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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Generalized V and Vulvar Vestibulitis?

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Generalized V and Vulvar Vestibulitis?

Post  seagirl88 on Sun Apr 24, 2011 5:27 pm

Hey all,

Is there anybody (other than myself) who has both generalized vulvodynia AND vulvar vestibulitis? My VV is much more severe than my generalized, but both have been problems for me. The pain associated with both conditions are so different that it seems like they're not related, but I'm sure they are.


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Re: Generalized V and Vulvar Vestibulitis?

Post  Sarah001 on Sun Apr 24, 2011 7:56 pm

I have both, I started with mild VVS which wasn't troubling me a great deal which then flared up into agonising VVS and lots of inflammation and over the next few months that spread into generalised V so it just continued to get worse while I was wasting time waiting for the doctors to help me. I still have both now and find medication is more useful for the generalised V than the VVS, I've yet to find anything that really helps with that pain which is of course now constant.

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Re: Generalized V and Vulvar Vestibulitis?

Post  Zazu on Mon Apr 25, 2011 2:28 pm

I was officially diagnosed with VVS but have other kinds of pain that I assume are part of generalized, which is also how my gyno seems to be treating me. I find the VVS feels like sharp, stabbing, burning pain, and obviously only through direct contact. But when I'm wearing tight pants or sitting too long I get this generalized kind of dull achey/pressure feeling down there and I also get what feels like a rash irritation all over the vulva, and labia kind of randomly - these last two I figure have to be generalized. It all feels completely different, it's so true, although must all involve similar nerve endings.


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Re: Generalized V and Vulvar Vestibulitis?

Post  Joolibee on Mon Apr 25, 2011 5:56 pm

From what I have read, it is not uncommon to have an overlap of symptoms. I was diagnosed with provoked vestibulodynia, even though I told the gyno that I had constant pain / discomfort. I think his diagnosis was based on the fact that I had red marks in the vestibule area, but I think I also have generalised vulvodynia, though the level of pain varies considerably. The other thing is that my provoked pain can sometimes last for weeks. Wearing trousers, sitting down and standing up can all trigger pain (lying down is usually OK :-) . I don't know whether you have come across any of Andrew Goldstein's work. He and others wrote a book called "When Sex Hurts", in which they discuss various types and causes of vulval pain. Having read this, I suspect that my diagnosis might not have been all that accurate, though how much difference it makes to my treatment, I am not quite sure. It seems that most people have a struggle to find out what works best for them. Good luck. Smile


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I have both

Post  Aussie on Wed May 25, 2011 2:47 am

It started with vvs and then over a very short period (I'm talking 2 weeks) progressed to constant pain. Physio seems to have helpt the vvs but not generalised pain. I have minimal or no pain with sex and tampons now, jeans and sitting however are a different story! work that one out! most find physio helps for generalised pain but penetration is still horrible. I guess I am just a bit backwards?!


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Re: Generalized V and Vulvar Vestibulitis?

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