Newly diagnosed and i dont understand anything help

Hi Everyone

i dont even know where to start!!

i have been suffering for a long time with very deep and excruitating pain down there and had been refered to the hospital for it to cut a long story short they first said that i had endometriosis, then i didnt then they said i had pelvic inflamatory desase i didnt and then they found large cysts on my ovaries and said that this was normal i was still having a lot of pain so they decided to give me a smear as i was coming up to my first anyway. this came back abnormal and i had severe dsyakariosis. i had an op to remove this however i was still in pain so i went to the GUM clinic and they diagnosed me with this condition.

they gave me a brief outline and told me that i would need to see a specialist but havent had the appointment yet. im just so confused about everything. i was told not to use soap when washing which i have stopped doing however i find that im starting to smell and i am already paranoid about it all i just want to cry.

if anyone can give me any infomation i would be really grateful thanks for reading

Hi and welcome. Have a good look around and read everything you can possibly find to educate yourself, with the lack of help and knowledge from doctors we need to make sure we know as much as possible. There's loads of advice on here and if you want to know anything that's not coveed just ask, we're all here to help each other.

Hi Natalie,

I know this condition can be overwhelming at first but we are the experts. As Sarah said read everything you can on here. It can seem a lot of information but it is all worth reading. It seems for different women there are different things coming into play: nerves, muscles, tissues, skin, infection, and irritation or for most....a combination of all of these. It also seems a lot of problems such as endo, cysts, yeast, uti's, tmj, fibro (to name a few) coexist with this condition so you are not alone there.

Vulvodynia just means vulva pain. Don't get hung up on the diagnosis. It’s what the docs call is when they have run out of ideas. The key is to finding what causes pain and treating each individual component.

A women’s health physio in my opinion is the best place to start. All the 'specialists' I have seen just want to shove pills down my throat claiming this is nerve damage. There well may be, but I bet you your muscles down there aren't to happy either. This can cause pain to continue.

As for soap Aveeno fragrance free wash is perfect. Cleans well and does not irritate what so ever.

Any questions just ask, we all help each other.