Vulvodynia Support
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» Hope to all my suffering ladies
Sores down there, blisters turned into open sores  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Sores down there, blisters turned into open sores  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Sores down there, blisters turned into open sores  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Sores down there, blisters turned into open sores  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Sores down there, blisters turned into open sores  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Sores down there, blisters turned into open sores  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Sores down there, blisters turned into open sores  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Sores down there, blisters turned into open sores  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Sores down there, blisters turned into open sores  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Sores down there, blisters turned into open sores

4 posters

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Post  Sparkle Wed Nov 19, 2014 9:31 am

Hello ladies,

Does anyone suffer with sores down Ther? My provoked pain has gone but I still getting sores down there. I don't know how to make them go quickly.
Very hard being at work with something that started as a blister and quickly turned into wot I can only describe as an open sore :-( in so much pain today. Not sure how to cope with this. Any advice is appreciated.
X

Sparkle

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Post  Alana3 Wed Nov 19, 2014 1:04 pm

Have you been tested for herpes? I don't know why you'd have open sores or what to do about it... maybe go to doc :/

Alana3

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Post  Sparkle Wed Nov 19, 2014 9:45 pm

Yeah I've been tested for that already. It came back negative. It seems to be one of my symptoms, it came around the same time as the vulvadynia did and it's always in same place. I get a sore for a few weeks. Now I not getting pain anymore but these sores have still come up.. They are really painful like an ulcer on the outside of my vagina.
Doctor just says to wash it after I wee, wear baggy trousers and wait for it to go, be patient he says. Annoying cos having to work 5 days a week it's not possible to be like that in an office.

Just wasn't sure if maybe somone elae had or got this too? If anyone had advice on how to make them go quickly or dry them up.

Sparkle

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Post  Alana3 Thu Nov 20, 2014 1:11 am

Sorry I really dont have any advice for you, glad they aren't herpes though! Do they appear close to your period and do you use pads? Maybe an allergic reaction?

Alana3

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Post  Sparkle Thu Nov 20, 2014 9:13 am

No they aren't in sync with my period. I think I get them when I'm stressed out and also if I get a bit sweaty down there. I haven't had them for ages but becos my provoked pain has gone now I've been having sex again lately with my bf and I got a feeling that it's brought these on. Typical isn't it... Lol I'm going to try and dry them out... Just not sure what to use..Once they dry out they are less painful and go quicker.
Im also glad they aren't herpes!
Thanks for replying :-)

Sparkle

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Post  yoginimom Thu Nov 20, 2014 6:06 pm

Yep i've had those. but mine don't usually open into sores that i have noticed. I do blister though. I also got them tested for herpies, and had blood tests too, and it was all negative. My gyno said they were 'mast cells' which i guess is the same as hives? I think they are related to allergies. Have you tried taking benadryl? that's what i use when i get those and they are usually gone quite quickly. If you have to work and you are not used to benadryl take aerius during the day and benadryl at night because it will make you sleepy. If you are on any meds check with the pharmacist first though, because anti histamines can be contraindicated with certain medications.

Some woman can be allergic to yeast, do you commonly get yeast?


Last edited by yoginimom on Thu Nov 20, 2014 6:26 pm; edited 1 time in total

yoginimom

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Post  yoginimom Thu Nov 20, 2014 6:10 pm

PS did you use spermicide during sex? That's a really common allergy as well, as can be latex. I would def get them checked out by a gyno though. If you can.

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Post  Sparkle Thu Nov 20, 2014 7:29 pm

That's intersting cos I think I have thrush atm... I think I will try anti allergy tabs and see what happens. In waiting to get paid tomorow to buy a thrush tab as I've been told to not use the creme anymore. So I'll grab some anti allergy too. Looking back maybe I do get these when I have thrush! Worth trying anti allergys
I have put some Dead Sea salt on them today to try and dry them up too, a freind recommended that.

No I dont use anything like that. We use yes lube and that's it.

Thanks for your advice yoginimom :-) how are things with you "down there"? X

Sparkle

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Post  Sparkle Thu Nov 20, 2014 7:32 pm

I already got them checked the last time with my gyno and she tested them and said it was negative for anything. She thinks it's caused by stress but I'm not so sure

Sparkle

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Post  sailor_moon Sat Nov 22, 2014 12:16 am

Did they test you for both herpes type 1 and type 2?

It really does sound like that or a severe allergic reaction. Maybe even a form of chemical burn?

Did they swab the sore/blister?  That would be able to tell you if it is a bacterial infection.
sailor_moon
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Post  Sparkle Sat Nov 22, 2014 9:42 am

Yep been tested for both. And they swabbed the sore and tested that. Evwryrhing comes back negative...
It's defo not herpes, I never even get cold sores..

I'm thinking it's an allergic reaction to somink. I been using Dead Sea salt on it in evenings atm. It kills for about half hour but then feels better, doesn't last tho...but I want to find out how to make them go quicker.

Got my mates birthday today so annoying that these are here for today.

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Post  yoginimom Sat Nov 22, 2014 3:53 pm

Sparkle, if it is hives, try an oatmeal bath. I just bumped a thread for you that has links to recipes where you can make your own. Or you can buy pre made packets at the drug store. Also ask the pharmacist about the best antihistamine for allergic reactions. Because the kind of antihistamines for seasonal allergies wont help at all. (Been there tried that!) The only one that really works for me is benedryl. I will take aerius though sometimes if i have to work because it's non drowsy, but it doesn't work quite as quickly.

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Post  Sparkle Sun Nov 23, 2014 7:39 pm

Ahh ok thanks for that. I'm starting to think it must be an allergic reaction to something coa I don't see what else it could be. Yeah I'm going to go to pharmaxy tomorow wen I finish work.

How's things with you? Did u get your test results bk? Are u any closer to finding out what's causing yours?

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Post  Sparkle Sun Nov 23, 2014 7:40 pm

Sorry that last bit in the message is for sailor_moon. X

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