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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Steroid injections?

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Steroid injections?

Post  MarieJo on Mon Feb 11, 2013 10:39 pm

Has anyone tried steroid injection treatment? I am scheduled to start this on Thursday (Happy Valentine's Day to me! Smile ). This is the next step in my treatment plan after trying P.T. and vaginal valium (didn't help). Just wondering if anyone has had any positive experiences with the injections because I'm starting to run out of options.

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Re: Steroid injections?

Post  Alana3 on Tue Feb 12, 2013 12:29 am

I've heard of botox but never steroid what is it supposed to do? Hope it works!

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Re: Steroid injections?

Post  MarieJo on Tue Feb 12, 2013 12:36 am

I guess the injections are supposed to help with inflammation. I'm a little nervous about it, but willing to try almost anything at this point.

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Re: Steroid injections?

Post  Alana3 on Tue Feb 12, 2013 4:19 pm

I hear you I just did the surgery I was at my wits end. Let us.know if they help!

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Re: Steroid injections?

Post  BpCookie on Wed Feb 13, 2013 4:57 pm

What an interesting idea! What kind of Dr. is doing the injection? Good luck to you
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Re: Steroid injections?

Post  MarieJo on Wed Feb 13, 2013 9:27 pm

This is actually going to be done by a nurse practitioner who specializes in IC and pelvic floor disorders. I am so grateful to have found her after being blown off by multiple doctors before finally being diagnosed.

MarieJo

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Re: Steroid injections?

Post  Alana3 on Wed Feb 13, 2013 9:36 pm

Where in Michigan are you from? I heard they had a really good pelvic/vv docs at University of Michigan. My moms cousin suffers from the same things and that's where she went and got some results Smile

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Re: Steroid injections?

Post  MarieJo on Wed Feb 13, 2013 9:53 pm

I'm in the metro Detroit area, not too far from Ann Arbor. I may try the U of M route if things don't improve after the injections/continued physical therapy. I work for a competing hospital, so I will end up paying more out of pocket if I go there...although it may be worth it if they can help me get rid of it. My husband and I are (were) trying to conceive right about when all this started for me so I feel like a big part of my life is on hold. Once I get the injections I can't try to get pregnant for a minimum of 2 months (and that's assuming only one set of injections fixes the problem *fingers crossed*).

MarieJo

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Re: Steroid injections?

Post  Alana3 on Wed Feb 13, 2013 10:15 pm

Honestly, my doctor is out of network, and it was the greatest decision I have ever made, yeah it's a lot more money- but I'm considered "cured" by them. If they're willing to help and have vulvospecialists, why not? My parents are helping me with this and they were so against it because my doc is out of network, but I just couldn't continue the way I was going, so they helped there too, thank god! My parents even admit that it was money worth spent! UM should have a good gynecology prorgram there, wouldn't hurt to give them a call. My mom's cousin was trying to get me to fly there for it, but luckily I found help here. Very Happy But if the injections work, I guess you won't have to worry about it!

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Re: Steroid injections?

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