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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Sore after using dilator for first time in a year

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Sore after using dilator for first time in a year

Post  NewNicola on Sun Feb 04, 2018 5:42 pm


Hi everyone,

It took ages but I was eventually diagnosed with vestibulitis a couple of years ago. I was suffering from unprovoked pain on a regular basis and sex was completely out of the question. It was miserable as you can imagine. I've eventually managed to get the daily discomfort (minus the sex issue) pretty much under control thanks to a brilliant physical therapist who identified tight muscles as the root of my problem and taught me about deep tissue massage. I did do some work with dilators while seeing her but then went through a bad spell of anxiety which meant the dilators got buried in the back of a drawer. I just couldn't deal with the added stress of trying to use these as well as overcome the anxiety issues. For the first time in almost a year i plucked up the courage yesterday to try inserting the smallest dilator. I managed with very little discomfort which i was over the moon about! Today though i feel quite sore and everything feels tingly. I'm freaking out a bit as it reminds me of UTI symptons. There's no burning or urgency though so my logical mind is saying that its probably just my vaginal muscles reacting to having something inside after such a long time! Has anybody here experienced this after using a dilator for the first time or moving up a size? I shouldn't overreact but this whole process has been so emotionally draining that any sign of pain makes me feel worried and emotional. Thanks for any advice or words of wisdom x

NewNicola

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Re: Sore after using dilator for first time in a year

Post  Athena on Wed Feb 14, 2018 3:45 am

I want to offer you some encouragement NewNicola. I haven't had the same experience of taking up the dilators after a long time, but I am working through my own dilator program and I know how emotionally draining it is. I think you should pat yourself on the back for dusting it off and giving it a go Smile Well done!

I hope the tingling was a passing feeling and you feel better already. Part of the reason it is draining is that dilation is about stretching the boundaries (more mentally and pain signal wise than physically for me) and you never know how your body and mind will react. Good luck with your treatment!

Athena

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Re: Sore after using dilator for first time in a year

Post  Sarah001 on Mon Feb 26, 2018 10:11 pm

NewNicola those are exact symptoms the pelvic floor can produce and I've been where you are when I got a bit over ambitious or didn't relax enough etc, I go on the lack of urgency and burning/stinging when I pee as my guide as to whether it's a UTI or not and if not I alternate an ice pack with a heat pack over and over while I watch TV at night until it settles back down, plus some breathing and relaxing the pelvic floor but no more dilators or wands or anything until almost completely settled then I check for very spasmed muscles and very gently release them a bit with a thumb so I've got feedback. You're probably fine by now anyway as I've only just seen your message! Go easy as you're out of practice. Very Happy
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Re: Sore after using dilator for first time in a year

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