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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Anyone had surgery in the UK?

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Anyone had surgery in the UK?

Post  happynerd on Wed Jan 09, 2013 4:06 pm

Hi,

I have had this condition for 11 years and it has essentially ruined my life. I have just been discharged by my latest Gynaecologist because there is no more she can do for me. She is the 19th one I have seen. I have tried every treatment, pills, creams on this forum and I have realised that my last and only hope is surgery. However this is something that has never even been mentioned to me by any of the specialists I have seen in the UK.

I was wondering if anyone has had the surgery in the UK, who did you see and did you have to go private or can you get it on the NHS?

Thanks in advance for any help you can give me.

happynerd

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Re: Anyone had surgery in the UK?

Post  Alana3 on Wed Jan 09, 2013 6:31 pm

Oh I wish I could help you! I just had the surgery, but I'm from Florida. I think there are a few girls on here who have had the surgery from the UK, but I'm not sure. Most people I have talked to from over there have only been offered conservative treatments. Is there anyway you could travel over here? 19 gynos? That's insanity! I've had about 7 and I thought that was a lot lol... Good luck, if I see anyone I'll send them your way Smile

Alana3

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Re: Anyone had surgery in the UK?

Post  meelie on Wed Jan 09, 2013 11:43 pm

But remember if you come over here it takes money for surgery. Insurance won't cover it, at least it won't cover it if you are on Medicare, which is something I have contributed to all my life and now when I need it it won't cover what I need.

meelie

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Re: Anyone had surgery in the UK?

Post  Alana3 on Thu Jan 10, 2013 2:22 pm

Mine was almost fully covered, so I guess it depends on the insurance? I had to pay the down payments and miscellaneous fees but that's it.

Alana3

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Re: Anyone had surgery in the UK?

Post  meelie on Thu Jan 10, 2013 4:43 pm

Alana, where are you located? Are you on Medicare with a supplement? Where did you have the surgery?

meelie

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Re: Anyone had surgery in the UK?

Post  Alana3 on Thu Jan 10, 2013 4:51 pm

No Cigna. And Florida is where I live and had the surgery Smile

Alana3

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Re: Anyone had surgery in the UK?

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