Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Similar topics
Latest topics
» Hope to all my suffering ladies
new, scared, and confused, please help need advice?? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
new, scared, and confused, please help need advice?? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
new, scared, and confused, please help need advice?? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
new, scared, and confused, please help need advice?? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
new, scared, and confused, please help need advice?? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
new, scared, and confused, please help need advice?? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
new, scared, and confused, please help need advice?? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
new, scared, and confused, please help need advice?? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
new, scared, and confused, please help need advice?? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


new, scared, and confused, please help need advice??

3 posters

Go down

new, scared, and confused, please help need advice?? Empty new, scared, and confused, please help need advice??

Post  vwade Tue Feb 25, 2014 7:52 pm

Hi im not really sure. My pain started about two weeks ago. Thought I had a uti, frequent urination, test -then started feeling pain in my clitoris, or numbness. Since then I have had a burning sensation right above vaginal opening. Its so bad it burns 24/7. Problem is I have no medical insurance:(. Maybe some of you can help me if it sounds like what I may have, anyone have similar symptoms?? And mainly what do u do to get through the day. I cant concentrate on anything but the burn. I just want it to go away.

vwade

Posts : 2
Join date : 2014-02-25

Back to top Go down

new, scared, and confused, please help need advice?? Empty Re: new, scared, and confused, please help need advice??

Post  Alana3 Tue Feb 25, 2014 8:55 pm

Eeek! Try a baking soda bath! It could honestly be a really bad infection or vulvodynia unfortunately only a doctor can tell you. If you're in the states go to Planned Parenthood theyre usually good!

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

new, scared, and confused, please help need advice?? Empty Re: new, scared, and confused, please help need advice??

Post  alessandria Tue Feb 25, 2014 10:51 pm

Agreed with Alana, you should go to Planned Parenthood. They have a sliding pay scale to make sure women's health is always within reach, whether you have insurance or not. If you are living in a state which lacks Planned Parenthood, find out if there is some other type of clinic for uninsured (if you are near a teaching hospital, that is often a good bet). As far as your case, it is probably not vulvodynia, though the possibility is always there. There are a ton of different infections that can cause your symptoms, including the numbness/tingling, and those are going to be the cause of what you're experiencing 99% of the time. I'll keep my fingers crossed for you that it's not vulvodynia!

alessandria

Posts : 39
Join date : 2013-12-07

Back to top Go down

new, scared, and confused, please help need advice?? Empty Re: new, scared, and confused, please help need advice??

Post  vwade Wed Feb 26, 2014 2:09 am

Thank u guys so much for replying.i do have a planned parenthood which is normally where I go, im just waiting for my period so i can get an exam. The burn is so intense though, just trying to stay positive.. thanks

vwade

Posts : 2
Join date : 2014-02-25

Back to top Go down

new, scared, and confused, please help need advice?? Empty Re: new, scared, and confused, please help need advice??

Post  Alana3 Wed Feb 26, 2014 1:12 pm

Why would you wait for your period if you're in that much pain?

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

new, scared, and confused, please help need advice?? Empty Re: new, scared, and confused, please help need advice??

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum