Log in

I forgot my password

Latest topics
» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


I'm new and have no idea if what i'm feeling is normal? help!

View previous topic View next topic Go down

I'm new and have no idea if what i'm feeling is normal? help!

Post  Helpwithpain on Wed Aug 24, 2011 4:47 pm

I have been with my fiance (getting married next month!) for over 3.5 years - we used to have an amazing sex life and then all of a sudden 2 years ago sex went from fun to almost excruciating. I didn't know if something was wrong or if I just was being wierd...

I went to my gyno and since I had no idea what was going on or really honestly how to describe it I agreed with him that it was pelvic pain. He found endometrisosis and we did lap surgery and I thought all would be good in the world again. 1.5 years later things are definitely not better and in fact are getting worse... lately i've even noticed pain putting in a tampon (which I've been doing fine for 20+years)

I just went to a new gyno this morning and she mentioned VV and I scheduled an appointment with a specialist... I honestly had never even heard of it before this morning. I really just want to get back to enjoying my fiance and sex - he's so understanding but I feel terrible because it's now at a point where I somewhat fear sex... is this normal? Does it ever go away?

Helpwithpain

Posts : 3
Join date : 2011-08-24

View user profile

Back to top Go down

Re: I'm new and have no idea if what i'm feeling is normal? help!

Post  Sarah001 on Thu Aug 25, 2011 11:58 am

Hi and welcome. It does sound like VV and if you haven't already stumbled across it there's a great site called www.vulvarvestibulitisrelief.com where lots of ladies have posted their case studies and treatments tried. Anyway have a good read of the threads here and feel free to chat to us about anything.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

hi

Post  Melissa777 on Thu Aug 25, 2011 5:48 pm

please be careful with some of the info on that site. such as BORIC ACID
it states on that site that if you have cylcic VV than to use boric acid suppositories 2 times a day for up to four months
NO NO NO
thats what caused my VV

it completely gave me dermatitis.

so just be careful following peoples advice

Melissa777

Posts : 55
Join date : 2011-07-10

View user profile

Back to top Go down

Re: I'm new and have no idea if what i'm feeling is normal? help!

Post  Zazu on Fri Aug 26, 2011 12:32 pm

Hi hon
I also have vulvar vestibulitis, endometriosis and am getting symptoms of generalized vulvodynia now. My fiance and I also had great sex at the beginning and haven't been able to for the last year. If it hurts you (aka burning, searing pain every time you try penetration), of COURSE you're afraid of it!
Please don't continue trying if it hurts. This seems to be the day where I post all my sex advice on every thread, but I'm going to put it again here. I just hope that all these hard-learned lessons might help someone else, although I expect you probably already know most of it!
We saw a really great sex therapist/couples' counsellor together and here are some thoughts about it all that I learned. First, it's important to stop trying to have intercourse if it's painful - especially for a set period of time. Take it off the table for, let's say a couple of weeks or a month. Otherwise, you'll begin to associate intimacy with pain, crying and loss and this can have more than just a psychological impact - many women with vulvodynia end up with vaginismus if they repeatedly have painful sex. Your muscles seize up in anticipation of the pain - it only makes sense. Second, try to make specific time for intimacy. We have this myth in our society that if it's not spontaneous it's not genuine - but when you have chronic pain, it's the loving thing to do. Finally, when you are intimate, explore 'outercourse' (foreplay). Most men are perfectly happy with what hands and lips can do. More importantly, it's not really lovemaking if it's causing one person extreme pain, is it? Then, you can gradually reintroduce intercourse if you're able to - but only at those times when you're really aroused, not having a flare up and know it won't hurt. Finally, counseling is really helpful!!
A pelvic floor physiotherapist will help you the most with sex. You can also try the usual medical treatments: Lidocaine, then gabapentin or amitriptyline compound creams, and then taking gaba or ami in tablet form to find pain relief.
Best to you!
Katie

Zazu

Posts : 64
Join date : 2011-04-05
Location : Canada

View user profile

Back to top Go down

Re: I'm new and have no idea if what i'm feeling is normal? help!

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum