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» Not sure what's wrong with me, but....
Yesterday at 7:15 pm by haybay

» Cured from vulvodynia - I've been pain free for over a year... please read
Sat Mar 28, 2015 8:40 am by JstMrried

» Need Feedback: Young Living Essential Oils
Sat Mar 28, 2015 8:27 am by JstMrried

» How I cured my Provoked Vestibulodynia
Sat Mar 28, 2015 8:15 am by JstMrried

» Sex off the table?
Sat Mar 28, 2015 8:05 am by JstMrried

» Pregabalin/Lyrica advices please
Sat Mar 28, 2015 4:51 am by Jo44

» Lyrica...advice please
Sat Mar 28, 2015 3:19 am by BpCookie

» Anyone had Depomedrone injections
Sat Mar 28, 2015 2:37 am by Jo44

» New Member Here - I have VVS
Fri Mar 27, 2015 12:59 pm by srslyskwrrly

Not sure what's wrong with me, but....

Tue Mar 31, 2015 7:15 pm by haybay

I'm so glad to have found a group of women experiencing similar symptoms! My symptoms have been progressing for at least five years now. I'm 27 years old, and I'm finding that I'm becoming more and more insecure and depressed as a result of my symptoms, as well as the uncertainty of any diagnosis. Some suggestions have been made by three doctors, but no one has been able to "cure" me or …

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New Member Here - I have VVS

Fri Mar 27, 2015 12:59 pm by srslyskwrrly

Hey everyone,

I am so glad to find a supportive online forum for those of us with Vulvodynia! I was diagnosed with Vulvar Vestibulitis about 14 years ago and back then there just wasn't much information to be found about Vulvodynia issues. Today I am glad to see more medical research is being devoted to it and far more information is available online. Moreover, it is a comfort to now be able …

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THERE IS HOPE I OVERCAME VULVODYNIA - IT WENT AWAY

Sat Mar 21, 2015 2:48 am by mtaylor18

Since 2009 I had suffered with terrible UTI's, kidney infections, cystitis, recurrent thrush and lots of gynecological and urological problems I became very depressed. December 2012 I had chronic pain in my vulva (AGAIN) but this time it felt different, it was there around a month and just didn't go away! I went to hospital and had an ultrasound where they saw two burst ovarian cysts. I thought …

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Just found this site.. thank god.

Sat Dec 27, 2014 1:59 pm by abbey5531

Hi everyone-
I have been struggling with my diagnosis of vulvodynia since February of this year, but problems have been going on for a long time. I was on the pill after I lost my virginity due to a pregnancy scare when I was about to turn 19, which was over two years ago now, and since then I have experienced pain while having sex. My boyfriend at the time and I ended up breaking up, and I …

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Any advise would be great!

Mon Mar 09, 2015 10:51 pm by gsygrl8

Hello, I will keep this short and sweet, I have been suffering with vulvodnyia for 6 years now and was diagnosed 2 1/2 years ago. I have possibly tried everything to ease the pain even been to London to have nerve injections(I cant remember the proper name for the procedure) which worked for a few months the first time but did not work at all the second!I have done special diets, worn certain …

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Pudendal neuralgia

Fri Mar 13, 2015 10:10 am by Mariek

I have been reading about this! Can anyone else relate to this? Do they go hand and hand? I'm confused?


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Diagnosed last week

Tue Mar 10, 2015 6:27 am by Mariek

I just found out last Wednesday that I have vulvodynia. It affects everything in that area! . I had stopped taking my anti depressants last year and was doing really well, now I feel like I am on the down slope again. I have been crying daily since I found out. Hope this passes. Dealing with depression anxiety and everybody else's comments when you try to talk to them about it. I'm so glad to …

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miserable for years

Fri Feb 20, 2015 5:00 am by cdrocab

I've ridden and shown horses for years and for the last 18 years carried Lidocaine cream in my saddle bags They say if you suffer from Vulvodynia stop riding horses and bikes. I no longer ride motorcycles but still try to bicycle and if armed, am able to ride the trails on my horse for about 2 hours. I had to find a home for my ungaited horse since the bouncing made it worse. No jeans allowed so …

Comments: 3

Newly diagnosed

Tue Mar 03, 2015 10:35 am by drivenbyambition

My story started when I noticed a burning sensation last year. My period was late and I wore a maxi pad in fear of my period starting unexpectedly. I got very irritated and eventually ended up with bacterial vaginosis (that I believe happened due to the maxi pads). When I went for my pelvic exam, I was diagnosed with the previous mentioned condition, but was told treating it would not heal my …

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Neogyn.us

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Neogyn.us

Post  florence1009 on Sun Jul 10, 2011 6:12 pm

I am new here. Does anybody here about a novel cream called NEOGYN?
I am suffering vulvodynia since years and my OB suggested to try Neogyn... www.neogyn.us
They have a "try it for free" programm ongoing...So I will try it and let you know!!!

PS: They made a clinical study in Belgium with promising results: I found the results on vulvodyniatreatment.com

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Re: Neogyn.us

Post  Sebby (Admin) on Sun Jul 10, 2011 7:47 pm


I have never heard of it. I am a bit skeptical of a cream that I couldnt get on prescription from my doctor and that is being sold for profit. Then again I really dont know if it works?

Before using it take the list of ingrediennts to your doctor and pharmicist to check it out

I am far to scared now to use anything but natural products such as coconut oil down there!

If it does help then deff let us know

Wishing you luck


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Neogyn ingredients

Post  florence1009 on Sun Jul 10, 2011 7:58 pm

No parabens, no Propylen Glycol... I'll let you know. I just ordered a tube for free today. I am ready to try! Need something anyway!

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Re: Neogyn.us

Post  Sebby (Admin) on Sun Jul 10, 2011 8:02 pm


I would be interested to know what the active ingredient/s are that make it soothing?

Yes let us know how it goes and good luck!

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neogyn test

Post  florence1009 on Fri Jul 15, 2011 3:23 am

I received the tube (UPS shipped) without problems. Nice cream; I apllied it 3 times now just on my vestibule. i had a little tingling at the beginning. No tingling now. So far so good. They recommend to apply the cream twice a day for at least 6 weeks to realy feel the difference. I am trying to be patient.
The ingrediensts are interesting. They say it is a mix of some proteins and growth factors. They claim it makes the skin arround the vulva thicker...
I'll keep you posted! Smile

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neogyn.us

Post  ria on Fri Jul 15, 2011 6:09 am



Please be careful there is alcohol in the ingredients. I hope it works, but I had a lot of problems with creams from the Doctors Trimovate, Yeast creams just made my Vulva skin red sore and swollen. I hope the cream works but so afraid of the pain and discomfort I went through at the beginning using all creams prescribed. Howard Glazer told me to put nothing on the vulva you could not eat olive oil natural products ect.........


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Ria

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Neogyn ingredients

Post  florence1009 on Fri Jul 15, 2011 6:31 am

Where did you see there is alcool in it? There is nothing like this. So far I get absolutely no irritation of any kind! I asked my OB on ingredient ; he told NEOGYN seems pretty well done... did you visit neogyn.us?

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neogn.us

Post  ria on Fri Jul 15, 2011 6:48 am



Perhaps I have got it wrong cetearyl alcohol? Is this ok. I really hope it works do you have Vulvodynia pain constant?

Sorry if I got this wrong


Hope it works

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Pain

Post  florence1009 on Fri Jul 15, 2011 7:08 am

I have pain only during intercourse or when inserting a tampon... Really when I have some pressure down there.


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Re: Neogyn.us

Post  Sarah001 on Sat Jul 16, 2011 11:10 pm

Can anyone who has a tube of this post the ingredients please? I've looked and am interested but it doesn't sem to be available in the U.K, typical. Please can we have a list of ingredients?

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neogn.us

Post  ria on Sun Jul 17, 2011 1:54 am



Hi Everyone,

I have sent for a free sample , go to website. Might as well get sample and do homework on ingredients. We need to know what is in it.

Take care all

Ria

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Neogyn results

Post  florence1009 on Fri Jul 29, 2011 5:34 pm

Hello Girls!
Just a few words to let you know that I feel better! Smile I feel something is different down there:less tensed, clearly less sensitive...I keep applying my neogyn cream, and pray! I'll definitely keep you posted!

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neogyn.us

Post  ria on Sat Jul 30, 2011 11:16 am



Hi Ladies,

I have sent for my free sample cost £17.00 U P S delivery. Tomorrow I will write all info I have on it. Really scared to use it .


Keep you posted

Ria Smile

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neogyn.us

Post  ria on Sat Jul 30, 2011 11:17 am


Hi Ladies,

I have sent for my free sample cost £17.00 U P S delivery. Tomorrow I will write all info I have on it. Really scared to use it .


Keep you posted

Ria Smile

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neogyn ingedient

Post  florence1009 on Sat Jul 30, 2011 4:38 pm

I checked on the ingredient; neogyn is a biotech product and contains proteins coming from "cultivated human fetal fibroblasts". I ask a friend who told me this is relatively conventional bio-technologies eventhough the fact of using anything with an "Fetal" origin is always hot material for the journalist! My friend told me that tipically most Polio vaccines are made the same way...
So if you reject sensionalism, it seems pretty solid science.

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