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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

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New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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Generalized V and Vulvar Vestibulitis?

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Generalized V and Vulvar Vestibulitis?

Post  seagirl88 on Sun Apr 24, 2011 5:27 pm

Hey all,

Is there anybody (other than myself) who has both generalized vulvodynia AND vulvar vestibulitis? My VV is much more severe than my generalized, but both have been problems for me. The pain associated with both conditions are so different that it seems like they're not related, but I'm sure they are.


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Re: Generalized V and Vulvar Vestibulitis?

Post  Sarah001 on Sun Apr 24, 2011 7:56 pm

I have both, I started with mild VVS which wasn't troubling me a great deal which then flared up into agonising VVS and lots of inflammation and over the next few months that spread into generalised V so it just continued to get worse while I was wasting time waiting for the doctors to help me. I still have both now and find medication is more useful for the generalised V than the VVS, I've yet to find anything that really helps with that pain which is of course now constant.

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Re: Generalized V and Vulvar Vestibulitis?

Post  Zazu on Mon Apr 25, 2011 2:28 pm

I was officially diagnosed with VVS but have other kinds of pain that I assume are part of generalized, which is also how my gyno seems to be treating me. I find the VVS feels like sharp, stabbing, burning pain, and obviously only through direct contact. But when I'm wearing tight pants or sitting too long I get this generalized kind of dull achey/pressure feeling down there and I also get what feels like a rash irritation all over the vulva, and labia kind of randomly - these last two I figure have to be generalized. It all feels completely different, it's so true, although must all involve similar nerve endings.


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Re: Generalized V and Vulvar Vestibulitis?

Post  Joolibee on Mon Apr 25, 2011 5:56 pm

From what I have read, it is not uncommon to have an overlap of symptoms. I was diagnosed with provoked vestibulodynia, even though I told the gyno that I had constant pain / discomfort. I think his diagnosis was based on the fact that I had red marks in the vestibule area, but I think I also have generalised vulvodynia, though the level of pain varies considerably. The other thing is that my provoked pain can sometimes last for weeks. Wearing trousers, sitting down and standing up can all trigger pain (lying down is usually OK :-) . I don't know whether you have come across any of Andrew Goldstein's work. He and others wrote a book called "When Sex Hurts", in which they discuss various types and causes of vulval pain. Having read this, I suspect that my diagnosis might not have been all that accurate, though how much difference it makes to my treatment, I am not quite sure. It seems that most people have a struggle to find out what works best for them. Good luck. Smile


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I have both

Post  Aussie on Wed May 25, 2011 2:47 am

It started with vvs and then over a very short period (I'm talking 2 weeks) progressed to constant pain. Physio seems to have helpt the vvs but not generalised pain. I have minimal or no pain with sex and tampons now, jeans and sitting however are a different story! work that one out! most find physio helps for generalised pain but penetration is still horrible. I guess I am just a bit backwards?!


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Re: Generalized V and Vulvar Vestibulitis?

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