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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

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Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Steroid injections?

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Steroid injections?

Post  MarieJo on Mon Feb 11, 2013 10:39 pm

Has anyone tried steroid injection treatment? I am scheduled to start this on Thursday (Happy Valentine's Day to me! Smile ). This is the next step in my treatment plan after trying P.T. and vaginal valium (didn't help). Just wondering if anyone has had any positive experiences with the injections because I'm starting to run out of options.

MarieJo

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Re: Steroid injections?

Post  Alana3 on Tue Feb 12, 2013 12:29 am

I've heard of botox but never steroid what is it supposed to do? Hope it works!

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Re: Steroid injections?

Post  MarieJo on Tue Feb 12, 2013 12:36 am

I guess the injections are supposed to help with inflammation. I'm a little nervous about it, but willing to try almost anything at this point.

MarieJo

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Re: Steroid injections?

Post  Alana3 on Tue Feb 12, 2013 4:19 pm

I hear you I just did the surgery I was at my wits end. Let us.know if they help!

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Re: Steroid injections?

Post  BpCookie on Wed Feb 13, 2013 4:57 pm

What an interesting idea! What kind of Dr. is doing the injection? Good luck to you
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BpCookie

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Re: Steroid injections?

Post  MarieJo on Wed Feb 13, 2013 9:27 pm

This is actually going to be done by a nurse practitioner who specializes in IC and pelvic floor disorders. I am so grateful to have found her after being blown off by multiple doctors before finally being diagnosed.

MarieJo

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Re: Steroid injections?

Post  Alana3 on Wed Feb 13, 2013 9:36 pm

Where in Michigan are you from? I heard they had a really good pelvic/vv docs at University of Michigan. My moms cousin suffers from the same things and that's where she went and got some results Smile

Alana3

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Re: Steroid injections?

Post  MarieJo on Wed Feb 13, 2013 9:53 pm

I'm in the metro Detroit area, not too far from Ann Arbor. I may try the U of M route if things don't improve after the injections/continued physical therapy. I work for a competing hospital, so I will end up paying more out of pocket if I go there...although it may be worth it if they can help me get rid of it. My husband and I are (were) trying to conceive right about when all this started for me so I feel like a big part of my life is on hold. Once I get the injections I can't try to get pregnant for a minimum of 2 months (and that's assuming only one set of injections fixes the problem *fingers crossed*).

MarieJo

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Re: Steroid injections?

Post  Alana3 on Wed Feb 13, 2013 10:15 pm

Honestly, my doctor is out of network, and it was the greatest decision I have ever made, yeah it's a lot more money- but I'm considered "cured" by them. If they're willing to help and have vulvospecialists, why not? My parents are helping me with this and they were so against it because my doc is out of network, but I just couldn't continue the way I was going, so they helped there too, thank god! My parents even admit that it was money worth spent! UM should have a good gynecology prorgram there, wouldn't hurt to give them a call. My mom's cousin was trying to get me to fly there for it, but luckily I found help here. Very Happy But if the injections work, I guess you won't have to worry about it!

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Re: Steroid injections?

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