Log in

I forgot my password

Latest topics
» Change in birth control question
Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

My Life Turned Upside Down

Go down

My Life Turned Upside Down

Post  EverythingIsDifferentNow on Sat Sep 13, 2014 4:05 pm

I'm almost 16 years old. When I was 14, I had about 3 or 4 UTIs in that year and I believe that was the cause of my vulvodynia today. A few months ago I would get this weird acidic feeling on the outer side of my vagina and some itching. It would throb with discomfort and the doctor said I either had a UTI or yeast infection but that's not that case. I know for a fact I have vulvodynia due to intensive research and now I have changed everything. I can't go out with friends to the beach or their pool because it would be super uncomfortable, I can't wear underwear at night, I get uncomfortable during school so it's hard to concentrate, and I have started a completely new diet...gluten free and low oxalate foods. LEMME TELL YOU IT HAS HELPED!!! I also just took my first calcium citrate pill and I'm hoping it will help my symptoms. I also am trying to convince my mom to take me to a pelvic muscle physical therapist. I have three problems that contributes to my vulvodynia-1.) the constant UTI's when I was 14 really messed me up down there. 2.) I used to eat the most highly acidic foods ever that I guess irritated me down there. 3.) my pelvis has always been a little messed up. ALSO DON'T TAKE AZO CRANBERRY PILLS, THEY ARE HIGHLY ACIDIC AND I USED TO TAKE TWO A DAY. DIDN'T WORK. CAUSED MORE IRRITATION. AND DON'T TAKE MEDICATION PRESCRIBED BY YOUR DOCTOR THAT HAS CHEMICALS BECAUSE YOUR DOCTOR PROBABLY DOESN'T KNOW JACK SH*T ABOUT VULVODYNIA. BE NATURAL, EAT NATURAL, AND YOUR VULVODYNIA WILL GO AWAY. My vulvodynia symptoms have lessened due to the fact I have been eating more organic and been exercising a little everyday. I still am battling with this nightmare of an illness but I believe one day I will be cured and you can too. And here's a little tip: don't be stressed, when you're stressed it will get worse. Be calm, breathe normally, and heating pads do help when you apply it to the area where it is irritating you. Best of wishes xxx


Posts : 33
Join date : 2014-09-13

View user profile

Back to top Go down

Re: My Life Turned Upside Down

Post  RoseKa on Sun Sep 14, 2014 12:53 pm

Hi Everything
It hurts me to see when the young have to go through this nightmare but im so glad you are finding out the same things i am... When i told my newest doctor about my diet he looked at me like i was an alien or something...The diet change gave me relief and i didnt get pain flares again ever since so he told me to continue anyway as long as i was willibg to do frequent blood tests

We can heal this condition, i have no doubt about that now especially since the last 6-7 weeks... my pain has gone from 100% (at its worst) to 20% and i have been helped a lot from a generous and wise young man (Nicholas) on this thread for the last 4 weeks who made that possible
If you can id suggest reading the whole thread... Lots of helpful and empowering info...

I find it sad that the 3 vulvodynia specialists and the doctors ive seen through the years havent been able to help me with anything other than tests, suggesting therapies and treatments to manage my symptoms, sending me around in circles, diagnosis, misdiagnosis, and medications... (pain meds, hypertension meds, antidepressants etc) but now im finally off the medications. Im being helped so much more and to reverse the condition, over this forum, by a person ive never met and who isnt a trained vulvodynia specialist... for free... i mean, its so upside down lol


Posts : 33
Join date : 2014-08-15
Age : 39

View user profile

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum