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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Is this Vulvodynia!?!

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Is this Vulvodynia!?!

Post  VaxilRae on Wed Aug 31, 2011 6:50 am

Hi guys!

I am so glad I found somewhere who might be able to tell what these strange symptoms might be!
I'd like to share my story, I apologize if I get graphic, I will try not too bad.

The first time I ever experience 'the burning sensation' it lasted for 6 hours but never came back.

I started on the Micronor mini pill, and after taking it for two weeks, one day after removing a tampon, it was like my entire vulva was burning with pain! I dont know how to describe it except similar to maybe an insect bite, that warm burning sensation. The only thing that made it feel better was peeing and not wiping afterwards.

It eventually went away, but now every single week, at least 3-5 times a week I will get this same burning sensation in my vestibule area!
It's not muscles, I can have sex normally and use tampons fine, its like the skin at the opening of my vagina and labia minor just BURN with pain. Sometimes I bath takes it away, other times a bag of ice between my thighs, and at the last attempt taking a narcotic pain killer.

I've been STD tested and I am completely free, no infection, no BV.....its very hard to get to the doctor to check this because I cant just go in when it happens mostly in the evenings and disappears within an hour two.

Is this vulvodynia or something else?

VaxilRae

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Re: Is this Vulvodynia!?!

Post  VaxilRae on Wed Aug 31, 2011 6:53 am

One other thing, vagisil or other yeast infections products use to help me a bit, but Im not kiddiing now they only increase the burning!

VaxilRae

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Re: Is this Vulvodynia!?!

Post  Sarah001 on Wed Aug 31, 2011 12:45 pm

It is vulvodynia because that just literally means "pain in the vulva" but it's important to attempt to figure out what causes it, as it comes and goes it might be an idea to write down everything you do, eat, put near the area so you can figure out if there's a common factor that could be causing it.
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Re: Is this Vulvodynia!?!

Post  mmorgan on Wed Aug 31, 2011 1:58 pm

Have you changed your laundry detergent? Try switching to something without fragrance or dyes.
What soap do you wash with when you bathe? Try just plain water or Dove hypoallergenic.
Does it burn every time when you wear tampons? You could be allergic to the kind you are using.

Like said above write down everything your eating, food can play a role in the dreaded sensation.
Orange juice increases my burning sensation from a 2 to an 8.

Hope to hear back from you.
Very Happy
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Advice

Post  Aussie on Tue Sep 06, 2011 1:19 am

Get off the pill and get your hormones tested.

My pain is way, way better off the pill. I am awating a baseline hormone test (saliva) to see where I am at. The pill screws with your oestrogen and testosterone, this can in theory cause problems with the skin of the vulva.

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Re: Is this Vulvodynia!?!

Post  VaxilRae on Tue Sep 06, 2011 7:50 pm

Thanks for the replies guys!

I went off the pill MONTHS ago, and my burning does not seem to be related to laundry detergent or tampon usage at all. When I am burning tampons are painful to use, but they themselves do not cause it by my observation Neutral

The only thing I've noticed that relates to it, is peeing! 70% of the time the burning starts is after I pee, wipe, and flush. I have no STDs or infections, vaginal or urethral.

I am so frustrated I have been needing to take more and more narcotics to get rid of the pain!

VaxilRae

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Re: Is this Vulvodynia!?!

Post  mmorgan on Tue Sep 06, 2011 7:58 pm

I have noticed that with mine as well. I feel completely normal when I sleep but as soon as I do my morning void the sensation awakes. Try keeping a food diary and see which foods could be causing this.
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Bicarb Soada

Post  Aussie on Tue Sep 06, 2011 11:56 pm

Your morning urine is the most acidic. Try drinking one t spoon of bicarb soada in a glass of water it will alkalise your urine. Follow the IC diet on the IC Network. If the urine burns then alkalising it is the best bet.

Hope this helps.

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Re: Is this Vulvodynia!?!

Post  VaxilRae on Wed Sep 07, 2011 4:14 pm

what is so confusing is why does it not always happen? Like I mentioned a high percentage of the time is does, but not all the time. Why does the burning last for so darned long after peeing? Even washing off with water doesnt help. I still burn!

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Re: Is this Vulvodynia!?!

Post  mmorgan on Wed Sep 07, 2011 4:22 pm

Sometimes it effects me while other times it doesn't. It's hard for me to pinpoint what is causing my discomfort but I can say that my pain level has shot down from an 8 to a 2 or 1. Try writing a dairy of what you consume. I found drinking nothing but water has helped alot and in-taking tons of fluids. There is a light at the end of this condition. It's just sad that you have to fight for yourself to get better and kind of be like your own doctor because it is rare to find a doctor that is knowledgeable about this condition. You will get there. Smile
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me too!

Post  grassy on Wed Sep 07, 2011 8:39 pm

I sleep all night, get up. First pee and i feel like needle pricks and burning. Then during the day, i feel better after i pee. Also after a poop i sometimes get a polka red hot burning up the entire v area. Like red hot pepper. It lasts a minute and dis appears. I also get this sensation my urine is hotter then my body. Has anyone ever wondered if they were allergic to cotton underware???? I'm wondering if maybe the underware has re= cycled garbage in it? now a days you never know. whats in a product.
I am making some progress being on a once a week diflucan. To supress any yeasty beasties. But This has taken 10 weeks, and only a 50 percent improvement. I'm going to get some calcium citrate and add that. I'm 50, so menopause may be complicating things. who knows? FOUR doctors dont! i just guess and ask ladies on the internet what they think. I have found they know more then the doctors anyway! for sure! cindy

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Re: Is this Vulvodynia!?!

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