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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Post Vestibulectomy Vulva Pain?

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Post Vestibulectomy Vulva Pain?

Post  ehesser on Sat Jul 16, 2016 3:07 am

Hi Everyone,

I had a vestibulectomy (with vaginal advancement) 4 weeks ago, and last week I developed new pain not associated with the surgical site on the right side of my labia minora. My recovery was going so well and then this burning, stinging, throbbing pain developed and I've had it for a week now. Has anyone experienced this post surgery? Is this temporary or here to stay? The pain spot seems inconsistent too, like there's sensitivity on my clit and left side of labia as well.. in the past week I've been using hydrocortisone cream and have been soaking in warm bathes abs have tried acupuncture. I feel as though my pain went from a 9 to an annoying 3, which seems like improvement but it worries me as I haven't had this kind of pain before so I don't know if it's temporary irritation or if I traded in my provoked vestibular pain for now unprovoked vulva pain?! I'm scared. Anyone one else experience the during healing process? Does it go away? Any advice would be appreciated! Thanks!

ehesser

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Re: Post Vestibulectomy Vulva Pain?

Post  emalita on Sat Jul 16, 2016 9:53 pm

Hi ehesser,

I've never personally had the surgery, but I've read posts from other women on here that have said it takes MANY months to heal (like 4+). I can't remember which post it was, but there was at least one lady talking about her pain being far worse until about 6 months after her surgery. Do a search on this forum and read some of the surgery experience posts (unfortunately this forum isn't really very active anymore).

I hope your new symptoms subside and you fully heal quickly Very Happy

emalita

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Re: Post Vestibulectomy Vulva Pain?

Post  PelvicStrong on Sat Sep 03, 2016 7:02 pm

Hi, I had the vestibulectomy done on the 12th of August and I'm 3 weeks into recovery.

My doctor took out the stitches yesterday which was very painful and I just can't resist to look at it today. There's a really ugly growth on the surgical area. My doctor said that there's some swelling because of the stitches. It just looks and feels like scar tissues to me. I have minor hypertrophic scars from my laparascopy but my doctor said that the tissue on the skin is different than the mucosa skin on the vestibule so I shouldn't form those hypertrophic scars when it's healed. I'm wondering if you experienced the same thing?

Another thing I'm also a bit concerned about is that he did a very partial vestibulectomy, only the lower and the most painful part of the vestibules were removed. I still had some redness and a bit of stinging on the upper part but it's nothing compared to the 6 o'clock location. Those minor stings and redness were always there but went away when I used Valium suppositories for pelvic floor muscle spasms. I read the book "When Sex Hurts", Dr. Goldenstein suggested to do a full vestibulectomy just in case so the pain doesn't get worst going to the remnant vestibules but everyone's different and my doctor did a q-tip test b4 he started surgery so I guess the pain scale I evaluated made him determine which needs to be removed. Not sure if this is what ou experienced or any of you had the same experience? I'm a bit worried too honestly but nothing we can do right now.

PelvicStrong

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vestibulectomy

Post  CarolRD on Thu Sep 08, 2016 10:27 pm

What was your results of the vulva biopsy? What was the main reason for your biopsy? Do they numb you?

CarolRD

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Re: Post Vestibulectomy Vulva Pain?

Post  Alana3 on Wed Oct 19, 2016 7:57 pm

I had a nasty yeast infection after my surgery that I flipped out about, but that's all it was. Maybe its something along those lines?

Alana3

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Re: Post Vestibulectomy Vulva Pain?

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