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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

21 with Vulvodynia

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21 with Vulvodynia

Post  Noob on Sat Jan 28, 2012 8:55 pm

Hello! My name is Katie. I am 21 years old and I was diagnosed with vulvodynia about seven months ago. It has been a long journey. Bouncing from doctors with no results, different medications (Medications for misdiagnosed conditions! Even worse!), unable to barely get out of bed or move, lots of anger, sadness, anxiety, tears... you name it... until I was finally referred to a vulvar specialist. He realized I had a severe case of Vulvodynia and decided that I should try a tricyclic antidepressant called Pamelor. Within a month I was 85% pain free and have remained so, and with my insurance a months supply of medication was only $20! Since then I switched to Gabapentin (Used to treat nerve pain and other issues.) because Pamelor made me too lethargic for my lifestyle (Very busy college student.) and it has been great as well! I've been able to have fairly comfortable sex and I can wear jeans and underwear again! (Large goal is to finally be able to use tampons again!) I became a member here to share my hopeful story with others suffering and to seek advice and support for myself as well. (Note I still have bouts of severe pain.) Especially providing support to young women like myself stricken with this debilitating and relationship straining condition.


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Post  AroraNightfire on Thu Feb 02, 2012 9:06 pm


My name is Lisa and I live in the USA state of Massachussetts. I am 27yrs old and have been suffering for the past 9yrs on and off with vulvodynia. The past 4yrs have been the worst for me. Like you I have bounced to 9 different Doctors. I was misdiagnosed with yeast infections 3 times and given yeast creams and yeast pills. I feel your frusteration! My pain is really really bad. Im doing the best I can and I am trying really hard to find hope inside myself. Its so hard to hope, Im afraid to hope, because Im afraid of being disappointed again. I am unable to wear pants, I can only wear skirts. I am also unable to sit without pain. I have to sit on frozen gelpacks. Cold water rinses, fans, and frozen gelapcks profide me with the immediate releif I need. I was on gabapentine for a yr. I am now on Lyrica which is the stronger modern version of gabapentine. I was on cymbalta also (an antidepressant). The only problem I had with that drug was that it made me sleepless at night. Now I am trying Vicodine with my Lyrica. I hope it helps. Where do you live? You can feel free to message me anytime you like. Im trying hard to start a support group in my area. I have spoken to a few women with pain but they are 2 hrs away. Its too far a drive for me. If you know anyone in Mass that lives on cape cod please let them know Im hear.

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Re: 21 with Vulvodynia

Post  Noob on Mon Feb 27, 2012 11:31 pm

I live in Texas. Did Gabapentin not work well for you? It's working pretty well for me so far. And I know how you feel. It was starting to get cold here in Texas and I was still unable to wear pants at the time. So stressful.


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Re: 21 with Vulvodynia

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