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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Steroid injections?

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Steroid injections?

Post  MarieJo on Mon Feb 11, 2013 10:39 pm

Has anyone tried steroid injection treatment? I am scheduled to start this on Thursday (Happy Valentine's Day to me! Smile ). This is the next step in my treatment plan after trying P.T. and vaginal valium (didn't help). Just wondering if anyone has had any positive experiences with the injections because I'm starting to run out of options.

MarieJo

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Re: Steroid injections?

Post  Alana3 on Tue Feb 12, 2013 12:29 am

I've heard of botox but never steroid what is it supposed to do? Hope it works!

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Re: Steroid injections?

Post  MarieJo on Tue Feb 12, 2013 12:36 am

I guess the injections are supposed to help with inflammation. I'm a little nervous about it, but willing to try almost anything at this point.

MarieJo

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Re: Steroid injections?

Post  Alana3 on Tue Feb 12, 2013 4:19 pm

I hear you I just did the surgery I was at my wits end. Let us.know if they help!

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Re: Steroid injections?

Post  BpCookie on Wed Feb 13, 2013 4:57 pm

What an interesting idea! What kind of Dr. is doing the injection? Good luck to you
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BpCookie

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Re: Steroid injections?

Post  MarieJo on Wed Feb 13, 2013 9:27 pm

This is actually going to be done by a nurse practitioner who specializes in IC and pelvic floor disorders. I am so grateful to have found her after being blown off by multiple doctors before finally being diagnosed.

MarieJo

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Re: Steroid injections?

Post  Alana3 on Wed Feb 13, 2013 9:36 pm

Where in Michigan are you from? I heard they had a really good pelvic/vv docs at University of Michigan. My moms cousin suffers from the same things and that's where she went and got some results Smile

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Re: Steroid injections?

Post  MarieJo on Wed Feb 13, 2013 9:53 pm

I'm in the metro Detroit area, not too far from Ann Arbor. I may try the U of M route if things don't improve after the injections/continued physical therapy. I work for a competing hospital, so I will end up paying more out of pocket if I go there...although it may be worth it if they can help me get rid of it. My husband and I are (were) trying to conceive right about when all this started for me so I feel like a big part of my life is on hold. Once I get the injections I can't try to get pregnant for a minimum of 2 months (and that's assuming only one set of injections fixes the problem *fingers crossed*).

MarieJo

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Re: Steroid injections?

Post  Alana3 on Wed Feb 13, 2013 10:15 pm

Honestly, my doctor is out of network, and it was the greatest decision I have ever made, yeah it's a lot more money- but I'm considered "cured" by them. If they're willing to help and have vulvospecialists, why not? My parents are helping me with this and they were so against it because my doc is out of network, but I just couldn't continue the way I was going, so they helped there too, thank god! My parents even admit that it was money worth spent! UM should have a good gynecology prorgram there, wouldn't hurt to give them a call. My mom's cousin was trying to get me to fly there for it, but luckily I found help here. Very Happy But if the injections work, I guess you won't have to worry about it!

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Re: Steroid injections?

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