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» Did going off antidepressants cause this?
Today at 2:08 am by ryn207

» 7 months since the diagnosis
Yesterday at 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

The pain CAN get better - What's worked for me

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The pain CAN get better - What's worked for me

Post  emalita on Sun Apr 22, 2018 5:32 pm

It’s been a while since I’ve posted here, but I wanted to come back and give a little hope to those who are suffering.

I still have what I assume to be nerve pain on my left lower vulva area, urethra/vaginal muscle discomfort, and skin irritation during menstrual periods. However, trust me, it sounds far worse than it actually is…especially with what it is now compared to where I was even a year ago.

Although I am not 100% healed, I am able to have pleasurable sex pretty regularly, go for long walks, sit up in chairs (the position is very important some days), and lie in bed in whatever position I want most nights. Sex can be uncomfortable sometimes, but usually that is related to lubrication instead of vulva pain.

Below are the insights I can offer into what I’ve learned recently and what I’m doing to further promote my healing. Obviously I am not a doctor, and I am just sharing my experience. Please always do what is best for you!

1. Stop using countless products on your sensitive lady parts!

I’ve already said this a dozen times on this site, but I will say it again for good measure…STOP applying/inserting lotions, creams, gels, boric acid, etc. etc. etc. to your vulva/vagina!! Trust me, I KNOW how desperate we all are for a quick fix, and we keep thinking, with the 6th cream or the 3rd round of antibiotics we will finally be cured... I’m sorry, but it’s more likely that you’re only making things worse and prolonging your healing process (read my long history in my signature link). Please be kind to your body.

2. Could your pain be from your bladder/urethra instead of your vulva/vagina?? Don't just skip by this one!

EVERYTHING is so crammed together in the genital area for women, it is very difficult to tell where the pain is coming from.

I naturally assumed that if I ever had bladder or urethra pain it would be obvious, like a UTI, and I would have burning with urination. That was NOT the case for me. It took me several years to make a connection to consuming acids like oranges and other things like my vitamin supplement that contained B6 (common bladder irritant) or smoothies with stimulants like matcha. To this day, bladder irritants can still make it feel like the pain is at my inner labia when I urinate (weird, huh?).

I finally made the connection to oranges when I hadn’t had any in a while and one day decided to eat a few. I didn’t have burning pee like with a UTI, but I kept feeling like I needed to get something out of my body (urgency). The pain was almost prickly and burning, which is a common description of bladder pain (my history in my signature link even references the feeling of being poked with a needle!). Depending on how bad the flare-up was, I wouldn’t start feeling relief for about 3 days, and it wouldn’t be fully gone for probably at least a week. I noticed that for me, the offending foods could cause pain as quickly as 20 minutes or could take overnight to show itself. So, identifying food irritants (for any symptom of the body) can be really tricky if you don’t know what you’re looking for.

I’m NOT saying I have interstitial cystitis. I believe I have food irritations (I have many for the rest of my body too), which were brought on by many years of poor bladder health (eating massive amounts of irritating foods, multiple rounds of antibiotics, holding my urine too long, UTIs, etc.). I have read that it can take as long as 3-6 months for a bladder to heal itself once all irritants are removed. So I am on that journey now. If you want a good starting point for common food irritations, please see the below link, but LISTEN TO YOUR BODY. Not all of these will be irritations for you or be good for you.


3. STOP STRAINING! Don't skip over this one either!!

I have read many times before that straining is bad for your “already tight pelvic floor muscles” and for bowel movements, but of course I said to myself, “that’s not what my problem is!” Well…yes it is, at least partially. I was straining to pee because of the urgency feeling brought on by food irritants and, silly enough, straining itself. I was straining to release discharge because again, I was blaming my vagina for all my problems. I thought the discharge sitting inside my vagina was to blame for my pain. I was also straining to have bowel movements because I couldn’t be bothered to sit on the toilet for too long.

I finally made the connection when I strained so much that I felt almost a tearing feeling, a sharp pain in my vestibule. I was going in the tub for a bath right after, and as I sank into my bath water, my vestibule actually stung! So I had torn either my urethra or some sort of vaginal muscle when straining. I had not noticed any blood. It took a good week for the pain to calm down. I still didn’t have burning with urination, and it didn’t feel completely like a normal pulled muscle. So…I still don’t know what I did exactly, but it woke me up to what I was doing.

I have found that even the smallest amount of straining (any type of it) sends me into a flare-up where my vestibule feels very uncomfortable (then takes 3+ days to heal). I am in a minor flare-up now that I still don’t quite understand how I did it since I’ve been so careful not to strain, but yesterday I did strain ever so slightly for a bowel movement. I assume it must’ve been that.

Reducing the stress on my urethra/bladder/vaginal muscles from straining and food irritants has made a huge difference in my ability to have pain free sex.

4. Brazilian waxes

Now, I know what you must be thinking, “That sounds painful! How wouldn’t that make my pain worse?!” Well, a friend of mine who also suffers from vulvodynia recommended waxing to me after I told her that trimming my pubic hair was causing little cuts in my skin from the friction of the blunt hair to my overly delicate skin. I tried leaving my hair au naturel, but that made things even more painful. I found that my hair’s natural movement (even the minor movements) was aggravating my nerve pain. Think of brushing your hair in the wrong direction…even though that isn’t painful, you can feel it tug uncomfortably. Well, combine that with overly sensitive nerves, and you have pain.

I won’t lie, waxing was horrible the first time, and probably the second and third times as well, but it NEVER aggravated my vulvodynia pain…EVER. I’ve been getting waxed for probably about a year now (every 4 weeks), and I could always tell when I needed a wax because I could feel that weird numbing nerve pain coming on when my hair got to a certain length before the next wax. Now, I’m finally starting to not feel that pain as often, and I can actually touch that area of skin without horrible flare-ups that last for days.

I truly believe that FOR ME waxing was one of the best changes I made to promote healing and my ability to move around since it reduced the constant aggravation to those sensitive nerves...giving them a chance to heal.

5. Desensitize the area

You should NOT do this until you think that you are ready because it could make things worse for you. It may be best for you to see a pelvic floor physical therapist to work through this process with you.

I met an extremely patient, understanding, kind, and loving man that I wanted to be intimate with. With honest communication, I believe that our intimate touch and sex has accelerated my healing through desensitization. There are still some sensitive areas that he knows to avoid touching, but the indirect pressure from sex on those areas is slowly making them less unhappy. I believe with more time and patience, my nerve pain will be a thing of the past.

If you want to explore this at home or without sex, I found the below article helpful, even though I didn’t use the techniques myself.



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Re: The pain CAN get better - What's worked for me

Post  SinclairSassy on Sat Apr 28, 2018 8:23 pm

One thing that has helped me is filling a pitcher full of water and letting it stand overnight so that the chlorine evaporates. It has helped a lot for urethra pain.

And cheaper than buying bottled water.


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