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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


I'm new and have no idea if what i'm feeling is normal? help!

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I'm new and have no idea if what i'm feeling is normal? help!

Post  Helpwithpain on Wed Aug 24, 2011 4:47 pm

I have been with my fiance (getting married next month!) for over 3.5 years - we used to have an amazing sex life and then all of a sudden 2 years ago sex went from fun to almost excruciating. I didn't know if something was wrong or if I just was being wierd...

I went to my gyno and since I had no idea what was going on or really honestly how to describe it I agreed with him that it was pelvic pain. He found endometrisosis and we did lap surgery and I thought all would be good in the world again. 1.5 years later things are definitely not better and in fact are getting worse... lately i've even noticed pain putting in a tampon (which I've been doing fine for 20+years)

I just went to a new gyno this morning and she mentioned VV and I scheduled an appointment with a specialist... I honestly had never even heard of it before this morning. I really just want to get back to enjoying my fiance and sex - he's so understanding but I feel terrible because it's now at a point where I somewhat fear sex... is this normal? Does it ever go away?

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Re: I'm new and have no idea if what i'm feeling is normal? help!

Post  Sarah001 on Thu Aug 25, 2011 11:58 am

Hi and welcome. It does sound like VV and if you haven't already stumbled across it there's a great site called www.vulvarvestibulitisrelief.com where lots of ladies have posted their case studies and treatments tried. Anyway have a good read of the threads here and feel free to chat to us about anything.
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hi

Post  Melissa777 on Thu Aug 25, 2011 5:48 pm

please be careful with some of the info on that site. such as BORIC ACID
it states on that site that if you have cylcic VV than to use boric acid suppositories 2 times a day for up to four months
NO NO NO
thats what caused my VV

it completely gave me dermatitis.

so just be careful following peoples advice

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Re: I'm new and have no idea if what i'm feeling is normal? help!

Post  Zazu on Fri Aug 26, 2011 12:32 pm

Hi hon
I also have vulvar vestibulitis, endometriosis and am getting symptoms of generalized vulvodynia now. My fiance and I also had great sex at the beginning and haven't been able to for the last year. If it hurts you (aka burning, searing pain every time you try penetration), of COURSE you're afraid of it!
Please don't continue trying if it hurts. This seems to be the day where I post all my sex advice on every thread, but I'm going to put it again here. I just hope that all these hard-learned lessons might help someone else, although I expect you probably already know most of it!
We saw a really great sex therapist/couples' counsellor together and here are some thoughts about it all that I learned. First, it's important to stop trying to have intercourse if it's painful - especially for a set period of time. Take it off the table for, let's say a couple of weeks or a month. Otherwise, you'll begin to associate intimacy with pain, crying and loss and this can have more than just a psychological impact - many women with vulvodynia end up with vaginismus if they repeatedly have painful sex. Your muscles seize up in anticipation of the pain - it only makes sense. Second, try to make specific time for intimacy. We have this myth in our society that if it's not spontaneous it's not genuine - but when you have chronic pain, it's the loving thing to do. Finally, when you are intimate, explore 'outercourse' (foreplay). Most men are perfectly happy with what hands and lips can do. More importantly, it's not really lovemaking if it's causing one person extreme pain, is it? Then, you can gradually reintroduce intercourse if you're able to - but only at those times when you're really aroused, not having a flare up and know it won't hurt. Finally, counseling is really helpful!!
A pelvic floor physiotherapist will help you the most with sex. You can also try the usual medical treatments: Lidocaine, then gabapentin or amitriptyline compound creams, and then taking gaba or ami in tablet form to find pain relief.
Best to you!
Katie

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Re: I'm new and have no idea if what i'm feeling is normal? help!

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