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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


My Life Turned Upside Down

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My Life Turned Upside Down

Post  EverythingIsDifferentNow on Sat Sep 13, 2014 4:05 pm

I'm almost 16 years old. When I was 14, I had about 3 or 4 UTIs in that year and I believe that was the cause of my vulvodynia today. A few months ago I would get this weird acidic feeling on the outer side of my vagina and some itching. It would throb with discomfort and the doctor said I either had a UTI or yeast infection but that's not that case. I know for a fact I have vulvodynia due to intensive research and now I have changed everything. I can't go out with friends to the beach or their pool because it would be super uncomfortable, I can't wear underwear at night, I get uncomfortable during school so it's hard to concentrate, and I have started a completely new diet...gluten free and low oxalate foods. LEMME TELL YOU IT HAS HELPED!!! I also just took my first calcium citrate pill and I'm hoping it will help my symptoms. I also am trying to convince my mom to take me to a pelvic muscle physical therapist. I have three problems that contributes to my vulvodynia-1.) the constant UTI's when I was 14 really messed me up down there. 2.) I used to eat the most highly acidic foods ever that I guess irritated me down there. 3.) my pelvis has always been a little messed up. ALSO DON'T TAKE AZO CRANBERRY PILLS, THEY ARE HIGHLY ACIDIC AND I USED TO TAKE TWO A DAY. DIDN'T WORK. CAUSED MORE IRRITATION. AND DON'T TAKE MEDICATION PRESCRIBED BY YOUR DOCTOR THAT HAS CHEMICALS BECAUSE YOUR DOCTOR PROBABLY DOESN'T KNOW JACK SH*T ABOUT VULVODYNIA. BE NATURAL, EAT NATURAL, AND YOUR VULVODYNIA WILL GO AWAY. My vulvodynia symptoms have lessened due to the fact I have been eating more organic and been exercising a little everyday. I still am battling with this nightmare of an illness but I believe one day I will be cured and you can too. And here's a little tip: don't be stressed, when you're stressed it will get worse. Be calm, breathe normally, and heating pads do help when you apply it to the area where it is irritating you. Best of wishes xxx

EverythingIsDifferentNow

Posts : 30
Join date : 2014-09-13

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Re: My Life Turned Upside Down

Post  RoseKa on Sun Sep 14, 2014 12:53 pm

Hi Everything
It hurts me to see when the young have to go through this nightmare but im so glad you are finding out the same things i am... When i told my newest doctor about my diet he looked at me like i was an alien or something...The diet change gave me relief and i didnt get pain flares again ever since so he told me to continue anyway as long as i was willibg to do frequent blood tests

We can heal this condition, i have no doubt about that now especially since the last 6-7 weeks... my pain has gone from 100% (at its worst) to 20% and i have been helped a lot from a generous and wise young man (Nicholas) on this thread for the last 4 weeks who made that possible
http://vulvodyniasupport.forumotion.net/t622-pain-free-with-dr-robert-morse
If you can id suggest reading the whole thread... Lots of helpful and empowering info...

I find it sad that the 3 vulvodynia specialists and the doctors ive seen through the years havent been able to help me with anything other than tests, suggesting therapies and treatments to manage my symptoms, sending me around in circles, diagnosis, misdiagnosis, and medications... (pain meds, hypertension meds, antidepressants etc) but now im finally off the medications. Im being helped so much more and to reverse the condition, over this forum, by a person ive never met and who isnt a trained vulvodynia specialist... for free... i mean, its so upside down lol

RoseKa

Posts : 33
Join date : 2014-08-15
Age : 38

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