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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Experienced Vestibulectomy Surgeons in England?

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Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Tue Mar 28, 2017 10:37 am

Hey everyone!

Wat are the names and locations of experienced vestibulectomy surgeons in England? The only experienced vulvodynia consultant I've read about so far is David Nunns but I'm not sure if he actually carries out the vestibulectomy surgery.

Thanks in advance :- )

Kezz xx

Kezz

Posts : 16
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Location : London, England

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Sorry it is so late

Post  infinitelywondering on Thu Aug 03, 2017 6:10 pm

Hiya,

Miss Gabrielle Downey in Birmingham does Vestibulectomy. She is retiring soon so better catch her quickly!

I know she still does clinics privately at BMI Edgbaston- it would be worth it !

Hope you see this,
lots of love

x

infinitelywondering

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Re: Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Fri Aug 04, 2017 10:27 am

Thanks hun! I got an email alert for your reply. Since posting I've actually been to see her lol! I'm scheduling the appointment for hopefully sometime in October! Oh no I didn't realise she was retiring, do you know when she is? I have to pay for the operation because I don't have private health insurance so that sucks but I feel like it'll be worth, nearly 4 grand. But if that means I get my life back, money means nothing. Do you have it done? Lovely to hear from you and thanks so much for the reply lovely. Xxx xxx

Kezz

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Just had the operation

Post  infinitelywondering on Fri Aug 04, 2017 11:02 am

Yes! I just had the operation done on Wednesday... so feeling a little rough at the moment ! I'm only 17 so hopefully I should start healing pretty soon and yes, I don't think you can put a price on getting your life back. For me it's not so detrimental because I'm not at the age of having children and so on, but in the future it would've meant that I couldn't do any of that. I'm praying that the operation worked for me and i get better soon!

I think you should know that you won't reap the benefits of this op for a while- healing does take quite sone time. I'm giving it at least 6 months to fully heal. Then I'll start using dilators. It is a long process (and painful!) but I think it's worth it Smile

If you need any more help then please don't hesitate to message me privately !

Lots of love

infinitelywondering

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Re: Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Fri Aug 04, 2017 11:39 am

Hey hun Smile thanks for reply! I'm a bit clueless on this lol. How do you private message? I hope you're not in too much pain but so happy for you that you had it done. I'd absolutely love to have a chat with you about it! Xxx

Kezz

Posts : 16
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Re: Experienced Vestibulectomy Surgeons in England?

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