Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 10

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


difficult to treat vaginal infections, un-understanding docotrs

Go down

difficult to treat vaginal infections, un-understanding docotrs

Post  mushroomvisionlala on Mon Oct 07, 2013 6:11 pm

Even a simple yeast infection can be hard to treat especially if you have a condition called CANDIDA. please google..please research...

and even Bacterial Vaginosis, and Vaginitis can be hard to get rid of, and doctors can sometimes be backwards and uncaring. Bacterial and fungal resistance is also a problem now these days.
If you google "bacterial vaginosis that wont go away", or "yeast infection from Hell that never goes away", you'll see countless posts from women who have this problem.
Doctors dont like to do aggressive treatment, and will give you the brush off before trying.

mushroomvisionlala

Posts : 10
Join date : 2013-09-27

View user profile

Back to top Go down

probiotics, threelac, Femdophilus

Post  mushroomvisionlala on Mon Oct 07, 2013 6:17 pm

Candida, I think has been my problem this whole time, my whole life. I realize this now, as I thought painful sex, and to feel raw and irritated for days after was normal too. Its not.

Some people have systematic candida or fungal overgrowth in their gut. Please research. It will often manifest as skin rash, joint muscle pain fatigue, brain fog,and VAGINAL infections, oral thrush, etc.
It requires change of diet, limited sugar and carb intake and massive amounts of probiotics, such as sour krout, yogurt, kefir, acidophilus pills, multi strain probiotics, (friendly bacteria). Kombucha Mushroom products, etc, etc. Radical change of lifestyle and antifungals like Nystatin and Diflucan.

mushroomvisionlala

Posts : 10
Join date : 2013-09-27

View user profile

Back to top Go down

Re: difficult to treat vaginal infections, un-understanding docotrs

Post  tinkerbelle2 on Mon Oct 07, 2013 6:48 pm

mushroomvisionlala wrote:Candida, I think has been my problem this whole time, my whole life. I realize this now, as I thought painful sex, and to feel raw and irritated for days after was normal too. Its not.

Some people have systematic candida or fungal overgrowth in their gut. Please research. It will often manifest as skin rash, joint muscle pain fatigue, brain fog,and VAGINAL infections, oral thrush, etc.
It requires change of diet, limited sugar and carb intake and massive amounts of probiotics, such as sour krout, yogurt, kefir, acidophilus pills, multi strain probiotics, (friendly bacteria). Kombucha Mushroom products, etc, etc. Radical change of lifestyle and antifungals like Nystatin and Diflucan.
Hey girl, have you managed to get rid of it now? And is there a way to find if you do have this in your gut.

I hate when swabs come back negative and they don't think anything is wrong so they kind of sit there looking at you awkwardly and have nothing to suggest. If one doctor saw all of us women, they'd realise something has to be done! Shocked 
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 26
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: difficult to treat vaginal infections, un-understanding docotrs

Post  Alana3 on Mon Oct 07, 2013 7:47 pm

Most yeast infections are candida... I got rid of mine by process of elimination I tried everything finally I removed my probiotic and havent had one knock on wood in a few weeks was literally getting them once a week they wouldnt go away

Alana3

Posts : 1093
Join date : 2012-09-25

View user profile

Back to top Go down

Re: difficult to treat vaginal infections, un-understanding docotrs

Post  mary jane on Tue Oct 29, 2013 7:37 pm

I agree with you mushroom, I've also always wondered if it was normal to have pain upon entry with sex.
I'll try the anti-candida diet plus some optibac
avatar
mary jane

Posts : 335
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Mis-Diagnosis?

Post  RainyShay77 on Wed Dec 06, 2017 2:52 am

Did yours go away after using Diflucan? That seems to be the only thing that ever takes my symptoms away, but once I stop using it they come back. I used it three separate times daily for 2 weeks and felt 90% better...until about a week or so after then the symptoms came back.

RainyShay77

Posts : 7
Join date : 2017-12-06

View user profile

Back to top Go down

Re: difficult to treat vaginal infections, un-understanding docotrs

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum