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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


MAY HAVE FOUND A CURE- PLEASE READ

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MAY HAVE FOUND A CURE- PLEASE READ

Post  infinitelywondering on Thu Feb 15, 2018 10:04 pm

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit a dermatologist! She tested my skin by scratching my back and diagnosed me with dermograhism and eczema. She suggested that this may be what is causing my vulval pain because I have extremely sensitive skin!

She also noted that most women who suffer vulvodynia or vulvodynia-like symptoms will also have this condition. Whenever you can, try it: on your bare leg or thigh, scratch yourself gently down a line and if you come up red quickly, you may be very sensitive too.

She's recommended I take some tablets and cream. For the eczema, she has suggested I use nothing other than Vaseline or Coconut Oil and massage gently into the area to prevent soreness and dryness.

I really hope this helps me out and also helps you ladies! Maybe this could be another thing that is causing our soreness ?

I will update you on how my treatment is going, very soon

Lots of love always,

Ellie x

infinitelywondering

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Re: MAY HAVE FOUND A CURE- PLEASE READ

Post  Peachy92 on Fri Mar 02, 2018 8:50 pm

Good evening,

Thank you for this post, it had given me some hope.

I too had a partial vestibulectomy (at the age of 23) 3 years ago, with little success. It treated pain during sex/tampon use, but the awful vulval itching and sore/scratchy feel remains, and appears to be getting worse. I too got referred to a vulval dermatologist. A biopsy was done, as the external skin is generally very red and sore in appearance. It came back clear of everything, other than mild eczema, which baffles me.

I feel I have exhausted all avenues. I am on noratryptiline (only 10mg) have had a long course of fluconazole (in case of thrush reoccurring), vagisil, lidocaine 5%, various strength steroid creams. Nothing helps the terrible itch!

Any advice would be amazing, and greatly received. Do you know the name of the pills and creams your dermatologist prescribed?

Thank you taking your time to read this.
I hope to hear from you Smile

Peachy92

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Peachy92

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Re: MAY HAVE FOUND A CURE- PLEASE READ

Post  infinitelywondering on Mon Mar 05, 2018 10:30 pm

Heya,

Yes, I was given EMLA cream which is basically a numbing cream. I've had great success using it and I'm sure it would be good for itching too. The pills I'm taking are cetirizine and fexofenadine: both are antihistamines that help with the swelling.

Your itching may be being caused by an allergy as that is a really common symptom. Cetirizine can be easily bought over the counter. Also, I'd recommend trying aloe vera gel and vaseline that will really soothe the area and prevent any chafing.

I really hope this helps,

All my love and support x

infinitelywondering

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Re: MAY HAVE FOUND A CURE- PLEASE READ

Post  Peachy92 on Mon Mar 05, 2018 10:43 pm

Thank you very much for your reply! I really appreciate it Smile any advice is fab- I’m very desperate to find something that will atleast ease this itching a bit.

I have taken an antihistamine this evening, in the hope it’ll help a little. Have also taken my usual noratrityline also.

I shall look into the creams Smile

Thanks! Take care

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Re: MAY HAVE FOUND A CURE- PLEASE READ

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