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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New here and need some advice to deal with it emotionally.

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New here and need some advice to deal with it emotionally.

Post  soleil on Sat Nov 02, 2013 5:23 am

Hi all,

It has been a bit more than a year that I have "V" or a condition similar to it.
It started while I was in a long-term relationship (3 years). The 1st symptom was that when we were having sex I had the urge to go to the toilet and later on it was burning and sex became impossible.
I've seen many different doctor and did many different test and they think that I have "V" or something similar.
I will skip all the negative experiences of doctor telling me that I had herpes or that it was all in my head.
I am now seeing a sex therapist who advised me to use vaginal dilator while using some oestrogen cream. I have been doing this for more than 2 months and still no result but the therapist said that I should keep trying...

My main concern though is my relationship with my partner. We are not intimate anymore and even though at the beginning he believed in me, he is now kind of rejecting me and telling me that "there is nothing to do".
He does not want to talk about it and what he is feeling. Therefore I can't do anything to make him feel better.
He also does not encourage me in doing my exercise and barely ask how everything is going down there.
It hurts to have someone with whom you have share now more than 4 years of your life seeing going away from you because of that stupid condition...

I would like to know if anyone was in that position and what is the best thing to do. I feel that I need to deal with it myself because he is putting my self-esteem down and he does not want to talk about sex anymore. However on the other hand I am still in love with him and I am scared to be left alone with this condition. I am only 21 and this was my 1st love so I guess it is harder to let go.
I keep being positive and trying anything to cure "V".
Any advice on how to deal with it emotionally is more than welcome

This forum has helped me a lot in that I realised that I was not alone.
Thank you for taking time to read my post Smile

soleil

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Re: New here and need some advice to deal with it emotionally.

Post  EviE°Bee on Sun Nov 03, 2013 3:43 am

I'm sorry to hear of your relationship troubles. It's not an uncommon thing, unfortunately. Some guys can handle the pressures and frustrations of VV, some can't.

I have often felt guilty for my partner (may sound weird) because it definately isn't easy for us ladies, I don't expect it to be easy for them. All we can hope for is patience and understanding. If they cannot deal with it then why go through the added stress? We also have to understand how they feel, he could just feel guilty because he really can't help your pain.

Granted, it's tough no matter what. Therapy is normally the way to go, especially if you have been deling with VV for a long time. Depression, anxiety, isolation; it's a packaged deal Sad 

Be as open and honest as possible about how you feel. Get down and dirty. I can't really say if he cares or not because I don't know your guy. silent 

Feel better

Evie bee

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Re: New here and need some advice to deal with it emotionally.

Post  Sarah001 on Sun Nov 03, 2013 2:30 pm

Hi soleil and welcome. What I'm going to say probably isn't what you'd like to hear but my very longterm relationship broke down within a few months of me getting V. I have other health problems that restrict me but up to that point sex didn't really suffer from them however once it did he changed and whilst initially seemed to be ok about waiting a while to see what the problem was caused by he then got quite pushy and when that didn't work started saying I was making it up to avoid sex which was just ridiculous given all the tests I was putting myself through to get answers and then finally he started sleeping with someone else and I found out so that was the end of us. I really thought we'd be together for good and we'd been together for 13 years when we eventually split up but it did help me to not feel guilty and that I was letting him down by not being able to do things (some other things apart from sex too) and allowed me to concentrate on finding out the source of my problem and start working on it. I was devastated to start with but I'm fine about it now and realise that someone who was willing, and indeed keen, to put me through painful sex on a regular basis if I'd agreed to it really wasn't worth holding onto. I'm still single and still working on my various health problems including the V but I can do it at my own pace now so it isn't the end of the world if you do break up.

Talking of at my own pace I read your other post about the physio who predicted 6 sessions and then pushed you to go faster than you felt comfortable, that isn't a good physio and not even a usual physio, you had a bad experience there and was unlucky enough to get a physio who's ego was more important than your pain so persevere with the physio angle as not all physios are like that. Good luck and keep us posted.
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Sarah001

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Re: New here and need some advice to deal with it emotionally.

Post  soleil on Mon Nov 04, 2013 12:38 pm

Thanks girls for your feedbacks i really appreciate Smile

My bf and I had a big argument because I saw him flirting with another girl during a party we were at together. No kissing or anything like that but they were giving attention to each other. He pretend that it is just a friend but when they texting each other they used the word "darling" (plus the girl is the kinda of girl wearing short skirt and short t-shirt with high-heel when it is meant to be a dress-up party and she is the only one dress up like that).

I told him that if I do find out that something happen between them I will leave straight away.
Knowing my boyfriend (he is terrible at lying) i do not think that something physical happened but I realised that he is now ready to flirt with other girls and that I lost my confidence to handle the situation. My view is that it's ok to flirt a little bit as long as it doesn't go too far. But now with V it's so much harder to keep calm and stay in control Smile
Sarah I really admire how you can reflect on your experience. I do feel for you and 13 years of relationship is... wow!
I told my bf that I will "recover" from V and that I will do anything to have my "normal" sex life back. I added that he could be part of the process and that he could help me through it, or that he could leave and be with "normal" girl. I told him that if he wants to leave I will respect his decision.
As you girls said it's already a stressful situation so no need to have someone that makes it worse.
Thanks again for your advice and good luck with everything!

soleil

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Re: New here and need some advice to deal with it emotionally.

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