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Today at 8:02 pm by sailor_moon

» Vulvodynia? What to do?
Today at 7:59 pm by sailor_moon

» New and lost
Today at 12:41 pm by sarisbaris

» So glad ive found this site!
Today at 7:07 am by bethybelle951

» My experience
Sun Apr 19, 2015 3:51 am by x_chelss@live.com

» Slight positive outcome
Sat Apr 18, 2015 6:44 am by Jo44

» THERE IS HOPE I OVERCAME VULVODYNIA - IT WENT AWAY
Sat Apr 18, 2015 5:43 am by mtaylor18

» Severe pain after sitting??
Fri Apr 17, 2015 1:36 am by shope610

» V-Treatment Kit
Thu Apr 16, 2015 6:30 am by OBRN2007sms

New and lost

Sat Apr 18, 2015 6:15 am by Redhead23

Hey ladies.

I'm at a stage in my life where my vulva pain has completely taken over. I'm depressed and even suicidal and after crying a ton today, decided to look for support.

I'm from the UK, I'm 31 and I've suffered with pain, burning and stinging of the vulva, clitoris and vestibule for 12years after a yeast infection and a bladder infection.

I've struggled over the last decade trying to …

Comments: 3

THERE IS HOPE I OVERCAME VULVODYNIA - IT WENT AWAY

Sat Mar 21, 2015 2:48 am by mtaylor18

Since 2009 I had suffered with terrible UTI's, kidney infections, cystitis, recurrent thrush and lots of gynecological and urological problems I became very depressed. December 2012 I had chronic pain in my vulva (AGAIN) but this time it felt different, it was there around a month and just didn't go away! I went to hospital and had an ultrasound where they saw two burst ovarian cysts. I thought …

Comments: 2

Diagnosing Vulvodynia

Thu Apr 09, 2015 11:06 am by amh521

Does anyone know if it's possible to definitively diagnose vulvodynia? From what I have read, it seems like doctors arrive on vulvodynia when tests for all other infections/skin diseases come back negative. I have yet to be diagnosed, but after all the research I've done, I firmly believe this is what it is.

After 7 months of stinging and itching, I had a vulvar biopsy last week. It hurt a LOT …

Comments: 1

Not sure what is wrong with me..

Sun Apr 12, 2015 2:43 am by FallingSlowly

Hello ladies- I am glad to have found this forum. Not that I want anyone else to be suffering like I am, but I do find comfort in knowing that I'm not alone, and even more comfort in the fact that success stories are shared to help others.

I've been suffering for a year and a half now, with no luck whatsoever on coming closer to a diagnosis. None of the 6 doctors (3 gyns, 2 gps, 1 infectious …

Comments: 1

Vulvodynia my whole life & Vestibulectomy results

Sun Apr 05, 2015 3:42 pm by nola218

Greetings from upstate NY...

I feel like an expert on the subject of Vulvodynia. So much so, that I have had doctors admit to me that I know more about it than them. I'm sure a lot of you have seen this. So little is know about this in the medical world that it can become very frustrating to find answers.

I'm 30 years old. Ever since I lost my virginity at the age of 17, I have had vaginal …

Comments: 0

Not sure what's wrong with me, but....

Tue Mar 31, 2015 7:15 pm by haybay

I'm so glad to have found a group of women experiencing similar symptoms! My symptoms have been progressing for at least five years now. I'm 27 years old, and I'm finding that I'm becoming more and more insecure and depressed as a result of my symptoms, as well as the uncertainty of any diagnosis. Some suggestions have been made by three doctors, but no one has been able to "cure" me or …

Comments: 6

HELP! Going for my first GYN visit

Wed Apr 01, 2015 7:25 am by stewie

Hi,

I just joined the forum today and I wanted to ask people who have been through this for a while if there is anything specific I should ask about or request during my office visit? I have 100% vulvodynia symptoms. I've had them for 5 months and its painful and depressing. I've read a lot of blogs and every time I learn a little more but it seems like different things work for different …

Comments: 0

New Member Here - I have VVS

Fri Mar 27, 2015 12:59 pm by srslyskwrrly

Hey everyone,

I am so glad to find a supportive online forum for those of us with Vulvodynia! I was diagnosed with Vulvar Vestibulitis about 14 years ago and back then there just wasn't much information to be found about Vulvodynia issues. Today I am glad to see more medical research is being devoted to it and far more information is available online. Moreover, it is a comfort to now be able …

Comments: 0

Just found this site.. thank god.

Sat Dec 27, 2014 1:59 pm by abbey5531

Hi everyone-
I have been struggling with my diagnosis of vulvodynia since February of this year, but problems have been going on for a long time. I was on the pill after I lost my virginity due to a pregnancy scare when I was about to turn 19, which was over two years ago now, and since then I have experienced pain while having sex. My boyfriend at the time and I ended up breaking up, and I …

Comments: 6


Neogyn.us

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Neogyn.us

Post  florence1009 on Sun Jul 10, 2011 6:12 pm

I am new here. Does anybody here about a novel cream called NEOGYN?
I am suffering vulvodynia since years and my OB suggested to try Neogyn... www.neogyn.us
They have a "try it for free" programm ongoing...So I will try it and let you know!!!

PS: They made a clinical study in Belgium with promising results: I found the results on vulvodyniatreatment.com

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Re: Neogyn.us

Post  Sebby (Admin) on Sun Jul 10, 2011 7:47 pm


I have never heard of it. I am a bit skeptical of a cream that I couldnt get on prescription from my doctor and that is being sold for profit. Then again I really dont know if it works?

Before using it take the list of ingrediennts to your doctor and pharmicist to check it out

I am far to scared now to use anything but natural products such as coconut oil down there!

If it does help then deff let us know

Wishing you luck


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Neogyn ingredients

Post  florence1009 on Sun Jul 10, 2011 7:58 pm

No parabens, no Propylen Glycol... I'll let you know. I just ordered a tube for free today. I am ready to try! Need something anyway!

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Re: Neogyn.us

Post  Sebby (Admin) on Sun Jul 10, 2011 8:02 pm


I would be interested to know what the active ingredient/s are that make it soothing?

Yes let us know how it goes and good luck!

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neogyn test

Post  florence1009 on Fri Jul 15, 2011 3:23 am

I received the tube (UPS shipped) without problems. Nice cream; I apllied it 3 times now just on my vestibule. i had a little tingling at the beginning. No tingling now. So far so good. They recommend to apply the cream twice a day for at least 6 weeks to realy feel the difference. I am trying to be patient.
The ingrediensts are interesting. They say it is a mix of some proteins and growth factors. They claim it makes the skin arround the vulva thicker...
I'll keep you posted! Smile

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neogyn.us

Post  ria on Fri Jul 15, 2011 6:09 am



Please be careful there is alcohol in the ingredients. I hope it works, but I had a lot of problems with creams from the Doctors Trimovate, Yeast creams just made my Vulva skin red sore and swollen. I hope the cream works but so afraid of the pain and discomfort I went through at the beginning using all creams prescribed. Howard Glazer told me to put nothing on the vulva you could not eat olive oil natural products ect.........


Take Care
Ria

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Neogyn ingredients

Post  florence1009 on Fri Jul 15, 2011 6:31 am

Where did you see there is alcool in it? There is nothing like this. So far I get absolutely no irritation of any kind! I asked my OB on ingredient ; he told NEOGYN seems pretty well done... did you visit neogyn.us?

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neogn.us

Post  ria on Fri Jul 15, 2011 6:48 am



Perhaps I have got it wrong cetearyl alcohol? Is this ok. I really hope it works do you have Vulvodynia pain constant?

Sorry if I got this wrong


Hope it works

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Pain

Post  florence1009 on Fri Jul 15, 2011 7:08 am

I have pain only during intercourse or when inserting a tampon... Really when I have some pressure down there.


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Re: Neogyn.us

Post  Sarah001 on Sat Jul 16, 2011 11:10 pm

Can anyone who has a tube of this post the ingredients please? I've looked and am interested but it doesn't sem to be available in the U.K, typical. Please can we have a list of ingredients?

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neogn.us

Post  ria on Sun Jul 17, 2011 1:54 am



Hi Everyone,

I have sent for a free sample , go to website. Might as well get sample and do homework on ingredients. We need to know what is in it.

Take care all

Ria

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Neogyn results

Post  florence1009 on Fri Jul 29, 2011 5:34 pm

Hello Girls!
Just a few words to let you know that I feel better! Smile I feel something is different down there:less tensed, clearly less sensitive...I keep applying my neogyn cream, and pray! I'll definitely keep you posted!

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neogyn.us

Post  ria on Sat Jul 30, 2011 11:16 am



Hi Ladies,

I have sent for my free sample cost £17.00 U P S delivery. Tomorrow I will write all info I have on it. Really scared to use it .


Keep you posted

Ria Smile

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neogyn.us

Post  ria on Sat Jul 30, 2011 11:17 am


Hi Ladies,

I have sent for my free sample cost £17.00 U P S delivery. Tomorrow I will write all info I have on it. Really scared to use it .


Keep you posted

Ria Smile

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neogyn ingedient

Post  florence1009 on Sat Jul 30, 2011 4:38 pm

I checked on the ingredient; neogyn is a biotech product and contains proteins coming from "cultivated human fetal fibroblasts". I ask a friend who told me this is relatively conventional bio-technologies eventhough the fact of using anything with an "Fetal" origin is always hot material for the journalist! My friend told me that tipically most Polio vaccines are made the same way...
So if you reject sensionalism, it seems pretty solid science.

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