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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Biopsy recovery time?

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Biopsy recovery time?

Post  Tynk00 on Thu Sep 01, 2016 2:07 am

Hi everyone,
I am new here and have been suffering for 4 months. I know that is nothing compared to some women on here. My story starts like most. Was totally fine until one day I got a yeast infection. Went on 14 days of terazol and 4 Diflucan pills over a 1 week period. Yeast cleared, but was left with burning and stinging on right side of my vulva. My Gyno said everything looked normal, but could be skin issue. He then began me on steroid cream after cream. Vulva just got worse. Finally he recommended a biopsy. I had that 7 weeks ago. I am still in so much pain from it!!! It looks healed over excpet for two spongelike holes. Not deep but they are so tender and sore. Sex hurts afterwards, vulvodynia we mentioned, but finally went to my derm. She thinks I overdid it on the creams and I should have used ointments. She said leave it alone and see if it gets better. My issue is the biopsy site kills!! Has anyone had one? If so, how long did it take to heal? I don't know if it's the biopsy or previous issues, but much worse now than before biopsy 7 weeks ago.
Thanks everyone!

Tynk00

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Re: Biopsy recovery time?

Post  CherryTree23 on Thu Sep 01, 2016 5:47 pm

I can't help you with the biopsy recovery time, but I've got burning and redness in V opening, most likely from taking tons of Monistat, steroids and different creams. It's been about a month since I've used any creams and I'm still red! Is anything helping your burning? What did the biopsy say?

CherryTree23

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Re: Biopsy recovery time?

Post  Tynk00 on Thu Sep 01, 2016 6:36 pm

Hi- biopsy came back normal (of course). It looks normal as well, besides the little holes. My derm said never to use creams down there, bc they have tons of alcohol in them which can be drying. Also, it can look normal to untrained eye, but could be a burn or slight rash. Bc it's wet down there takes much longer to heal than on your arm or leg. So frustrating bc my Gyno saw nothing, but this all started after a yeast infection. Btw- I didn't have any burning on vulva even with yeast infection... That started day 10 of the terazol cream and day 3 of my 4 Diflucan.

All I have been doing is soaking in water, rinsing after I pee and using Vaseline... It helps a little bit, but sex really aggravates it. It doesn't hurt to have it, but hurts the next day and for days after. Tight clothing can too. This has been miserable and I'm so scared it will never end. Everyone says time will help, but how much time??? Haha. I'm just not sure if my previous stinging and burning still exist, or the biopsy is causing it now. When I touch the biopsy site with Vaseline, it is very tender and sore and stinging and burning is there. I was really sore from all the steroid creams too.. It's all blending together in one big pain cycle. Hope you feel better soon.

Tynk00

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Re: Biopsy recovery time?

Post  CherryTree23 on Thu Sep 01, 2016 6:51 pm

I've been debating on seeing a derm, all the Obs want to do is give me antibiotics even though I've tested negative for infection! Did you see a specific type of derm? I feel very awkward going to one for this!! Lol! I'm wondering the same, I've used no creams, rinse after urination, but still red and burning! I mean this has been 3 months!! How long could healing really take??

CherryTree23

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Re: Biopsy recovery time?

Post  CherryTree23 on Thu Sep 01, 2016 6:51 pm

I've been debating on seeing a derm, all the Obs want to do is give me antibiotics even though I've tested negative for infection! Did you see a specific type of derm? I feel very awkward going to one for this!! Lol! I'm wondering the same, I've used no creams, rinse after urination, but still red and burning! I mean this has been 3 months!! How long could healing really take??

CherryTree23

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Re: Biopsy recovery time?

Post  Tynk00 on Thu Sep 01, 2016 7:29 pm

I honestly just spoke to my regular derm. It was a long shot, but she seemed super knowledgeable about skin issues down there. I actually have an appointment with a vulva specialist in 2 weeks to see what I can do to fix this.
My gyn basically said he was stumped and I should see a specialist or a derm.. I booked specialist ( took me 2 1/2 months to get in) and just happened to see my derm in the meantime. She was the one who equated biopsy to like having a baby... I had 4 punch biopsies. 2 on inside and 2 on outside 4 stitches... My gyn said sex is fine after 2 weeks my derm was like no wait 2 months like after a baby.. I don't have a baby so I didn't know... Derm said anything down there needs to be alcohol free. She was surprised a gyn would prescribe creams... Ointments only... One thing I haven't tried is estrogen. I'm not on the pill and haven't been for 7 years.. I lost a ton of weight right when I got my yeast infection. I also had the flu.. My periods have been screwy since... Don't know if estrogen drop that fast could cause vulva issue, but apparently estrogen can help rebuild the tissue?? Idk- I will talk to any dr who is willing to help me at this point.

Does sex hurt for you? I know what you mean about the time... Seriously, how long can it take to heal skin? Only thing I can think is it is constantly being rubbed, touched ect by just walking sitting.... Idk.. I'm at a loss and just wonder if it's biopsy or the stupid skin irritation.. I will tell you that the stinging and burning with open wound was similar to what I was experiencing before, so was hoping it was a skin issue.. Just not sure why no one could see it.

Tynk00

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Re: Biopsy recovery time?

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