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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Vaginismus, Vulvodynia, or Both?

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Vaginismus, Vulvodynia, or Both?

Post  carby148 on Mon Feb 25, 2013 6:55 am

So I only started looking into Vulvodynia after experiencing labia majora pain about four months ago.

But the more I read about it, and the more posts I read on here, I'm wondering if the pain I feel during sexual intercourse is also related.

I've always thought it was Vaginismus, especially because there are certain times when insertion is not painful (although those times are few and far between). I can also insert tampons (although I don't use them), yeast infection medication applicators, and a vibrator without it hurting (although it took me years for that to even happen...as a teen, a tampon or yeast infection medication applicator would have never gone in, and as a young adult, my early pap smears had to be done with scopes made for children).

Sex, for the most part, is painful regardless. The feelings range from not being able to get it in, feeling too small for my husband, general soreness, and burning. If it's particularly rigorous and I do not stop my husband despite the pain, it will burn something fierce for about 10-20 minutes afterward.

In general, it also stings when there is any pressure applied between my inner labia and my clitoris.

So, I'm wondering if I've actually had Vulvodynia for 10+ years and just not known it? Or just suffered from Vaginismus all those years? Or both?

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Re: Vaginismus, Vulvodynia, or Both?

Post  raquelll on Mon Feb 25, 2013 7:58 am

It sounds like Vulvodynia to me, since there is burning. Vaginismus (from what I've heard) is more of a "wall" of hard muscle spasms. I was the same way - I couldn't do tampons really during teen years, could in my 20's, can't again now. The vulvodynia pain also tends to make the muscles tight because they are tightening around the pain. The burning and sensitivity you've had sound mostly like vulvodynia to me.


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Re: Vaginismus, Vulvodynia, or Both?

Post  Alana3 on Mon Feb 25, 2013 3:12 pm

Could be both, I had both, no more vulvodynia, but I def have vainismus now, but I'm working on it, and I literally don't have problems anymore sometimes, when I get close to my period. Ugh damn thing.


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Re: Vaginismus, Vulvodynia, or Both?

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