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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

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Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Post  sophiarp on Sun Jan 07, 2018 9:38 am

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist - especially because the psychological aspect is likely rooted in my religious upbringing.

It's funny what you realise once you know that there's something wrong. I'm currently in a lot of pain just wearing a pad. I'm wondering if it's to do with using the cream and aggravating the area, or just being a little more aware of my body.

I'd love to hear what has worked for you. I feel pretty hopeless right now. Sad

sophiarp

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Re: Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Post  infinitelywondering on Sun Jan 07, 2018 2:35 pm

Hi there,

I'm so sorry you are going through this. But honestly, this forum is so valuable to me and I'm sure it will become the same for you too.

Are you in the US or the UK?
I really need to see a physio and am just wondering who you've seen because in the U.K. Where I am, I can't seem to find anyone good....

The anytriptyline cream sounds really good, I wanna try that too and maybe Botox!

Hope you start to feel better xx

infinitelywondering

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Re: Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Post  sophiarp on Mon Jan 08, 2018 7:07 am

Thanks so much for your reply. I'm really glad to hear that this forum has been helpful for you. Have you looked into the botox much? I couldn't find a lot about it where I'm from.

I'm actually in Australia - I wish I could give you a helpful physio recommendation! My Gyno referred me to a fantastic Physio - the clinic director has a special interest in vulvodynia and my physio is so lovely and knowledgable. I really hope you can find the same. Have you had a Gyno make a referral? They might know of someone with experience in this issue. Potentially there's also a database online where you can search for physios with relevant interests? I know there's a database like that for psychologists in Australia, so perhaps other health professionals too.

Let me know if you try the cream - I'd be really interested to chat about it. Apparently the topical form avoids the side effects of taking the medication systemically.

Thank you for the encouragement, wishing you luck in your physio search <3

infinitelywondering wrote:Hi there,

I'm so sorry you are going through this. But honestly, this forum is so valuable to me and I'm sure it will become the same for you too.

Are you in the US or the UK?
I really need to see a physio and am just wondering who you've seen because in the U.K. Where I am, I can't seem to find anyone good....

The anytriptyline cream sounds really good, I wanna try that too and maybe Botox!

Hope you start to feel better xx

sophiarp

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Re: Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

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