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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

My Life Turned Upside Down

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My Life Turned Upside Down

Post  EverythingIsDifferentNow on Sat Sep 13, 2014 4:05 pm

I'm almost 16 years old. When I was 14, I had about 3 or 4 UTIs in that year and I believe that was the cause of my vulvodynia today. A few months ago I would get this weird acidic feeling on the outer side of my vagina and some itching. It would throb with discomfort and the doctor said I either had a UTI or yeast infection but that's not that case. I know for a fact I have vulvodynia due to intensive research and now I have changed everything. I can't go out with friends to the beach or their pool because it would be super uncomfortable, I can't wear underwear at night, I get uncomfortable during school so it's hard to concentrate, and I have started a completely new diet...gluten free and low oxalate foods. LEMME TELL YOU IT HAS HELPED!!! I also just took my first calcium citrate pill and I'm hoping it will help my symptoms. I also am trying to convince my mom to take me to a pelvic muscle physical therapist. I have three problems that contributes to my vulvodynia-1.) the constant UTI's when I was 14 really messed me up down there. 2.) I used to eat the most highly acidic foods ever that I guess irritated me down there. 3.) my pelvis has always been a little messed up. ALSO DON'T TAKE AZO CRANBERRY PILLS, THEY ARE HIGHLY ACIDIC AND I USED TO TAKE TWO A DAY. DIDN'T WORK. CAUSED MORE IRRITATION. AND DON'T TAKE MEDICATION PRESCRIBED BY YOUR DOCTOR THAT HAS CHEMICALS BECAUSE YOUR DOCTOR PROBABLY DOESN'T KNOW JACK SH*T ABOUT VULVODYNIA. BE NATURAL, EAT NATURAL, AND YOUR VULVODYNIA WILL GO AWAY. My vulvodynia symptoms have lessened due to the fact I have been eating more organic and been exercising a little everyday. I still am battling with this nightmare of an illness but I believe one day I will be cured and you can too. And here's a little tip: don't be stressed, when you're stressed it will get worse. Be calm, breathe normally, and heating pads do help when you apply it to the area where it is irritating you. Best of wishes xxx


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Re: My Life Turned Upside Down

Post  RoseKa on Sun Sep 14, 2014 12:53 pm

Hi Everything
It hurts me to see when the young have to go through this nightmare but im so glad you are finding out the same things i am... When i told my newest doctor about my diet he looked at me like i was an alien or something...The diet change gave me relief and i didnt get pain flares again ever since so he told me to continue anyway as long as i was willibg to do frequent blood tests

We can heal this condition, i have no doubt about that now especially since the last 6-7 weeks... my pain has gone from 100% (at its worst) to 20% and i have been helped a lot from a generous and wise young man (Nicholas) on this thread for the last 4 weeks who made that possible
If you can id suggest reading the whole thread... Lots of helpful and empowering info...

I find it sad that the 3 vulvodynia specialists and the doctors ive seen through the years havent been able to help me with anything other than tests, suggesting therapies and treatments to manage my symptoms, sending me around in circles, diagnosis, misdiagnosis, and medications... (pain meds, hypertension meds, antidepressants etc) but now im finally off the medications. Im being helped so much more and to reverse the condition, over this forum, by a person ive never met and who isnt a trained vulvodynia specialist... for free... i mean, its so upside down lol


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