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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Post  icantwearjeans on Fri Dec 06, 2013 4:56 am

Deleting post as the pain as returned and I don't want to spread misinformation.

Back to the drawing board and Dr. merry go round for me.

Last edited by icantwearjeans on Thu Sep 10, 2015 7:14 pm; edited 1 time in total (Reason for editing : Pain has returned.)

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Re: Deleted post

Post  mary jane on Fri Dec 06, 2013 12:38 pm

it's not that rare, your cure/relief. The interstitial cystitis forums have mentioned antihistamines....
thank you for sharing, maybe someone else with burning pain can relate to this story.
I'm almost sorry I don't have vulvodynia and just neuropathy of the vulva.
Also, I remember another story from the internet where a woman switched all her soaps and shampoo to organic and her pain vanished. It turned out she was allergic to SLS and various other chemicals in soaps.
mary jane

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Post  Leslieg on Fri Dec 06, 2013 1:10 pm

Thank you so much for sharing your story! It means a lot to read about success! It gives me hope!


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Post  Lms911 on Fri Dec 06, 2013 5:32 pm

This give me so much hope! Antihistamines help me too!


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Post  tinkerbelle2 on Sat Dec 07, 2013 12:26 pm

Looks like I'm getting the hell out of the U.K and moving to Australia then! Lol. Thanks so much for sharing what an interesting story! It is weird that they add loads of stuff to our tap water here. I wonder if drinking bottled water would have any bearing! I share a lot of your symptoms but my clitoris and labia have never been excruciating to touch, more the continuous sore burning at the opening and inside. I have actually noticed when I have been abroad since having this I have felt less sore! Being in the sea seems to help. Ive always felt that my pain feels like an allergy. So glad your pain is much reduced, gives us all hope!

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