Log in

I forgot my password

Latest topics
Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Steroid injections?

View previous topic View next topic Go down

Steroid injections?

Post  MarieJo on Mon Feb 11, 2013 10:39 pm

Has anyone tried steroid injection treatment? I am scheduled to start this on Thursday (Happy Valentine's Day to me! Smile ). This is the next step in my treatment plan after trying P.T. and vaginal valium (didn't help). Just wondering if anyone has had any positive experiences with the injections because I'm starting to run out of options.

MarieJo

Posts : 8
Join date : 2013-01-11
Location : Michigan

View user profile

Back to top Go down

Re: Steroid injections?

Post  Alana3 on Tue Feb 12, 2013 12:29 am

I've heard of botox but never steroid what is it supposed to do? Hope it works!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Steroid injections?

Post  MarieJo on Tue Feb 12, 2013 12:36 am

I guess the injections are supposed to help with inflammation. I'm a little nervous about it, but willing to try almost anything at this point.

MarieJo

Posts : 8
Join date : 2013-01-11
Location : Michigan

View user profile

Back to top Go down

Re: Steroid injections?

Post  Alana3 on Tue Feb 12, 2013 4:19 pm

I hear you I just did the surgery I was at my wits end. Let us.know if they help!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Steroid injections?

Post  BpCookie on Wed Feb 13, 2013 4:57 pm

What an interesting idea! What kind of Dr. is doing the injection? Good luck to you
avatar
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

View user profile

Back to top Go down

Re: Steroid injections?

Post  MarieJo on Wed Feb 13, 2013 9:27 pm

This is actually going to be done by a nurse practitioner who specializes in IC and pelvic floor disorders. I am so grateful to have found her after being blown off by multiple doctors before finally being diagnosed.

MarieJo

Posts : 8
Join date : 2013-01-11
Location : Michigan

View user profile

Back to top Go down

Re: Steroid injections?

Post  Alana3 on Wed Feb 13, 2013 9:36 pm

Where in Michigan are you from? I heard they had a really good pelvic/vv docs at University of Michigan. My moms cousin suffers from the same things and that's where she went and got some results Smile

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Steroid injections?

Post  MarieJo on Wed Feb 13, 2013 9:53 pm

I'm in the metro Detroit area, not too far from Ann Arbor. I may try the U of M route if things don't improve after the injections/continued physical therapy. I work for a competing hospital, so I will end up paying more out of pocket if I go there...although it may be worth it if they can help me get rid of it. My husband and I are (were) trying to conceive right about when all this started for me so I feel like a big part of my life is on hold. Once I get the injections I can't try to get pregnant for a minimum of 2 months (and that's assuming only one set of injections fixes the problem *fingers crossed*).

MarieJo

Posts : 8
Join date : 2013-01-11
Location : Michigan

View user profile

Back to top Go down

Re: Steroid injections?

Post  Alana3 on Wed Feb 13, 2013 10:15 pm

Honestly, my doctor is out of network, and it was the greatest decision I have ever made, yeah it's a lot more money- but I'm considered "cured" by them. If they're willing to help and have vulvospecialists, why not? My parents are helping me with this and they were so against it because my doc is out of network, but I just couldn't continue the way I was going, so they helped there too, thank god! My parents even admit that it was money worth spent! UM should have a good gynecology prorgram there, wouldn't hurt to give them a call. My mom's cousin was trying to get me to fly there for it, but luckily I found help here. Very Happy But if the injections work, I guess you won't have to worry about it!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Steroid injections?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum