Vulvodynia Support
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» Hope to all my suffering ladies
Finding a balance EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Finding a balance EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Finding a balance EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Finding a balance EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Finding a balance EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Finding a balance EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Finding a balance EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Finding a balance EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Finding a balance EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Finding a balance

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Finding a balance Empty Finding a balance

Post  Mouse Tue Nov 30, 2010 8:31 pm

I've been reading about the affects of too much acidic food in our diet. I have the constant burning pain and it makes sense to me to look at treating the whole body through diet/exercise UGH/stress reduction/quality sleep etc.

It's no great shock that water is really important but getting the right type is really essential. It's all to do with the PH level so the stuff from the tap is probably not the best. Most bottled water has a high PH as well, I know that Evian is fine.

I suspect that getting the balance right could take some effort, I'm hoping maintaining it wouldn't be so harsh. On the plus side just taking a deep breath is beneficial.

http://www.energiseforlife.com/acid-alkaline-food-chart-1.1.pdf

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Post  Sarah001 Wed Dec 01, 2010 1:51 pm

I got interested in the whole acid/alkaline diet at one point too but I couldn't figure out how to balance the vaginal ph with it because that needs to be acidic whereas the rest of the body does better being alkaline so I gave up! I also looked at the inflammation diet too but I wasn't really eating much that was prone to causing inflammation in the first place so that wasn't the answer for me either. Rolling Eyes Did you ever try the low oxalate diet? I did a strict week on it but found it messed up my blood sugar badly so switched to just cutting out the chief offenders that I was eating along with calcium citrate, it didn't work for me but it does seem to work for others.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
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Post  Mouse Thu Dec 02, 2010 8:46 am

Hi Sarah,

Thanks for your reply.

I think it's got to the point where I will try anything. Since I decided the drugs messed with my head too much I have to look for other solutions. I've had fairly low pain for weeks now but it's constant and just chips away at me. I'm ok if I do absolutely nothing!!! Well I've got 3 kids and a husband so that's a fantasy.

I did some cooking today and found standing by the stove (lots of stirring) a real challenge! Imagine that. In a related story I got up at 5.30 and ironed a shirt for my husband - somethings not right!

I'm going to give the acid balancing a shot. I already know that coffee/sugar and alcohol are triggers so it seems to fit. I've bought an alkaline water ionizer so if nothing else I'll be getting the right kind of water. It's a cute wee thing just like a thermos flask so not too expensive compared with the proper filter machines. Oh and it's a high PH that's needed.

I really baulked against the oxalate diet because of the severe dietary restrictions I already have. I haven't read any research that supports it and just as much anecdotal for as against.

Did you read the article I posted, I'd be interested to hear what you think.

V.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Finding a balance Empty Re: Finding a balance

Post  Sarah001 Thu Dec 02, 2010 2:15 pm

I absolutely agree that it's worth trying things, if we don't try things out we're guaranteed not to get better so I'm with you on that one that everything's worth a try. The acid/alkaline diet is something I've seen alot about online, I don't know if it will help but there's always a chance. It's strange because the low oxalate diet tends to cut out what they consider acidic foods and drinks but I notice in the article spinach and beans are in the alkaline sections and they are two items which are supposed to be very high in oxalates so it does seem to depend where you look as to what foods are along the acid/alkaline guidelines.

With a problem like yours where you have to restrict your diet anyway there's always a chance that diet could be to blame, it's certainly worth trying it out as long as you can follow it easily enough and give it a few months to make a difference. I totally understand not wanting to take drugs, they do give side effects that then need other drugs to counteract them and 'm not a drugs kind of person either, it always seems silly to me to treat the symptom and not look for the source of the problem so give it a go and fingers crossed for you!
Sarah001
Sarah001

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Age : 50
Location : UK

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