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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

What has been helping ME (much less pain over time!!)

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What has been helping ME (much less pain over time!!)

Post  leoscc on Wed May 16, 2018 3:43 am

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I was diagnosed with vulvodynia due to painful intercourse. No matter what I did the pain was unbearable. I was able to walk, sit, exercise, etc fine. But intercourse or tampon insertions were a no. I tried so many lubricants and whatnot. Nothing worked.

2. My first step: I stopped birth control. I noticed a huge difference as my body retained its natural moisture. However, due to a previous battle with anorexia )recovered for 5yr) no hormone help sent my body through the roof. While I think no BC is the best for vulgar issues, I ended up going back on a low dose pill.

3. I found out I have been having painful intercourses due to micro tears near and on my perenium, which lead to vulvodynia like symptoms (burning, itching, pain, rawness). These tears would itch and become inflamed. Turns out BC has caused a thinning of vagional tissue (like menopause, and also why estrogen creams sometimes help V cases). I plan on switching to an IUD because NO synthetic estrogen is used (less thinning) and is progesterone based and does NOT enter the bloodstream.

What I’ve been doing to help:

1. Whenever I get these tears or pains I use Emuaid cream for a couple days. This is a homeopathic antibacterial safe for those fragile areas in comparison to regular triple antibiotic. I use this to help heal any abrasions. Once healed, I have been applying Vitamin E gel to the oerenium area to help skin elasticity. Due to my issue, I have a bad habit of clenching and anticipating pain which also causes tearing and thin tissue, so this has been helping.

2. I started taking hormone balances and Maca tablets. They have helped me with natural lubricant and also helped bring my sex drive back, which overall helps me a lot mentally.

2. No more thongs or anything that can cause irritation there’s

3. I started using organic coconut oil as a personal lubricant to help maintain a healthy ph .

I’m sure there are some more affordable options but so far this has been helping me tons. Before I wasn’t able to have intercourse at all. Now, some times still bothers me but I can say 50% of the time I can be pain free if relaxed. I’ve also been healing faster and faster. Usually an episode would last several weeks, and now only several days. I hope this can help someone out there! I strongly recommend that after doing an action that sets you off down there (such as sex, tampons, etc) take a look down there!!! It took me AGES. To notice these tiny little cuts that have been causing all my pain and what caused me to fail qtip tests. Since they are in the genital area, they heal rather quickly, which is why none of my gynos ever caught on and everything looked “normal” .
Good luck!!!

Hormon balancer I’ve been taking: Hersolution

Hopefully will have more success on IUD!


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