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    » Can you guys tell me your experiences with diflucan/Fluconazole?
    Today at 1:29 am by ryn207

    » So frustrating!!
    Today at 1:25 am by ryn207

    » Looking for suggestions or encouragement
    Today at 1:19 am by ryn207

    » Looking for a friend..... and new problems
    Yesterday at 10:00 pm by VVSSufferer

    » Vestibulectomy recovery question!
    Sun Jan 14, 2018 11:37 pm by Kezz

    » Prescription creams that work!
    Sun Jan 14, 2018 4:46 am by Mintaherb

    » Struggling
    Sun Jan 14, 2018 4:29 am by Mintaherb

    » Went Away and Came Back
    Sat Jan 13, 2018 10:56 am by mary jane

    » Amitriptyline given for vulvodyina pain
    Sat Jan 13, 2018 1:39 am by ryn207

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 5

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 11

    7 years later and life looks bleak :(

    Wed Dec 06, 2017 2:50 am by RainyShay77

    So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

    Comments: 7

    Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

    Sun Jan 07, 2018 9:38 am by sophiarp

    Hi everyone,

    I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

    I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

    Comments: 2

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 11

    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Hello,
    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 1

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1


    Has anyone had a biopsy?

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    Has anyone had a biopsy?

    Post  Help!!! on Sun Apr 26, 2015 5:43 pm

    Hello,

    I am new to this website and thankful that I have found it. I am 26 and been suffering with vulvar pain for a year and a half how. I gave tried several things and spent a fortune in lotions and potions and pills to try. I am on amatrictilyine at the minute and some days I don't really feel it. However after sex, exercise or any stress at work then it is very painful and lasts about a week. Without the tablets I am in pain all the time. My dermatologist now thinks we should biopsy the area and investigate. It is on my left labia and i am a bit concerned as what I have read about it sounds very painful. I wondered if anyone else had a biopsy done? My pain is in a small specific area sp hoping they will be successful in removing some of the damaged tissue.

    Thanks x

    Help!!!

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    Re: Has anyone had a biopsy?

    Post  x_chelss@live.com on Sun Apr 26, 2015 10:12 pm

    Hiya. I'm sorry to hear that you are suffering but I'm glad you have found this forum. I've had 5 biopsys taken. 4 around the outside of my vagina, 2 either side of the clit, and then another 2 lower down and then one inside.
    They numb the area and I actually found relief for a small while whilst I had the anaesthetic down in that area. My biopsy found irritation, and imflamation. But they were actually testing for vulvar cancer!

    I hope your biopsy goes well it's nothing to fear!

    x_chelss@live.com

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    Re: Has anyone had a biopsy?

    Post  mikan92 on Mon Apr 27, 2015 3:30 am

    Hi,

    My gynae also told me that if my condition does not show improvement (via natural recovery) in a month's time he will do a biopsy. So I'm also wondering what the biopsy is for, because I seriously do not think that my pain is associated with cancer (it is probably triggered by something!). I am really scared that the operation will make my vulvar more inflamed/worse.

    HElP! how did your vulvar pain start?
    I have pain on my labia too, especially the deepest fold that connects with vestibule. I am confused because I have pain on my vulvar too, but all these are only provoked with pressure and friction. Does this sound like vulvodynia or what?

    mikan92

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    Re: Has anyone had a biopsy?

    Post  x_chelss@live.com on Mon Apr 27, 2015 11:45 am

    Yeah it sounds like vulvodynia. I had the exact same pain your describing, I had the surgery in January and I no longer experience any pain really. I still get the odd sensation off burning but nothing major! I had half off my labia removed because I had pain in the fold as well, my vagina appearance does look different but I'd say it looks better in all honesty.

    My pain started 3 years ago in July, and having the operation was the best thing I'd ever done. My daily life is so much better since.
    I think the trigger for me was rough sex, my parents were away on holiday and my
    Boyfriend was staying with me whilst they were away, we had sex A LOT and over the week it got unbearable! I thought I had thrush but it just got so much worse and the doctors wasn't exactly helpful. Where are you from?

    They test you for everything when having a biopsy, because vulva cancer causes painful intercourse and more symptoms like vulvodynia but my skin around the vestibule changed colour so that's why I had mine tested.

    x_chelss@live.com

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    Re: Has anyone had a biopsy?

    Post  mikan92 on Mon Apr 27, 2015 1:04 pm

    I'm glad that the operation worked for you! It's hard to have a normal life like everyone else with this pain down there Sad

    For your case did the Drs identify a cause to your symptoms? I mean rough sex might have damaged your vulvar tissues, so does that mean the nerves are irritated?
    I really don't like that they just label this condition with something "dynia", I believe there is a cause to all the pain we are experiencing and I think identifying the cause is key to effective treatments. I am living in Australia atm but am not a citizen so doesn't have medicare. It's so expensive & troublesome to see a specialist here (I need referral from all the incompetent GPs who think they know what they are doing but are just slowing down the process of me being diagnosed)!

    I remember telling the gynae how I think the tissue skill looked red after the potent steroid ointment application and he said it looks normal to him (under a high magnifying microscope), not inflamed, not dry. That's why I find it odd that he still wants to do a biopsy. Maybe I'll seek a second opinion from a vulvar specialist instead.

    mikan92

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    Re: Has anyone had a biopsy?

    Post  MensRea on Tue Apr 28, 2015 4:54 pm

    I had biopsy! It wasn't bad experience at all. The biopsy of course showed inflammatory change thus vestibulodynia, which was something i knew from the beginning, but at least it ruled out other diseases.

    MensRea

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    Your case sounds just like mine.

    Post  sweetstarfire on Fri Jul 03, 2015 4:22 pm

    I am 26 as well. I have been dealing with this for 15 months. My dermatologist just did a biopsy last week and he found that my nerves were inlarged. That is when he gave me the diagnosis. It has been a rough road but I am glad I finally have a name for what I have been going through. My pain is always worse in the evenings after a day of moving around. Sex can make it worse. The biopsy wasn't as bad as I thought and it did give me information about my case. I was numb for the biopsy. I felt a little pinch for the numbing and that was it. I was uncomfortable for about a day and a half after the numbing wore off. But could start having sex about two days later. So it didn't really interfere with my day to day.
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    Re: Has anyone had a biopsy?

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