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» Had this for 5 years, looking for people who understand
Sun Nov 18, 2018 11:22 pm by srbry

» IMPORTANT FOR UK SUFFERERS
Sun Nov 18, 2018 8:42 pm by srbry

» Found relief after more than 15 years of pain!
Thu Oct 25, 2018 4:29 pm by AlwaysInPain

» Back pain, burning feet and vulvodynia....all related?
Sat Oct 20, 2018 3:50 am by lindsey_taylor

» Anyone have pain with urination?
Thu Oct 18, 2018 9:55 am by Gaby

» New member - just looking for feedback
Mon Oct 15, 2018 5:40 pm by mertzwl

» Will I ever be able to wear jeans?
Sun Oct 14, 2018 4:14 pm by Npage14

» Amitriptyline Success and new-found love
Thu Oct 11, 2018 8:29 pm by megaanx

» Diagnosed recently, looking for advice
Wed Oct 10, 2018 2:30 pm by wuhujen

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Pain following a vaginal cyst procedure a year ago.

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Pain following a vaginal cyst procedure a year ago.

Post  crackleberry on Sat Feb 11, 2017 11:22 pm

Hi everyone, I'm sorry this is going to be long, but please listen and help if you can. I am a 17 year old girl. In february of 2016 I had a mass protruding from my vagina, I went to the er, they didn't know what kind of cyst it was but they did an incision and drainage and put a word catheter in to help the cyst drain. During the procedure I had a sharp pain from where she cut me, but once it was over, the pain went away. When I got home I had green discharge, very very thick, almost like a booger, it was a small amount but still noticeable and I knew it had to do with the cyst. Everything was fine except for occasional discomfort now and then in the area where she cut me. About three months later though, I started experiencing pain in the exact area where she cut me and it hasn't gone away since. I still have the green discharge when the pain is really bad, and I have tried to get it cultured, but when I go to the gyno the discharge isn't there. I have been to so many doctors and they all say that because there isn't anything visually wrong with my vagina that means its in my head or I'm making it up. I feel like I am going crazy. I have severe anxiety attacks and can't do anything for days because of this pain and the worry that I'll always be in pain or that I will get another cyst and have to go through another procedure and be in pain 2x as bad. I'm severely depressed knowing that I can't masturbate or have sex and probably never will. At the end of december I tried to masturbate with my clit and then the whole right side of my vagina swelled up. There is now a tiny bump near the entrance of my vagina on the right side which scares me half to death. I have tried to get an mri of my vagina because I know something is wrong but the doctors say that because they can't see anything wrong they can't order and mri. My gyno told me to go to the er if the pain gets bad or it swells up again, but what are they going to do for me at er if not even a gyno can help me?!?! I don't want to go to a hospital and spread my legs for yet another doctor to tell me it looks fine and send me on my way. I can't deal with it anymore. Can anyone please give me some advice or guidance? It's been a year with the same green discharge and the pain only seems to be getting worse. I feel completely alone and scared in this. The pain is usually on the right side where I was cut at the er, but I also have been having pain on the left side as well. I really don't know if this is vulvodynia. It is vulvar pain, but the green discharge leads me to believe that there is an identifiable cause for my pain, but no doctor will listen or try to find a plan to help me. Maybe I'm just in denial, but I feel like there has to be a way to fix this. The pain recently moved up my labia and is closer to my clit now. I'm sorry if this is too weird or something, I just don't know what to do. Any help would be greatly appreciated, I have never felt so alone in my life.


Last edited by crackleberry on Sat Feb 11, 2017 11:24 pm; edited 1 time in total (Reason for editing : wanted to add more information)

crackleberry

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Join date : 2017-02-11

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