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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

My Life Turned Upside Down

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My Life Turned Upside Down

Post  EverythingIsDifferentNow on Sat Sep 13, 2014 4:05 pm

I'm almost 16 years old. When I was 14, I had about 3 or 4 UTIs in that year and I believe that was the cause of my vulvodynia today. A few months ago I would get this weird acidic feeling on the outer side of my vagina and some itching. It would throb with discomfort and the doctor said I either had a UTI or yeast infection but that's not that case. I know for a fact I have vulvodynia due to intensive research and now I have changed everything. I can't go out with friends to the beach or their pool because it would be super uncomfortable, I can't wear underwear at night, I get uncomfortable during school so it's hard to concentrate, and I have started a completely new diet...gluten free and low oxalate foods. LEMME TELL YOU IT HAS HELPED!!! I also just took my first calcium citrate pill and I'm hoping it will help my symptoms. I also am trying to convince my mom to take me to a pelvic muscle physical therapist. I have three problems that contributes to my vulvodynia-1.) the constant UTI's when I was 14 really messed me up down there. 2.) I used to eat the most highly acidic foods ever that I guess irritated me down there. 3.) my pelvis has always been a little messed up. ALSO DON'T TAKE AZO CRANBERRY PILLS, THEY ARE HIGHLY ACIDIC AND I USED TO TAKE TWO A DAY. DIDN'T WORK. CAUSED MORE IRRITATION. AND DON'T TAKE MEDICATION PRESCRIBED BY YOUR DOCTOR THAT HAS CHEMICALS BECAUSE YOUR DOCTOR PROBABLY DOESN'T KNOW JACK SH*T ABOUT VULVODYNIA. BE NATURAL, EAT NATURAL, AND YOUR VULVODYNIA WILL GO AWAY. My vulvodynia symptoms have lessened due to the fact I have been eating more organic and been exercising a little everyday. I still am battling with this nightmare of an illness but I believe one day I will be cured and you can too. And here's a little tip: don't be stressed, when you're stressed it will get worse. Be calm, breathe normally, and heating pads do help when you apply it to the area where it is irritating you. Best of wishes xxx


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Re: My Life Turned Upside Down

Post  RoseKa on Sun Sep 14, 2014 12:53 pm

Hi Everything
It hurts me to see when the young have to go through this nightmare but im so glad you are finding out the same things i am... When i told my newest doctor about my diet he looked at me like i was an alien or something...The diet change gave me relief and i didnt get pain flares again ever since so he told me to continue anyway as long as i was willibg to do frequent blood tests

We can heal this condition, i have no doubt about that now especially since the last 6-7 weeks... my pain has gone from 100% (at its worst) to 20% and i have been helped a lot from a generous and wise young man (Nicholas) on this thread for the last 4 weeks who made that possible
If you can id suggest reading the whole thread... Lots of helpful and empowering info...

I find it sad that the 3 vulvodynia specialists and the doctors ive seen through the years havent been able to help me with anything other than tests, suggesting therapies and treatments to manage my symptoms, sending me around in circles, diagnosis, misdiagnosis, and medications... (pain meds, hypertension meds, antidepressants etc) but now im finally off the medications. Im being helped so much more and to reverse the condition, over this forum, by a person ive never met and who isnt a trained vulvodynia specialist... for free... i mean, its so upside down lol


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