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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

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» Recently Diagnosed.... Help!
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» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Can anyone relate?

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Can anyone relate?

Post  Wanderluster26 on Fri Nov 11, 2011 5:53 am


As I watched all my girlfriends delight having intercourse, the joys of orgasm and craving the experience again I have always thought, "what is wrong with me". I would date guys I found attractive, be in the moment, and then... it would hurt. And I'll I could think about was how bad I wanted it to stop...

Of course I never said that, how could i? Here is this person I care about and who is treating me kind/gentle and tender and all I am thinking in the moment, a moment when he is trying to make me feel special, (hand/tongue/penis etc, it never matters) I am silently thinking to myself, "just grin and bear it" and physically can't find the words.

I describe it now to new people I meet like needing a root canal. You can be eating the best food in the world, it tastes good- you crave it- it satisfys you and you might be very in the moment and enjoying that meal, but then... suddenly your tooth reminds you that you need a root canal and all you can think about is the pain. :/

Its a hard conversation, but one I finally force myself to have when I meet someone I am seriously interested in.

Otherwise I avoid intimate encounters. It is a painful/awkward experience, every time. I find I am losing interest in persuing relationships, what is the point? Soon enough they will realize that what is an amazing experience for them is painful and hard for me and it will strain the relationship and both will walk away bruised and hurt.

Am I the only one who feels this way? What do i do?


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Re: Can anyone relate?

Post  Violet on Sat Nov 12, 2011 5:15 am

I can definitely relate. It sounds to me like sex is uncomplicated for my friends. I try to tell myself that everyone faces various issues with sex, at various times in their life. My therapist have emphasised this too. But it is difficult to be in a conversation with them and know that I am hiding something. It's not that it's not good, it's that the pain is there and I am still dealing with it / attempting to improve it / working out ways to make sure my sex life doesn't suffer.

Congratualations on telling people. I have a long term partner and have not been able to bring myself to tell anyone else, including my friends. Would love to hear from more people that have.

Unfortunately I do not have much advice in regard to new partners as I do not face that challenge. I wish you well and hope you find ways to keep enjoying yourself.

Violet

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Re: Can anyone relate?

Post  SimplyBelle on Mon Dec 05, 2011 6:51 am

I can relate too. I hate this stage of my life where all of my girlfriends are exploring and experimenting with sexual stuff, and the joys they experience. And its all giggles and champagne, and I just can't relate to them, and feel estranged and awkward.
Ugh.
Sometimes I tell, but I hate the pitty.

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Re: Can anyone relate?

Post  Sarah001 on Mon Dec 05, 2011 12:03 pm

I think we can all relate unfortunately.
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Re: Can anyone relate?

Post  SimplyBelle on Wed Dec 07, 2011 8:29 am

I was just thinking that.... Sometimes, if you bring it up, someone else will relate to you.
I know I was at a sorority meeting a while back and the girls were nagging on me about not joining in on the converstation, and I mentioned my issue of very painful sex, and later that night, I had two other girls come up to me and want to talk about it because they too found sex uncomfortable. And while, it wasn't painful painful like it is for me - it was relatable and brought forward the concerning issue.... we just want to talk about what we think people want us to feel and think sometimes.

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Re: Can anyone relate?

Post  Mette on Thu Dec 08, 2011 5:49 pm

I think about that sometimes, when I'm in a group of girls... There might be someone here who has vulvodynia and who needs someone to talk to about it just as much as I do... But non of us will ever know because it's not something you talk about...

I've told a couple of my closest friends... to both of them I said that I have damage nerveendings and that it hurts when I have sex. That's the best way to describe it. It helps to have it said because it is a big thing in my life and it takes up a lot of my thoughts... It feels a little weird if they don't know, I think.
With my best friend I think I had a gyno-exam the next day and I told her I was worried about it because it is usually hell on earth. It wasn't as big a deal as I thought it would be... and know I can tell her if there's something going on with that, just like I tell her everything else that is going on...


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Re: Can anyone relate?

Post  Sarah001 on Thu Dec 08, 2011 8:37 pm

I agree with the last post, I too have two close friends who know about my V but the others don't. One actually had it for a while when she had pelvic instability issues and it went away once her pelvis stabilised but she didn't realise she had it at the time and thought she had a very persistent bout of thrush but after I told her about my problems she realised she'd had it for a few months herself. Quite encouraging really as hers went away!
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Re: Can anyone relate?

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