of the person injecting you on how it will work. I also see a chiro, general physio on top of a pelvic physio, light touch myofacsial massage, exercise physiologist for specific exercises to normalise both sides of body and psychologist - trying to give my poor pelvic floor muscles a better home to go to when they are eventually revived after botox