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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


21 with Vulvodynia

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21 with Vulvodynia

Post  Noob on Sat Jan 28, 2012 8:55 pm

Hello! My name is Katie. I am 21 years old and I was diagnosed with vulvodynia about seven months ago. It has been a long journey. Bouncing from doctors with no results, different medications (Medications for misdiagnosed conditions! Even worse!), unable to barely get out of bed or move, lots of anger, sadness, anxiety, tears... you name it... until I was finally referred to a vulvar specialist. He realized I had a severe case of Vulvodynia and decided that I should try a tricyclic antidepressant called Pamelor. Within a month I was 85% pain free and have remained so, and with my insurance a months supply of medication was only $20! Since then I switched to Gabapentin (Used to treat nerve pain and other issues.) because Pamelor made me too lethargic for my lifestyle (Very busy college student.) and it has been great as well! I've been able to have fairly comfortable sex and I can wear jeans and underwear again! (Large goal is to finally be able to use tampons again!) I became a member here to share my hopeful story with others suffering and to seek advice and support for myself as well. (Note I still have bouts of severe pain.) Especially providing support to young women like myself stricken with this debilitating and relationship straining condition.

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Welcome!

Post  AroraNightfire on Thu Feb 02, 2012 9:06 pm

Katie,

My name is Lisa and I live in the USA state of Massachussetts. I am 27yrs old and have been suffering for the past 9yrs on and off with vulvodynia. The past 4yrs have been the worst for me. Like you I have bounced to 9 different Doctors. I was misdiagnosed with yeast infections 3 times and given yeast creams and yeast pills. I feel your frusteration! My pain is really really bad. Im doing the best I can and I am trying really hard to find hope inside myself. Its so hard to hope, Im afraid to hope, because Im afraid of being disappointed again. I am unable to wear pants, I can only wear skirts. I am also unable to sit without pain. I have to sit on frozen gelpacks. Cold water rinses, fans, and frozen gelapcks profide me with the immediate releif I need. I was on gabapentine for a yr. I am now on Lyrica which is the stronger modern version of gabapentine. I was on cymbalta also (an antidepressant). The only problem I had with that drug was that it made me sleepless at night. Now I am trying Vicodine with my Lyrica. I hope it helps. Where do you live? You can feel free to message me anytime you like. Im trying hard to start a support group in my area. I have spoken to a few women with pain but they are 2 hrs away. Its too far a drive for me. If you know anyone in Mass that lives on cape cod please let them know Im hear.
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AroraNightfire

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Re: 21 with Vulvodynia

Post  Noob on Mon Feb 27, 2012 11:31 pm

I live in Texas. Did Gabapentin not work well for you? It's working pretty well for me so far. And I know how you feel. It was starting to get cold here in Texas and I was still unable to wear pants at the time. So stressful.

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Re: 21 with Vulvodynia

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