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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Generalized V and Vulvar Vestibulitis?

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Generalized V and Vulvar Vestibulitis?

Post  seagirl88 on Sun Apr 24, 2011 5:27 pm

Hey all,

Is there anybody (other than myself) who has both generalized vulvodynia AND vulvar vestibulitis? My VV is much more severe than my generalized, but both have been problems for me. The pain associated with both conditions are so different that it seems like they're not related, but I'm sure they are.


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Re: Generalized V and Vulvar Vestibulitis?

Post  Sarah001 on Sun Apr 24, 2011 7:56 pm

I have both, I started with mild VVS which wasn't troubling me a great deal which then flared up into agonising VVS and lots of inflammation and over the next few months that spread into generalised V so it just continued to get worse while I was wasting time waiting for the doctors to help me. I still have both now and find medication is more useful for the generalised V than the VVS, I've yet to find anything that really helps with that pain which is of course now constant.

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Re: Generalized V and Vulvar Vestibulitis?

Post  Zazu on Mon Apr 25, 2011 2:28 pm

I was officially diagnosed with VVS but have other kinds of pain that I assume are part of generalized, which is also how my gyno seems to be treating me. I find the VVS feels like sharp, stabbing, burning pain, and obviously only through direct contact. But when I'm wearing tight pants or sitting too long I get this generalized kind of dull achey/pressure feeling down there and I also get what feels like a rash irritation all over the vulva, and labia kind of randomly - these last two I figure have to be generalized. It all feels completely different, it's so true, although must all involve similar nerve endings.


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Re: Generalized V and Vulvar Vestibulitis?

Post  Joolibee on Mon Apr 25, 2011 5:56 pm

From what I have read, it is not uncommon to have an overlap of symptoms. I was diagnosed with provoked vestibulodynia, even though I told the gyno that I had constant pain / discomfort. I think his diagnosis was based on the fact that I had red marks in the vestibule area, but I think I also have generalised vulvodynia, though the level of pain varies considerably. The other thing is that my provoked pain can sometimes last for weeks. Wearing trousers, sitting down and standing up can all trigger pain (lying down is usually OK :-) . I don't know whether you have come across any of Andrew Goldstein's work. He and others wrote a book called "When Sex Hurts", in which they discuss various types and causes of vulval pain. Having read this, I suspect that my diagnosis might not have been all that accurate, though how much difference it makes to my treatment, I am not quite sure. It seems that most people have a struggle to find out what works best for them. Good luck. Smile


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I have both

Post  Aussie on Wed May 25, 2011 2:47 am

It started with vvs and then over a very short period (I'm talking 2 weeks) progressed to constant pain. Physio seems to have helpt the vvs but not generalised pain. I have minimal or no pain with sex and tampons now, jeans and sitting however are a different story! work that one out! most find physio helps for generalised pain but penetration is still horrible. I guess I am just a bit backwards?!


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Re: Generalized V and Vulvar Vestibulitis?

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