Success! Estradiol/Testosterone compound cream

Hi all,
I developed VVS after taking low estrogen birth control. I didn't even know I had developed it (always skipped the sugar pills so I didn't get my period) until I had a yeast infection. Like many others, it took me about 5 tries to find a doctor to help me (message me if you want the details, he is on the west coast).
First, we tried estrogen cream. Estrace, to be exact. He gave me samples so I wouldn't have to purchase it. That helped probably... 70%.
Then, I took spironolactone for acne. Was on it literally for a day, before my v started freaking out. I was having pelvic floor spasms and it was super dry down there (when I look back, there was a decrease in my acne the following day after I took my first birth control pill. Sounds weird, but I am ODDLY sensitive to hormones.). I went and saw him, he said I am having PFD from all the pain my poor vestibule had been in. It was also a lot more red and "angry" (my word, not his) than when I had come in 3 weeks ago. I got prescribed some valium suppositories. He also mentioned that if I don't improve, we will have to consider surgery (really don't want a scalpel there). So I did a lot of research...
It just seemed weird to me that the Spironolactone had caused that, the only thing would be that I had super duper low amounts of free testosterone in my body! I managed to convince the office to write me a prescription for estradiol/ testosterone cream.   It was only 42$ (last week I had spent $102 on my v, appointment + valium sups... yeah my insurance sucks and won't even cover compounds) and that is a small price to pay as compared to how much I had already spent!
It just seemed weird to me that the Spironolactone had caused that, the only thing would be that I had super duper low amounts of free testosterone in my body! So naturally, I threw that orange container of those bad boys away.
I started using the estradiol/testosterone cream. The first night, it was super red and uncomfortable, but the cream helped soothe the area.
Within 3 days, my vestibule looked completely normal! I've been poking and prodding it and there isn't even any ounce of discomfort.   
Now, I just have to deal with my secondary vaginismus that stemmed from this whole 6 month journey. Crazy how more doctors aren't educated in it, especially when they keep telling you to put more irritating things down there! Ugh. Obviously I can't take birth control ever again, or clearly anything hormonal for my face, but I'll trade some zits and oiliness for the hell (quite literally, fiery) that I endured. Wishing luck to all you strong ladies!!!  

Hello! I'm glad the compound cream works for you - that's what has worked for me. I actually have/had 2 separate issues - vulvodynia, and chronic fissuring. I had surgery for the vulvodynia (vestibulectomy), which helped immensely. But my skin down there was/is incredibly fragile - my doctor said that when she was trying to stitch me up during the surgery, pieces of my skin would literally just tear off. So, I use a testosterone/estriadol compound cream to treat that, and I don't have those fissures anymore!

My doctor said that it's likely because my testosterone receptors in that area of the body are faulty. I wonder if this might also be the issue for you. The way I understand it, you can think of testosterone receptors as vacuum cleaners. The body has various vacuums throughout, one of which is located at/near the vagina. So even though there is plenty of testosterone (T) being produced by the body, the vacuum at the vagina isn't working properly to actually pick up enough T. Your hormone levels on a blood test would be just fine (my T is elevated by 1 point, even) because it isn't a T production issue - it's a T receptor issue.

My doctor thinks this was caused by BC pills too. Just thought I'd share because I think it's interesting!