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» New member looking for self-care and treatment ideas
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Treatment Options / Surgery

Mon Jan 26, 2015 10:21 pm by vldicker

I am so happy to have found this forum. I have been suffering with vulvodyina for years…diagnosed when I was 22 and now am 25 but suffered long before the diagnosis. Over the past years it would only flare up for maybe a few days and then wouldn't bother me at all for a long time. My doctor put me on antidepressants and lidocain gel which did nothing to stop the random flare up so I stopped …

Comments: 4

New member looking for self-care and treatment ideas

Fri Jan 16, 2015 3:12 am by Millie

Hello
I am 25 years old and have been suffering from provoked Vulvodynia (Vestibulodynia) for the past year.

About 2 years ago I changed my contraceptive pill from Microgynon to Mercilon because I was experiencing side effects such as nausea and vomiting, however the side effects of Mercilon were much worse and I believe the main cause of all the problems I have experienced over the past two …

Comments: 3

Does anyone else test the ph of their urine?

Sun Jul 22, 2012 1:34 am by Rainy Day

Just wondering if everyone else has acidic urine too? Wondering if that is part of the puzzle? I have a urine ph of 5.75 in the morning and then 6.0 before bed. It never gets close to 7 in morn or at night.

Comments: 3

Just found this site.. thank god.

Sat Dec 27, 2014 1:59 pm by abbey5531

Hi everyone-
I have been struggling with my diagnosis of vulvodynia since February of this year, but problems have been going on for a long time. I was on the pill after I lost my virginity due to a pregnancy scare when I was about to turn 19, which was over two years ago now, and since then I have experienced pain while having sex. My boyfriend at the time and I ended up breaking up, and I …

Comments: 2

Vulvodynia nerve pain after having baby

Wed Dec 10, 2014 7:33 am by ethome

I recently had my second baby 7 months ago and since then I have had pain at the site where I tore and just inside my vagina. It only really hurt if pressure was applied but I have recently had a steroid and anesthetic injection into the vagina area to help treat this. This has made things so much worse as now I have pain all the time. It throbs and burns constantly. I went back to the gynae who …

Comments: 1

Im a Guy with Issues Similar

Mon Dec 15, 2014 8:17 am by Justin777

Hi girls I recently discovered 'Vulvodynia' last month. How I came across it is ironic. In June of this year 2014 I took a hair loss pill called propecia. Pill designed to stop my hair from falling out. One month in I discovered that my private would struggle to stay turned on. Also orgasm lost feeling. Private has become pretty numb. Very upset over this. They have a website for the few guys who …

Comments: 17

New to vulvodynia and searching for solutions

Sun Dec 07, 2014 11:39 am by justbecca28

Hi,
I am 30 and was just diagnosed with vulvodynia about 6 months ago. Since the first time I had sex, when I was 16, I knew there was something wrong. My bf at the time couldn't even penetrate, and when he finally did, the pain was unbearable. To this day I have never had sex without pain. I didn't even understand that what I was experiencing was not normal until I was probably 20. I thought to …

Comments: 3

Low oxalate diet?

Sun Dec 14, 2014 2:55 am by keepsmiling

I attended a Vulvodynia study day at my local hospital recently and was informed about a low oxalate diet that helps ease vulval pain. Anyone tried and tested this? And does it actually work??

Thanks


Comments: 1

Ipl/lazer hair removal bikin line

Sun Nov 16, 2014 5:58 am by Mary1000

Hiya,

Was wondering if anyone has ever had ipl/lazer hair removal on their bikini line before?

Or if you know if it would effect my vulvadynia.

I'm not in acute stage of it like I was last year. The constant pain stopped from seeing a physio and many other things like coconut oil.also breaking up with my boyfriend so not having sex which caused a lot of emotions as wasn't able too. Still …

Comments: 3


Neogyn.us

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Neogyn.us

Post  florence1009 on Sun Jul 10, 2011 6:12 pm

I am new here. Does anybody here about a novel cream called NEOGYN?
I am suffering vulvodynia since years and my OB suggested to try Neogyn... www.neogyn.us
They have a "try it for free" programm ongoing...So I will try it and let you know!!!

PS: They made a clinical study in Belgium with promising results: I found the results on vulvodyniatreatment.com

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Re: Neogyn.us

Post  Sebby (Admin) on Sun Jul 10, 2011 7:47 pm


I have never heard of it. I am a bit skeptical of a cream that I couldnt get on prescription from my doctor and that is being sold for profit. Then again I really dont know if it works?

Before using it take the list of ingrediennts to your doctor and pharmicist to check it out

I am far to scared now to use anything but natural products such as coconut oil down there!

If it does help then deff let us know

Wishing you luck


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Neogyn ingredients

Post  florence1009 on Sun Jul 10, 2011 7:58 pm

No parabens, no Propylen Glycol... I'll let you know. I just ordered a tube for free today. I am ready to try! Need something anyway!

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Re: Neogyn.us

Post  Sebby (Admin) on Sun Jul 10, 2011 8:02 pm


I would be interested to know what the active ingredient/s are that make it soothing?

Yes let us know how it goes and good luck!

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neogyn test

Post  florence1009 on Fri Jul 15, 2011 3:23 am

I received the tube (UPS shipped) without problems. Nice cream; I apllied it 3 times now just on my vestibule. i had a little tingling at the beginning. No tingling now. So far so good. They recommend to apply the cream twice a day for at least 6 weeks to realy feel the difference. I am trying to be patient.
The ingrediensts are interesting. They say it is a mix of some proteins and growth factors. They claim it makes the skin arround the vulva thicker...
I'll keep you posted! Smile

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neogyn.us

Post  ria on Fri Jul 15, 2011 6:09 am



Please be careful there is alcohol in the ingredients. I hope it works, but I had a lot of problems with creams from the Doctors Trimovate, Yeast creams just made my Vulva skin red sore and swollen. I hope the cream works but so afraid of the pain and discomfort I went through at the beginning using all creams prescribed. Howard Glazer told me to put nothing on the vulva you could not eat olive oil natural products ect.........


Take Care
Ria

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Neogyn ingredients

Post  florence1009 on Fri Jul 15, 2011 6:31 am

Where did you see there is alcool in it? There is nothing like this. So far I get absolutely no irritation of any kind! I asked my OB on ingredient ; he told NEOGYN seems pretty well done... did you visit neogyn.us?

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neogn.us

Post  ria on Fri Jul 15, 2011 6:48 am



Perhaps I have got it wrong cetearyl alcohol? Is this ok. I really hope it works do you have Vulvodynia pain constant?

Sorry if I got this wrong


Hope it works

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Pain

Post  florence1009 on Fri Jul 15, 2011 7:08 am

I have pain only during intercourse or when inserting a tampon... Really when I have some pressure down there.


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Re: Neogyn.us

Post  Sarah001 on Sat Jul 16, 2011 11:10 pm

Can anyone who has a tube of this post the ingredients please? I've looked and am interested but it doesn't sem to be available in the U.K, typical. Please can we have a list of ingredients?

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neogn.us

Post  ria on Sun Jul 17, 2011 1:54 am



Hi Everyone,

I have sent for a free sample , go to website. Might as well get sample and do homework on ingredients. We need to know what is in it.

Take care all

Ria

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Neogyn results

Post  florence1009 on Fri Jul 29, 2011 5:34 pm

Hello Girls!
Just a few words to let you know that I feel better! Smile I feel something is different down there:less tensed, clearly less sensitive...I keep applying my neogyn cream, and pray! I'll definitely keep you posted!

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neogyn.us

Post  ria on Sat Jul 30, 2011 11:16 am



Hi Ladies,

I have sent for my free sample cost £17.00 U P S delivery. Tomorrow I will write all info I have on it. Really scared to use it .


Keep you posted

Ria Smile

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neogyn.us

Post  ria on Sat Jul 30, 2011 11:17 am


Hi Ladies,

I have sent for my free sample cost £17.00 U P S delivery. Tomorrow I will write all info I have on it. Really scared to use it .


Keep you posted

Ria Smile

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neogyn ingedient

Post  florence1009 on Sat Jul 30, 2011 4:38 pm

I checked on the ingredient; neogyn is a biotech product and contains proteins coming from "cultivated human fetal fibroblasts". I ask a friend who told me this is relatively conventional bio-technologies eventhough the fact of using anything with an "Fetal" origin is always hot material for the journalist! My friend told me that tipically most Polio vaccines are made the same way...
So if you reject sensionalism, it seems pretty solid science.

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