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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Experienced Vestibulectomy Surgeons in England?

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Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Tue Mar 28, 2017 10:37 am

Hey everyone!

Wat are the names and locations of experienced vestibulectomy surgeons in England? The only experienced vulvodynia consultant I've read about so far is David Nunns but I'm not sure if he actually carries out the vestibulectomy surgery.

Thanks in advance :- )

Kezz xx

Kezz

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Sorry it is so late

Post  infinitelywondering on Thu Aug 03, 2017 6:10 pm

Hiya,

Miss Gabrielle Downey in Birmingham does Vestibulectomy. She is retiring soon so better catch her quickly!

I know she still does clinics privately at BMI Edgbaston- it would be worth it !

Hope you see this,
lots of love

x

infinitelywondering

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Re: Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Fri Aug 04, 2017 10:27 am

Thanks hun! I got an email alert for your reply. Since posting I've actually been to see her lol! I'm scheduling the appointment for hopefully sometime in October! Oh no I didn't realise she was retiring, do you know when she is? I have to pay for the operation because I don't have private health insurance so that sucks but I feel like it'll be worth, nearly 4 grand. But if that means I get my life back, money means nothing. Do you have it done? Lovely to hear from you and thanks so much for the reply lovely. Xxx xxx

Kezz

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Just had the operation

Post  infinitelywondering on Fri Aug 04, 2017 11:02 am

Yes! I just had the operation done on Wednesday... so feeling a little rough at the moment ! I'm only 17 so hopefully I should start healing pretty soon and yes, I don't think you can put a price on getting your life back. For me it's not so detrimental because I'm not at the age of having children and so on, but in the future it would've meant that I couldn't do any of that. I'm praying that the operation worked for me and i get better soon!

I think you should know that you won't reap the benefits of this op for a while- healing does take quite sone time. I'm giving it at least 6 months to fully heal. Then I'll start using dilators. It is a long process (and painful!) but I think it's worth it Smile

If you need any more help then please don't hesitate to message me privately !

Lots of love

infinitelywondering

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Re: Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Fri Aug 04, 2017 11:39 am

Hey hun Smile thanks for reply! I'm a bit clueless on this lol. How do you private message? I hope you're not in too much pain but so happy for you that you had it done. I'd absolutely love to have a chat with you about it! Xxx

Kezz

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Re: Experienced Vestibulectomy Surgeons in England?

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