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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Help with vulvodynia

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Help with vulvodynia

Post  why57 on Fri Jul 01, 2016 2:25 am

I appreciate one of the Forum women regarding vulvodynia.
The doctor says that I need to have that surgery and that should fix it I don't think I want to do that. It seems like it's very painful long recovery and not a definite of it lasting forever. I've been going to bioidentical doctors the first one after a year said she can't help me and this was after trying creams hormones pills shots to testerone pellets nothing seemed to improve it. I even tried physical therapy I have no idea what triggers it
No entry in vagina
Any other time I have no symptoms




why57

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Re: Help with vulvodynia

Post  emalita on Fri Jul 01, 2016 3:00 am

Hi why57,

Let me make sure I understand.

You have pain with any penetration, not just sex, and you aren't aware of a trigger. The only treatments you've tried so far are hormones and physical therapy.

Is this correct? If so, I would HIGHLY recommend trying other treatments prior to having surgery. There are many pills and creams like gabapentin, amitriptyline, and lyrica that women have success with (there are many more than just these three).

Have you completely ruled out possible sensitivities (toilet paper, shampoo/conditioner, soap, body wash, lubricant, condoms, tampons/pads, feminine wipes, feminine sprays, etc.)? This can be a LOT of work and takes quite a bit of time and investigative work, but it is absolutely worth the effort.

Is the doctor you're seeing a vulvovaginal specialist? Do they treat vulvodynia a lot? I've found that you really have to dig to find a doctor who knows enough about this condition to even have the right, in my opinion, to suggest the possibility of surgery. I would highly recommend reading through the book "The V Book". It isn't specific to vulvodynia, but it covers a huge spectrum of vulvovaginal complaints.

I hope you find relief soon sunny

emalita

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Re: Help with vulvodynia

Post  why57 on Fri Jul 01, 2016 3:25 am

Wow you are simply amazing I can't thank you enough for all this information the latest doctor I'm going to says that he is a specialist in this area and yes I ruled out the sensitivity to toilet paper wipes and so on I will get the book The V book.
They had me on the hormones in creams and pills I don't even remember there were so many over the past year-and-a-half
.
Like I said I really don't want surgery I just want to get back to normal I will look into the three medication do you mentioned if I wanted to google other medications similar to this how would I do so?
I did read someone's post about gabapentin that it make you gain weight (I don't want that) is it true?
Forgive my grammar I am talking into the phone and it types so therefore there's not much punctuation.

I've been searching all over the Internet trying to find some answers and I came across this forum and I wish to thank you for your information and advice and if you think of anything else please please let me know you have a wonderful 4th of July be safe






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Re: Help with vulvodynia

Post  emalita on Fri Jul 01, 2016 3:51 am

Yep, I've heard gabapentin can cause weight gain, but you can get it in a compounded cream that's applied directly to the vulva to help reduce side effects.

I haven't used many of the typical prescriptions for vulvodynia because I don't have a nerve issue, but you can google something like "prescriptions for vulvodynia". That would be a good place to start, or you could look for a pain management specialist who has experience with vulvodynia. They should have a lot of options.

I'm sorry to hear that the pelvic floor physical therapy didn't help you. I've read a lot of stories from women who've said it starts them down the right path to some relief.

Keep us updated on how you're doing and what treatments you try Smile

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Re: Help with vulvodynia

Post  why57 on Fri Jul 01, 2016 4:22 am

Well I've already started reading part of the book they offer online like 30 pages like a preview to the book but like I said the book is coming on Sunday so I look forward to that and I will Google the prescriptions for vulvodynia
Have a good night thank you so much again

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Re: Help with vulvodynia

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