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» Vestibulectory removes 85% of pain, Birth removes 15%
Yesterday at 8:27 pm by pangea

» Recovered! It gets better!
Fri May 26, 2017 9:40 pm by mary jane

» Pain management - what works for me
Fri May 26, 2017 6:21 pm by SinclairSassy

» Vestibulitiis surgery
Mon May 22, 2017 4:18 pm by Gill

» Does it go away?
Mon May 22, 2017 2:12 pm by mary jane

» Amitriptyline and Uribel
Mon May 22, 2017 1:35 pm by SinclairSassy

» Post Full Vestibulectomy - 5 Years Later - Please Read
Mon May 22, 2017 10:12 am by flick001

» Social Security Disability Benefits
Fri May 19, 2017 8:50 pm by SinclairSassy

» Recovered from Vulvodynia
Thu May 18, 2017 4:20 pm by sarahjane1332343

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 9

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

New to the group

Fri Mar 17, 2017 9:52 pm by canuck girl

Hi Everyone
I found the site tonight, and am so pleased I did, I hadn't realised it was such  a problem, and I for one am grateful that the group exists. I recently had a really awful , well the worst one I had ever had UTI, after 4 days of antibiotics it should have cleared though. i now had this awful feeling, and sensations, very sore, burning, some strange sensations I have  that  are hard …

Comments: 1

How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

Comments: 4


Does Vulvodynia affect your sexual partner?

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Does Vulvodynia affect your sexual partner?

Post  rmb on Tue Mar 28, 2017 10:27 pm

I have been dealing with this for 10+ years. I am almost 26 and this started when I was 15. I have constant burning feeling in my vulva area, sometimes things make it worse but it is always there. Rain or shine. I am being told I have Vulvodynia....the only thing that is keeping me from accepting this is that my boyfriend complains about his urethra being irritated feeling after having sex with me and he's not the first boyfriend to complain about this. I have been tested for every possible thing out there and everything comes back as fine. Has anyone else had sexual partners complain about this?

rmb

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Tenderness?

Post  amyhp on Thu Apr 13, 2017 7:34 pm

Do you have constant pain and tenderness or just constant burning? I am so sorry you have suffered with this for so long Sad
My husband has never mentioned having urethra pain after sex.

amyhp

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Burning

Post  rmb on Thu Apr 13, 2017 8:38 pm

Basically just constant burning Sad and knowing that its affecting my boyfriend is killing me...It's one thing that I have deal with this discomfort on a daily basis but knowing that I'm passing it on makes me feel like I can never have a normal relationship or kids or anything...I just feel like my life is passing me by and I can't even enjoy it

rmb

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I understand

Post  amyhp on Fri Apr 14, 2017 4:03 pm

I completely understand. I am 25 years old and married. The pain stared for me when I was 20 after 6 months of being on the birth control pill and 2 months after marriage. I feel horrible for how this impacts my husband's life, but he stands by me and NEVER complains. If you ever want to talk you can private message me. <3

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  amyhp on Mon Apr 17, 2017 3:30 pm

Also, if your burning is caused by vulvodynia there is no way that the burning could be passed to your partner. So no need to worry about that!!

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  rmb on Mon Apr 17, 2017 4:14 pm

Yes, that's why I wanted to reach out to other's who have been diagnosed with Vuvlodynia...It's like having chronic pain in your shoulder just because your shoulder touches someone else's shoulder doesn't mean that they're going to start having shoulder pain...that might be a bad example but that is my point, it's like doctor's don't want to listen to me whatever I have it's affecting my partners too over the years it's been about 5 boyfriends that complain after having sex with me... and my most recent gyno I was telling her that my boyfriend is complaining about having a burning or irritation feeling in his urethra after sex and even days later and she said well maybe something is wrong with him and that she doesn't specialize in guys...it's so frustrating he was fine before he started having sex with me there was nothing wrong with him I know it's because of me

rmb

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Strep B

Post  amyhp on Mon Apr 17, 2017 4:18 pm

Have you been tested for Strep B? Sometimes this can be a cause for burning, but it is not a test that is regularly ran.

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  rmb on Mon Apr 17, 2017 9:45 pm

No I haven't I'm not currently seeing a new doctor, I need to get a referral from my family doctor.. Thanks for your replies and suggestions it has helped Smile

rmb

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Good Luck!

Post  amyhp on Mon Apr 17, 2017 9:48 pm

I am glad to help in some way! Best of luck to you Smile

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Re: Does Vulvodynia affect your sexual partner?

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