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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Prednisone Injections?

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Prednisone Injections?

Post  WVR00 on Tue Oct 10, 2017 7:33 pm

Hello,
I am new to this forum and have been recently diagnosed with VVS. I had an issue after the use of a condom and I've never been the same since. I don't have pain, per se, but I have this uncomfortable feeling like I have a tampon hanging out all them time. My doctor gave me prednisone injections in vestibule and it helped the one side, but not the other. I also got a raging yeast infection. Has anyone had success with the injections? Her next step is to do laser on the vestibule. I'm very scared this won't go away. I can't take oral medication bc I'm planning for a baby and this has completely derailed that. Sex isn't painful while I'm having it, but really sore the next day or so. I've tried amtrip. Cream, hormone cream, steroid cream and now injections. Do I do any other round and risk the yeast infection? Or do I do the laser? It's so frustrating that the treatment of this is trial and error.
Has anyone has anything similar?

WVR00

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Re: Prednisone Injections?

Post  Warrior2010 on Wed Oct 11, 2017 2:40 am

Please consider pelvic physiotherapy. That lump you are feeling could be a very spasmed pelvic floor muscle(s). The first 3 years of having vulvodynia I had a small child so I just did acupuncture for the 24/7 pain I felt all over my vulva. It helped me cope. Then after a car accident that made things worse to the point where I could't empty my bladder- I saw a pelvic therapist. After releasing all the conceive tissue and exercises etc, I got 75% better - to this day I still can't wear pants because of the lump I feel and I still feel some pain during certain times in my cycle, but for me that was amazing results. I just started pelvic physio again and we are working only on that lump and my spasmed out abdominal's on that side. All this happened after having my child so try and get help before the pregnancy. My best advice. Hope this information helps you and maybe others too.

Warrior2010

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Re: Prednisone Injections?

Post  WVR00 on Wed Oct 11, 2017 11:55 am

Thank you for your reply. My specialist did an internal exam and dtold me my pelvic floor was totally fine. Not tight at all. She thinks it could be some type of immflamitory version of VVS, which is why she did the steroid shots. I'm getting a second option next week, but I'm due to get the next round of steroid shots. I'm worried that bc I got the yeast infection from them, that I will get another one. My yeast infections are immune to Diflucan and I need to use 2 weeks worth of cream to even begin to get better. I haven't had that many infections in my life, but for some reason, when I get them they are nasty. This condition is really stressful. Emotionally and physically. I hope everyone feels better.

WVR00

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Re: Prednisone Injections?

Post  WVR00 on Wed Oct 11, 2017 12:00 pm

I should also add that the tampon feeling is right at the bottom of my Vestibule.. like right by the glands... almost feels swollen. But doesn't look swollen... all other spots on my vulva are okay. She did the injections at the 5,6,7 o'clock spot she on vulva. The 6 and 7 feel much better, but the 5 still has that feeling of tampon hanging out.

WVR00

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Re: Prednisone Injections?

Post  sarisbaris on Wed Oct 18, 2017 5:07 am

I battled V for 15 years. I now consider myself cured. It wasn’t by accident. After 20+ western docs, I realized they couldn’t help. I saw countless alternative. Some helped but none cured. I followed the information from Anthony William. This is no joke. His advice cured it.

According to Anthony William, most cases of V are caused by strep. But since yours is a bit different I have a feeling that they it is caused by an unknown strain of the Epstein Barr virus. I recommend reading the book Medical Medium. Basically, EBV is virus that is currently unknown and undetectable with current tests. Usually EBV causes strep and strep can cause vaginal burning which is usually diagnosed vulvodynia. But during one of it's stages EBV searches out injured nerve endings and inflames them. So a simple injury could hurt for years if you don't tackle EBV. Also, yeast infections are cause by strep (another unknown/undetectable strain). Since EBV and strep go together, I'm guessing that's what you're dealing with.

First educate yourself on EBV and strep. Next listen the UTI show because he has an ice therapy that might help. Next, do the metal detox. Metals feed EBV and strep.

Shows/pages that will help:
https://soundcloud.com/asha-bhuyan/medical-medium-uti?
http://www.medicalmedium.com/blog/epstein-barr-virus-revealed
http://www.medicalmedium.com/blog/heavy-metal-detox
http://www.medicalmedium.com/blog/streptococcus-revealed

My blog: http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

While you are educating yourself do these things now:
AVOID: eggs, dairy, wheat, corn, aluminium foil, water that is not filtered, canola oil (which is in almost everything
SUPPLEMENTS: licorice root, lemon balm and nettleleaf (3 cups a day), esther C, I usually recommend cat's claw but if your planning to get pregnant soon stay away from it, golden seal (2 times a day, 2 weeks on 2 weeks off),
A green juice would also help. Celery juice is great. Celery/cucumber/parsley or cilantro. See metal detox.
FOODS: Note all the foods he recommends. They make a difference. Lemon water/honey upon waking, green juice, then smoothie, salad for lunch… veggies heal.

Also, he has great shows on pregnancy.
http://www.medicalmedium.com/blog/healthy-pregnancy
https://soundcloud.com/medicalmedium/foods-supplements-for-pregnancy
There's also a great chapter in his second book Healing Foods.

sarisbaris

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Re: Prednisone Injections?

Post  Warrior2010 on Sun Oct 29, 2017 7:38 pm

Honeatly pelvic phyaiitherapist are trained to evaluate the state of your muscles and know exactly what ti do. My gynecologist even admitted to that and said that he refers people there regularly. Doctors only train to asses medical problems not muscle problems. That "tampon hanging out feeling" you described at 5 o'clock is exactly where I feel my lump. That is where the obturator internus muscle. Look it up- you will understand. Injections are not a long term solution. Please rule it out that the priblem is not muscle related. My best advice.

Warrior2010

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Re: Prednisone Injections?

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