Log in

I forgot my password

Latest topics
Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


Another PFD question....

View previous topic View next topic Go down

Another PFD question....

Post  Kathye10 on Tue May 07, 2013 3:06 am

Did your PT or Physio give you a time frame of how long it would take to heal you? I know everyone's physical issues are different, but curious as to how long the process is, or might be.

Hope everyone is having a minimal pain day I love you
avatar
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

View user profile

Back to top Go down

Re: Another PFD question....

Post  Alana3 on Tue May 07, 2013 10:40 am

They probably won't tell you a time lol it's physical therapy everyone is different some can't be helped some respond right away

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Another PFD question....

Post  Kathy100 on Tue May 07, 2013 11:24 am

Hi Kathy,

No she hasn't so far. She found loads of trigger points in my back, hips and legs. The pain management consultant I see who referred me to her warned me it could be a "long, hard slog"! I have been 4 times & she was pleased with progress so she left a longer gap between sessions this time 3 weeks & the pain in my back & hips is flaring up again...I go back tomorrow.

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Another PFD question....

Post  Sarah001 on Tue May 07, 2013 5:32 pm

With my additional connective tissue problem I've been told to expect it to be years rather than months. Most of the women I've spoken to who've recovered with physio have taken about 6-9 months of regular sessions and homework in between but as the others said it varies so there's no definite answer.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Another PFD question....

Post  Kathye10 on Tue May 07, 2013 6:52 pm

Thank you gals for responding. Can you ladies wear tampons comfortably or no?
avatar
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

View user profile

Back to top Go down

Re: Another PFD question....

Post  Alana3 on Tue May 07, 2013 7:20 pm

Probably I could, but I choose not to its really disgusting to me. That shit is supposed to come out not stay in just not really hygenic to me if you really think about it. I don't want cotton shoved up there for hours at a time. Gross!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Another PFD question....

Post  Sarah001 on Tue May 07, 2013 8:17 pm

Not really but tampons tend to give me yeast infections anyway so I haven't used them regularly for years for that reason
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Another PFD question....

Post  Alana3 on Tue May 07, 2013 8:45 pm

Tampons are so disgusting not that sitting in a pool of blood is any better but really your body is shedding toxins and you're keeping them in yuck yuck yuck!!!! Sorry it just really grosses me out!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Another PFD question....

Post  Kathye10 on Tue May 07, 2013 9:53 pm

LOL Tell us how you REALLY feel Alana! I can't wear pads, so I have to use tampons, although they can be uncomfortable, the pads rub me raw Sad
avatar
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

View user profile

Back to top Go down

Re: Another PFD question....

Post  Alana3 on Wed May 08, 2013 12:36 am

Sorry im pretty blunt lol try the natural pads you buy at wholefoods they may be better for you I hate having a period like really what part about being a girl doesn't suck Hmph my period tho Is light and only lasts about two days so I guess if it were longer is be rubbed raw too. Fucking pads (excuse my French) but why don't they come up with something that doesn't suck like for example a cure for periods? Can you tell I've thought about this for a while ger!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Another PFD question....

Post  Kathye10 on Wed May 08, 2013 1:45 am

Lol They do have a cure, a hysterectomy! But that brings on more problems. I'd just be glad to have my periods as they are but before all this bullshit happened. I already told my friends not to complain about their cramps to me because I have no sympathy, or my friends who are married and complain about their hubby's wanting sex. I'd do anything to have that normalcy back. Sad
avatar
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

View user profile

Back to top Go down

Re: Another PFD question....

Post  Alana3 on Wed May 08, 2013 11:33 am

Haha I just want a normal guy you'll figure it out tho

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Another PFD question....

Post  Kathye10 on Wed May 08, 2013 2:31 pm

Oh yeah, I forgot about that. Men can be ridiculous lol
avatar
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

View user profile

Back to top Go down

Re: Another PFD question....

Post  Alana3 on Wed May 08, 2013 5:35 pm

I would kill for a hysterectomy, I want to sooooo badly you have no idea. I even went as far as skipping periods, but it's not a good idea as I develop boobie cysts. Being a woman SUCKS!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Another PFD question....

Post  Kathye10 on Wed May 08, 2013 7:03 pm

Seriously. I'm over it. I think what's annoying me more than anything now, is that this all started with sex with a new guy. He's walking around FINE right now and I've been suffering for the past 6 months AND he's a total jerk. (My fault for picking an A-hole)...lol Although it would be totally misplaced blame, I'd love to kick him in the balls, everyday for the next 6 months Very Happy
avatar
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

View user profile

Back to top Go down

Re: Another PFD question....

Post  Takver on Wed Sep 11, 2013 12:23 pm

Try reusable cloth pads. Far, far more comfortable than those horrible disposables. Washing them isn't that big a deal either.
avatar
Takver

Posts : 41
Join date : 2013-09-11
Location : UK

View user profile

Back to top Go down

Re: Another PFD question....

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum