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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Does Vulvodynia affect your sexual partner?

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Does Vulvodynia affect your sexual partner?

Post  rmb on Tue Mar 28, 2017 10:27 pm

I have been dealing with this for 10+ years. I am almost 26 and this started when I was 15. I have constant burning feeling in my vulva area, sometimes things make it worse but it is always there. Rain or shine. I am being told I have Vulvodynia....the only thing that is keeping me from accepting this is that my boyfriend complains about his urethra being irritated feeling after having sex with me and he's not the first boyfriend to complain about this. I have been tested for every possible thing out there and everything comes back as fine. Has anyone else had sexual partners complain about this?

rmb

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Tenderness?

Post  amyhp on Thu Apr 13, 2017 7:34 pm

Do you have constant pain and tenderness or just constant burning? I am so sorry you have suffered with this for so long Sad
My husband has never mentioned having urethra pain after sex.

amyhp

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Burning

Post  rmb on Thu Apr 13, 2017 8:38 pm

Basically just constant burning Sad and knowing that its affecting my boyfriend is killing me...It's one thing that I have deal with this discomfort on a daily basis but knowing that I'm passing it on makes me feel like I can never have a normal relationship or kids or anything...I just feel like my life is passing me by and I can't even enjoy it

rmb

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I understand

Post  amyhp on Fri Apr 14, 2017 4:03 pm

I completely understand. I am 25 years old and married. The pain stared for me when I was 20 after 6 months of being on the birth control pill and 2 months after marriage. I feel horrible for how this impacts my husband's life, but he stands by me and NEVER complains. If you ever want to talk you can private message me. <3

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  amyhp on Mon Apr 17, 2017 3:30 pm

Also, if your burning is caused by vulvodynia there is no way that the burning could be passed to your partner. So no need to worry about that!!

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  rmb on Mon Apr 17, 2017 4:14 pm

Yes, that's why I wanted to reach out to other's who have been diagnosed with Vuvlodynia...It's like having chronic pain in your shoulder just because your shoulder touches someone else's shoulder doesn't mean that they're going to start having shoulder pain...that might be a bad example but that is my point, it's like doctor's don't want to listen to me whatever I have it's affecting my partners too over the years it's been about 5 boyfriends that complain after having sex with me... and my most recent gyno I was telling her that my boyfriend is complaining about having a burning or irritation feeling in his urethra after sex and even days later and she said well maybe something is wrong with him and that she doesn't specialize in guys...it's so frustrating he was fine before he started having sex with me there was nothing wrong with him I know it's because of me

rmb

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Strep B

Post  amyhp on Mon Apr 17, 2017 4:18 pm

Have you been tested for Strep B? Sometimes this can be a cause for burning, but it is not a test that is regularly ran.

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  rmb on Mon Apr 17, 2017 9:45 pm

No I haven't I'm not currently seeing a new doctor, I need to get a referral from my family doctor.. Thanks for your replies and suggestions it has helped Smile

rmb

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Good Luck!

Post  amyhp on Mon Apr 17, 2017 9:48 pm

I am glad to help in some way! Best of luck to you Smile

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Re: Does Vulvodynia affect your sexual partner?

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