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» I don't know what to do anymore
Yesterday at 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

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Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Post  sophiarp on Sun Jan 07, 2018 9:38 am

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist - especially because the psychological aspect is likely rooted in my religious upbringing.

It's funny what you realise once you know that there's something wrong. I'm currently in a lot of pain just wearing a pad. I'm wondering if it's to do with using the cream and aggravating the area, or just being a little more aware of my body.

I'd love to hear what has worked for you. I feel pretty hopeless right now. Sad

sophiarp

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Re: Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Post  infinitelywondering on Sun Jan 07, 2018 2:35 pm

Hi there,

I'm so sorry you are going through this. But honestly, this forum is so valuable to me and I'm sure it will become the same for you too.

Are you in the US or the UK?
I really need to see a physio and am just wondering who you've seen because in the U.K. Where I am, I can't seem to find anyone good....

The anytriptyline cream sounds really good, I wanna try that too and maybe Botox!

Hope you start to feel better xx

infinitelywondering

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Re: Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Post  sophiarp on Mon Jan 08, 2018 7:07 am

Thanks so much for your reply. I'm really glad to hear that this forum has been helpful for you. Have you looked into the botox much? I couldn't find a lot about it where I'm from.

I'm actually in Australia - I wish I could give you a helpful physio recommendation! My Gyno referred me to a fantastic Physio - the clinic director has a special interest in vulvodynia and my physio is so lovely and knowledgable. I really hope you can find the same. Have you had a Gyno make a referral? They might know of someone with experience in this issue. Potentially there's also a database online where you can search for physios with relevant interests? I know there's a database like that for psychologists in Australia, so perhaps other health professionals too.

Let me know if you try the cream - I'd be really interested to chat about it. Apparently the topical form avoids the side effects of taking the medication systemically.

Thank you for the encouragement, wishing you luck in your physio search <3

infinitelywondering wrote:Hi there,

I'm so sorry you are going through this. But honestly, this forum is so valuable to me and I'm sure it will become the same for you too.

Are you in the US or the UK?
I really need to see a physio and am just wondering who you've seen because in the U.K. Where I am, I can't seem to find anyone good....

The anytriptyline cream sounds really good, I wanna try that too and maybe Botox!

Hope you start to feel better xx

sophiarp

Posts : 7
Join date : 2018-01-07

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Re: Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

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