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» Healing with simple changes, reduced my pain in less then a month!!
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» Hello I'm newly diagnosed too!
Sun May 01, 2016 7:32 pm by Annmaria

Hello I'm newly diagnosed too!

Sun May 01, 2016 5:54 pm by Annmaria

Hello everyone I am so happy to have found you!
I'm a 56 year old woman recently diagnosed although I suspect I have had this a long time but it has crept up on me.
I first noticed painful sex with a partner who lived away (about 4 years ago) and who I only saw about every month. I thought my problem was 'tightening' because I didn't have intercourse so frequently plus I was newly through the …

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NEW member - I want my life back

Thu Apr 21, 2016 8:35 am by LouR

Since before Christmas I have had problems and after antibiotics, OTC pessaries and everything else, last month the burning pain became so unbearable that all I could do was stay in bed.  I have been taking 25mg Amitriptyline now for 2 weeks, which I think has taken away the burning, but I still have constant soreness at the opening of my vagina.  I have an appointment with the Gynae on …

Comments: 5

Did your doctor tell you that the birth control pill caused it?

Sat Apr 23, 2016 12:29 am by orangelight

Hey Everyone,

I started having pain after taking yaz birth control pill for 5 months, that was 6 years ago. My doctor said Yaz was one of the worst offenders, and that the 'low estrogen' pills like it cause the most vestibulodynia. Apparently the estrogen in bcp is from horse urine and highly potent, and it shuts down your body's production of testosterone (by increasing sex hormone binding …

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Q Tip test was not painful /but stil DX with vulvodynia?

Thu Apr 21, 2016 9:51 pm by Castle16

I've been suffering for almost 6 months with burning - started out with frequency/UTI symptoms - so after months of constant burning (always worse with repeated UTI's) I was finally diagnosed a week ago with vulvodynia by they Gyno I went back to who I had initially seen last Dec 2015 - she diagnosed vaginal atrophy at that time - this time the opening to my vagina was very red - thus the …

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New here- my story

Wed Apr 20, 2016 6:25 pm by MelisaD

Hi all,

I'm 28, from Australia. I've been diagnosed with crappy condition for 5 years but I suspect I've been suffering for much longer. I'm too sure what triggered it in the beginning. When I was initially diagnosed it was a continuous pain, anything and everything would aggravate it, but after taking endep it reliever it to a point where only provoked pain through sex or examination.
I've been …

Comments: 5

New member introduction :)

Wed Apr 20, 2016 12:56 pm by gingercat2426

So... I guess everyone has their story but at the end of the day they all have something in common.
For me, it started in October 2012. I had been with my partner for about 18 months and all was going well I had just come back from a month long trip and I was so excited to see him again. But upon penetration it hurt, it had never hurt like that before.

For a while I thought maybe it was the …

Comments: 2

Sexual Positions

Mon Apr 04, 2016 4:59 pm by Samuella

Hello,

I have vulvodynia, with pain from 10 to 2 on the entrance to my vagina. I was wondering if anyone, with a similar problem as me, could give me advice on which sexual positions they have tried and which ones have either worked or failed miserably. I would love to be more intimate with my boyfriend, but it always seems to hurt. We have had a bit of success with what cosmopolitan calls …

Comments: 3

New Here -- this is my story

Mon Apr 04, 2016 10:45 pm by calidreaming999

Hi everyone,

I am 28 years old and have been suffering from what I think is vulvodynia for 7 years now. It's been a very challenging 7 years Sad Especially listening to all my friends have normal, fun and adventurous sex lives whereas I am too afraid to even have sex for the pain it will cause and all the emotional blocks I have up now. But let me start from the beginning.

When I was 21 years …

Comments: 4

New Here ~~~~

Mon Aug 04, 2014 5:07 am by daisiesfordays

Hi all,  I love you 
I'm new here!
I'm a junior in college and was recently diagnosed with VVS. I had been taking birth control for the past year and 2 months before getting diagnosed, since it was the only thing that worked for my skin. Of course, I'm one of those people who hates hates hates blood, so I would always skip the sugar pills and start a new pack.
I got a yeast infection once, and …

Comments: 4


Neogyn.us

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Neogyn.us

Post  florence1009 on Sun Jul 10, 2011 7:12 am

I am new here. Does anybody here about a novel cream called NEOGYN?
I am suffering vulvodynia since years and my OB suggested to try Neogyn... www.neogyn.us
They have a "try it for free" programm ongoing...So I will try it and let you know!!!

PS: They made a clinical study in Belgium with promising results: I found the results on vulvodyniatreatment.com

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Re: Neogyn.us

Post  Sebby (Admin) on Sun Jul 10, 2011 8:47 am


I have never heard of it. I am a bit skeptical of a cream that I couldnt get on prescription from my doctor and that is being sold for profit. Then again I really dont know if it works?

Before using it take the list of ingrediennts to your doctor and pharmicist to check it out

I am far to scared now to use anything but natural products such as coconut oil down there!

If it does help then deff let us know

Wishing you luck


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Neogyn ingredients

Post  florence1009 on Sun Jul 10, 2011 8:58 am

No parabens, no Propylen Glycol... I'll let you know. I just ordered a tube for free today. I am ready to try! Need something anyway!

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Re: Neogyn.us

Post  Sebby (Admin) on Sun Jul 10, 2011 9:02 am


I would be interested to know what the active ingredient/s are that make it soothing?

Yes let us know how it goes and good luck!

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neogyn test

Post  florence1009 on Thu Jul 14, 2011 4:23 pm

I received the tube (UPS shipped) without problems. Nice cream; I apllied it 3 times now just on my vestibule. i had a little tingling at the beginning. No tingling now. So far so good. They recommend to apply the cream twice a day for at least 6 weeks to realy feel the difference. I am trying to be patient.
The ingrediensts are interesting. They say it is a mix of some proteins and growth factors. They claim it makes the skin arround the vulva thicker...
I'll keep you posted! Smile

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neogyn.us

Post  ria on Thu Jul 14, 2011 7:09 pm



Please be careful there is alcohol in the ingredients. I hope it works, but I had a lot of problems with creams from the Doctors Trimovate, Yeast creams just made my Vulva skin red sore and swollen. I hope the cream works but so afraid of the pain and discomfort I went through at the beginning using all creams prescribed. Howard Glazer told me to put nothing on the vulva you could not eat olive oil natural products ect.........


Take Care
Ria

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Neogyn ingredients

Post  florence1009 on Thu Jul 14, 2011 7:31 pm

Where did you see there is alcool in it? There is nothing like this. So far I get absolutely no irritation of any kind! I asked my OB on ingredient ; he told NEOGYN seems pretty well done... did you visit neogyn.us?

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neogn.us

Post  ria on Thu Jul 14, 2011 7:48 pm



Perhaps I have got it wrong cetearyl alcohol? Is this ok. I really hope it works do you have Vulvodynia pain constant?

Sorry if I got this wrong


Hope it works

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Pain

Post  florence1009 on Thu Jul 14, 2011 8:08 pm

I have pain only during intercourse or when inserting a tampon... Really when I have some pressure down there.


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Re: Neogyn.us

Post  Sarah001 on Sat Jul 16, 2011 12:10 pm

Can anyone who has a tube of this post the ingredients please? I've looked and am interested but it doesn't sem to be available in the U.K, typical. Please can we have a list of ingredients?

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neogn.us

Post  ria on Sat Jul 16, 2011 2:54 pm



Hi Everyone,

I have sent for a free sample , go to website. Might as well get sample and do homework on ingredients. We need to know what is in it.

Take care all

Ria

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Neogyn results

Post  florence1009 on Fri Jul 29, 2011 6:34 am

Hello Girls!
Just a few words to let you know that I feel better! Smile I feel something is different down there:less tensed, clearly less sensitive...I keep applying my neogyn cream, and pray! I'll definitely keep you posted!

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neogyn.us

Post  ria on Sat Jul 30, 2011 12:16 am



Hi Ladies,

I have sent for my free sample cost £17.00 U P S delivery. Tomorrow I will write all info I have on it. Really scared to use it .


Keep you posted

Ria Smile

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neogyn.us

Post  ria on Sat Jul 30, 2011 12:17 am


Hi Ladies,

I have sent for my free sample cost £17.00 U P S delivery. Tomorrow I will write all info I have on it. Really scared to use it .


Keep you posted

Ria Smile

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neogyn ingedient

Post  florence1009 on Sat Jul 30, 2011 5:38 am

I checked on the ingredient; neogyn is a biotech product and contains proteins coming from "cultivated human fetal fibroblasts". I ask a friend who told me this is relatively conventional bio-technologies eventhough the fact of using anything with an "Fetal" origin is always hot material for the journalist! My friend told me that tipically most Polio vaccines are made the same way...
So if you reject sensionalism, it seems pretty solid science.

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Re: Neogyn.us

Post  Sebby (Admin) on Sat Jul 30, 2011 7:15 pm


Keep us posted on how you get on!

It scares me a bit about the fetal part to be honest :/

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Re: Neogyn.us

Post  Rose86 on Sat Jul 30, 2011 7:19 pm

Hey all,

It's certainly worth doing a bit of research into all the ingredients. Is it something that a person would need to use long term or is it something you can stop after your symptoms have improved? Just wondered if the study said anything about it. The website mentions a study in Switzerland, has anybody read this study? I'd also be interested to find out why it works. I'm not particularly keen on trying something if they can't explain why it works. However they also say Andrew Goldstein has just completed a study into this. His website says he is trialling the safety and effiacy of it for the treatment of Lichen sclerosus:

http://www.cvvd.org/research_studies

Obviously we need to wait for the results of this. But the fact that he's trialling it at all does make me lean towards the fact it is safe.

Let's investigate ladies!

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neogyn.us

Post  Caroline on Sun Jul 31, 2011 5:36 am

Hello!
I am Caroline. I do work for Neogyn in Switzerland. I am following blogs and Forums to give more information about our activities. So back to Rose86 questions...
"long term or is it something you can stop after your symptoms have improved?":
Usually it takes between 6 to 8 weeks to have symptoms significantly improved; which basically means to be able to go back to "normal" sex life. After that first period most patients "manage" their pain with the cream: some are reducing to once a day, twice a week, and some simply stops.
"How does it work": we believe the activity is linked to an increase of the dermal/epidermal thickness on the skin of the vestibule. But there may be other raison for activity: presence of many growth factors and IL1Ra in neogyn... Anyway, mechanism of action is very difficult to understands: Vulvodynia is probably not one disease but many different problems leading to the same symptoms ad neogyn contains a natural mix of proteins.
"Safety": I can confirm that on the about 300 registered cases in Switzerland, plus the cases of Dr. Donders Study in Belgium plus the 30 cases of Dr. Andrew Goldstein (this time on Lichen Scelorus) in Washington, we never had any kind of adverse effect. Neogyn safety profile is very good.
Additional information: Dr. Donders and Dr. Goldstein will both present their results in Paris (Sept. 5 to 9) during the next ISSVD. A new study involving 150 patients suffering Secondary Vulvodynia will be initiated in the USA starting September.
Please don't believe this is a miracle cream! Vulvodynia is a complexe condition and requires mostly a combined approach for a full treatment; but having said that Neogyn has been beneficial for hundreds of women so far and is definitely worth a trial.
Don't hesitate to ask any questions you want...
Enjoy your Sunday!

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Re: Neogyn.us

Post  Rose86 on Sun Jul 31, 2011 7:40 am

Thanks for your information Caroline. I don't think any of us expecting a miracle cream. Most of us have been let down by previous creams and are aware that what works for some women doesn't work for others, it is like you say a complex issue. However we do watch new treatments develop with interest. Usually we wouldn't like people posting from the companies who make the product. But as long as you are simply pointing us towards independently reviewed research then I can't see you doing any harm.

Are any of these results published in any journal articles anywhere yet? I would be interested in Dr. Goldstein's results - however I'm aware how long the process is from data analysis to published articles.

Also, you refer to it as vulvodynia - is this treatment specific to localised provoked vestibulodynia or has it been tested on the more generalised vulvodynia?

Thanks,

Rose86

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neogyn.us

Post  Caroline on Sun Jul 31, 2011 9:53 am

Studies completed in Switzerland and Belgium are on Localized Provoqued Vestibulodynia. see vulvodyniatreatment.com. The Dr. Donders study is currently under review for publication.
Results seems significantly better on women suffering "secondary" vestibulodynia.
Andrew Goldstein study focused on Lichen Sclerosus witch is a "different" animal.

NB: US physicians involved in our Scientific Advisory Board are Dr. Lara Burrows, Dr. Susan Kellogg, Dr. Andrew Golstein, Dr. Irwin Goldstein, Dr. Michael Krychman.

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neogn.us

Post  ria on Sun Jul 31, 2011 12:25 pm


I have unprovoked Vulvodynia, I have been using estradiol/emu oil from a compounding pharmacy. Does the Neogyn work in the same way Caroline? I have purchased the Neogyn and I have put a tiny amount on the Vulva, this is a big deal for me because I had been given so many different creams which made things worse.

At the moment seems ok. I will keep everyone posted I only put teeny weeny bit on so scared Rolling Eyes Rolling Eyes Rolling Eyes



Lets hope it works girls remember we are the experts, we can do our own trial Smile Smile Smile Smile Smile Smile


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neogyn on unprovocked vulvodynia

Post  florence1009 on Sun Aug 07, 2011 6:08 am

Ria;
No experience with "unprovocked" vulvodynia for what I know. But keep us posted! Don't forget to be patient: 2 times per day for at least 6 to 8 weeks. It takes time to initiate the creation of new dermal cells.
Good luck!

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neogyn.us

Post  ria on Sat Aug 13, 2011 9:13 pm

Well Hello Ladies,

I have been using the Neogyn Crean twice a day this is my third week and I think it may be helping. First and foremost no stinging or burning so I can tolerate the cream, I find I am walking better, no burning or irritation.


I am still taking Gabapentin and using Estradiol as well. Maybe I am having just a some good days you never know, but the cream is doing ok at the moment. I will keep you posted if there is any change.


Take care All xxx

Ria Smile Smile Smile Smile Smile Smile Smile


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Re: Neogyn.us

Post  Karen818 on Mon Jan 07, 2013 12:58 am

I have used Neogyn for 4 weeks now and I feel a dramatic difference I don't feel irritated down there anymore, no more burning, my skin feels more elastic.... And the best of all I have 95% pain free sex now only in 4 weeks! This is a very promising time for us women with vulvodynia because this is the first cream ever designed for that specific disorder, and it works!

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Re: Neogyn.us

Post  meelie on Tue Feb 19, 2013 12:55 am

Hey, this is great news for me as I just purchased some this past weekend. Got word today that it has been shipped. I am looking forward to trying it. I also am taking Neurontin and flexeril hoping to get my pelvic floor muscles to loosen up in case this is causing problems. Don't know, just that my gyn listened to me when I told her my theory. Had an accident 4/30/11 and broke my left pelvis and have been sitting on my right "cheek" for over a year, I think I've put my PF muscles in a tight wad or something. Anyway, we are going on this theory. As I said on a different titled thread here I quit taking the neurontin three days ago because I thought it was making my face beet red and peeling but after going without it for 2 days I couldn't stand it anymore and took one last night. Hasn't had time to get going good yet but hoping it will help again. Doesn't take all the feeling away but takes the edge off anyway. Anybody ever heard of a side effect like this with Neurontin?

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Re: Neogyn.us

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