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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Is this Vulvodynia!?!

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Is this Vulvodynia!?!

Post  VaxilRae on Wed Aug 31, 2011 6:50 am

Hi guys!

I am so glad I found somewhere who might be able to tell what these strange symptoms might be!
I'd like to share my story, I apologize if I get graphic, I will try not too bad.

The first time I ever experience 'the burning sensation' it lasted for 6 hours but never came back.

I started on the Micronor mini pill, and after taking it for two weeks, one day after removing a tampon, it was like my entire vulva was burning with pain! I dont know how to describe it except similar to maybe an insect bite, that warm burning sensation. The only thing that made it feel better was peeing and not wiping afterwards.

It eventually went away, but now every single week, at least 3-5 times a week I will get this same burning sensation in my vestibule area!
It's not muscles, I can have sex normally and use tampons fine, its like the skin at the opening of my vagina and labia minor just BURN with pain. Sometimes I bath takes it away, other times a bag of ice between my thighs, and at the last attempt taking a narcotic pain killer.

I've been STD tested and I am completely free, no infection, no BV.....its very hard to get to the doctor to check this because I cant just go in when it happens mostly in the evenings and disappears within an hour two.

Is this vulvodynia or something else?

VaxilRae

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Re: Is this Vulvodynia!?!

Post  VaxilRae on Wed Aug 31, 2011 6:53 am

One other thing, vagisil or other yeast infections products use to help me a bit, but Im not kiddiing now they only increase the burning!

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Re: Is this Vulvodynia!?!

Post  Sarah001 on Wed Aug 31, 2011 12:45 pm

It is vulvodynia because that just literally means "pain in the vulva" but it's important to attempt to figure out what causes it, as it comes and goes it might be an idea to write down everything you do, eat, put near the area so you can figure out if there's a common factor that could be causing it.
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Re: Is this Vulvodynia!?!

Post  mmorgan on Wed Aug 31, 2011 1:58 pm

Have you changed your laundry detergent? Try switching to something without fragrance or dyes.
What soap do you wash with when you bathe? Try just plain water or Dove hypoallergenic.
Does it burn every time when you wear tampons? You could be allergic to the kind you are using.

Like said above write down everything your eating, food can play a role in the dreaded sensation.
Orange juice increases my burning sensation from a 2 to an 8.

Hope to hear back from you.
Very Happy
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Advice

Post  Aussie on Tue Sep 06, 2011 1:19 am

Get off the pill and get your hormones tested.

My pain is way, way better off the pill. I am awating a baseline hormone test (saliva) to see where I am at. The pill screws with your oestrogen and testosterone, this can in theory cause problems with the skin of the vulva.

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Re: Is this Vulvodynia!?!

Post  VaxilRae on Tue Sep 06, 2011 7:50 pm

Thanks for the replies guys!

I went off the pill MONTHS ago, and my burning does not seem to be related to laundry detergent or tampon usage at all. When I am burning tampons are painful to use, but they themselves do not cause it by my observation Neutral

The only thing I've noticed that relates to it, is peeing! 70% of the time the burning starts is after I pee, wipe, and flush. I have no STDs or infections, vaginal or urethral.

I am so frustrated I have been needing to take more and more narcotics to get rid of the pain!

VaxilRae

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Re: Is this Vulvodynia!?!

Post  mmorgan on Tue Sep 06, 2011 7:58 pm

I have noticed that with mine as well. I feel completely normal when I sleep but as soon as I do my morning void the sensation awakes. Try keeping a food diary and see which foods could be causing this.
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Bicarb Soada

Post  Aussie on Tue Sep 06, 2011 11:56 pm

Your morning urine is the most acidic. Try drinking one t spoon of bicarb soada in a glass of water it will alkalise your urine. Follow the IC diet on the IC Network. If the urine burns then alkalising it is the best bet.

Hope this helps.

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Re: Is this Vulvodynia!?!

Post  VaxilRae on Wed Sep 07, 2011 4:14 pm

what is so confusing is why does it not always happen? Like I mentioned a high percentage of the time is does, but not all the time. Why does the burning last for so darned long after peeing? Even washing off with water doesnt help. I still burn!

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Re: Is this Vulvodynia!?!

Post  mmorgan on Wed Sep 07, 2011 4:22 pm

Sometimes it effects me while other times it doesn't. It's hard for me to pinpoint what is causing my discomfort but I can say that my pain level has shot down from an 8 to a 2 or 1. Try writing a dairy of what you consume. I found drinking nothing but water has helped alot and in-taking tons of fluids. There is a light at the end of this condition. It's just sad that you have to fight for yourself to get better and kind of be like your own doctor because it is rare to find a doctor that is knowledgeable about this condition. You will get there. Smile
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me too!

Post  grassy on Wed Sep 07, 2011 8:39 pm

I sleep all night, get up. First pee and i feel like needle pricks and burning. Then during the day, i feel better after i pee. Also after a poop i sometimes get a polka red hot burning up the entire v area. Like red hot pepper. It lasts a minute and dis appears. I also get this sensation my urine is hotter then my body. Has anyone ever wondered if they were allergic to cotton underware???? I'm wondering if maybe the underware has re= cycled garbage in it? now a days you never know. whats in a product.
I am making some progress being on a once a week diflucan. To supress any yeasty beasties. But This has taken 10 weeks, and only a 50 percent improvement. I'm going to get some calcium citrate and add that. I'm 50, so menopause may be complicating things. who knows? FOUR doctors dont! i just guess and ask ladies on the internet what they think. I have found they know more then the doctors anyway! for sure! cindy

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Re: Is this Vulvodynia!?!

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