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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Vaginal Dilators
3 posters
Page 1 of 1
Vaginal Dilators
Hi,
I'm a new member, I'm 21 and been living with vulva pain for just over three years and I joined to ask a specific question about vaginal dilators. I was given them only yesterday as I have not been able to cure my pain with medication. My doctor suggested that I used dilators to learn to cope with the pain (I will also be starting therapy soon). The first time I used the dilators I managed to use the first three sizes with absolutely no pain or discomfort. The 4th size, which is fairly big, I was also able to use without pain it just felt very uncomfortable. The next time I used them I went straight back to the 4th size and it was very painful and I could only get around halfway. Has anyone else experienced this or have any suggestions as to why this might be? Does this suggest perhaps that my symptoms are partly psychological? And how should I continue to use them?
Would be really interested to hear other people's experiences as I've never met anyone with this condition before.
Thanks!
I'm a new member, I'm 21 and been living with vulva pain for just over three years and I joined to ask a specific question about vaginal dilators. I was given them only yesterday as I have not been able to cure my pain with medication. My doctor suggested that I used dilators to learn to cope with the pain (I will also be starting therapy soon). The first time I used the dilators I managed to use the first three sizes with absolutely no pain or discomfort. The 4th size, which is fairly big, I was also able to use without pain it just felt very uncomfortable. The next time I used them I went straight back to the 4th size and it was very painful and I could only get around halfway. Has anyone else experienced this or have any suggestions as to why this might be? Does this suggest perhaps that my symptoms are partly psychological? And how should I continue to use them?
Would be really interested to hear other people's experiences as I've never met anyone with this condition before.
Thanks!
sky502- Posts : 1
Join date : 2013-04-25
Age : 32
Location : York, UK
Re: Vaginal Dilators
Hi there,
I get the same thing to, I don't think this means it is psychological. By using the smaller dilators and moving up slowly, you are showing the muscles where to go and lowering the pelvic floor gradually, giving the vagina more space. My therapist described it as your muscles are on the third floor you need to come down the ground floor. I am assuming you have a tight, lost pelvic floor like mine, it snaps back to a contracted position rather than relaxed. By going in with the larger dilator straight away the pain is present as the muscles haven't slowly been shown how to relax and lower (an unnatural state for girls like us), their go-to position is tight and contracted one, obstructing the vaginal opening and deeper in.
That is good you are going to a therapist too. I would avoid pain by starting with the smaller one then moving up. That way you are telling your brain that having something in your vagina is not a pain situation. Same thing happens with any type of pain not just vulvodynia! Pain=avoid to our brain. Once you are in the larger dilator with no pain imagine in your mind where you pelvic floor muscles are and try to replicate this next time. Use a deep inhalation breath to lower the pelvic floor helps. That's what I have been told to do, your therapist might say different based on your case
Hope that helps!
I get the same thing to, I don't think this means it is psychological. By using the smaller dilators and moving up slowly, you are showing the muscles where to go and lowering the pelvic floor gradually, giving the vagina more space. My therapist described it as your muscles are on the third floor you need to come down the ground floor. I am assuming you have a tight, lost pelvic floor like mine, it snaps back to a contracted position rather than relaxed. By going in with the larger dilator straight away the pain is present as the muscles haven't slowly been shown how to relax and lower (an unnatural state for girls like us), their go-to position is tight and contracted one, obstructing the vaginal opening and deeper in.
That is good you are going to a therapist too. I would avoid pain by starting with the smaller one then moving up. That way you are telling your brain that having something in your vagina is not a pain situation. Same thing happens with any type of pain not just vulvodynia! Pain=avoid to our brain. Once you are in the larger dilator with no pain imagine in your mind where you pelvic floor muscles are and try to replicate this next time. Use a deep inhalation breath to lower the pelvic floor helps. That's what I have been told to do, your therapist might say different based on your case
Hope that helps!
cba321- Posts : 69
Join date : 2012-07-14
Re: Vaginal Dilators
I have been using dilators since around august. I don't think your pain is psychological. If your doctor ever tells you the pain is all in your head I'd stop seeing them. This pain is very real and very painful. It sounds like we have similar issues "down there". I have a tight pelvic floor. When I first started using dilators it didn't hurt so much as felt like a lot of pressure happening down there. I had never put anything larger than a finger in there so it felt very different. Now I can use the largest size in my set no problem. It takes a while though. My doctor instructed me to use 2 sizes at a time for 10 minutes every night before bed. I'd use the smallest one for 7 minutes and then the next size up for 3 minutes going around and around. Then after a week I'd go up a size and repeat the same steps. After about a month or 2 I was up to the largest size pain free. Don't rush yourself to get up to that big size. You need time for your muscles to adjust to the change. Take your time and you will get good results. Eventually the pain won't be as bad. I had surgery to correct this last summer which took away the initial pain, but the dilators got me feeling 100% normal. Make sure you stay consistant with it. I'm a full time college student and often get too busy to dilate every night. Right now I'm in pain for not having used them in about 2 months . I'm slowly trying to get back into the swing of things since school will be out soon. Anyway I hope I was of some help! If you ever have any questions let me know!
-Jen
-Jen
jen007- Posts : 152
Join date : 2012-11-05
Age : 31
Location : U.S.A
Similar topics
» Dilators for trigger points
» explains simply pelvic floor, pudendal nerve and dilator stuff!
» Having trouble with the dilators
» explains simply pelvic floor, pudendal nerve and dilator stuff!
» Having trouble with the dilators
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer