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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


difficult to treat vaginal infections, un-understanding docotrs

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difficult to treat vaginal infections, un-understanding docotrs

Post  mushroomvisionlala on Mon Oct 07, 2013 6:11 pm

Even a simple yeast infection can be hard to treat especially if you have a condition called CANDIDA. please google..please research...

and even Bacterial Vaginosis, and Vaginitis can be hard to get rid of, and doctors can sometimes be backwards and uncaring. Bacterial and fungal resistance is also a problem now these days.
If you google "bacterial vaginosis that wont go away", or "yeast infection from Hell that never goes away", you'll see countless posts from women who have this problem.
Doctors dont like to do aggressive treatment, and will give you the brush off before trying.

mushroomvisionlala

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probiotics, threelac, Femdophilus

Post  mushroomvisionlala on Mon Oct 07, 2013 6:17 pm

Candida, I think has been my problem this whole time, my whole life. I realize this now, as I thought painful sex, and to feel raw and irritated for days after was normal too. Its not.

Some people have systematic candida or fungal overgrowth in their gut. Please research. It will often manifest as skin rash, joint muscle pain fatigue, brain fog,and VAGINAL infections, oral thrush, etc.
It requires change of diet, limited sugar and carb intake and massive amounts of probiotics, such as sour krout, yogurt, kefir, acidophilus pills, multi strain probiotics, (friendly bacteria). Kombucha Mushroom products, etc, etc. Radical change of lifestyle and antifungals like Nystatin and Diflucan.

mushroomvisionlala

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Re: difficult to treat vaginal infections, un-understanding docotrs

Post  tinkerbelle2 on Mon Oct 07, 2013 6:48 pm

mushroomvisionlala wrote:Candida, I think has been my problem this whole time, my whole life. I realize this now, as I thought painful sex, and to feel raw and irritated for days after was normal too. Its not.

Some people have systematic candida or fungal overgrowth in their gut. Please research. It will often manifest as skin rash, joint muscle pain fatigue, brain fog,and VAGINAL infections, oral thrush, etc.
It requires change of diet, limited sugar and carb intake and massive amounts of probiotics, such as sour krout, yogurt, kefir, acidophilus pills, multi strain probiotics, (friendly bacteria). Kombucha Mushroom products, etc, etc. Radical change of lifestyle and antifungals like Nystatin and Diflucan.
Hey girl, have you managed to get rid of it now? And is there a way to find if you do have this in your gut.

I hate when swabs come back negative and they don't think anything is wrong so they kind of sit there looking at you awkwardly and have nothing to suggest. If one doctor saw all of us women, they'd realise something has to be done! Shocked 
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Re: difficult to treat vaginal infections, un-understanding docotrs

Post  Alana3 on Mon Oct 07, 2013 7:47 pm

Most yeast infections are candida... I got rid of mine by process of elimination I tried everything finally I removed my probiotic and havent had one knock on wood in a few weeks was literally getting them once a week they wouldnt go away

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Re: difficult to treat vaginal infections, un-understanding docotrs

Post  mary jane on Tue Oct 29, 2013 7:37 pm

I agree with you mushroom, I've also always wondered if it was normal to have pain upon entry with sex.
I'll try the anti-candida diet plus some optibac
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Re: Mis-Diagnosis?

Post  RainyShay77 on Wed Dec 06, 2017 2:52 am

Did yours go away after using Diflucan? That seems to be the only thing that ever takes my symptoms away, but once I stop using it they come back. I used it three separate times daily for 2 weeks and felt 90% better...until about a week or so after then the symptoms came back.

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Re: difficult to treat vaginal infections, un-understanding docotrs

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