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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


People's Experiences with Surgery

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People's Experiences with Surgery

Post  sgw11 on Sun Jul 05, 2015 8:32 am

Hi everyone,

I've posted here a few times but I'll just give a little back story. I've had provoked vulvodynia for almost 2 years. It's driving me insane. I was on amitriptyline and it cured me, but when I went off it the vulvodynia came back. So I went back on it but it's still here. I was also on 300mg of Lyrica per day for about 6 months but it did nothing for the pain. I also tried the laser treatment but that didn't work either. As the laser treatment is relatively new there was no guarantee it would work or not, but I thought I may as well give it a go.
My gynaecologist said my next option would be surgery. I just don't know if I could go through with it. She said the success rate is only about 80% so I don't know if it would be worth it to go through all of that for it to possibly not be gone. I was wondering if any of you could share your surgery stories and if it worked for you.

Thanks so much girls. This forum has really helped me.

sgw11

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Join date : 2015-02-18

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Re: People's Experiences with Surgery

Post  x_chelss@live.com on Wed Jul 08, 2015 10:29 am

Hiya, I've had the surgery done :-)
And in my opinion it was the easiest surgery and recovery ever. I'd have it done again tomorrow if I had too because it was that straight forward.
80% success rate is high when you think about it, if you google the statistics they are actually quite high. I wouldn't be worried about it not working, if the doctor has said your next option would be a vestobulectomy then that's a good sign that your a good candidate because there's only certain people who qualify to have a vestobulectomy.
I only had my surgery in Jamuary, my sex life is so much better and so is my daily life too!

x_chelss@live.com

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Re: People's Experiences with Surgery

Post  sgw11 on Sun Jul 12, 2015 9:10 am

Oh that sounds amazing. Unfortunately I went to the doctor the other day and its now changed from provoked vulvodynia to generalised provoked vestibulodynia so she thinks I'm not the best candidate anymore Sad thanks for replying though Smile I'm happy it worked for you!

sgw11

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Re: People's Experiences with Surgery

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