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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


difficult to treat vaginal infections, un-understanding docotrs

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difficult to treat vaginal infections, un-understanding docotrs

Post  mushroomvisionlala on Mon Oct 07, 2013 6:11 pm

Even a simple yeast infection can be hard to treat especially if you have a condition called CANDIDA. please google..please research...

and even Bacterial Vaginosis, and Vaginitis can be hard to get rid of, and doctors can sometimes be backwards and uncaring. Bacterial and fungal resistance is also a problem now these days.
If you google "bacterial vaginosis that wont go away", or "yeast infection from Hell that never goes away", you'll see countless posts from women who have this problem.
Doctors dont like to do aggressive treatment, and will give you the brush off before trying.

mushroomvisionlala

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probiotics, threelac, Femdophilus

Post  mushroomvisionlala on Mon Oct 07, 2013 6:17 pm

Candida, I think has been my problem this whole time, my whole life. I realize this now, as I thought painful sex, and to feel raw and irritated for days after was normal too. Its not.

Some people have systematic candida or fungal overgrowth in their gut. Please research. It will often manifest as skin rash, joint muscle pain fatigue, brain fog,and VAGINAL infections, oral thrush, etc.
It requires change of diet, limited sugar and carb intake and massive amounts of probiotics, such as sour krout, yogurt, kefir, acidophilus pills, multi strain probiotics, (friendly bacteria). Kombucha Mushroom products, etc, etc. Radical change of lifestyle and antifungals like Nystatin and Diflucan.

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Re: difficult to treat vaginal infections, un-understanding docotrs

Post  tinkerbelle2 on Mon Oct 07, 2013 6:48 pm

mushroomvisionlala wrote:Candida, I think has been my problem this whole time, my whole life. I realize this now, as I thought painful sex, and to feel raw and irritated for days after was normal too. Its not.

Some people have systematic candida or fungal overgrowth in their gut. Please research. It will often manifest as skin rash, joint muscle pain fatigue, brain fog,and VAGINAL infections, oral thrush, etc.
It requires change of diet, limited sugar and carb intake and massive amounts of probiotics, such as sour krout, yogurt, kefir, acidophilus pills, multi strain probiotics, (friendly bacteria). Kombucha Mushroom products, etc, etc. Radical change of lifestyle and antifungals like Nystatin and Diflucan.
Hey girl, have you managed to get rid of it now? And is there a way to find if you do have this in your gut.

I hate when swabs come back negative and they don't think anything is wrong so they kind of sit there looking at you awkwardly and have nothing to suggest. If one doctor saw all of us women, they'd realise something has to be done! Shocked 
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Re: difficult to treat vaginal infections, un-understanding docotrs

Post  Alana3 on Mon Oct 07, 2013 7:47 pm

Most yeast infections are candida... I got rid of mine by process of elimination I tried everything finally I removed my probiotic and havent had one knock on wood in a few weeks was literally getting them once a week they wouldnt go away

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Re: difficult to treat vaginal infections, un-understanding docotrs

Post  mary jane on Tue Oct 29, 2013 7:37 pm

I agree with you mushroom, I've also always wondered if it was normal to have pain upon entry with sex.
I'll try the anti-candida diet plus some optibac
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Re: Mis-Diagnosis?

Post  RainyShay77 on Wed Dec 06, 2017 2:52 am

Did yours go away after using Diflucan? That seems to be the only thing that ever takes my symptoms away, but once I stop using it they come back. I used it three separate times daily for 2 weeks and felt 90% better...until about a week or so after then the symptoms came back.

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Re: difficult to treat vaginal infections, un-understanding docotrs

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