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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Pain following a vaginal cyst procedure a year ago.

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Pain following a vaginal cyst procedure a year ago.

Post  crackleberry on Sat Feb 11, 2017 11:22 pm

Hi everyone, I'm sorry this is going to be long, but please listen and help if you can. I am a 17 year old girl. In february of 2016 I had a mass protruding from my vagina, I went to the er, they didn't know what kind of cyst it was but they did an incision and drainage and put a word catheter in to help the cyst drain. During the procedure I had a sharp pain from where she cut me, but once it was over, the pain went away. When I got home I had green discharge, very very thick, almost like a booger, it was a small amount but still noticeable and I knew it had to do with the cyst. Everything was fine except for occasional discomfort now and then in the area where she cut me. About three months later though, I started experiencing pain in the exact area where she cut me and it hasn't gone away since. I still have the green discharge when the pain is really bad, and I have tried to get it cultured, but when I go to the gyno the discharge isn't there. I have been to so many doctors and they all say that because there isn't anything visually wrong with my vagina that means its in my head or I'm making it up. I feel like I am going crazy. I have severe anxiety attacks and can't do anything for days because of this pain and the worry that I'll always be in pain or that I will get another cyst and have to go through another procedure and be in pain 2x as bad. I'm severely depressed knowing that I can't masturbate or have sex and probably never will. At the end of december I tried to masturbate with my clit and then the whole right side of my vagina swelled up. There is now a tiny bump near the entrance of my vagina on the right side which scares me half to death. I have tried to get an mri of my vagina because I know something is wrong but the doctors say that because they can't see anything wrong they can't order and mri. My gyno told me to go to the er if the pain gets bad or it swells up again, but what are they going to do for me at er if not even a gyno can help me?!?! I don't want to go to a hospital and spread my legs for yet another doctor to tell me it looks fine and send me on my way. I can't deal with it anymore. Can anyone please give me some advice or guidance? It's been a year with the same green discharge and the pain only seems to be getting worse. I feel completely alone and scared in this. The pain is usually on the right side where I was cut at the er, but I also have been having pain on the left side as well. I really don't know if this is vulvodynia. It is vulvar pain, but the green discharge leads me to believe that there is an identifiable cause for my pain, but no doctor will listen or try to find a plan to help me. Maybe I'm just in denial, but I feel like there has to be a way to fix this. The pain recently moved up my labia and is closer to my clit now. I'm sorry if this is too weird or something, I just don't know what to do. Any help would be greatly appreciated, I have never felt so alone in my life.


Last edited by crackleberry on Sat Feb 11, 2017 11:24 pm; edited 1 time in total (Reason for editing : wanted to add more information)

crackleberry

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