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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Biopsy recovery time?

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Biopsy recovery time?

Post  Tynk00 on Thu Sep 01, 2016 2:07 am

Hi everyone,
I am new here and have been suffering for 4 months. I know that is nothing compared to some women on here. My story starts like most. Was totally fine until one day I got a yeast infection. Went on 14 days of terazol and 4 Diflucan pills over a 1 week period. Yeast cleared, but was left with burning and stinging on right side of my vulva. My Gyno said everything looked normal, but could be skin issue. He then began me on steroid cream after cream. Vulva just got worse. Finally he recommended a biopsy. I had that 7 weeks ago. I am still in so much pain from it!!! It looks healed over excpet for two spongelike holes. Not deep but they are so tender and sore. Sex hurts afterwards, vulvodynia we mentioned, but finally went to my derm. She thinks I overdid it on the creams and I should have used ointments. She said leave it alone and see if it gets better. My issue is the biopsy site kills!! Has anyone had one? If so, how long did it take to heal? I don't know if it's the biopsy or previous issues, but much worse now than before biopsy 7 weeks ago.
Thanks everyone!

Tynk00

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Re: Biopsy recovery time?

Post  CherryTree23 on Thu Sep 01, 2016 5:47 pm

I can't help you with the biopsy recovery time, but I've got burning and redness in V opening, most likely from taking tons of Monistat, steroids and different creams. It's been about a month since I've used any creams and I'm still red! Is anything helping your burning? What did the biopsy say?

CherryTree23

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Re: Biopsy recovery time?

Post  Tynk00 on Thu Sep 01, 2016 6:36 pm

Hi- biopsy came back normal (of course). It looks normal as well, besides the little holes. My derm said never to use creams down there, bc they have tons of alcohol in them which can be drying. Also, it can look normal to untrained eye, but could be a burn or slight rash. Bc it's wet down there takes much longer to heal than on your arm or leg. So frustrating bc my Gyno saw nothing, but this all started after a yeast infection. Btw- I didn't have any burning on vulva even with yeast infection... That started day 10 of the terazol cream and day 3 of my 4 Diflucan.

All I have been doing is soaking in water, rinsing after I pee and using Vaseline... It helps a little bit, but sex really aggravates it. It doesn't hurt to have it, but hurts the next day and for days after. Tight clothing can too. This has been miserable and I'm so scared it will never end. Everyone says time will help, but how much time??? Haha. I'm just not sure if my previous stinging and burning still exist, or the biopsy is causing it now. When I touch the biopsy site with Vaseline, it is very tender and sore and stinging and burning is there. I was really sore from all the steroid creams too.. It's all blending together in one big pain cycle. Hope you feel better soon.

Tynk00

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Re: Biopsy recovery time?

Post  CherryTree23 on Thu Sep 01, 2016 6:51 pm

I've been debating on seeing a derm, all the Obs want to do is give me antibiotics even though I've tested negative for infection! Did you see a specific type of derm? I feel very awkward going to one for this!! Lol! I'm wondering the same, I've used no creams, rinse after urination, but still red and burning! I mean this has been 3 months!! How long could healing really take??

CherryTree23

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Re: Biopsy recovery time?

Post  CherryTree23 on Thu Sep 01, 2016 6:51 pm

I've been debating on seeing a derm, all the Obs want to do is give me antibiotics even though I've tested negative for infection! Did you see a specific type of derm? I feel very awkward going to one for this!! Lol! I'm wondering the same, I've used no creams, rinse after urination, but still red and burning! I mean this has been 3 months!! How long could healing really take??

CherryTree23

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Re: Biopsy recovery time?

Post  Tynk00 on Thu Sep 01, 2016 7:29 pm

I honestly just spoke to my regular derm. It was a long shot, but she seemed super knowledgeable about skin issues down there. I actually have an appointment with a vulva specialist in 2 weeks to see what I can do to fix this.
My gyn basically said he was stumped and I should see a specialist or a derm.. I booked specialist ( took me 2 1/2 months to get in) and just happened to see my derm in the meantime. She was the one who equated biopsy to like having a baby... I had 4 punch biopsies. 2 on inside and 2 on outside 4 stitches... My gyn said sex is fine after 2 weeks my derm was like no wait 2 months like after a baby.. I don't have a baby so I didn't know... Derm said anything down there needs to be alcohol free. She was surprised a gyn would prescribe creams... Ointments only... One thing I haven't tried is estrogen. I'm not on the pill and haven't been for 7 years.. I lost a ton of weight right when I got my yeast infection. I also had the flu.. My periods have been screwy since... Don't know if estrogen drop that fast could cause vulva issue, but apparently estrogen can help rebuild the tissue?? Idk- I will talk to any dr who is willing to help me at this point.

Does sex hurt for you? I know what you mean about the time... Seriously, how long can it take to heal skin? Only thing I can think is it is constantly being rubbed, touched ect by just walking sitting.... Idk.. I'm at a loss and just wonder if it's biopsy or the stupid skin irritation.. I will tell you that the stinging and burning with open wound was similar to what I was experiencing before, so was hoping it was a skin issue.. Just not sure why no one could see it.

Tynk00

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