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Sat May 26, 2018 5:21 pm by Aquaben

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» Cleveland Clinic - Pain Management, Weston, FL
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Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Vaginismus, Vulvodynia, or Both?

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Vaginismus, Vulvodynia, or Both?

Post  carby148 on Mon Feb 25, 2013 6:55 am

So I only started looking into Vulvodynia after experiencing labia majora pain about four months ago.

But the more I read about it, and the more posts I read on here, I'm wondering if the pain I feel during sexual intercourse is also related.

I've always thought it was Vaginismus, especially because there are certain times when insertion is not painful (although those times are few and far between). I can also insert tampons (although I don't use them), yeast infection medication applicators, and a vibrator without it hurting (although it took me years for that to even happen...as a teen, a tampon or yeast infection medication applicator would have never gone in, and as a young adult, my early pap smears had to be done with scopes made for children).

Sex, for the most part, is painful regardless. The feelings range from not being able to get it in, feeling too small for my husband, general soreness, and burning. If it's particularly rigorous and I do not stop my husband despite the pain, it will burn something fierce for about 10-20 minutes afterward.

In general, it also stings when there is any pressure applied between my inner labia and my clitoris.

So, I'm wondering if I've actually had Vulvodynia for 10+ years and just not known it? Or just suffered from Vaginismus all those years? Or both?
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Re: Vaginismus, Vulvodynia, or Both?

Post  raquelll on Mon Feb 25, 2013 7:58 am

It sounds like Vulvodynia to me, since there is burning. Vaginismus (from what I've heard) is more of a "wall" of hard muscle spasms. I was the same way - I couldn't do tampons really during teen years, could in my 20's, can't again now. The vulvodynia pain also tends to make the muscles tight because they are tightening around the pain. The burning and sensitivity you've had sound mostly like vulvodynia to me.

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Re: Vaginismus, Vulvodynia, or Both?

Post  Alana3 on Mon Feb 25, 2013 3:12 pm

Could be both, I had both, no more vulvodynia, but I def have vainismus now, but I'm working on it, and I literally don't have problems anymore sometimes, when I get close to my period. Ugh damn thing.

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Re: Vaginismus, Vulvodynia, or Both?

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