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» I think I've developed vulvodynia?? Please help!
Yesterday at 10:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 1:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 4:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 10:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 6:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 5:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 3:37 am by sarisbaris

» What is Vulvodynia?
Wed Oct 18, 2017 12:57 am by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 3:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Thu Apr 27, 2017 12:46 am by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 9:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 10:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 6:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 7:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 7:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 9:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 2:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 2:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Pain following a vaginal cyst procedure a year ago.

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Pain following a vaginal cyst procedure a year ago.

Post  crackleberry on Sat Feb 11, 2017 11:22 pm

Hi everyone, I'm sorry this is going to be long, but please listen and help if you can. I am a 17 year old girl. In february of 2016 I had a mass protruding from my vagina, I went to the er, they didn't know what kind of cyst it was but they did an incision and drainage and put a word catheter in to help the cyst drain. During the procedure I had a sharp pain from where she cut me, but once it was over, the pain went away. When I got home I had green discharge, very very thick, almost like a booger, it was a small amount but still noticeable and I knew it had to do with the cyst. Everything was fine except for occasional discomfort now and then in the area where she cut me. About three months later though, I started experiencing pain in the exact area where she cut me and it hasn't gone away since. I still have the green discharge when the pain is really bad, and I have tried to get it cultured, but when I go to the gyno the discharge isn't there. I have been to so many doctors and they all say that because there isn't anything visually wrong with my vagina that means its in my head or I'm making it up. I feel like I am going crazy. I have severe anxiety attacks and can't do anything for days because of this pain and the worry that I'll always be in pain or that I will get another cyst and have to go through another procedure and be in pain 2x as bad. I'm severely depressed knowing that I can't masturbate or have sex and probably never will. At the end of december I tried to masturbate with my clit and then the whole right side of my vagina swelled up. There is now a tiny bump near the entrance of my vagina on the right side which scares me half to death. I have tried to get an mri of my vagina because I know something is wrong but the doctors say that because they can't see anything wrong they can't order and mri. My gyno told me to go to the er if the pain gets bad or it swells up again, but what are they going to do for me at er if not even a gyno can help me?!?! I don't want to go to a hospital and spread my legs for yet another doctor to tell me it looks fine and send me on my way. I can't deal with it anymore. Can anyone please give me some advice or guidance? It's been a year with the same green discharge and the pain only seems to be getting worse. I feel completely alone and scared in this. The pain is usually on the right side where I was cut at the er, but I also have been having pain on the left side as well. I really don't know if this is vulvodynia. It is vulvar pain, but the green discharge leads me to believe that there is an identifiable cause for my pain, but no doctor will listen or try to find a plan to help me. Maybe I'm just in denial, but I feel like there has to be a way to fix this. The pain recently moved up my labia and is closer to my clit now. I'm sorry if this is too weird or something, I just don't know what to do. Any help would be greatly appreciated, I have never felt so alone in my life.


Last edited by crackleberry on Sat Feb 11, 2017 11:24 pm; edited 1 time in total (Reason for editing : wanted to add more information)

crackleberry

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