Log in

I forgot my password

Latest topics
» New and need some help
Today at 4:30 pm by LindafromNJ

» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Prednisone Injections?

Go down

Prednisone Injections?

Post  WVR00 on Tue Oct 10, 2017 7:33 pm

Hello,
I am new to this forum and have been recently diagnosed with VVS. I had an issue after the use of a condom and I've never been the same since. I don't have pain, per se, but I have this uncomfortable feeling like I have a tampon hanging out all them time. My doctor gave me prednisone injections in vestibule and it helped the one side, but not the other. I also got a raging yeast infection. Has anyone had success with the injections? Her next step is to do laser on the vestibule. I'm very scared this won't go away. I can't take oral medication bc I'm planning for a baby and this has completely derailed that. Sex isn't painful while I'm having it, but really sore the next day or so. I've tried amtrip. Cream, hormone cream, steroid cream and now injections. Do I do any other round and risk the yeast infection? Or do I do the laser? It's so frustrating that the treatment of this is trial and error.
Has anyone has anything similar?

WVR00

Posts : 5
Join date : 2017-10-10

View user profile

Back to top Go down

Re: Prednisone Injections?

Post  Warrior2010 on Wed Oct 11, 2017 2:40 am

Please consider pelvic physiotherapy. That lump you are feeling could be a very spasmed pelvic floor muscle(s). The first 3 years of having vulvodynia I had a small child so I just did acupuncture for the 24/7 pain I felt all over my vulva. It helped me cope. Then after a car accident that made things worse to the point where I could't empty my bladder- I saw a pelvic therapist. After releasing all the conceive tissue and exercises etc, I got 75% better - to this day I still can't wear pants because of the lump I feel and I still feel some pain during certain times in my cycle, but for me that was amazing results. I just started pelvic physio again and we are working only on that lump and my spasmed out abdominal's on that side. All this happened after having my child so try and get help before the pregnancy. My best advice. Hope this information helps you and maybe others too.

Warrior2010

Posts : 2
Join date : 2017-10-10

View user profile

Back to top Go down

Re: Prednisone Injections?

Post  WVR00 on Wed Oct 11, 2017 11:55 am

Thank you for your reply. My specialist did an internal exam and dtold me my pelvic floor was totally fine. Not tight at all. She thinks it could be some type of immflamitory version of VVS, which is why she did the steroid shots. I'm getting a second option next week, but I'm due to get the next round of steroid shots. I'm worried that bc I got the yeast infection from them, that I will get another one. My yeast infections are immune to Diflucan and I need to use 2 weeks worth of cream to even begin to get better. I haven't had that many infections in my life, but for some reason, when I get them they are nasty. This condition is really stressful. Emotionally and physically. I hope everyone feels better.

WVR00

Posts : 5
Join date : 2017-10-10

View user profile

Back to top Go down

Re: Prednisone Injections?

Post  WVR00 on Wed Oct 11, 2017 12:00 pm

I should also add that the tampon feeling is right at the bottom of my Vestibule.. like right by the glands... almost feels swollen. But doesn't look swollen... all other spots on my vulva are okay. She did the injections at the 5,6,7 o'clock spot she on vulva. The 6 and 7 feel much better, but the 5 still has that feeling of tampon hanging out.

WVR00

Posts : 5
Join date : 2017-10-10

View user profile

Back to top Go down

Re: Prednisone Injections?

Post  sarisbaris on Wed Oct 18, 2017 5:07 am

I battled V for 15 years. I now consider myself cured. It wasn’t by accident. After 20+ western docs, I realized they couldn’t help. I saw countless alternative. Some helped but none cured. I followed the information from Anthony William. This is no joke. His advice cured it.

According to Anthony William, most cases of V are caused by strep. But since yours is a bit different I have a feeling that they it is caused by an unknown strain of the Epstein Barr virus. I recommend reading the book Medical Medium. Basically, EBV is virus that is currently unknown and undetectable with current tests. Usually EBV causes strep and strep can cause vaginal burning which is usually diagnosed vulvodynia. But during one of it's stages EBV searches out injured nerve endings and inflames them. So a simple injury could hurt for years if you don't tackle EBV. Also, yeast infections are cause by strep (another unknown/undetectable strain). Since EBV and strep go together, I'm guessing that's what you're dealing with.

First educate yourself on EBV and strep. Next listen the UTI show because he has an ice therapy that might help. Next, do the metal detox. Metals feed EBV and strep.

Shows/pages that will help:
https://soundcloud.com/asha-bhuyan/medical-medium-uti?
http://www.medicalmedium.com/blog/epstein-barr-virus-revealed
http://www.medicalmedium.com/blog/heavy-metal-detox
http://www.medicalmedium.com/blog/streptococcus-revealed

My blog: http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

While you are educating yourself do these things now:
AVOID: eggs, dairy, wheat, corn, aluminium foil, water that is not filtered, canola oil (which is in almost everything
SUPPLEMENTS: licorice root, lemon balm and nettleleaf (3 cups a day), esther C, I usually recommend cat's claw but if your planning to get pregnant soon stay away from it, golden seal (2 times a day, 2 weeks on 2 weeks off),
A green juice would also help. Celery juice is great. Celery/cucumber/parsley or cilantro. See metal detox.
FOODS: Note all the foods he recommends. They make a difference. Lemon water/honey upon waking, green juice, then smoothie, salad for lunch… veggies heal.

Also, he has great shows on pregnancy.
http://www.medicalmedium.com/blog/healthy-pregnancy
https://soundcloud.com/medicalmedium/foods-supplements-for-pregnancy
There's also a great chapter in his second book Healing Foods.

sarisbaris

Posts : 53
Join date : 2014-02-17

View user profile

Back to top Go down

Re: Prednisone Injections?

Post  Warrior2010 on Sun Oct 29, 2017 7:38 pm

Honeatly pelvic phyaiitherapist are trained to evaluate the state of your muscles and know exactly what ti do. My gynecologist even admitted to that and said that he refers people there regularly. Doctors only train to asses medical problems not muscle problems. That "tampon hanging out feeling" you described at 5 o'clock is exactly where I feel my lump. That is where the obturator internus muscle. Look it up- you will understand. Injections are not a long term solution. Please rule it out that the priblem is not muscle related. My best advice.

Warrior2010

Posts : 2
Join date : 2017-10-10

View user profile

Back to top Go down

Re: Prednisone Injections?

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum