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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Change in vulvodynia symptoms
3 posters
Page 1 of 1
Change in vulvodynia symptoms
Hello everyone
If anyone could help me with this symptom change I would welcome any advice.
Most of my pain used to be on my vulva on the left side at the labia majora and I have had this consistently for 2 years. Just recently it has shifted to my right which (apart from the odd feeling of discomfort now and then) was not really painful till this happened. It also seems to affect a wider radius too and I'm getting fold cuts on my labia minora which bleed where the skin is becoming sore and reddened.
Weirdly I first noticed that my right thigh has an itchy area (with no evidence of a sore or a spot) which doesn't go away and this was followed by the increased labia pain.
Has anyone experienced anything similar with it suddenly changing from one area to another?
I started amitryptiline 10mg about 5 weeks ago and thought I was doing OK but now I feel it is worse.
I asked my GP if some oestrogen cream might help the skin but they say not. I'm 57 and well through menopause
Thank you for any advice you can offer me
If anyone could help me with this symptom change I would welcome any advice.
Most of my pain used to be on my vulva on the left side at the labia majora and I have had this consistently for 2 years. Just recently it has shifted to my right which (apart from the odd feeling of discomfort now and then) was not really painful till this happened. It also seems to affect a wider radius too and I'm getting fold cuts on my labia minora which bleed where the skin is becoming sore and reddened.
Weirdly I first noticed that my right thigh has an itchy area (with no evidence of a sore or a spot) which doesn't go away and this was followed by the increased labia pain.
Has anyone experienced anything similar with it suddenly changing from one area to another?
I started amitryptiline 10mg about 5 weeks ago and thought I was doing OK but now I feel it is worse.
I asked my GP if some oestrogen cream might help the skin but they say not. I'm 57 and well through menopause
Thank you for any advice you can offer me
Annmaria- Posts : 7
Join date : 2016-05-01
Re: Change in vulvodynia symptoms
With a change in symptoms, I'd suggest you go for another examination. Dry and cracked skin and itchiness could point to eczema though. I have seborrheic eczema as well as my vulvodynia and I was prescribed a steroid ointment (ointment - not cream, as cream has more ingredients that could irritate) for it. I'm not a big fan of using steroid creams there, so after a while of feeling like my ointment wasn't working, instead I applied coconut oil each day - it worked quite well. Sorry if TMI, but I'd break off a lump of the coconut oil and insert it like a pessary, and also rub a little around the outer parts too. It's just about keeping moisturised, but making sure you use as few unnatural ingredients as possible.
It's only one suggestion, but it won't hurt to use the coconut oil until you can be seen by your Dr.
It's only one suggestion, but it won't hurt to use the coconut oil until you can be seen by your Dr.
Coop- Posts : 11
Join date : 2016-08-28
Re: Change in vulvodynia symptoms
Thank you so much!
I hadn't thought of 'inserting the coconut oil but that seems that it would help.
I hadn't thought of 'inserting the coconut oil but that seems that it would help.
Annmaria- Posts : 7
Join date : 2016-05-01
Re: Change in vulvodynia symptoms
yes, I had this years ago when it started. It's simply because (I think) nerves communicate with one another...they "signal" "there is pain, you should be hurting." hence the other area hurting too.
You need to start some lidocaine creme or gel, like Posterisan or instillagel, desentitization therapy ( you can do this yourself) as well as more medication, ami doesn't work until at least 30 mg..it also takes forever to start working, like 2 months
You need to start some lidocaine creme or gel, like Posterisan or instillagel, desentitization therapy ( you can do this yourself) as well as more medication, ami doesn't work until at least 30 mg..it also takes forever to start working, like 2 months
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer