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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Post Vestibulectomy Vulva Pain?

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Post Vestibulectomy Vulva Pain?

Post  ehesser on Sat Jul 16, 2016 3:07 am

Hi Everyone,

I had a vestibulectomy (with vaginal advancement) 4 weeks ago, and last week I developed new pain not associated with the surgical site on the right side of my labia minora. My recovery was going so well and then this burning, stinging, throbbing pain developed and I've had it for a week now. Has anyone experienced this post surgery? Is this temporary or here to stay? The pain spot seems inconsistent too, like there's sensitivity on my clit and left side of labia as well.. in the past week I've been using hydrocortisone cream and have been soaking in warm bathes abs have tried acupuncture. I feel as though my pain went from a 9 to an annoying 3, which seems like improvement but it worries me as I haven't had this kind of pain before so I don't know if it's temporary irritation or if I traded in my provoked vestibular pain for now unprovoked vulva pain?! I'm scared. Anyone one else experience the during healing process? Does it go away? Any advice would be appreciated! Thanks!

ehesser

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Re: Post Vestibulectomy Vulva Pain?

Post  emalita on Sat Jul 16, 2016 9:53 pm

Hi ehesser,

I've never personally had the surgery, but I've read posts from other women on here that have said it takes MANY months to heal (like 4+). I can't remember which post it was, but there was at least one lady talking about her pain being far worse until about 6 months after her surgery. Do a search on this forum and read some of the surgery experience posts (unfortunately this forum isn't really very active anymore).

I hope your new symptoms subside and you fully heal quickly Very Happy

emalita

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Re: Post Vestibulectomy Vulva Pain?

Post  PelvicStrong on Sat Sep 03, 2016 7:02 pm

Hi, I had the vestibulectomy done on the 12th of August and I'm 3 weeks into recovery.

My doctor took out the stitches yesterday which was very painful and I just can't resist to look at it today. There's a really ugly growth on the surgical area. My doctor said that there's some swelling because of the stitches. It just looks and feels like scar tissues to me. I have minor hypertrophic scars from my laparascopy but my doctor said that the tissue on the skin is different than the mucosa skin on the vestibule so I shouldn't form those hypertrophic scars when it's healed. I'm wondering if you experienced the same thing?

Another thing I'm also a bit concerned about is that he did a very partial vestibulectomy, only the lower and the most painful part of the vestibules were removed. I still had some redness and a bit of stinging on the upper part but it's nothing compared to the 6 o'clock location. Those minor stings and redness were always there but went away when I used Valium suppositories for pelvic floor muscle spasms. I read the book "When Sex Hurts", Dr. Goldenstein suggested to do a full vestibulectomy just in case so the pain doesn't get worst going to the remnant vestibules but everyone's different and my doctor did a q-tip test b4 he started surgery so I guess the pain scale I evaluated made him determine which needs to be removed. Not sure if this is what ou experienced or any of you had the same experience? I'm a bit worried too honestly but nothing we can do right now.

PelvicStrong

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vestibulectomy

Post  CarolRD on Thu Sep 08, 2016 10:27 pm

What was your results of the vulva biopsy? What was the main reason for your biopsy? Do they numb you?

CarolRD

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Re: Post Vestibulectomy Vulva Pain?

Post  Alana3 on Wed Oct 19, 2016 7:57 pm

I had a nasty yeast infection after my surgery that I flipped out about, but that's all it was. Maybe its something along those lines?

Alana3

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Re: Post Vestibulectomy Vulva Pain?

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