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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Experienced Vestibulectomy Surgeons in England?

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Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Tue Mar 28, 2017 10:37 am

Hey everyone!

Wat are the names and locations of experienced vestibulectomy surgeons in England? The only experienced vulvodynia consultant I've read about so far is David Nunns but I'm not sure if he actually carries out the vestibulectomy surgery.

Thanks in advance :- )

Kezz xx

Kezz

Posts : 24
Join date : 2017-03-28
Location : London, England

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Sorry it is so late

Post  infinitelywondering on Thu Aug 03, 2017 6:10 pm

Hiya,

Miss Gabrielle Downey in Birmingham does Vestibulectomy. She is retiring soon so better catch her quickly!

I know she still does clinics privately at BMI Edgbaston- it would be worth it !

Hope you see this,
lots of love

x

infinitelywondering

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Re: Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Fri Aug 04, 2017 10:27 am

Thanks hun! I got an email alert for your reply. Since posting I've actually been to see her lol! I'm scheduling the appointment for hopefully sometime in October! Oh no I didn't realise she was retiring, do you know when she is? I have to pay for the operation because I don't have private health insurance so that sucks but I feel like it'll be worth, nearly 4 grand. But if that means I get my life back, money means nothing. Do you have it done? Lovely to hear from you and thanks so much for the reply lovely. Xxx xxx

Kezz

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Just had the operation

Post  infinitelywondering on Fri Aug 04, 2017 11:02 am

Yes! I just had the operation done on Wednesday... so feeling a little rough at the moment ! I'm only 17 so hopefully I should start healing pretty soon and yes, I don't think you can put a price on getting your life back. For me it's not so detrimental because I'm not at the age of having children and so on, but in the future it would've meant that I couldn't do any of that. I'm praying that the operation worked for me and i get better soon!

I think you should know that you won't reap the benefits of this op for a while- healing does take quite sone time. I'm giving it at least 6 months to fully heal. Then I'll start using dilators. It is a long process (and painful!) but I think it's worth it Smile

If you need any more help then please don't hesitate to message me privately !

Lots of love

infinitelywondering

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Re: Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Fri Aug 04, 2017 11:39 am

Hey hun Smile thanks for reply! I'm a bit clueless on this lol. How do you private message? I hope you're not in too much pain but so happy for you that you had it done. I'd absolutely love to have a chat with you about it! Xxx

Kezz

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Re: Experienced Vestibulectomy Surgeons in England?

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