Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Help with vulvodynia

Go down

Help with vulvodynia

Post  why57 on Fri Jul 01, 2016 2:25 am

I appreciate one of the Forum women regarding vulvodynia.
The doctor says that I need to have that surgery and that should fix it I don't think I want to do that. It seems like it's very painful long recovery and not a definite of it lasting forever. I've been going to bioidentical doctors the first one after a year said she can't help me and this was after trying creams hormones pills shots to testerone pellets nothing seemed to improve it. I even tried physical therapy I have no idea what triggers it
No entry in vagina
Any other time I have no symptoms




why57

Posts : 4
Join date : 2016-06-30

View user profile

Back to top Go down

Re: Help with vulvodynia

Post  emalita on Fri Jul 01, 2016 3:00 am

Hi why57,

Let me make sure I understand.

You have pain with any penetration, not just sex, and you aren't aware of a trigger. The only treatments you've tried so far are hormones and physical therapy.

Is this correct? If so, I would HIGHLY recommend trying other treatments prior to having surgery. There are many pills and creams like gabapentin, amitriptyline, and lyrica that women have success with (there are many more than just these three).

Have you completely ruled out possible sensitivities (toilet paper, shampoo/conditioner, soap, body wash, lubricant, condoms, tampons/pads, feminine wipes, feminine sprays, etc.)? This can be a LOT of work and takes quite a bit of time and investigative work, but it is absolutely worth the effort.

Is the doctor you're seeing a vulvovaginal specialist? Do they treat vulvodynia a lot? I've found that you really have to dig to find a doctor who knows enough about this condition to even have the right, in my opinion, to suggest the possibility of surgery. I would highly recommend reading through the book "The V Book". It isn't specific to vulvodynia, but it covers a huge spectrum of vulvovaginal complaints.

I hope you find relief soon sunny

emalita

Posts : 221
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Help with vulvodynia

Post  why57 on Fri Jul 01, 2016 3:25 am

Wow you are simply amazing I can't thank you enough for all this information the latest doctor I'm going to says that he is a specialist in this area and yes I ruled out the sensitivity to toilet paper wipes and so on I will get the book The V book.
They had me on the hormones in creams and pills I don't even remember there were so many over the past year-and-a-half
.
Like I said I really don't want surgery I just want to get back to normal I will look into the three medication do you mentioned if I wanted to google other medications similar to this how would I do so?
I did read someone's post about gabapentin that it make you gain weight (I don't want that) is it true?
Forgive my grammar I am talking into the phone and it types so therefore there's not much punctuation.

I've been searching all over the Internet trying to find some answers and I came across this forum and I wish to thank you for your information and advice and if you think of anything else please please let me know you have a wonderful 4th of July be safe






why57

Posts : 4
Join date : 2016-06-30

View user profile

Back to top Go down

Re: Help with vulvodynia

Post  emalita on Fri Jul 01, 2016 3:51 am

Yep, I've heard gabapentin can cause weight gain, but you can get it in a compounded cream that's applied directly to the vulva to help reduce side effects.

I haven't used many of the typical prescriptions for vulvodynia because I don't have a nerve issue, but you can google something like "prescriptions for vulvodynia". That would be a good place to start, or you could look for a pain management specialist who has experience with vulvodynia. They should have a lot of options.

I'm sorry to hear that the pelvic floor physical therapy didn't help you. I've read a lot of stories from women who've said it starts them down the right path to some relief.

Keep us updated on how you're doing and what treatments you try Smile

emalita

Posts : 221
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Help with vulvodynia

Post  why57 on Fri Jul 01, 2016 4:22 am

Well I've already started reading part of the book they offer online like 30 pages like a preview to the book but like I said the book is coming on Sunday so I look forward to that and I will Google the prescriptions for vulvodynia
Have a good night thank you so much again

why57

Posts : 4
Join date : 2016-06-30

View user profile

Back to top Go down

Re: Help with vulvodynia

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum