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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


Pretty much cured!

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Pretty much cured!

Post  Mariahopes on Thu Mar 05, 2015 8:53 pm

Hi Ladies,

I felt it was important for me to share my progress with you all, considering it has been almost 2 years of utter hell!
My issues started following the natural delivery of my little girl in March of 2013. She was basically too big for me and the labour and subsequent delivery lasted 4 days!! 4 bloody days!!

I ended up with a large episiotomy and a manual delivery of the placenta- ouch! I never felt right afterwards and saw so many specialists- yet none of them could see or feel anything wrong.. but I would sting like mad- particularly when I walked!

I spent a long time tracking down Prof Wendy Reid at the Royal Free in London. She diagnosed me with 'dodgy skin'.. poss on the Lichen Sclerosis spectrum but she couldn't be sure. She said all my symptoms were coming from my incredibly tight pelvic floor muscle, my pudendal nerve was inflammed and irritated and this causes the stinging and tingling that I often experienced. She referred me to an excellent physio called Helen Forth. I have been seeing her for 3 months now and have NEVER felt so good. I am not totally cured, but a combo on 150mg of pregabalin, some mid steroid ointment for the skin, and a shed load of physio has gotten my pain down from a level 8 on most days to just about a 5 ONLY when I get my period! AMAZING!!!!!!

I know how much any pain in that area can affect self-esteem and self-confidence, I urge anyone really struggling with this to seek a really qualified professional with experience in treating pelvic pain. I know it is incredibly hard but you must have the patience of a saint as this thing does not go away over night and requires a significant amount of work to get on top of. I can have pain free sex.. i'm a bit of a vice but a bit of deep breathing and a couple of glasses of red wine goes a long way towards helping that!

I think the trouble with pelvic pain is that although it can present itself in many similar ways, there is no one cause for it, and subsequently, no one solution. Seeing an experienced practitioner is vital!

Be patient, stay strong, be positive, because it can and it WILL get better.

So much love to all of you... We are amazing women!
xxxxxxx


Mariahopes

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Re: Pretty much cured!

Post  Mariek on Mon Mar 09, 2015 11:44 pm

Thank you for the uplifting words. I hope you are right.

Mariek

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Pretty much cured

Post  Jo44 on Wed Mar 25, 2015 8:36 am

Hi Mariahopes

It's great to read of your progress. Please can I ask what steroid ointment you have been using as I have been on Pregabalin 150mg & Dermovate applied twice a day. I still have soreness & redness below. I've been using the cream since 6th Feb this year!

Did you have soreness too? Did you have any lower pelvic discomfort? I do & I wonder if it could be tight pelvic floor muscles too!

I'd appreciate your advice.
Many thanks

Jo x

Jo44

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Re: Pretty much cured!

Post  Emmae394 on Tue Jun 30, 2015 4:09 am

What is this "physio" that everyone is speaking of? I'm new to this forum and am seeking out any options to help manage my PVD!! Currently on 30mg of Nortriptyline, daily use of an estrogen/lidocaine compound cream and self pelvic floor muscle therapy with a therawand. All prescribed and suggested by my doctor who specializes in vestibulodynia. I'm 21 years old and have been dealing with this ever since recovering from chronic uti's for 2 years. Never thought I would have issues like this!

Emmae394

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Re: Pretty much cured!

Post  Georgia H on Thu Jul 09, 2015 5:23 pm

Hi guys! I thought I would add to this. I also saw Wendy Reid .. I owe her my life. I also live completely pain free now, she was a godsend. I recommend anyone in London to try and get in to see her. If you can afford it, pay privately, otherwise, you can get in on the NHS if you beg your GP.

Georgia H

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Re: Pretty much cured!

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