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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
a euro product like neogyn- but different
3 posters
Page 1 of 1
a euro product like neogyn- but different
hey i forgot to tell you all something-
so neogyn- not liking as much- it doesnt do anything
but there is something with similar ingredients that some women are swearing by- sold in europe. I just ordered these 2 products- kinda exp in us money $150 (with shipping) us (110 euro)
but check it out-
its called saginil, and also a supplement called Pelvilen
I ordered it- 110 erup= about 148 usd
ill let you know how it goes- but these ladies swear it totally helped
and you can use it also when using estrogen
worth a try i guess
than in their search type in Pelvilen
website-
http://www.ergomax.nl/home/?_globalsearch=saginil
there should be a link at the top to translate to english
here is also a youtube with a lady talking about her experience with these 2 products (hopefully these links work here)
Im only going to try a SMALL area where it still bugs me and see if it helps.... basically to just TEST it out
https://www.youtube.com/watch?v=LoZtqYFJcY4
so neogyn- not liking as much- it doesnt do anything
but there is something with similar ingredients that some women are swearing by- sold in europe. I just ordered these 2 products- kinda exp in us money $150 (with shipping) us (110 euro)
but check it out-
its called saginil, and also a supplement called Pelvilen
I ordered it- 110 erup= about 148 usd
ill let you know how it goes- but these ladies swear it totally helped
and you can use it also when using estrogen
worth a try i guess
than in their search type in Pelvilen
website-
http://www.ergomax.nl/home/?_globalsearch=saginil
there should be a link at the top to translate to english
here is also a youtube with a lady talking about her experience with these 2 products (hopefully these links work here)
Im only going to try a SMALL area where it still bugs me and see if it helps.... basically to just TEST it out
https://www.youtube.com/watch?v=LoZtqYFJcY4
Melissa777- Posts : 55
Join date : 2011-07-10
Melissa777- Posts : 55
Join date : 2011-07-10
Re: a euro product like neogyn- but different
I'm struggling to find any information about what's in the saginil except local anaesthetic, could you post a list of the ingredients on here once you get it? There's not much about it at all online so be careful and check all the ingredients before you apply it.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
yes
you have to go to the site and translate it to english
in the gel
Water, Glycerin, adelmidrol, peg-40 hydrogenated castor oil, propyleneglycol, acrilaat cross polymer, Tocopheryl acetate, polyvinyl malted, fenetylalcohol, sodium hydroxide, hyaluronic acid, methyl parabens, phytosphingosine, quercetin.
and in the cannulae
Water, Glycerin, adelmidrol, propyleneglycol, peg-40 hydrogenated castor oil, Carbomer, Tocopheryl acetate, triethanolamine, polyvinyl malted, fenetylalcohol, hyaluronic acid, methyl parabens, phytosphingosine.
in the gel
Water, Glycerin, adelmidrol, peg-40 hydrogenated castor oil, propyleneglycol, acrilaat cross polymer, Tocopheryl acetate, polyvinyl malted, fenetylalcohol, sodium hydroxide, hyaluronic acid, methyl parabens, phytosphingosine, quercetin.
and in the cannulae
Water, Glycerin, adelmidrol, propyleneglycol, peg-40 hydrogenated castor oil, Carbomer, Tocopheryl acetate, triethanolamine, polyvinyl malted, fenetylalcohol, hyaluronic acid, methyl parabens, phytosphingosine.
Melissa777- Posts : 55
Join date : 2011-07-10
heres whats in neogyn
Neogyn
Water (Aqua), Octyldodecanol, Decyl Oleate, Glyceryl Stearate, Propanediol, Glycerin, Stearic Acid, Wheat Germ Oil (Triticum Vulgare), Ceteareth-20, Cetyl Alcohol, Borage Seed Oil (Borago Officinalis), Dimethicone, Glycosphingolipids, Cutaneous Lysate, Myreth-3 Myristate, Ceteareth-12, Tocopheryl Acetate, Cetearyl Alcohol, Cetyl Palmitate Carbomer, Triethanolamine, BHT, Disodium EDTA, Phenoxyethanol, Caprylyl Glycol.
Water (Aqua), Octyldodecanol, Decyl Oleate, Glyceryl Stearate, Propanediol, Glycerin, Stearic Acid, Wheat Germ Oil (Triticum Vulgare), Ceteareth-20, Cetyl Alcohol, Borage Seed Oil (Borago Officinalis), Dimethicone, Glycosphingolipids, Cutaneous Lysate, Myreth-3 Myristate, Ceteareth-12, Tocopheryl Acetate, Cetearyl Alcohol, Cetyl Palmitate Carbomer, Triethanolamine, BHT, Disodium EDTA, Phenoxyethanol, Caprylyl Glycol.
Melissa777- Posts : 55
Join date : 2011-07-10
adelmidrol
about adelmidrol
Adelmidrol, a palmitoylethanolamide analogue, reduces chronic inflammation in a carrageenin-granuloma model in rats.
De Filippis D, D'Amico A, Cinelli MP, Esposito G, Di Marzo V, Iuvone T.
Source
Università"Federico II", Napoles, Italy.
Abstract
Palmitoylethanolamide (PEA) and some of its analogues have shown great efficacy in the treatment of pain and inflammation. Adelmidrol - the International Nonproprietary Name (INN) of the di-amide derivative of azelaic acid - is one of these analogues. The anti-inflammatory and analgesic effects of PEA and adelmidrol are hypothesized to be mediated, at least in part, by mast cell down-modulation. Mast cell mediators released at early stage of the inflammatory process drive the inflammatory reaction to chronicity as it happens in X-carrageenin-induced granulomatous tissue formation. In the present study, the choice of testing adelmidrol depends upon the physicochemical properties of the compound, i.e. the amphipatic feature, that make it more easily soluble than PEA. In this study, we investigated the effect of adelmidrol on granuloma formation induced by lambda-carrageenin-soaked sponge implant in rats. Our results show that the local administration of the compound under study significantly decreases weight and neo-angiogenesis in granulomatous tissue. The anti-inflammatory effect was due to the modulation of mast cells degranulation, as shown by histological analysis and by the inhibition of the release of several pro-inflammatory and pro-angiogenic enzymes (e.g. iNOS, chymase and metalloproteinase MMP-9), and mediators (e.g. nitric oxide and TNF-alpha). The results indicate that adelmidrol, given locally, may represent a potential therapeutic tool in controlling chronic inflammation.
PMID: 18429935 [PubMed - indexed for MEDLINE]
Adelmidrol, a palmitoylethanolamide analogue, reduces chronic inflammation in a carrageenin-granuloma model in rats.
De Filippis D, D'Amico A, Cinelli MP, Esposito G, Di Marzo V, Iuvone T.
Source
Università"Federico II", Napoles, Italy.
Abstract
Palmitoylethanolamide (PEA) and some of its analogues have shown great efficacy in the treatment of pain and inflammation. Adelmidrol - the International Nonproprietary Name (INN) of the di-amide derivative of azelaic acid - is one of these analogues. The anti-inflammatory and analgesic effects of PEA and adelmidrol are hypothesized to be mediated, at least in part, by mast cell down-modulation. Mast cell mediators released at early stage of the inflammatory process drive the inflammatory reaction to chronicity as it happens in X-carrageenin-induced granulomatous tissue formation. In the present study, the choice of testing adelmidrol depends upon the physicochemical properties of the compound, i.e. the amphipatic feature, that make it more easily soluble than PEA. In this study, we investigated the effect of adelmidrol on granuloma formation induced by lambda-carrageenin-soaked sponge implant in rats. Our results show that the local administration of the compound under study significantly decreases weight and neo-angiogenesis in granulomatous tissue. The anti-inflammatory effect was due to the modulation of mast cells degranulation, as shown by histological analysis and by the inhibition of the release of several pro-inflammatory and pro-angiogenic enzymes (e.g. iNOS, chymase and metalloproteinase MMP-9), and mediators (e.g. nitric oxide and TNF-alpha). The results indicate that adelmidrol, given locally, may represent a potential therapeutic tool in controlling chronic inflammation.
PMID: 18429935 [PubMed - indexed for MEDLINE]
Melissa777- Posts : 55
Join date : 2011-07-10
the only thing i dont like
is that the gel has prop glycol
but- neogyn seems to irritate some people and does not have it
so thats why im testing it on a small area first
but- neogyn seems to irritate some people and does not have it
so thats why im testing it on a small area first
Melissa777- Posts : 55
Join date : 2011-07-10
Re: a euro product like neogyn- but different
Melissa777,
Thank you for this information. I was just wondering how this would work since the gel is inserted inside. I suffer from VVS and, as in most Vulvodynia, the pain is mostly on the outside (the vulva).
Do you have any information on this?
Also, do you have any updates on how your treatment is going?
I would much rather order these products since ordering neogyn is ridiculously expensive to order to Europe.
Thank you, and best of luck.
Thank you for this information. I was just wondering how this would work since the gel is inserted inside. I suffer from VVS and, as in most Vulvodynia, the pain is mostly on the outside (the vulva).
Do you have any information on this?
Also, do you have any updates on how your treatment is going?
I would much rather order these products since ordering neogyn is ridiculously expensive to order to Europe.
Thank you, and best of luck.
skippypie23- Posts : 23
Join date : 2011-11-29
Location : Greece
it didnt work
i ordered it, and tried it out for 2 days, it only irritated me... guess the prop glycol in it is to blame
Melissa777- Posts : 55
Join date : 2011-07-10
Re: a euro product like neogyn- but different
I'm sorry.. I know how sickening it is to keep hoping something will work.
And the neogyn didn't work either?
I keep reading all these testimonials about how it helps but i'm not sure i believe them.
And the neogyn didn't work either?
I keep reading all these testimonials about how it helps but i'm not sure i believe them.
skippypie23- Posts : 23
Join date : 2011-11-29
Location : Greece
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer