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» Did going off antidepressants cause this?
Today at 2:08 am by ryn207

» 7 months since the diagnosis
Yesterday at 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

What has been helping ME (much less pain over time!!)

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What has been helping ME (much less pain over time!!)

Post  leoscc on Wed May 16, 2018 3:43 am

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I was diagnosed with vulvodynia due to painful intercourse. No matter what I did the pain was unbearable. I was able to walk, sit, exercise, etc fine. But intercourse or tampon insertions were a no. I tried so many lubricants and whatnot. Nothing worked.

2. My first step: I stopped birth control. I noticed a huge difference as my body retained its natural moisture. However, due to a previous battle with anorexia )recovered for 5yr) no hormone help sent my body through the roof. While I think no BC is the best for vulgar issues, I ended up going back on a low dose pill.

3. I found out I have been having painful intercourses due to micro tears near and on my perenium, which lead to vulvodynia like symptoms (burning, itching, pain, rawness). These tears would itch and become inflamed. Turns out BC has caused a thinning of vagional tissue (like menopause, and also why estrogen creams sometimes help V cases). I plan on switching to an IUD because NO synthetic estrogen is used (less thinning) and is progesterone based and does NOT enter the bloodstream.

What I’ve been doing to help:

1. Whenever I get these tears or pains I use Emuaid cream for a couple days. This is a homeopathic antibacterial safe for those fragile areas in comparison to regular triple antibiotic. I use this to help heal any abrasions. Once healed, I have been applying Vitamin E gel to the oerenium area to help skin elasticity. Due to my issue, I have a bad habit of clenching and anticipating pain which also causes tearing and thin tissue, so this has been helping.

2. I started taking hormone balances and Maca tablets. They have helped me with natural lubricant and also helped bring my sex drive back, which overall helps me a lot mentally.

2. No more thongs or anything that can cause irritation there’s

3. I started using organic coconut oil as a personal lubricant to help maintain a healthy ph .

I’m sure there are some more affordable options but so far this has been helping me tons. Before I wasn’t able to have intercourse at all. Now, some times still bothers me but I can say 50% of the time I can be pain free if relaxed. I’ve also been healing faster and faster. Usually an episode would last several weeks, and now only several days. I hope this can help someone out there! I strongly recommend that after doing an action that sets you off down there (such as sex, tampons, etc) take a look down there!!! It took me AGES. To notice these tiny little cuts that have been causing all my pain and what caused me to fail qtip tests. Since they are in the genital area, they heal rather quickly, which is why none of my gynos ever caught on and everything looked “normal” .
Good luck!!!

Hormon balancer I’ve been taking: Hersolution

Hopefully will have more success on IUD!


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