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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Another PFD question....

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Another PFD question....

Post  Kathye10 on Tue May 07, 2013 3:06 am

Did your PT or Physio give you a time frame of how long it would take to heal you? I know everyone's physical issues are different, but curious as to how long the process is, or might be.

Hope everyone is having a minimal pain day I love you
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Re: Another PFD question....

Post  Alana3 on Tue May 07, 2013 10:40 am

They probably won't tell you a time lol it's physical therapy everyone is different some can't be helped some respond right away

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Re: Another PFD question....

Post  Kathy100 on Tue May 07, 2013 11:24 am

Hi Kathy,

No she hasn't so far. She found loads of trigger points in my back, hips and legs. The pain management consultant I see who referred me to her warned me it could be a "long, hard slog"! I have been 4 times & she was pleased with progress so she left a longer gap between sessions this time 3 weeks & the pain in my back & hips is flaring up again...I go back tomorrow.

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Re: Another PFD question....

Post  Sarah001 on Tue May 07, 2013 5:32 pm

With my additional connective tissue problem I've been told to expect it to be years rather than months. Most of the women I've spoken to who've recovered with physio have taken about 6-9 months of regular sessions and homework in between but as the others said it varies so there's no definite answer.
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Re: Another PFD question....

Post  Kathye10 on Tue May 07, 2013 6:52 pm

Thank you gals for responding. Can you ladies wear tampons comfortably or no?
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Re: Another PFD question....

Post  Alana3 on Tue May 07, 2013 7:20 pm

Probably I could, but I choose not to its really disgusting to me. That shit is supposed to come out not stay in just not really hygenic to me if you really think about it. I don't want cotton shoved up there for hours at a time. Gross!

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Re: Another PFD question....

Post  Sarah001 on Tue May 07, 2013 8:17 pm

Not really but tampons tend to give me yeast infections anyway so I haven't used them regularly for years for that reason
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Re: Another PFD question....

Post  Alana3 on Tue May 07, 2013 8:45 pm

Tampons are so disgusting not that sitting in a pool of blood is any better but really your body is shedding toxins and you're keeping them in yuck yuck yuck!!!! Sorry it just really grosses me out!

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Re: Another PFD question....

Post  Kathye10 on Tue May 07, 2013 9:53 pm

LOL Tell us how you REALLY feel Alana! I can't wear pads, so I have to use tampons, although they can be uncomfortable, the pads rub me raw Sad
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Re: Another PFD question....

Post  Alana3 on Wed May 08, 2013 12:36 am

Sorry im pretty blunt lol try the natural pads you buy at wholefoods they may be better for you I hate having a period like really what part about being a girl doesn't suck Hmph my period tho Is light and only lasts about two days so I guess if it were longer is be rubbed raw too. Fucking pads (excuse my French) but why don't they come up with something that doesn't suck like for example a cure for periods? Can you tell I've thought about this for a while ger!

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Re: Another PFD question....

Post  Kathye10 on Wed May 08, 2013 1:45 am

Lol They do have a cure, a hysterectomy! But that brings on more problems. I'd just be glad to have my periods as they are but before all this bullshit happened. I already told my friends not to complain about their cramps to me because I have no sympathy, or my friends who are married and complain about their hubby's wanting sex. I'd do anything to have that normalcy back. Sad
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Re: Another PFD question....

Post  Alana3 on Wed May 08, 2013 11:33 am

Haha I just want a normal guy you'll figure it out tho

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Re: Another PFD question....

Post  Kathye10 on Wed May 08, 2013 2:31 pm

Oh yeah, I forgot about that. Men can be ridiculous lol
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Re: Another PFD question....

Post  Alana3 on Wed May 08, 2013 5:35 pm

I would kill for a hysterectomy, I want to sooooo badly you have no idea. I even went as far as skipping periods, but it's not a good idea as I develop boobie cysts. Being a woman SUCKS!

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Re: Another PFD question....

Post  Kathye10 on Wed May 08, 2013 7:03 pm

Seriously. I'm over it. I think what's annoying me more than anything now, is that this all started with sex with a new guy. He's walking around FINE right now and I've been suffering for the past 6 months AND he's a total jerk. (My fault for picking an A-hole)...lol Although it would be totally misplaced blame, I'd love to kick him in the balls, everyday for the next 6 months Very Happy
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Re: Another PFD question....

Post  Takver on Wed Sep 11, 2013 12:23 pm

Try reusable cloth pads. Far, far more comfortable than those horrible disposables. Washing them isn't that big a deal either.
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Re: Another PFD question....

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