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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


Biopsy recovery time?

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Biopsy recovery time?

Post  Tynk00 on Thu Sep 01, 2016 2:07 am

Hi everyone,
I am new here and have been suffering for 4 months. I know that is nothing compared to some women on here. My story starts like most. Was totally fine until one day I got a yeast infection. Went on 14 days of terazol and 4 Diflucan pills over a 1 week period. Yeast cleared, but was left with burning and stinging on right side of my vulva. My Gyno said everything looked normal, but could be skin issue. He then began me on steroid cream after cream. Vulva just got worse. Finally he recommended a biopsy. I had that 7 weeks ago. I am still in so much pain from it!!! It looks healed over excpet for two spongelike holes. Not deep but they are so tender and sore. Sex hurts afterwards, vulvodynia we mentioned, but finally went to my derm. She thinks I overdid it on the creams and I should have used ointments. She said leave it alone and see if it gets better. My issue is the biopsy site kills!! Has anyone had one? If so, how long did it take to heal? I don't know if it's the biopsy or previous issues, but much worse now than before biopsy 7 weeks ago.
Thanks everyone!

Tynk00

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Re: Biopsy recovery time?

Post  CherryTree23 on Thu Sep 01, 2016 5:47 pm

I can't help you with the biopsy recovery time, but I've got burning and redness in V opening, most likely from taking tons of Monistat, steroids and different creams. It's been about a month since I've used any creams and I'm still red! Is anything helping your burning? What did the biopsy say?

CherryTree23

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Re: Biopsy recovery time?

Post  Tynk00 on Thu Sep 01, 2016 6:36 pm

Hi- biopsy came back normal (of course). It looks normal as well, besides the little holes. My derm said never to use creams down there, bc they have tons of alcohol in them which can be drying. Also, it can look normal to untrained eye, but could be a burn or slight rash. Bc it's wet down there takes much longer to heal than on your arm or leg. So frustrating bc my Gyno saw nothing, but this all started after a yeast infection. Btw- I didn't have any burning on vulva even with yeast infection... That started day 10 of the terazol cream and day 3 of my 4 Diflucan.

All I have been doing is soaking in water, rinsing after I pee and using Vaseline... It helps a little bit, but sex really aggravates it. It doesn't hurt to have it, but hurts the next day and for days after. Tight clothing can too. This has been miserable and I'm so scared it will never end. Everyone says time will help, but how much time??? Haha. I'm just not sure if my previous stinging and burning still exist, or the biopsy is causing it now. When I touch the biopsy site with Vaseline, it is very tender and sore and stinging and burning is there. I was really sore from all the steroid creams too.. It's all blending together in one big pain cycle. Hope you feel better soon.

Tynk00

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Re: Biopsy recovery time?

Post  CherryTree23 on Thu Sep 01, 2016 6:51 pm

I've been debating on seeing a derm, all the Obs want to do is give me antibiotics even though I've tested negative for infection! Did you see a specific type of derm? I feel very awkward going to one for this!! Lol! I'm wondering the same, I've used no creams, rinse after urination, but still red and burning! I mean this has been 3 months!! How long could healing really take??

CherryTree23

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Re: Biopsy recovery time?

Post  CherryTree23 on Thu Sep 01, 2016 6:51 pm

I've been debating on seeing a derm, all the Obs want to do is give me antibiotics even though I've tested negative for infection! Did you see a specific type of derm? I feel very awkward going to one for this!! Lol! I'm wondering the same, I've used no creams, rinse after urination, but still red and burning! I mean this has been 3 months!! How long could healing really take??

CherryTree23

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Re: Biopsy recovery time?

Post  Tynk00 on Thu Sep 01, 2016 7:29 pm

I honestly just spoke to my regular derm. It was a long shot, but she seemed super knowledgeable about skin issues down there. I actually have an appointment with a vulva specialist in 2 weeks to see what I can do to fix this.
My gyn basically said he was stumped and I should see a specialist or a derm.. I booked specialist ( took me 2 1/2 months to get in) and just happened to see my derm in the meantime. She was the one who equated biopsy to like having a baby... I had 4 punch biopsies. 2 on inside and 2 on outside 4 stitches... My gyn said sex is fine after 2 weeks my derm was like no wait 2 months like after a baby.. I don't have a baby so I didn't know... Derm said anything down there needs to be alcohol free. She was surprised a gyn would prescribe creams... Ointments only... One thing I haven't tried is estrogen. I'm not on the pill and haven't been for 7 years.. I lost a ton of weight right when I got my yeast infection. I also had the flu.. My periods have been screwy since... Don't know if estrogen drop that fast could cause vulva issue, but apparently estrogen can help rebuild the tissue?? Idk- I will talk to any dr who is willing to help me at this point.

Does sex hurt for you? I know what you mean about the time... Seriously, how long can it take to heal skin? Only thing I can think is it is constantly being rubbed, touched ect by just walking sitting.... Idk.. I'm at a loss and just wonder if it's biopsy or the stupid skin irritation.. I will tell you that the stinging and burning with open wound was similar to what I was experiencing before, so was hoping it was a skin issue.. Just not sure why no one could see it.

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Re: Biopsy recovery time?

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