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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Is this Vulvodynia!?!

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Is this Vulvodynia!?!

Post  VaxilRae on Wed Aug 31, 2011 6:50 am

Hi guys!

I am so glad I found somewhere who might be able to tell what these strange symptoms might be!
I'd like to share my story, I apologize if I get graphic, I will try not too bad.

The first time I ever experience 'the burning sensation' it lasted for 6 hours but never came back.

I started on the Micronor mini pill, and after taking it for two weeks, one day after removing a tampon, it was like my entire vulva was burning with pain! I dont know how to describe it except similar to maybe an insect bite, that warm burning sensation. The only thing that made it feel better was peeing and not wiping afterwards.

It eventually went away, but now every single week, at least 3-5 times a week I will get this same burning sensation in my vestibule area!
It's not muscles, I can have sex normally and use tampons fine, its like the skin at the opening of my vagina and labia minor just BURN with pain. Sometimes I bath takes it away, other times a bag of ice between my thighs, and at the last attempt taking a narcotic pain killer.

I've been STD tested and I am completely free, no infection, no BV.....its very hard to get to the doctor to check this because I cant just go in when it happens mostly in the evenings and disappears within an hour two.

Is this vulvodynia or something else?

VaxilRae

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Re: Is this Vulvodynia!?!

Post  VaxilRae on Wed Aug 31, 2011 6:53 am

One other thing, vagisil or other yeast infections products use to help me a bit, but Im not kiddiing now they only increase the burning!

VaxilRae

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Re: Is this Vulvodynia!?!

Post  Sarah001 on Wed Aug 31, 2011 12:45 pm

It is vulvodynia because that just literally means "pain in the vulva" but it's important to attempt to figure out what causes it, as it comes and goes it might be an idea to write down everything you do, eat, put near the area so you can figure out if there's a common factor that could be causing it.
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Re: Is this Vulvodynia!?!

Post  mmorgan on Wed Aug 31, 2011 1:58 pm

Have you changed your laundry detergent? Try switching to something without fragrance or dyes.
What soap do you wash with when you bathe? Try just plain water or Dove hypoallergenic.
Does it burn every time when you wear tampons? You could be allergic to the kind you are using.

Like said above write down everything your eating, food can play a role in the dreaded sensation.
Orange juice increases my burning sensation from a 2 to an 8.

Hope to hear back from you.
Very Happy
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Advice

Post  Aussie on Tue Sep 06, 2011 1:19 am

Get off the pill and get your hormones tested.

My pain is way, way better off the pill. I am awating a baseline hormone test (saliva) to see where I am at. The pill screws with your oestrogen and testosterone, this can in theory cause problems with the skin of the vulva.

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Re: Is this Vulvodynia!?!

Post  VaxilRae on Tue Sep 06, 2011 7:50 pm

Thanks for the replies guys!

I went off the pill MONTHS ago, and my burning does not seem to be related to laundry detergent or tampon usage at all. When I am burning tampons are painful to use, but they themselves do not cause it by my observation Neutral

The only thing I've noticed that relates to it, is peeing! 70% of the time the burning starts is after I pee, wipe, and flush. I have no STDs or infections, vaginal or urethral.

I am so frustrated I have been needing to take more and more narcotics to get rid of the pain!

VaxilRae

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Re: Is this Vulvodynia!?!

Post  mmorgan on Tue Sep 06, 2011 7:58 pm

I have noticed that with mine as well. I feel completely normal when I sleep but as soon as I do my morning void the sensation awakes. Try keeping a food diary and see which foods could be causing this.
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Bicarb Soada

Post  Aussie on Tue Sep 06, 2011 11:56 pm

Your morning urine is the most acidic. Try drinking one t spoon of bicarb soada in a glass of water it will alkalise your urine. Follow the IC diet on the IC Network. If the urine burns then alkalising it is the best bet.

Hope this helps.

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Re: Is this Vulvodynia!?!

Post  VaxilRae on Wed Sep 07, 2011 4:14 pm

what is so confusing is why does it not always happen? Like I mentioned a high percentage of the time is does, but not all the time. Why does the burning last for so darned long after peeing? Even washing off with water doesnt help. I still burn!

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Re: Is this Vulvodynia!?!

Post  mmorgan on Wed Sep 07, 2011 4:22 pm

Sometimes it effects me while other times it doesn't. It's hard for me to pinpoint what is causing my discomfort but I can say that my pain level has shot down from an 8 to a 2 or 1. Try writing a dairy of what you consume. I found drinking nothing but water has helped alot and in-taking tons of fluids. There is a light at the end of this condition. It's just sad that you have to fight for yourself to get better and kind of be like your own doctor because it is rare to find a doctor that is knowledgeable about this condition. You will get there. Smile
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me too!

Post  grassy on Wed Sep 07, 2011 8:39 pm

I sleep all night, get up. First pee and i feel like needle pricks and burning. Then during the day, i feel better after i pee. Also after a poop i sometimes get a polka red hot burning up the entire v area. Like red hot pepper. It lasts a minute and dis appears. I also get this sensation my urine is hotter then my body. Has anyone ever wondered if they were allergic to cotton underware???? I'm wondering if maybe the underware has re= cycled garbage in it? now a days you never know. whats in a product.
I am making some progress being on a once a week diflucan. To supress any yeasty beasties. But This has taken 10 weeks, and only a 50 percent improvement. I'm going to get some calcium citrate and add that. I'm 50, so menopause may be complicating things. who knows? FOUR doctors dont! i just guess and ask ladies on the internet what they think. I have found they know more then the doctors anyway! for sure! cindy

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Re: Is this Vulvodynia!?!

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