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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

What has been helping ME (much less pain over time!!)

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What has been helping ME (much less pain over time!!)

Post  leoscc on Wed May 16, 2018 3:43 am

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I was diagnosed with vulvodynia due to painful intercourse. No matter what I did the pain was unbearable. I was able to walk, sit, exercise, etc fine. But intercourse or tampon insertions were a no. I tried so many lubricants and whatnot. Nothing worked.

2. My first step: I stopped birth control. I noticed a huge difference as my body retained its natural moisture. However, due to a previous battle with anorexia )recovered for 5yr) no hormone help sent my body through the roof. While I think no BC is the best for vulgar issues, I ended up going back on a low dose pill.

3. I found out I have been having painful intercourses due to micro tears near and on my perenium, which lead to vulvodynia like symptoms (burning, itching, pain, rawness). These tears would itch and become inflamed. Turns out BC has caused a thinning of vagional tissue (like menopause, and also why estrogen creams sometimes help V cases). I plan on switching to an IUD because NO synthetic estrogen is used (less thinning) and is progesterone based and does NOT enter the bloodstream.

What I’ve been doing to help:

1. Whenever I get these tears or pains I use Emuaid cream for a couple days. This is a homeopathic antibacterial safe for those fragile areas in comparison to regular triple antibiotic. I use this to help heal any abrasions. Once healed, I have been applying Vitamin E gel to the oerenium area to help skin elasticity. Due to my issue, I have a bad habit of clenching and anticipating pain which also causes tearing and thin tissue, so this has been helping.

2. I started taking hormone balances and Maca tablets. They have helped me with natural lubricant and also helped bring my sex drive back, which overall helps me a lot mentally.

2. No more thongs or anything that can cause irritation there’s

3. I started using organic coconut oil as a personal lubricant to help maintain a healthy ph .

I’m sure there are some more affordable options but so far this has been helping me tons. Before I wasn’t able to have intercourse at all. Now, some times still bothers me but I can say 50% of the time I can be pain free if relaxed. I’ve also been healing faster and faster. Usually an episode would last several weeks, and now only several days. I hope this can help someone out there! I strongly recommend that after doing an action that sets you off down there (such as sex, tampons, etc) take a look down there!!! It took me AGES. To notice these tiny little cuts that have been causing all my pain and what caused me to fail qtip tests. Since they are in the genital area, they heal rather quickly, which is why none of my gynos ever caught on and everything looked “normal” .
Good luck!!!

Hormon balancer I’ve been taking: Hersolution

Hopefully will have more success on IUD!


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