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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
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» Gabapentin gel and pregnancy
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» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


vulvodynia

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vulvodynia

Post  ria on Mon Apr 25, 2011 8:00 pm

Hello I have been taking 75mg nortriptyline and was doing very well. Yoga each day walking feeling I was getting somewhere. last Monday I came out in hives and had an allergic reaction to the nortriptyline so the dr prescribed effexor anyone else on this please advise.



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Re: vulvodynia

Post  Mouse on Tue Apr 26, 2011 7:04 am

No sorry hon, I haven't heard of that. Are you sure the hives are from the nortriptylene?

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Re: vulvodynia

Post  Joolibee on Tue Apr 26, 2011 2:01 pm

Not heard of this reaction to this type of med. Are you on any other medication or supplements? I came out in hives when I came off amitriptyline, but it seems the allergy was in relation to an ACE inhibitor I had for chronic kidney disease. Apparently ami has some anti-histamine properties so it was protecting me. I was changed to another med for my kidneys, but it turns out this brings me out in hives as well - it was driving me crazy. Have now stopped my kidney meds until I can see my GP, but still getting mild hives. Perhaps it takes a while to get the histamine out of your system - I don't know. You have my sympathy - coping with inflamed and itchy skin as well as vulval pain is no joke. I wish you luck in finding a solution. BTW, I have discovered that vinegar is useful for reducing the itching - stinks a bit though. When the hives were really bad, I had a lukewarm bath with vinegar in it and it did help.

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Re: vulvodynia

Post  Sarah001 on Tue Apr 26, 2011 7:06 pm

I have chronic hives and have been on anti-histamines daily for the last 16 years to control it, some medication can cause it so it's possible and if it doesn't go away get your doctor to prescribe you a daily anti-histamine so you don't have to suffer the horrible burning itching sensation of hives.
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Re: vulvodynia

Post  Joolibee on Tue Apr 26, 2011 7:29 pm

Thanks Sarah. I have a GP appointment next week and am expecting to be put on anti-histamine. Thought of getting some OTC ones from a pharmacy, but I reckoned they would advise me to see my GP because of my other conditions.

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Re: vulvodynia

Post  noni on Wed Apr 27, 2011 11:19 am

Hey

Yes I am on Ami and also have developed skin rashes from it...however not severe enough to discontinue usage.

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