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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Generalized V and Vulvar Vestibulitis?

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Generalized V and Vulvar Vestibulitis?

Post  seagirl88 on Sun Apr 24, 2011 5:27 pm

Hey all,

Is there anybody (other than myself) who has both generalized vulvodynia AND vulvar vestibulitis? My VV is much more severe than my generalized, but both have been problems for me. The pain associated with both conditions are so different that it seems like they're not related, but I'm sure they are.


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Re: Generalized V and Vulvar Vestibulitis?

Post  Sarah001 on Sun Apr 24, 2011 7:56 pm

I have both, I started with mild VVS which wasn't troubling me a great deal which then flared up into agonising VVS and lots of inflammation and over the next few months that spread into generalised V so it just continued to get worse while I was wasting time waiting for the doctors to help me. I still have both now and find medication is more useful for the generalised V than the VVS, I've yet to find anything that really helps with that pain which is of course now constant.

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Re: Generalized V and Vulvar Vestibulitis?

Post  Zazu on Mon Apr 25, 2011 2:28 pm

I was officially diagnosed with VVS but have other kinds of pain that I assume are part of generalized, which is also how my gyno seems to be treating me. I find the VVS feels like sharp, stabbing, burning pain, and obviously only through direct contact. But when I'm wearing tight pants or sitting too long I get this generalized kind of dull achey/pressure feeling down there and I also get what feels like a rash irritation all over the vulva, and labia kind of randomly - these last two I figure have to be generalized. It all feels completely different, it's so true, although must all involve similar nerve endings.


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Re: Generalized V and Vulvar Vestibulitis?

Post  Joolibee on Mon Apr 25, 2011 5:56 pm

From what I have read, it is not uncommon to have an overlap of symptoms. I was diagnosed with provoked vestibulodynia, even though I told the gyno that I had constant pain / discomfort. I think his diagnosis was based on the fact that I had red marks in the vestibule area, but I think I also have generalised vulvodynia, though the level of pain varies considerably. The other thing is that my provoked pain can sometimes last for weeks. Wearing trousers, sitting down and standing up can all trigger pain (lying down is usually OK :-) . I don't know whether you have come across any of Andrew Goldstein's work. He and others wrote a book called "When Sex Hurts", in which they discuss various types and causes of vulval pain. Having read this, I suspect that my diagnosis might not have been all that accurate, though how much difference it makes to my treatment, I am not quite sure. It seems that most people have a struggle to find out what works best for them. Good luck. Smile


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I have both

Post  Aussie on Wed May 25, 2011 2:47 am

It started with vvs and then over a very short period (I'm talking 2 weeks) progressed to constant pain. Physio seems to have helpt the vvs but not generalised pain. I have minimal or no pain with sex and tampons now, jeans and sitting however are a different story! work that one out! most find physio helps for generalised pain but penetration is still horrible. I guess I am just a bit backwards?!


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Re: Generalized V and Vulvar Vestibulitis?

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