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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Pretty much cured!

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Pretty much cured!

Post  Mariahopes on Thu Mar 05, 2015 8:53 pm

Hi Ladies,

I felt it was important for me to share my progress with you all, considering it has been almost 2 years of utter hell!
My issues started following the natural delivery of my little girl in March of 2013. She was basically too big for me and the labour and subsequent delivery lasted 4 days!! 4 bloody days!!

I ended up with a large episiotomy and a manual delivery of the placenta- ouch! I never felt right afterwards and saw so many specialists- yet none of them could see or feel anything wrong.. but I would sting like mad- particularly when I walked!

I spent a long time tracking down Prof Wendy Reid at the Royal Free in London. She diagnosed me with 'dodgy skin'.. poss on the Lichen Sclerosis spectrum but she couldn't be sure. She said all my symptoms were coming from my incredibly tight pelvic floor muscle, my pudendal nerve was inflammed and irritated and this causes the stinging and tingling that I often experienced. She referred me to an excellent physio called Helen Forth. I have been seeing her for 3 months now and have NEVER felt so good. I am not totally cured, but a combo on 150mg of pregabalin, some mid steroid ointment for the skin, and a shed load of physio has gotten my pain down from a level 8 on most days to just about a 5 ONLY when I get my period! AMAZING!!!!!!

I know how much any pain in that area can affect self-esteem and self-confidence, I urge anyone really struggling with this to seek a really qualified professional with experience in treating pelvic pain. I know it is incredibly hard but you must have the patience of a saint as this thing does not go away over night and requires a significant amount of work to get on top of. I can have pain free sex.. i'm a bit of a vice but a bit of deep breathing and a couple of glasses of red wine goes a long way towards helping that!

I think the trouble with pelvic pain is that although it can present itself in many similar ways, there is no one cause for it, and subsequently, no one solution. Seeing an experienced practitioner is vital!

Be patient, stay strong, be positive, because it can and it WILL get better.

So much love to all of you... We are amazing women!
xxxxxxx


Mariahopes

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Re: Pretty much cured!

Post  Mariek on Mon Mar 09, 2015 11:44 pm

Thank you for the uplifting words. I hope you are right.

Mariek

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Pretty much cured

Post  Jo44 on Wed Mar 25, 2015 8:36 am

Hi Mariahopes

It's great to read of your progress. Please can I ask what steroid ointment you have been using as I have been on Pregabalin 150mg & Dermovate applied twice a day. I still have soreness & redness below. I've been using the cream since 6th Feb this year!

Did you have soreness too? Did you have any lower pelvic discomfort? I do & I wonder if it could be tight pelvic floor muscles too!

I'd appreciate your advice.
Many thanks

Jo x

Jo44

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Re: Pretty much cured!

Post  Emmae394 on Tue Jun 30, 2015 4:09 am

What is this "physio" that everyone is speaking of? I'm new to this forum and am seeking out any options to help manage my PVD!! Currently on 30mg of Nortriptyline, daily use of an estrogen/lidocaine compound cream and self pelvic floor muscle therapy with a therawand. All prescribed and suggested by my doctor who specializes in vestibulodynia. I'm 21 years old and have been dealing with this ever since recovering from chronic uti's for 2 years. Never thought I would have issues like this!

Emmae394

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Re: Pretty much cured!

Post  Georgia H on Thu Jul 09, 2015 5:23 pm

Hi guys! I thought I would add to this. I also saw Wendy Reid .. I owe her my life. I also live completely pain free now, she was a godsend. I recommend anyone in London to try and get in to see her. If you can afford it, pay privately, otherwise, you can get in on the NHS if you beg your GP.

Georgia H

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Re: Pretty much cured!

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