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» 7 months since the diagnosis
What has been helping ME (much less pain over time!!) EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
What has been helping ME (much less pain over time!!) EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
What has been helping ME (much less pain over time!!) EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
What has been helping ME (much less pain over time!!) EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
What has been helping ME (much less pain over time!!) EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
What has been helping ME (much less pain over time!!) EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
What has been helping ME (much less pain over time!!) EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
What has been helping ME (much less pain over time!!) EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
What has been helping ME (much less pain over time!!) EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


What has been helping ME (much less pain over time!!)

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What has been helping ME (much less pain over time!!) Empty What has been helping ME (much less pain over time!!)

Post  leoscc on Wed May 16, 2018 3:43 am

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I was diagnosed with vulvodynia due to painful intercourse. No matter what I did the pain was unbearable. I was able to walk, sit, exercise, etc fine. But intercourse or tampon insertions were a no. I tried so many lubricants and whatnot. Nothing worked.

2. My first step: I stopped birth control. I noticed a huge difference as my body retained its natural moisture. However, due to a previous battle with anorexia )recovered for 5yr) no hormone help sent my body through the roof. While I think no BC is the best for vulgar issues, I ended up going back on a low dose pill.

3. I found out I have been having painful intercourses due to micro tears near and on my perenium, which lead to vulvodynia like symptoms (burning, itching, pain, rawness). These tears would itch and become inflamed. Turns out BC has caused a thinning of vagional tissue (like menopause, and also why estrogen creams sometimes help V cases). I plan on switching to an IUD because NO synthetic estrogen is used (less thinning) and is progesterone based and does NOT enter the bloodstream.

What I’ve been doing to help:

1. Whenever I get these tears or pains I use Emuaid cream for a couple days. This is a homeopathic antibacterial safe for those fragile areas in comparison to regular triple antibiotic. I use this to help heal any abrasions. Once healed, I have been applying Vitamin E gel to the oerenium area to help skin elasticity. Due to my issue, I have a bad habit of clenching and anticipating pain which also causes tearing and thin tissue, so this has been helping.

2. I started taking hormone balances and Maca tablets. They have helped me with natural lubricant and also helped bring my sex drive back, which overall helps me a lot mentally.

2. No more thongs or anything that can cause irritation there’s

3. I started using organic coconut oil as a personal lubricant to help maintain a healthy ph .

I’m sure there are some more affordable options but so far this has been helping me tons. Before I wasn’t able to have intercourse at all. Now, some times still bothers me but I can say 50% of the time I can be pain free if relaxed. I’ve also been healing faster and faster. Usually an episode would last several weeks, and now only several days. I hope this can help someone out there! I strongly recommend that after doing an action that sets you off down there (such as sex, tampons, etc) take a look down there!!! It took me AGES. To notice these tiny little cuts that have been causing all my pain and what caused me to fail qtip tests. Since they are in the genital area, they heal rather quickly, which is why none of my gynos ever caught on and everything looked “normal” .
Good luck!!!

Hormon balancer I’ve been taking: Hersolution

Hopefully will have more success on IUD!

leoscc

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Join date : 2017-08-14

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