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» Vulvodynia is a secret
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» Looking for a friend..... and new problems
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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New,Depressed and need help!!!!!

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New,Depressed and need help!!!!!

Post  bvnh13 on Sat Jun 21, 2014 9:04 pm

Hi everyone, this all started for me about five months ago, and I am 42. I had sex with a new partner and a few days later I was red inflammed and on fire down there. Went to the DR did cultures and it came back as yeast, gave me diflucan and got better but not fully. I then got bronchitis and got a RX for Zythromax and after that and my period the same symptoms game back.I got two doses of Diflucan and same thing better but still minor irritation. I decided to see another DR after my period and he said no its BV, but I had no odor I was confused but did the Metrogel and that made it a little worse then he put me on Flagyl and thats when it all started....So I finished the Flagyl and said Im still irritated but now for two months, two more DRs and 6 cultures later everthying comes back negative. I havent had sex since the beginning of March. I have my tubes tied. I dont use any harsh soaps..Im VERY careful. Heres my symptoms.....
I can go hours without feeling anything, never had irritation around or in the vagina. Its on the labia minora or right under the hood or clitoris. I sleep well.. Sex never hurts... The q tip test never bothers me, pelvic exams dont bother me but my new doctor says its probably Vulvadonyia....It feeling like a sting that comes and goes or a occasional itch in the areas I mentioned. Im not red or imflammed and the DR say everything looks normal inside and out.. I am symtom free on my heavy days of my period. I take probiotics (femdophilis) Eat healthy , tried Oxalate diet for two weeks, Estrace, Nuerontin, Calicum citrate, Vit E and multi Vit. NOTHING is helping...also my pap came back normal and neg for HPV. and I have been tested for every STD incl HIV several times all Neg.....can anyone help?????THANK YOU

bvnh13

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Sorry!!

Post  Caropes on Sat Jun 21, 2014 11:12 pm

Hi and sorry for your pain!! I don't have the same symptoms you do, but my constant aching, pain came on after two back to back treatments for BV with Metrogel and Flagyl. (With many other treatments within the past two years.) I don't have pain on the inside and don't have trouble with tampons, etc. My pain is in the vulvar region and is constant! I did have pain with the Q-tip test and was diagnosed with vulvar vestibulitis. My Gyno, who is terrible, gave me Neurontin, I have been on it for three weeks with minimal results. I am also on Calcium citrate, Magnesium, Fem-dophilus, multi vitamin and am trying the low-oxalate diet. I don't think any of these things are working though. I had the severe depression, lost 12 pounds in two weeks and went to a very dark place for a few weeks.

I have researched the hell out of v.v. and vulvodynia since my Gyno seems completely incompetent. A lot of women have found relief with Amitrityline and Lyrica. Maybe you could talk to your doctor about that? I am currently trying to get a referral to a new Gyno in hopes of trying these meds. It is a terrible thing to have! I was really happy when I found this website and forum. It really helped me a lot.

So, if you would like to email me directly, please feel free! My name is Cathy and my email is caropes32@hotmail.com. Sorry, I can't give you any more info. Where are you from? I live in lower Alabama.

Caropes

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vovulvodinia

Post  kks224 on Mon Jun 23, 2014 3:17 am

I have found a specialist at the Medical Center of Houston, Texas, Baylor Women's Clinic. She is fabulous. She has assured me that this condition is a trial and error situation. She understands very well what the pain is. She is the first specialist in strictly vaginal disorders I have found. She has enrolled me in physcal therapy for this, because vulvodynia being a nerve ending disorder confuses the avg. gyn. I am using several creams and the physical therapist told me the nerve endings "piss of the internal muscles' and get them irritated. Thus the therapy. The neurontin make me have gastric pain. But, I truly believe the Dr. is on her way to helping me. Some of the other antipressants are supposed to help this condition. Right now I use a sterioid cream, premarin cream, fagiflem, and a lidocain deading ointment. She as also prescribed 500 mg. of Naproxen for pain. Hopes this helps someone.

kks224

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Re: New,Depressed and need help!!!!!

Post  sailor_moon on Tue Jul 08, 2014 2:00 am

Have you had blood tests done? You say that your problem eases on your period. Have you had your hormones checked and thyroid, pituarity gland ect?

I am starting to wonder if my problem is hormonal too. Now apparantly a run-of-the-mill blood test wont show hormone imbalance majority of the time. Apparantly you need to do a sailva hormone test and a 24hour urine test as well as getting a blood test every week to check your cycle.

You say it is up near your clitoris....is it possible that your urine is irritating your skin in that area?
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Re: New,Depressed and need help!!!!!

Post  bvnh13 on Tue Jul 08, 2014 7:21 am

I think Im going to ask to have my blood tested for hormones etc.I dont have any pain when peeing. only after I wipe i get irritated. my symtpms come and go during the day some days im a 1/10 and some days a 7/10...I cant figure out what provokes it at all...

bvnh13

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Re: New,Depressed and need help!!!!!

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