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» Vestibulectory removes 85% of pain, Birth removes 15%
Yesterday at 8:27 pm by pangea

» Recovered! It gets better!
Fri May 26, 2017 9:40 pm by mary jane

» Pain management - what works for me
Fri May 26, 2017 6:21 pm by SinclairSassy

» Vestibulitiis surgery
Mon May 22, 2017 4:18 pm by Gill

» Does it go away?
Mon May 22, 2017 2:12 pm by mary jane

» Amitriptyline and Uribel
Mon May 22, 2017 1:35 pm by SinclairSassy

» Post Full Vestibulectomy - 5 Years Later - Please Read
Mon May 22, 2017 10:12 am by flick001

» Social Security Disability Benefits
Fri May 19, 2017 8:50 pm by SinclairSassy

» Recovered from Vulvodynia
Thu May 18, 2017 4:20 pm by sarahjane1332343

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 9

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

New to the group

Fri Mar 17, 2017 9:52 pm by canuck girl

Hi Everyone
I found the site tonight, and am so pleased I did, I hadn't realised it was such  a problem, and I for one am grateful that the group exists. I recently had a really awful , well the worst one I had ever had UTI, after 4 days of antibiotics it should have cleared though. i now had this awful feeling, and sensations, very sore, burning, some strange sensations I have  that  are hard …

Comments: 1

How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

Comments: 4


Pain following a vaginal cyst procedure a year ago.

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Pain following a vaginal cyst procedure a year ago.

Post  crackleberry on Sat Feb 11, 2017 11:22 pm

Hi everyone, I'm sorry this is going to be long, but please listen and help if you can. I am a 17 year old girl. In february of 2016 I had a mass protruding from my vagina, I went to the er, they didn't know what kind of cyst it was but they did an incision and drainage and put a word catheter in to help the cyst drain. During the procedure I had a sharp pain from where she cut me, but once it was over, the pain went away. When I got home I had green discharge, very very thick, almost like a booger, it was a small amount but still noticeable and I knew it had to do with the cyst. Everything was fine except for occasional discomfort now and then in the area where she cut me. About three months later though, I started experiencing pain in the exact area where she cut me and it hasn't gone away since. I still have the green discharge when the pain is really bad, and I have tried to get it cultured, but when I go to the gyno the discharge isn't there. I have been to so many doctors and they all say that because there isn't anything visually wrong with my vagina that means its in my head or I'm making it up. I feel like I am going crazy. I have severe anxiety attacks and can't do anything for days because of this pain and the worry that I'll always be in pain or that I will get another cyst and have to go through another procedure and be in pain 2x as bad. I'm severely depressed knowing that I can't masturbate or have sex and probably never will. At the end of december I tried to masturbate with my clit and then the whole right side of my vagina swelled up. There is now a tiny bump near the entrance of my vagina on the right side which scares me half to death. I have tried to get an mri of my vagina because I know something is wrong but the doctors say that because they can't see anything wrong they can't order and mri. My gyno told me to go to the er if the pain gets bad or it swells up again, but what are they going to do for me at er if not even a gyno can help me?!?! I don't want to go to a hospital and spread my legs for yet another doctor to tell me it looks fine and send me on my way. I can't deal with it anymore. Can anyone please give me some advice or guidance? It's been a year with the same green discharge and the pain only seems to be getting worse. I feel completely alone and scared in this. The pain is usually on the right side where I was cut at the er, but I also have been having pain on the left side as well. I really don't know if this is vulvodynia. It is vulvar pain, but the green discharge leads me to believe that there is an identifiable cause for my pain, but no doctor will listen or try to find a plan to help me. Maybe I'm just in denial, but I feel like there has to be a way to fix this. The pain recently moved up my labia and is closer to my clit now. I'm sorry if this is too weird or something, I just don't know what to do. Any help would be greatly appreciated, I have never felt so alone in my life.


Last edited by crackleberry on Sat Feb 11, 2017 11:24 pm; edited 1 time in total (Reason for editing : wanted to add more information)

crackleberry

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Join date : 2017-02-11

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