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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Sore after using dilator for first time in a year

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Sore after using dilator for first time in a year

Post  NewNicola on Sun Feb 04, 2018 5:42 pm


Hi everyone,

It took ages but I was eventually diagnosed with vestibulitis a couple of years ago. I was suffering from unprovoked pain on a regular basis and sex was completely out of the question. It was miserable as you can imagine. I've eventually managed to get the daily discomfort (minus the sex issue) pretty much under control thanks to a brilliant physical therapist who identified tight muscles as the root of my problem and taught me about deep tissue massage. I did do some work with dilators while seeing her but then went through a bad spell of anxiety which meant the dilators got buried in the back of a drawer. I just couldn't deal with the added stress of trying to use these as well as overcome the anxiety issues. For the first time in almost a year i plucked up the courage yesterday to try inserting the smallest dilator. I managed with very little discomfort which i was over the moon about! Today though i feel quite sore and everything feels tingly. I'm freaking out a bit as it reminds me of UTI symptons. There's no burning or urgency though so my logical mind is saying that its probably just my vaginal muscles reacting to having something inside after such a long time! Has anybody here experienced this after using a dilator for the first time or moving up a size? I shouldn't overreact but this whole process has been so emotionally draining that any sign of pain makes me feel worried and emotional. Thanks for any advice or words of wisdom x

NewNicola

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Re: Sore after using dilator for first time in a year

Post  Athena on Wed Feb 14, 2018 3:45 am

I want to offer you some encouragement NewNicola. I haven't had the same experience of taking up the dilators after a long time, but I am working through my own dilator program and I know how emotionally draining it is. I think you should pat yourself on the back for dusting it off and giving it a go Smile Well done!

I hope the tingling was a passing feeling and you feel better already. Part of the reason it is draining is that dilation is about stretching the boundaries (more mentally and pain signal wise than physically for me) and you never know how your body and mind will react. Good luck with your treatment!

Athena

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Re: Sore after using dilator for first time in a year

Post  Sarah001 on Mon Feb 26, 2018 10:11 pm

NewNicola those are exact symptoms the pelvic floor can produce and I've been where you are when I got a bit over ambitious or didn't relax enough etc, I go on the lack of urgency and burning/stinging when I pee as my guide as to whether it's a UTI or not and if not I alternate an ice pack with a heat pack over and over while I watch TV at night until it settles back down, plus some breathing and relaxing the pelvic floor but no more dilators or wands or anything until almost completely settled then I check for very spasmed muscles and very gently release them a bit with a thumb so I've got feedback. You're probably fine by now anyway as I've only just seen your message! Go easy as you're out of practice. Very Happy
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Re: Sore after using dilator for first time in a year

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