Vulvodynia Support
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» Hope to all my suffering ladies
Vulvodynia and Obsessive Compulsive Disorder (OCD) EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Vulvodynia and Obsessive Compulsive Disorder (OCD) EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Vulvodynia and Obsessive Compulsive Disorder (OCD) EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Vulvodynia and Obsessive Compulsive Disorder (OCD) EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Vulvodynia and Obsessive Compulsive Disorder (OCD) EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Vulvodynia and Obsessive Compulsive Disorder (OCD) EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Vulvodynia and Obsessive Compulsive Disorder (OCD) EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Vulvodynia and Obsessive Compulsive Disorder (OCD) EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Vulvodynia and Obsessive Compulsive Disorder (OCD) EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Vulvodynia and Obsessive Compulsive Disorder (OCD)

3 posters

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Vulvodynia and Obsessive Compulsive Disorder (OCD) Empty Vulvodynia and Obsessive Compulsive Disorder (OCD)

Post  Sapphire21 Thu Oct 11, 2012 1:46 pm

I have suffered with vulvodynia for nearly 4 and a half years, since I was 17. After going down many possible causes and treatments I feel I have finally found the answer to my pain.

I went to see a pyscho-sexual counsellor who was focused on the possible psychological causes of my pain and after many visits we came to the conclusion that perhaps my pain could be linked to my OCD. She felt that because I have the tendancy to obsess over certian things (at the moment that can be unpleasant thoughts, cleanliness, constant worrying and stress etc but in the past my OCD manifested itself in anorexia) that perhaps I am anxious about the pain and, subconsciously, it is another way for my OCD to manifest itself.

I did have some success with my pain - my partner could insert his fingers in me, without any pain at all, for the first time in 4 years. But then after that I became scared the pain would come back and so have been too afraid to try again, and when I did try again it hurt. I feel that this proves that my pain can be overcome, and my counsellor feels that the anxiety of it hurting again shows that it is my OCD that it causing the pain (whatever the origional cause - I wonder now if I was slightly dry as I had just gone on the pill and so didn't have the lubrication of condoms, which may have caused some discomfort that I then became worried about which in turn made my muscles tense and the problem got worse).

I am now working on letting go of my anxieties and hope that this will help my sexual pain.


I hope this is of help to some of you.

Sapphire21

Posts : 22
Join date : 2012-02-11

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Post  Kate1981 Fri Oct 12, 2012 3:08 pm

Hi Sapphire

Your story is very interesting to me. I have OCD I obssess about a lot of things and worry myself to death about anything and everything. I have ocd about cleanliness and food mainly. I freak out if things arnt clean and I dont eat any meat or any fast food. I had the fear about sex when I was younger and I was convinced it would hurt. I also feel like that bout a smear test. Maybe my ocd is linked. Let me know how you get on I would be very interested to know.

Kate1981

Posts : 88
Join date : 2012-08-17
Location : Manchester, UK

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Post  Sapphire21 Sat Oct 13, 2012 8:08 pm

Hi Kate,

It does sound like it could be linked, perhaps you could ask to see a psychosexual counsellor too? Have you had all the tests and ruled out various medical conditions from your doctor?


Sapphire21

Posts : 22
Join date : 2012-02-11

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Post  Kate1981 Sat Oct 13, 2012 11:11 pm

Hi Sapphire

Yeah ive been tested for all std's 3 times including herpes, ive had an ultrasound and an mri. All that was found was a blood filled cyst on my ovary and the gyno said that wouldnt cause the pain. Im totally confused with it all. I think councelling would really help me as at the moment im so down. Are you in uk?

Kate1981

Posts : 88
Join date : 2012-08-17
Location : Manchester, UK

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Post  Sapphire21 Sun Oct 14, 2012 5:44 pm

Yeah counselling is such a good idea, even if it isn't linked to your OCD the emotional effects of the problem are something that can be helped by talking it through with someone. Yeah I am in the UK, are you? If you just ask your GP about seeing a pyscho-sexual counsellor they should be able to help you. I think there are different types though, the one I am seeing is a consultant.

Right now all I am doing is using my inserters (do you have these?) and just trying to let go of my anxieties and hoping that this will eventually produce good results.

Sapphire21

Posts : 22
Join date : 2012-02-11

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Post  stablercake Sun Oct 14, 2012 6:08 pm

This is actually a bit of a relief, I just penned a really long post about anxiety and vulvodynia so this seems to fit my symptoms as well since my pain usually coincides with anxieties of various types.

stablercake

Posts : 6
Join date : 2012-10-14

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Post  Sapphire21 Sun Oct 14, 2012 6:48 pm

Oh I just replied to your post! I really would recommend seeing a psycho-sexual counsellor. And focus on trying to let go of your anxieties. My counsellor says she doesn't recommend doing specific things to help with letting go of anxieties as this can be something else my brain becomes obsessive about, but she did say that on the other hand, things like meditation and yoga can really help. I had hypnothearapy which helped too.

I still suffer with pain, but when I use my dialators properly and listen to my hypnotheapray tapes I do feel better and I feel that if I did this more then my pain would eventaully go. Basically, I think that letting go of my anxieties is the key to letting go of my sexual pain...and I hope I am right!

I hope this has helped you in some way.

Sapphire21

Posts : 22
Join date : 2012-02-11

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