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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


New,Depressed and need help!!!!!

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New,Depressed and need help!!!!!

Post  bvnh13 on Sat Jun 21, 2014 9:04 pm

Hi everyone, this all started for me about five months ago, and I am 42. I had sex with a new partner and a few days later I was red inflammed and on fire down there. Went to the DR did cultures and it came back as yeast, gave me diflucan and got better but not fully. I then got bronchitis and got a RX for Zythromax and after that and my period the same symptoms game back.I got two doses of Diflucan and same thing better but still minor irritation. I decided to see another DR after my period and he said no its BV, but I had no odor I was confused but did the Metrogel and that made it a little worse then he put me on Flagyl and thats when it all started....So I finished the Flagyl and said Im still irritated but now for two months, two more DRs and 6 cultures later everthying comes back negative. I havent had sex since the beginning of March. I have my tubes tied. I dont use any harsh soaps..Im VERY careful. Heres my symptoms.....
I can go hours without feeling anything, never had irritation around or in the vagina. Its on the labia minora or right under the hood or clitoris. I sleep well.. Sex never hurts... The q tip test never bothers me, pelvic exams dont bother me but my new doctor says its probably Vulvadonyia....It feeling like a sting that comes and goes or a occasional itch in the areas I mentioned. Im not red or imflammed and the DR say everything looks normal inside and out.. I am symtom free on my heavy days of my period. I take probiotics (femdophilis) Eat healthy , tried Oxalate diet for two weeks, Estrace, Nuerontin, Calicum citrate, Vit E and multi Vit. NOTHING is helping...also my pap came back normal and neg for HPV. and I have been tested for every STD incl HIV several times all Neg.....can anyone help?????THANK YOU

bvnh13

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Sorry!!

Post  Caropes on Sat Jun 21, 2014 11:12 pm

Hi and sorry for your pain!! I don't have the same symptoms you do, but my constant aching, pain came on after two back to back treatments for BV with Metrogel and Flagyl. (With many other treatments within the past two years.) I don't have pain on the inside and don't have trouble with tampons, etc. My pain is in the vulvar region and is constant! I did have pain with the Q-tip test and was diagnosed with vulvar vestibulitis. My Gyno, who is terrible, gave me Neurontin, I have been on it for three weeks with minimal results. I am also on Calcium citrate, Magnesium, Fem-dophilus, multi vitamin and am trying the low-oxalate diet. I don't think any of these things are working though. I had the severe depression, lost 12 pounds in two weeks and went to a very dark place for a few weeks.

I have researched the hell out of v.v. and vulvodynia since my Gyno seems completely incompetent. A lot of women have found relief with Amitrityline and Lyrica. Maybe you could talk to your doctor about that? I am currently trying to get a referral to a new Gyno in hopes of trying these meds. It is a terrible thing to have! I was really happy when I found this website and forum. It really helped me a lot.

So, if you would like to email me directly, please feel free! My name is Cathy and my email is caropes32@hotmail.com. Sorry, I can't give you any more info. Where are you from? I live in lower Alabama.

Caropes

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vovulvodinia

Post  kks224 on Mon Jun 23, 2014 3:17 am

I have found a specialist at the Medical Center of Houston, Texas, Baylor Women's Clinic. She is fabulous. She has assured me that this condition is a trial and error situation. She understands very well what the pain is. She is the first specialist in strictly vaginal disorders I have found. She has enrolled me in physcal therapy for this, because vulvodynia being a nerve ending disorder confuses the avg. gyn. I am using several creams and the physical therapist told me the nerve endings "piss of the internal muscles' and get them irritated. Thus the therapy. The neurontin make me have gastric pain. But, I truly believe the Dr. is on her way to helping me. Some of the other antipressants are supposed to help this condition. Right now I use a sterioid cream, premarin cream, fagiflem, and a lidocain deading ointment. She as also prescribed 500 mg. of Naproxen for pain. Hopes this helps someone.

kks224

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Re: New,Depressed and need help!!!!!

Post  sailor_moon on Tue Jul 08, 2014 2:00 am

Have you had blood tests done? You say that your problem eases on your period. Have you had your hormones checked and thyroid, pituarity gland ect?

I am starting to wonder if my problem is hormonal too. Now apparantly a run-of-the-mill blood test wont show hormone imbalance majority of the time. Apparantly you need to do a sailva hormone test and a 24hour urine test as well as getting a blood test every week to check your cycle.

You say it is up near your clitoris....is it possible that your urine is irritating your skin in that area?
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sailor_moon

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Re: New,Depressed and need help!!!!!

Post  bvnh13 on Tue Jul 08, 2014 7:21 am

I think Im going to ask to have my blood tested for hormones etc.I dont have any pain when peeing. only after I wipe i get irritated. my symtpms come and go during the day some days im a 1/10 and some days a 7/10...I cant figure out what provokes it at all...

bvnh13

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Re: New,Depressed and need help!!!!!

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