Log in

I forgot my password

Latest topics
» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


21 with Vulvodynia

Go down

21 with Vulvodynia

Post  Noob on Sat Jan 28, 2012 8:55 pm

Hello! My name is Katie. I am 21 years old and I was diagnosed with vulvodynia about seven months ago. It has been a long journey. Bouncing from doctors with no results, different medications (Medications for misdiagnosed conditions! Even worse!), unable to barely get out of bed or move, lots of anger, sadness, anxiety, tears... you name it... until I was finally referred to a vulvar specialist. He realized I had a severe case of Vulvodynia and decided that I should try a tricyclic antidepressant called Pamelor. Within a month I was 85% pain free and have remained so, and with my insurance a months supply of medication was only $20! Since then I switched to Gabapentin (Used to treat nerve pain and other issues.) because Pamelor made me too lethargic for my lifestyle (Very busy college student.) and it has been great as well! I've been able to have fairly comfortable sex and I can wear jeans and underwear again! (Large goal is to finally be able to use tampons again!) I became a member here to share my hopeful story with others suffering and to seek advice and support for myself as well. (Note I still have bouts of severe pain.) Especially providing support to young women like myself stricken with this debilitating and relationship straining condition.

Noob

Posts : 4
Join date : 2012-01-28

View user profile

Back to top Go down

Welcome!

Post  AroraNightfire on Thu Feb 02, 2012 9:06 pm

Katie,

My name is Lisa and I live in the USA state of Massachussetts. I am 27yrs old and have been suffering for the past 9yrs on and off with vulvodynia. The past 4yrs have been the worst for me. Like you I have bounced to 9 different Doctors. I was misdiagnosed with yeast infections 3 times and given yeast creams and yeast pills. I feel your frusteration! My pain is really really bad. Im doing the best I can and I am trying really hard to find hope inside myself. Its so hard to hope, Im afraid to hope, because Im afraid of being disappointed again. I am unable to wear pants, I can only wear skirts. I am also unable to sit without pain. I have to sit on frozen gelpacks. Cold water rinses, fans, and frozen gelapcks profide me with the immediate releif I need. I was on gabapentine for a yr. I am now on Lyrica which is the stronger modern version of gabapentine. I was on cymbalta also (an antidepressant). The only problem I had with that drug was that it made me sleepless at night. Now I am trying Vicodine with my Lyrica. I hope it helps. Where do you live? You can feel free to message me anytime you like. Im trying hard to start a support group in my area. I have spoken to a few women with pain but they are 2 hrs away. Its too far a drive for me. If you know anyone in Mass that lives on cape cod please let them know Im hear.
avatar
AroraNightfire

Posts : 40
Join date : 2012-01-20
Location : Cape Cod Massachusetts

View user profile

Back to top Go down

Re: 21 with Vulvodynia

Post  Noob on Mon Feb 27, 2012 11:31 pm

I live in Texas. Did Gabapentin not work well for you? It's working pretty well for me so far. And I know how you feel. It was starting to get cold here in Texas and I was still unable to wear pants at the time. So stressful.

Noob

Posts : 4
Join date : 2012-01-28

View user profile

Back to top Go down

Re: 21 with Vulvodynia

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum