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» I don't know what to do anymore
Yesterday at 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Post Vestibulectomy Vulva Pain?

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Post Vestibulectomy Vulva Pain?

Post  ehesser on Sat Jul 16, 2016 3:07 am

Hi Everyone,

I had a vestibulectomy (with vaginal advancement) 4 weeks ago, and last week I developed new pain not associated with the surgical site on the right side of my labia minora. My recovery was going so well and then this burning, stinging, throbbing pain developed and I've had it for a week now. Has anyone experienced this post surgery? Is this temporary or here to stay? The pain spot seems inconsistent too, like there's sensitivity on my clit and left side of labia as well.. in the past week I've been using hydrocortisone cream and have been soaking in warm bathes abs have tried acupuncture. I feel as though my pain went from a 9 to an annoying 3, which seems like improvement but it worries me as I haven't had this kind of pain before so I don't know if it's temporary irritation or if I traded in my provoked vestibular pain for now unprovoked vulva pain?! I'm scared. Anyone one else experience the during healing process? Does it go away? Any advice would be appreciated! Thanks!

ehesser

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Re: Post Vestibulectomy Vulva Pain?

Post  emalita on Sat Jul 16, 2016 9:53 pm

Hi ehesser,

I've never personally had the surgery, but I've read posts from other women on here that have said it takes MANY months to heal (like 4+). I can't remember which post it was, but there was at least one lady talking about her pain being far worse until about 6 months after her surgery. Do a search on this forum and read some of the surgery experience posts (unfortunately this forum isn't really very active anymore).

I hope your new symptoms subside and you fully heal quickly Very Happy

emalita

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Re: Post Vestibulectomy Vulva Pain?

Post  PelvicStrong on Sat Sep 03, 2016 7:02 pm

Hi, I had the vestibulectomy done on the 12th of August and I'm 3 weeks into recovery.

My doctor took out the stitches yesterday which was very painful and I just can't resist to look at it today. There's a really ugly growth on the surgical area. My doctor said that there's some swelling because of the stitches. It just looks and feels like scar tissues to me. I have minor hypertrophic scars from my laparascopy but my doctor said that the tissue on the skin is different than the mucosa skin on the vestibule so I shouldn't form those hypertrophic scars when it's healed. I'm wondering if you experienced the same thing?

Another thing I'm also a bit concerned about is that he did a very partial vestibulectomy, only the lower and the most painful part of the vestibules were removed. I still had some redness and a bit of stinging on the upper part but it's nothing compared to the 6 o'clock location. Those minor stings and redness were always there but went away when I used Valium suppositories for pelvic floor muscle spasms. I read the book "When Sex Hurts", Dr. Goldenstein suggested to do a full vestibulectomy just in case so the pain doesn't get worst going to the remnant vestibules but everyone's different and my doctor did a q-tip test b4 he started surgery so I guess the pain scale I evaluated made him determine which needs to be removed. Not sure if this is what ou experienced or any of you had the same experience? I'm a bit worried too honestly but nothing we can do right now.

PelvicStrong

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vestibulectomy

Post  CarolRD on Thu Sep 08, 2016 10:27 pm

What was your results of the vulva biopsy? What was the main reason for your biopsy? Do they numb you?

CarolRD

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Re: Post Vestibulectomy Vulva Pain?

Post  Alana3 on Wed Oct 19, 2016 7:57 pm

I had a nasty yeast infection after my surgery that I flipped out about, but that's all it was. Maybe its something along those lines?

Alana3

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Re: Post Vestibulectomy Vulva Pain?

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