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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

New,Depressed and need help!!!!!

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New,Depressed and need help!!!!!

Post  bvnh13 on Sat Jun 21, 2014 9:04 pm

Hi everyone, this all started for me about five months ago, and I am 42. I had sex with a new partner and a few days later I was red inflammed and on fire down there. Went to the DR did cultures and it came back as yeast, gave me diflucan and got better but not fully. I then got bronchitis and got a RX for Zythromax and after that and my period the same symptoms game back.I got two doses of Diflucan and same thing better but still minor irritation. I decided to see another DR after my period and he said no its BV, but I had no odor I was confused but did the Metrogel and that made it a little worse then he put me on Flagyl and thats when it all started....So I finished the Flagyl and said Im still irritated but now for two months, two more DRs and 6 cultures later everthying comes back negative. I havent had sex since the beginning of March. I have my tubes tied. I dont use any harsh soaps..Im VERY careful. Heres my symptoms.....
I can go hours without feeling anything, never had irritation around or in the vagina. Its on the labia minora or right under the hood or clitoris. I sleep well.. Sex never hurts... The q tip test never bothers me, pelvic exams dont bother me but my new doctor says its probably Vulvadonyia....It feeling like a sting that comes and goes or a occasional itch in the areas I mentioned. Im not red or imflammed and the DR say everything looks normal inside and out.. I am symtom free on my heavy days of my period. I take probiotics (femdophilis) Eat healthy , tried Oxalate diet for two weeks, Estrace, Nuerontin, Calicum citrate, Vit E and multi Vit. NOTHING is helping...also my pap came back normal and neg for HPV. and I have been tested for every STD incl HIV several times all Neg.....can anyone help?????THANK YOU


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Post  Caropes on Sat Jun 21, 2014 11:12 pm

Hi and sorry for your pain!! I don't have the same symptoms you do, but my constant aching, pain came on after two back to back treatments for BV with Metrogel and Flagyl. (With many other treatments within the past two years.) I don't have pain on the inside and don't have trouble with tampons, etc. My pain is in the vulvar region and is constant! I did have pain with the Q-tip test and was diagnosed with vulvar vestibulitis. My Gyno, who is terrible, gave me Neurontin, I have been on it for three weeks with minimal results. I am also on Calcium citrate, Magnesium, Fem-dophilus, multi vitamin and am trying the low-oxalate diet. I don't think any of these things are working though. I had the severe depression, lost 12 pounds in two weeks and went to a very dark place for a few weeks.

I have researched the hell out of v.v. and vulvodynia since my Gyno seems completely incompetent. A lot of women have found relief with Amitrityline and Lyrica. Maybe you could talk to your doctor about that? I am currently trying to get a referral to a new Gyno in hopes of trying these meds. It is a terrible thing to have! I was really happy when I found this website and forum. It really helped me a lot.

So, if you would like to email me directly, please feel free! My name is Cathy and my email is caropes32@hotmail.com. Sorry, I can't give you any more info. Where are you from? I live in lower Alabama.


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Post  kks224 on Mon Jun 23, 2014 3:17 am

I have found a specialist at the Medical Center of Houston, Texas, Baylor Women's Clinic. She is fabulous. She has assured me that this condition is a trial and error situation. She understands very well what the pain is. She is the first specialist in strictly vaginal disorders I have found. She has enrolled me in physcal therapy for this, because vulvodynia being a nerve ending disorder confuses the avg. gyn. I am using several creams and the physical therapist told me the nerve endings "piss of the internal muscles' and get them irritated. Thus the therapy. The neurontin make me have gastric pain. But, I truly believe the Dr. is on her way to helping me. Some of the other antipressants are supposed to help this condition. Right now I use a sterioid cream, premarin cream, fagiflem, and a lidocain deading ointment. She as also prescribed 500 mg. of Naproxen for pain. Hopes this helps someone.


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Re: New,Depressed and need help!!!!!

Post  sailor_moon on Tue Jul 08, 2014 2:00 am

Have you had blood tests done? You say that your problem eases on your period. Have you had your hormones checked and thyroid, pituarity gland ect?

I am starting to wonder if my problem is hormonal too. Now apparantly a run-of-the-mill blood test wont show hormone imbalance majority of the time. Apparantly you need to do a sailva hormone test and a 24hour urine test as well as getting a blood test every week to check your cycle.

You say it is up near your clitoris....is it possible that your urine is irritating your skin in that area?

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Re: New,Depressed and need help!!!!!

Post  bvnh13 on Tue Jul 08, 2014 7:21 am

I think Im going to ask to have my blood tested for hormones etc.I dont have any pain when peeing. only after I wipe i get irritated. my symtpms come and go during the day some days im a 1/10 and some days a 7/10...I cant figure out what provokes it at all...


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Re: New,Depressed and need help!!!!!

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