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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


I'm new and have no idea if what i'm feeling is normal? help!

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I'm new and have no idea if what i'm feeling is normal? help!

Post  Helpwithpain on Wed Aug 24, 2011 4:47 pm

I have been with my fiance (getting married next month!) for over 3.5 years - we used to have an amazing sex life and then all of a sudden 2 years ago sex went from fun to almost excruciating. I didn't know if something was wrong or if I just was being wierd...

I went to my gyno and since I had no idea what was going on or really honestly how to describe it I agreed with him that it was pelvic pain. He found endometrisosis and we did lap surgery and I thought all would be good in the world again. 1.5 years later things are definitely not better and in fact are getting worse... lately i've even noticed pain putting in a tampon (which I've been doing fine for 20+years)

I just went to a new gyno this morning and she mentioned VV and I scheduled an appointment with a specialist... I honestly had never even heard of it before this morning. I really just want to get back to enjoying my fiance and sex - he's so understanding but I feel terrible because it's now at a point where I somewhat fear sex... is this normal? Does it ever go away?

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Re: I'm new and have no idea if what i'm feeling is normal? help!

Post  Sarah001 on Thu Aug 25, 2011 11:58 am

Hi and welcome. It does sound like VV and if you haven't already stumbled across it there's a great site called www.vulvarvestibulitisrelief.com where lots of ladies have posted their case studies and treatments tried. Anyway have a good read of the threads here and feel free to chat to us about anything.
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hi

Post  Melissa777 on Thu Aug 25, 2011 5:48 pm

please be careful with some of the info on that site. such as BORIC ACID
it states on that site that if you have cylcic VV than to use boric acid suppositories 2 times a day for up to four months
NO NO NO
thats what caused my VV

it completely gave me dermatitis.

so just be careful following peoples advice

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Re: I'm new and have no idea if what i'm feeling is normal? help!

Post  Zazu on Fri Aug 26, 2011 12:32 pm

Hi hon
I also have vulvar vestibulitis, endometriosis and am getting symptoms of generalized vulvodynia now. My fiance and I also had great sex at the beginning and haven't been able to for the last year. If it hurts you (aka burning, searing pain every time you try penetration), of COURSE you're afraid of it!
Please don't continue trying if it hurts. This seems to be the day where I post all my sex advice on every thread, but I'm going to put it again here. I just hope that all these hard-learned lessons might help someone else, although I expect you probably already know most of it!
We saw a really great sex therapist/couples' counsellor together and here are some thoughts about it all that I learned. First, it's important to stop trying to have intercourse if it's painful - especially for a set period of time. Take it off the table for, let's say a couple of weeks or a month. Otherwise, you'll begin to associate intimacy with pain, crying and loss and this can have more than just a psychological impact - many women with vulvodynia end up with vaginismus if they repeatedly have painful sex. Your muscles seize up in anticipation of the pain - it only makes sense. Second, try to make specific time for intimacy. We have this myth in our society that if it's not spontaneous it's not genuine - but when you have chronic pain, it's the loving thing to do. Finally, when you are intimate, explore 'outercourse' (foreplay). Most men are perfectly happy with what hands and lips can do. More importantly, it's not really lovemaking if it's causing one person extreme pain, is it? Then, you can gradually reintroduce intercourse if you're able to - but only at those times when you're really aroused, not having a flare up and know it won't hurt. Finally, counseling is really helpful!!
A pelvic floor physiotherapist will help you the most with sex. You can also try the usual medical treatments: Lidocaine, then gabapentin or amitriptyline compound creams, and then taking gaba or ami in tablet form to find pain relief.
Best to you!
Katie

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Re: I'm new and have no idea if what i'm feeling is normal? help!

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