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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Another PFD question....

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Another PFD question....

Post  Kathye10 on Tue May 07, 2013 3:06 am

Did your PT or Physio give you a time frame of how long it would take to heal you? I know everyone's physical issues are different, but curious as to how long the process is, or might be.

Hope everyone is having a minimal pain day I love you
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Re: Another PFD question....

Post  Alana3 on Tue May 07, 2013 10:40 am

They probably won't tell you a time lol it's physical therapy everyone is different some can't be helped some respond right away

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Re: Another PFD question....

Post  Kathy100 on Tue May 07, 2013 11:24 am

Hi Kathy,

No she hasn't so far. She found loads of trigger points in my back, hips and legs. The pain management consultant I see who referred me to her warned me it could be a "long, hard slog"! I have been 4 times & she was pleased with progress so she left a longer gap between sessions this time 3 weeks & the pain in my back & hips is flaring up again...I go back tomorrow.

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Re: Another PFD question....

Post  Sarah001 on Tue May 07, 2013 5:32 pm

With my additional connective tissue problem I've been told to expect it to be years rather than months. Most of the women I've spoken to who've recovered with physio have taken about 6-9 months of regular sessions and homework in between but as the others said it varies so there's no definite answer.
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Re: Another PFD question....

Post  Kathye10 on Tue May 07, 2013 6:52 pm

Thank you gals for responding. Can you ladies wear tampons comfortably or no?
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Re: Another PFD question....

Post  Alana3 on Tue May 07, 2013 7:20 pm

Probably I could, but I choose not to its really disgusting to me. That shit is supposed to come out not stay in just not really hygenic to me if you really think about it. I don't want cotton shoved up there for hours at a time. Gross!

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Re: Another PFD question....

Post  Sarah001 on Tue May 07, 2013 8:17 pm

Not really but tampons tend to give me yeast infections anyway so I haven't used them regularly for years for that reason
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Re: Another PFD question....

Post  Alana3 on Tue May 07, 2013 8:45 pm

Tampons are so disgusting not that sitting in a pool of blood is any better but really your body is shedding toxins and you're keeping them in yuck yuck yuck!!!! Sorry it just really grosses me out!

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Re: Another PFD question....

Post  Kathye10 on Tue May 07, 2013 9:53 pm

LOL Tell us how you REALLY feel Alana! I can't wear pads, so I have to use tampons, although they can be uncomfortable, the pads rub me raw Sad
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Re: Another PFD question....

Post  Alana3 on Wed May 08, 2013 12:36 am

Sorry im pretty blunt lol try the natural pads you buy at wholefoods they may be better for you I hate having a period like really what part about being a girl doesn't suck Hmph my period tho Is light and only lasts about two days so I guess if it were longer is be rubbed raw too. Fucking pads (excuse my French) but why don't they come up with something that doesn't suck like for example a cure for periods? Can you tell I've thought about this for a while ger!

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Re: Another PFD question....

Post  Kathye10 on Wed May 08, 2013 1:45 am

Lol They do have a cure, a hysterectomy! But that brings on more problems. I'd just be glad to have my periods as they are but before all this bullshit happened. I already told my friends not to complain about their cramps to me because I have no sympathy, or my friends who are married and complain about their hubby's wanting sex. I'd do anything to have that normalcy back. Sad
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Re: Another PFD question....

Post  Alana3 on Wed May 08, 2013 11:33 am

Haha I just want a normal guy you'll figure it out tho

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Re: Another PFD question....

Post  Kathye10 on Wed May 08, 2013 2:31 pm

Oh yeah, I forgot about that. Men can be ridiculous lol
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Re: Another PFD question....

Post  Alana3 on Wed May 08, 2013 5:35 pm

I would kill for a hysterectomy, I want to sooooo badly you have no idea. I even went as far as skipping periods, but it's not a good idea as I develop boobie cysts. Being a woman SUCKS!

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Re: Another PFD question....

Post  Kathye10 on Wed May 08, 2013 7:03 pm

Seriously. I'm over it. I think what's annoying me more than anything now, is that this all started with sex with a new guy. He's walking around FINE right now and I've been suffering for the past 6 months AND he's a total jerk. (My fault for picking an A-hole)...lol Although it would be totally misplaced blame, I'd love to kick him in the balls, everyday for the next 6 months Very Happy
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Re: Another PFD question....

Post  Takver on Wed Sep 11, 2013 12:23 pm

Try reusable cloth pads. Far, far more comfortable than those horrible disposables. Washing them isn't that big a deal either.
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Re: Another PFD question....

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