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» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Does Vulvodynia affect your sexual partner?

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Does Vulvodynia affect your sexual partner?

Post  rmb on Tue Mar 28, 2017 10:27 pm

I have been dealing with this for 10+ years. I am almost 26 and this started when I was 15. I have constant burning feeling in my vulva area, sometimes things make it worse but it is always there. Rain or shine. I am being told I have Vulvodynia....the only thing that is keeping me from accepting this is that my boyfriend complains about his urethra being irritated feeling after having sex with me and he's not the first boyfriend to complain about this. I have been tested for every possible thing out there and everything comes back as fine. Has anyone else had sexual partners complain about this?

rmb

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Tenderness?

Post  amyhp on Thu Apr 13, 2017 7:34 pm

Do you have constant pain and tenderness or just constant burning? I am so sorry you have suffered with this for so long Sad
My husband has never mentioned having urethra pain after sex.

amyhp

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Burning

Post  rmb on Thu Apr 13, 2017 8:38 pm

Basically just constant burning Sad and knowing that its affecting my boyfriend is killing me...It's one thing that I have deal with this discomfort on a daily basis but knowing that I'm passing it on makes me feel like I can never have a normal relationship or kids or anything...I just feel like my life is passing me by and I can't even enjoy it

rmb

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I understand

Post  amyhp on Fri Apr 14, 2017 4:03 pm

I completely understand. I am 25 years old and married. The pain stared for me when I was 20 after 6 months of being on the birth control pill and 2 months after marriage. I feel horrible for how this impacts my husband's life, but he stands by me and NEVER complains. If you ever want to talk you can private message me. <3

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  amyhp on Mon Apr 17, 2017 3:30 pm

Also, if your burning is caused by vulvodynia there is no way that the burning could be passed to your partner. So no need to worry about that!!

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  rmb on Mon Apr 17, 2017 4:14 pm

Yes, that's why I wanted to reach out to other's who have been diagnosed with Vuvlodynia...It's like having chronic pain in your shoulder just because your shoulder touches someone else's shoulder doesn't mean that they're going to start having shoulder pain...that might be a bad example but that is my point, it's like doctor's don't want to listen to me whatever I have it's affecting my partners too over the years it's been about 5 boyfriends that complain after having sex with me... and my most recent gyno I was telling her that my boyfriend is complaining about having a burning or irritation feeling in his urethra after sex and even days later and she said well maybe something is wrong with him and that she doesn't specialize in guys...it's so frustrating he was fine before he started having sex with me there was nothing wrong with him I know it's because of me

rmb

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Strep B

Post  amyhp on Mon Apr 17, 2017 4:18 pm

Have you been tested for Strep B? Sometimes this can be a cause for burning, but it is not a test that is regularly ran.

amyhp

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Re: Does Vulvodynia affect your sexual partner?

Post  rmb on Mon Apr 17, 2017 9:45 pm

No I haven't I'm not currently seeing a new doctor, I need to get a referral from my family doctor.. Thanks for your replies and suggestions it has helped Smile

rmb

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Good Luck!

Post  amyhp on Mon Apr 17, 2017 9:48 pm

I am glad to help in some way! Best of luck to you Smile

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Re: Does Vulvodynia affect your sexual partner?

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