Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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» Hope to all my suffering ladies
Vaginal or vulva ? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Vaginal or vulva ? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Vaginal or vulva ? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Vaginal or vulva ? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Vaginal or vulva ? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Vaginal or vulva ? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Vaginal or vulva ? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Vaginal or vulva ? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Vaginal or vulva ? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Vaginal or vulva ?

4 posters

Vulvodynia Support :: Support and Advice

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Vaginal or vulva ? Empty Vaginal or vulva ?

Post  nannybest Mon Jan 27, 2014 1:23 pm

I am at my wits end with this pain. I don't know if this is vulvadynia or something else.
I have a place that feels INSIDE the lower vagina that feels like a burning hot nail is stuck there. The pain is constant and agony. This began a couple of years ago and lasted months. I went on pain patches and the pain subsided. I have just stopped using the patches and the pain has returned with vengeance.
The area inside and at the vaginal entrance is swollen and very sore. No pain outside the area.
Any advice very welcome.

nannybest

Posts : 2
Join date : 2014-01-27

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Post  mary jane Mon Jan 27, 2014 5:51 pm

I'm only going to take a guess here....you say area at the vaginal entrance that feels like it is inside as well...I have days with that kind of pain....it could be your bartholin gland...is that one painful at the Q-tip test ? mine is, but only on the right side...
there is huge article on that here:http://www.vulvodynia.com.au/articles/vulvodynia-recognition-and-management/
however please keep in mind this is only my opinion...I am confused myself at the differences between vestibulitis,vulvodynia and pudendal neuralgia
hmmm...what medication are you on for the pain?
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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Post  nannybest Mon Jan 27, 2014 10:58 pm

Thanks for the reply.
I haven't had any tests yet and my first appointment is this week.
This pain is constant and feels like a live wire is being pushed into one spot just inside the vagina on the left side. No other symptoms...Just awful unremitting pain. Pain killers do not touch it.
I am confused with all the different conditions as they all sound like very similar symptoms.

nannybest

Posts : 2
Join date : 2014-01-27

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Post  mary jane Tue Jan 28, 2014 10:13 am

internal pain is from the puendal nerve. please have a look at this picture and maybe it will give you an idea. and get some nerve pain meds! antidepressants and anticonvulsants! if regular painkillers do not touch it, it's nerve pain!

nevermind, I'll pm you the link
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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Post  JuniperRain Tue Jan 28, 2014 7:41 pm

Most of my pain was right inside the vagina towards the opening. After having the Q-tip test my doctor told me it was vulvodynia but the one most tender spot was actually remnants of my hymen.

JuniperRain

Posts : 14
Join date : 2013-12-31

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Post  tinkerbelle2 Wed Jun 18, 2014 9:42 am

Nannybest, I love you right now ! I have the EXACT same sensation
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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