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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


I'm new and have no idea if what i'm feeling is normal? help!

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I'm new and have no idea if what i'm feeling is normal? help!

Post  Helpwithpain on Wed Aug 24, 2011 4:47 pm

I have been with my fiance (getting married next month!) for over 3.5 years - we used to have an amazing sex life and then all of a sudden 2 years ago sex went from fun to almost excruciating. I didn't know if something was wrong or if I just was being wierd...

I went to my gyno and since I had no idea what was going on or really honestly how to describe it I agreed with him that it was pelvic pain. He found endometrisosis and we did lap surgery and I thought all would be good in the world again. 1.5 years later things are definitely not better and in fact are getting worse... lately i've even noticed pain putting in a tampon (which I've been doing fine for 20+years)

I just went to a new gyno this morning and she mentioned VV and I scheduled an appointment with a specialist... I honestly had never even heard of it before this morning. I really just want to get back to enjoying my fiance and sex - he's so understanding but I feel terrible because it's now at a point where I somewhat fear sex... is this normal? Does it ever go away?

Helpwithpain

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Re: I'm new and have no idea if what i'm feeling is normal? help!

Post  Sarah001 on Thu Aug 25, 2011 11:58 am

Hi and welcome. It does sound like VV and if you haven't already stumbled across it there's a great site called www.vulvarvestibulitisrelief.com where lots of ladies have posted their case studies and treatments tried. Anyway have a good read of the threads here and feel free to chat to us about anything.
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hi

Post  Melissa777 on Thu Aug 25, 2011 5:48 pm

please be careful with some of the info on that site. such as BORIC ACID
it states on that site that if you have cylcic VV than to use boric acid suppositories 2 times a day for up to four months
NO NO NO
thats what caused my VV

it completely gave me dermatitis.

so just be careful following peoples advice

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Re: I'm new and have no idea if what i'm feeling is normal? help!

Post  Zazu on Fri Aug 26, 2011 12:32 pm

Hi hon
I also have vulvar vestibulitis, endometriosis and am getting symptoms of generalized vulvodynia now. My fiance and I also had great sex at the beginning and haven't been able to for the last year. If it hurts you (aka burning, searing pain every time you try penetration), of COURSE you're afraid of it!
Please don't continue trying if it hurts. This seems to be the day where I post all my sex advice on every thread, but I'm going to put it again here. I just hope that all these hard-learned lessons might help someone else, although I expect you probably already know most of it!
We saw a really great sex therapist/couples' counsellor together and here are some thoughts about it all that I learned. First, it's important to stop trying to have intercourse if it's painful - especially for a set period of time. Take it off the table for, let's say a couple of weeks or a month. Otherwise, you'll begin to associate intimacy with pain, crying and loss and this can have more than just a psychological impact - many women with vulvodynia end up with vaginismus if they repeatedly have painful sex. Your muscles seize up in anticipation of the pain - it only makes sense. Second, try to make specific time for intimacy. We have this myth in our society that if it's not spontaneous it's not genuine - but when you have chronic pain, it's the loving thing to do. Finally, when you are intimate, explore 'outercourse' (foreplay). Most men are perfectly happy with what hands and lips can do. More importantly, it's not really lovemaking if it's causing one person extreme pain, is it? Then, you can gradually reintroduce intercourse if you're able to - but only at those times when you're really aroused, not having a flare up and know it won't hurt. Finally, counseling is really helpful!!
A pelvic floor physiotherapist will help you the most with sex. You can also try the usual medical treatments: Lidocaine, then gabapentin or amitriptyline compound creams, and then taking gaba or ami in tablet form to find pain relief.
Best to you!
Katie

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Re: I'm new and have no idea if what i'm feeling is normal? help!

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