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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Biopsy, OUCH!

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Re: Biopsy, OUCH!

Post  Alana3 on Sun Apr 14, 2013 11:34 pm

Haha yeah right I did everything until I finally did surgery that shit is horrible unbelievable pain

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Re: Biopsy, OUCH!

Post  Kathye10 on Mon Apr 15, 2013 6:57 am

Did the surgery help??
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Re: Biopsy, OUCH!

Post  Alana3 on Mon Apr 15, 2013 11:48 am

Yeah im considered cured now I haven't had sex but done everything else so im good just gotta find the guy. Are you a candidate for surgery?

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Re: Biopsy, OUCH!

Post  Kathye10 on Mon Apr 15, 2013 2:16 pm

Wow, that's great! Not sure yet...this just started a few months ago. Just found a Dr, I think I like finally lol
She's hoping we can somehow reverse it since it's so new to me. How did you get VVS and how long did you have it before the surgery?
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Re: Biopsy, OUCH!

Post  Alana3 on Mon Apr 15, 2013 2:21 pm

I don't know how I got it just started hurting randomly. I waited 5 or so years until I found the doctor who did my surgery. But mine was provoked I only had pain with sex. nothing more.

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Re: Biopsy, OUCH!

Post  Alana3 on Mon Apr 15, 2013 2:25 pm

If it's just been a few months you probably won't be a candidate for a bit. But you never know

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Re: Biopsy, OUCH!

Post  Kathye10 on Mon Apr 15, 2013 2:29 pm

Yeah, my Dr is hoping it's just caused by the bacteria(s) I tested positive for. Crossing my fingers it can be reversed before it gets too bad. Who did your surgery, Goldstein?
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Re: Biopsy, OUCH!

Post  Alana3 on Mon Apr 15, 2013 2:40 pm

No Dr Trabin in Florida. I guess bacteria can cause vv but usually it's not reversible with antibiotics. But what do I know? I got a lot of yeast infections after mono and my vv pain stayed until we cut it out. But I guess everyone is different.

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Re: Biopsy, OUCH!

Post  anonymous12345 on Mon May 13, 2013 7:42 pm

I had a biopsy done and it took months to completely heal... Over 3 months. Though the visible signs were gone, I was still having stinging and tenderness in that area. I did find that putting antibiotic ointment on before bed made it feel better.

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Re: Biopsy, OUCH!

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