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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New,Depressed and need help!!!!!

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New,Depressed and need help!!!!!

Post  bvnh13 on Sat Jun 21, 2014 9:04 pm

Hi everyone, this all started for me about five months ago, and I am 42. I had sex with a new partner and a few days later I was red inflammed and on fire down there. Went to the DR did cultures and it came back as yeast, gave me diflucan and got better but not fully. I then got bronchitis and got a RX for Zythromax and after that and my period the same symptoms game back.I got two doses of Diflucan and same thing better but still minor irritation. I decided to see another DR after my period and he said no its BV, but I had no odor I was confused but did the Metrogel and that made it a little worse then he put me on Flagyl and thats when it all started....So I finished the Flagyl and said Im still irritated but now for two months, two more DRs and 6 cultures later everthying comes back negative. I havent had sex since the beginning of March. I have my tubes tied. I dont use any harsh soaps..Im VERY careful. Heres my symptoms.....
I can go hours without feeling anything, never had irritation around or in the vagina. Its on the labia minora or right under the hood or clitoris. I sleep well.. Sex never hurts... The q tip test never bothers me, pelvic exams dont bother me but my new doctor says its probably Vulvadonyia....It feeling like a sting that comes and goes or a occasional itch in the areas I mentioned. Im not red or imflammed and the DR say everything looks normal inside and out.. I am symtom free on my heavy days of my period. I take probiotics (femdophilis) Eat healthy , tried Oxalate diet for two weeks, Estrace, Nuerontin, Calicum citrate, Vit E and multi Vit. NOTHING is helping...also my pap came back normal and neg for HPV. and I have been tested for every STD incl HIV several times all Neg.....can anyone help?????THANK YOU

bvnh13

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Sorry!!

Post  Caropes on Sat Jun 21, 2014 11:12 pm

Hi and sorry for your pain!! I don't have the same symptoms you do, but my constant aching, pain came on after two back to back treatments for BV with Metrogel and Flagyl. (With many other treatments within the past two years.) I don't have pain on the inside and don't have trouble with tampons, etc. My pain is in the vulvar region and is constant! I did have pain with the Q-tip test and was diagnosed with vulvar vestibulitis. My Gyno, who is terrible, gave me Neurontin, I have been on it for three weeks with minimal results. I am also on Calcium citrate, Magnesium, Fem-dophilus, multi vitamin and am trying the low-oxalate diet. I don't think any of these things are working though. I had the severe depression, lost 12 pounds in two weeks and went to a very dark place for a few weeks.

I have researched the hell out of v.v. and vulvodynia since my Gyno seems completely incompetent. A lot of women have found relief with Amitrityline and Lyrica. Maybe you could talk to your doctor about that? I am currently trying to get a referral to a new Gyno in hopes of trying these meds. It is a terrible thing to have! I was really happy when I found this website and forum. It really helped me a lot.

So, if you would like to email me directly, please feel free! My name is Cathy and my email is caropes32@hotmail.com. Sorry, I can't give you any more info. Where are you from? I live in lower Alabama.

Caropes

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vovulvodinia

Post  kks224 on Mon Jun 23, 2014 3:17 am

I have found a specialist at the Medical Center of Houston, Texas, Baylor Women's Clinic. She is fabulous. She has assured me that this condition is a trial and error situation. She understands very well what the pain is. She is the first specialist in strictly vaginal disorders I have found. She has enrolled me in physcal therapy for this, because vulvodynia being a nerve ending disorder confuses the avg. gyn. I am using several creams and the physical therapist told me the nerve endings "piss of the internal muscles' and get them irritated. Thus the therapy. The neurontin make me have gastric pain. But, I truly believe the Dr. is on her way to helping me. Some of the other antipressants are supposed to help this condition. Right now I use a sterioid cream, premarin cream, fagiflem, and a lidocain deading ointment. She as also prescribed 500 mg. of Naproxen for pain. Hopes this helps someone.

kks224

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Re: New,Depressed and need help!!!!!

Post  sailor_moon on Tue Jul 08, 2014 2:00 am

Have you had blood tests done? You say that your problem eases on your period. Have you had your hormones checked and thyroid, pituarity gland ect?

I am starting to wonder if my problem is hormonal too. Now apparantly a run-of-the-mill blood test wont show hormone imbalance majority of the time. Apparantly you need to do a sailva hormone test and a 24hour urine test as well as getting a blood test every week to check your cycle.

You say it is up near your clitoris....is it possible that your urine is irritating your skin in that area?
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sailor_moon

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Re: New,Depressed and need help!!!!!

Post  bvnh13 on Tue Jul 08, 2014 7:21 am

I think Im going to ask to have my blood tested for hormones etc.I dont have any pain when peeing. only after I wipe i get irritated. my symtpms come and go during the day some days im a 1/10 and some days a 7/10...I cant figure out what provokes it at all...

bvnh13

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Re: New,Depressed and need help!!!!!

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