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Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

21 with Vulvodynia

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21 with Vulvodynia

Post  Noob on Sat Jan 28, 2012 8:55 pm

Hello! My name is Katie. I am 21 years old and I was diagnosed with vulvodynia about seven months ago. It has been a long journey. Bouncing from doctors with no results, different medications (Medications for misdiagnosed conditions! Even worse!), unable to barely get out of bed or move, lots of anger, sadness, anxiety, tears... you name it... until I was finally referred to a vulvar specialist. He realized I had a severe case of Vulvodynia and decided that I should try a tricyclic antidepressant called Pamelor. Within a month I was 85% pain free and have remained so, and with my insurance a months supply of medication was only $20! Since then I switched to Gabapentin (Used to treat nerve pain and other issues.) because Pamelor made me too lethargic for my lifestyle (Very busy college student.) and it has been great as well! I've been able to have fairly comfortable sex and I can wear jeans and underwear again! (Large goal is to finally be able to use tampons again!) I became a member here to share my hopeful story with others suffering and to seek advice and support for myself as well. (Note I still have bouts of severe pain.) Especially providing support to young women like myself stricken with this debilitating and relationship straining condition.


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Post  AroraNightfire on Thu Feb 02, 2012 9:06 pm


My name is Lisa and I live in the USA state of Massachussetts. I am 27yrs old and have been suffering for the past 9yrs on and off with vulvodynia. The past 4yrs have been the worst for me. Like you I have bounced to 9 different Doctors. I was misdiagnosed with yeast infections 3 times and given yeast creams and yeast pills. I feel your frusteration! My pain is really really bad. Im doing the best I can and I am trying really hard to find hope inside myself. Its so hard to hope, Im afraid to hope, because Im afraid of being disappointed again. I am unable to wear pants, I can only wear skirts. I am also unable to sit without pain. I have to sit on frozen gelpacks. Cold water rinses, fans, and frozen gelapcks profide me with the immediate releif I need. I was on gabapentine for a yr. I am now on Lyrica which is the stronger modern version of gabapentine. I was on cymbalta also (an antidepressant). The only problem I had with that drug was that it made me sleepless at night. Now I am trying Vicodine with my Lyrica. I hope it helps. Where do you live? You can feel free to message me anytime you like. Im trying hard to start a support group in my area. I have spoken to a few women with pain but they are 2 hrs away. Its too far a drive for me. If you know anyone in Mass that lives on cape cod please let them know Im hear.

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Location : Cape Cod Massachusetts

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Re: 21 with Vulvodynia

Post  Noob on Mon Feb 27, 2012 11:31 pm

I live in Texas. Did Gabapentin not work well for you? It's working pretty well for me so far. And I know how you feel. It was starting to get cold here in Texas and I was still unable to wear pants at the time. So stressful.


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Re: 21 with Vulvodynia

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