Help with vulvodynia

I appreciate one of the Forum women regarding vulvodynia.
The doctor says that I need to have that surgery and that should fix it I don't think I want to do that. It seems like it's very painful long recovery and not a definite of it lasting forever. I've been going to bioidentical doctors the first one after a year said she can't help me and this was after trying creams hormones pills shots to testerone pellets nothing seemed to improve it. I even tried physical therapy I have no idea what triggers it
No entry in vagina
Any other time I have no symptoms

Hi why57,

Let me make sure I understand.

You have pain with any penetration, not just sex, and you aren't aware of a trigger. The only treatments you've tried so far are hormones and physical therapy.

Is this correct? If so, I would HIGHLY recommend trying other treatments prior to having surgery. There are many pills and creams like gabapentin, amitriptyline, and lyrica that women have success with (there are many more than just these three).

Have you completely ruled out possible sensitivities (toilet paper, shampoo/conditioner, soap, body wash, lubricant, condoms, tampons/pads, feminine wipes, feminine sprays, etc.)? This can be a LOT of work and takes quite a bit of time and investigative work, but it is absolutely worth the effort.

Is the doctor you're seeing a vulvovaginal specialist? Do they treat vulvodynia a lot? I've found that you really have to dig to find a doctor who knows enough about this condition to even have the right, in my opinion, to suggest the possibility of surgery. I would highly recommend reading through the book "The V Book". It isn't specific to vulvodynia, but it covers a huge spectrum of vulvovaginal complaints.

I hope you find relief soon

Wow you are simply amazing I can't thank you enough for all this information the latest doctor I'm going to says that he is a specialist in this area and yes I ruled out the sensitivity to toilet paper wipes and so on I will get the book The V book.
They had me on the hormones in creams and pills I don't even remember there were so many over the past year-and-a-half
.
Like I said I really don't want surgery I just want to get back to normal I will look into the three medication do you mentioned if I wanted to google other medications similar to this how would I do so?
I did read someone's post about gabapentin that it make you gain weight (I don't want that) is it true?
Forgive my grammar I am talking into the phone and it types so therefore there's not much punctuation.

I've been searching all over the Internet trying to find some answers and I came across this forum and I wish to thank you for your information and advice and if you think of anything else please please let me know you have a wonderful 4th of July be safe

Yep, I've heard gabapentin can cause weight gain, but you can get it in a compounded cream that's applied directly to the vulva to help reduce side effects.

I haven't used many of the typical prescriptions for vulvodynia because I don't have a nerve issue, but you can google something like "prescriptions for vulvodynia". That would be a good place to start, or you could look for a pain management specialist who has experience with vulvodynia. They should have a lot of options.

I'm sorry to hear that the pelvic floor physical therapy didn't help you. I've read a lot of stories from women who've said it starts them down the right path to some relief.

Keep us updated on how you're doing and what treatments you try

Well I've already started reading part of the book they offer online like 30 pages like a preview to the book but like I said the book is coming on Sunday so I look forward to that and I will Google the prescriptions for vulvodynia
Have a good night thank you so much again