Vulvodynia Support
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» Hope to all my suffering ladies
vulvodynia EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
vulvodynia EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
vulvodynia EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
vulvodynia EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
vulvodynia EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
vulvodynia EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
vulvodynia EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
vulvodynia EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
vulvodynia EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  ria Mon Apr 25, 2011 8:00 pm

Hello I have been taking 75mg nortriptyline and was doing very well. Yoga each day walking feeling I was getting somewhere. last Monday I came out in hives and had an allergic reaction to the nortriptyline so the dr prescribed effexor anyone else on this please advise.



RIA

ria

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Post  Mouse Tue Apr 26, 2011 7:04 am

No sorry hon, I haven't heard of that. Are you sure the hives are from the nortriptylene?

Mouse

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Post  Joolibee Tue Apr 26, 2011 2:01 pm

Not heard of this reaction to this type of med. Are you on any other medication or supplements? I came out in hives when I came off amitriptyline, but it seems the allergy was in relation to an ACE inhibitor I had for chronic kidney disease. Apparently ami has some anti-histamine properties so it was protecting me. I was changed to another med for my kidneys, but it turns out this brings me out in hives as well - it was driving me crazy. Have now stopped my kidney meds until I can see my GP, but still getting mild hives. Perhaps it takes a while to get the histamine out of your system - I don't know. You have my sympathy - coping with inflamed and itchy skin as well as vulval pain is no joke. I wish you luck in finding a solution. BTW, I have discovered that vinegar is useful for reducing the itching - stinks a bit though. When the hives were really bad, I had a lukewarm bath with vinegar in it and it did help.

Joolibee

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Post  Sarah001 Tue Apr 26, 2011 7:06 pm

I have chronic hives and have been on anti-histamines daily for the last 16 years to control it, some medication can cause it so it's possible and if it doesn't go away get your doctor to prescribe you a daily anti-histamine so you don't have to suffer the horrible burning itching sensation of hives.
Sarah001
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Post  Joolibee Tue Apr 26, 2011 7:29 pm

Thanks Sarah. I have a GP appointment next week and am expecting to be put on anti-histamine. Thought of getting some OTC ones from a pharmacy, but I reckoned they would advise me to see my GP because of my other conditions.

Joolibee

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Post  noni Wed Apr 27, 2011 11:19 am

Hey

Yes I am on Ami and also have developed skin rashes from it...however not severe enough to discontinue usage.

noni
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