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» Vulvadynia
Yesterday at 11:53 pm by Linda Williams

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Constant pain, I want to die.
Wed Jul 19, 2017 10:55 pm by jungleclover

» What is Vulvodynia?
Wed Jul 19, 2017 10:42 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

» Surgery Success - Still early days, but going well so far!
Sun Jul 16, 2017 8:42 pm by sarahjane1332343

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3


Does Vulvodynia affect your sexual partner?

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Does Vulvodynia affect your sexual partner?

Post  rmb on Tue Mar 28, 2017 10:27 pm

I have been dealing with this for 10+ years. I am almost 26 and this started when I was 15. I have constant burning feeling in my vulva area, sometimes things make it worse but it is always there. Rain or shine. I am being told I have Vulvodynia....the only thing that is keeping me from accepting this is that my boyfriend complains about his urethra being irritated feeling after having sex with me and he's not the first boyfriend to complain about this. I have been tested for every possible thing out there and everything comes back as fine. Has anyone else had sexual partners complain about this?

rmb

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Tenderness?

Post  amyhp on Thu Apr 13, 2017 7:34 pm

Do you have constant pain and tenderness or just constant burning? I am so sorry you have suffered with this for so long Sad
My husband has never mentioned having urethra pain after sex.

amyhp

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Burning

Post  rmb on Thu Apr 13, 2017 8:38 pm

Basically just constant burning Sad and knowing that its affecting my boyfriend is killing me...It's one thing that I have deal with this discomfort on a daily basis but knowing that I'm passing it on makes me feel like I can never have a normal relationship or kids or anything...I just feel like my life is passing me by and I can't even enjoy it

rmb

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I understand

Post  amyhp on Fri Apr 14, 2017 4:03 pm

I completely understand. I am 25 years old and married. The pain stared for me when I was 20 after 6 months of being on the birth control pill and 2 months after marriage. I feel horrible for how this impacts my husband's life, but he stands by me and NEVER complains. If you ever want to talk you can private message me. <3

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  amyhp on Mon Apr 17, 2017 3:30 pm

Also, if your burning is caused by vulvodynia there is no way that the burning could be passed to your partner. So no need to worry about that!!

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  rmb on Mon Apr 17, 2017 4:14 pm

Yes, that's why I wanted to reach out to other's who have been diagnosed with Vuvlodynia...It's like having chronic pain in your shoulder just because your shoulder touches someone else's shoulder doesn't mean that they're going to start having shoulder pain...that might be a bad example but that is my point, it's like doctor's don't want to listen to me whatever I have it's affecting my partners too over the years it's been about 5 boyfriends that complain after having sex with me... and my most recent gyno I was telling her that my boyfriend is complaining about having a burning or irritation feeling in his urethra after sex and even days later and she said well maybe something is wrong with him and that she doesn't specialize in guys...it's so frustrating he was fine before he started having sex with me there was nothing wrong with him I know it's because of me

rmb

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Strep B

Post  amyhp on Mon Apr 17, 2017 4:18 pm

Have you been tested for Strep B? Sometimes this can be a cause for burning, but it is not a test that is regularly ran.

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  rmb on Mon Apr 17, 2017 9:45 pm

No I haven't I'm not currently seeing a new doctor, I need to get a referral from my family doctor.. Thanks for your replies and suggestions it has helped Smile

rmb

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Good Luck!

Post  amyhp on Mon Apr 17, 2017 9:48 pm

I am glad to help in some way! Best of luck to you Smile

amyhp

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Re: Does Vulvodynia affect your sexual partner?

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