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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Experienced Vestibulectomy Surgeons in England?

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Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Tue Mar 28, 2017 10:37 am

Hey everyone!

Wat are the names and locations of experienced vestibulectomy surgeons in England? The only experienced vulvodynia consultant I've read about so far is David Nunns but I'm not sure if he actually carries out the vestibulectomy surgery.

Thanks in advance :- )

Kezz xx

Kezz

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Location : London, England

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Sorry it is so late

Post  infinitelywondering on Thu Aug 03, 2017 6:10 pm

Hiya,

Miss Gabrielle Downey in Birmingham does Vestibulectomy. She is retiring soon so better catch her quickly!

I know she still does clinics privately at BMI Edgbaston- it would be worth it !

Hope you see this,
lots of love

x

infinitelywondering

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Re: Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Fri Aug 04, 2017 10:27 am

Thanks hun! I got an email alert for your reply. Since posting I've actually been to see her lol! I'm scheduling the appointment for hopefully sometime in October! Oh no I didn't realise she was retiring, do you know when she is? I have to pay for the operation because I don't have private health insurance so that sucks but I feel like it'll be worth, nearly 4 grand. But if that means I get my life back, money means nothing. Do you have it done? Lovely to hear from you and thanks so much for the reply lovely. Xxx xxx

Kezz

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Just had the operation

Post  infinitelywondering on Fri Aug 04, 2017 11:02 am

Yes! I just had the operation done on Wednesday... so feeling a little rough at the moment ! I'm only 17 so hopefully I should start healing pretty soon and yes, I don't think you can put a price on getting your life back. For me it's not so detrimental because I'm not at the age of having children and so on, but in the future it would've meant that I couldn't do any of that. I'm praying that the operation worked for me and i get better soon!

I think you should know that you won't reap the benefits of this op for a while- healing does take quite sone time. I'm giving it at least 6 months to fully heal. Then I'll start using dilators. It is a long process (and painful!) but I think it's worth it Smile

If you need any more help then please don't hesitate to message me privately !

Lots of love

infinitelywondering

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Re: Experienced Vestibulectomy Surgeons in England?

Post  Kezz on Fri Aug 04, 2017 11:39 am

Hey hun Smile thanks for reply! I'm a bit clueless on this lol. How do you private message? I hope you're not in too much pain but so happy for you that you had it done. I'd absolutely love to have a chat with you about it! Xxx

Kezz

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Re: Experienced Vestibulectomy Surgeons in England?

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