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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Pretty much cured!

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Pretty much cured!

Post  Mariahopes on Thu Mar 05, 2015 8:53 pm

Hi Ladies,

I felt it was important for me to share my progress with you all, considering it has been almost 2 years of utter hell!
My issues started following the natural delivery of my little girl in March of 2013. She was basically too big for me and the labour and subsequent delivery lasted 4 days!! 4 bloody days!!

I ended up with a large episiotomy and a manual delivery of the placenta- ouch! I never felt right afterwards and saw so many specialists- yet none of them could see or feel anything wrong.. but I would sting like mad- particularly when I walked!

I spent a long time tracking down Prof Wendy Reid at the Royal Free in London. She diagnosed me with 'dodgy skin'.. poss on the Lichen Sclerosis spectrum but she couldn't be sure. She said all my symptoms were coming from my incredibly tight pelvic floor muscle, my pudendal nerve was inflammed and irritated and this causes the stinging and tingling that I often experienced. She referred me to an excellent physio called Helen Forth. I have been seeing her for 3 months now and have NEVER felt so good. I am not totally cured, but a combo on 150mg of pregabalin, some mid steroid ointment for the skin, and a shed load of physio has gotten my pain down from a level 8 on most days to just about a 5 ONLY when I get my period! AMAZING!!!!!!

I know how much any pain in that area can affect self-esteem and self-confidence, I urge anyone really struggling with this to seek a really qualified professional with experience in treating pelvic pain. I know it is incredibly hard but you must have the patience of a saint as this thing does not go away over night and requires a significant amount of work to get on top of. I can have pain free sex.. i'm a bit of a vice but a bit of deep breathing and a couple of glasses of red wine goes a long way towards helping that!

I think the trouble with pelvic pain is that although it can present itself in many similar ways, there is no one cause for it, and subsequently, no one solution. Seeing an experienced practitioner is vital!

Be patient, stay strong, be positive, because it can and it WILL get better.

So much love to all of you... We are amazing women!
xxxxxxx


Mariahopes

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Re: Pretty much cured!

Post  Mariek on Mon Mar 09, 2015 11:44 pm

Thank you for the uplifting words. I hope you are right.

Mariek

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Pretty much cured

Post  Jo44 on Wed Mar 25, 2015 8:36 am

Hi Mariahopes

It's great to read of your progress. Please can I ask what steroid ointment you have been using as I have been on Pregabalin 150mg & Dermovate applied twice a day. I still have soreness & redness below. I've been using the cream since 6th Feb this year!

Did you have soreness too? Did you have any lower pelvic discomfort? I do & I wonder if it could be tight pelvic floor muscles too!

I'd appreciate your advice.
Many thanks

Jo x

Jo44

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Re: Pretty much cured!

Post  Emmae394 on Tue Jun 30, 2015 4:09 am

What is this "physio" that everyone is speaking of? I'm new to this forum and am seeking out any options to help manage my PVD!! Currently on 30mg of Nortriptyline, daily use of an estrogen/lidocaine compound cream and self pelvic floor muscle therapy with a therawand. All prescribed and suggested by my doctor who specializes in vestibulodynia. I'm 21 years old and have been dealing with this ever since recovering from chronic uti's for 2 years. Never thought I would have issues like this!

Emmae394

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Re: Pretty much cured!

Post  Georgia H on Thu Jul 09, 2015 5:23 pm

Hi guys! I thought I would add to this. I also saw Wendy Reid .. I owe her my life. I also live completely pain free now, she was a godsend. I recommend anyone in London to try and get in to see her. If you can afford it, pay privately, otherwise, you can get in on the NHS if you beg your GP.

Georgia H

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Re: Pretty much cured!

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