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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Can anyone relate?

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Can anyone relate?

Post  Wanderluster26 on Fri Nov 11, 2011 5:53 am


As I watched all my girlfriends delight having intercourse, the joys of orgasm and craving the experience again I have always thought, "what is wrong with me". I would date guys I found attractive, be in the moment, and then... it would hurt. And I'll I could think about was how bad I wanted it to stop...

Of course I never said that, how could i? Here is this person I care about and who is treating me kind/gentle and tender and all I am thinking in the moment, a moment when he is trying to make me feel special, (hand/tongue/penis etc, it never matters) I am silently thinking to myself, "just grin and bear it" and physically can't find the words.

I describe it now to new people I meet like needing a root canal. You can be eating the best food in the world, it tastes good- you crave it- it satisfys you and you might be very in the moment and enjoying that meal, but then... suddenly your tooth reminds you that you need a root canal and all you can think about is the pain. :/

Its a hard conversation, but one I finally force myself to have when I meet someone I am seriously interested in.

Otherwise I avoid intimate encounters. It is a painful/awkward experience, every time. I find I am losing interest in persuing relationships, what is the point? Soon enough they will realize that what is an amazing experience for them is painful and hard for me and it will strain the relationship and both will walk away bruised and hurt.

Am I the only one who feels this way? What do i do?


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Re: Can anyone relate?

Post  Violet on Sat Nov 12, 2011 5:15 am

I can definitely relate. It sounds to me like sex is uncomplicated for my friends. I try to tell myself that everyone faces various issues with sex, at various times in their life. My therapist have emphasised this too. But it is difficult to be in a conversation with them and know that I am hiding something. It's not that it's not good, it's that the pain is there and I am still dealing with it / attempting to improve it / working out ways to make sure my sex life doesn't suffer.

Congratualations on telling people. I have a long term partner and have not been able to bring myself to tell anyone else, including my friends. Would love to hear from more people that have.

Unfortunately I do not have much advice in regard to new partners as I do not face that challenge. I wish you well and hope you find ways to keep enjoying yourself.

Violet

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Re: Can anyone relate?

Post  SimplyBelle on Mon Dec 05, 2011 6:51 am

I can relate too. I hate this stage of my life where all of my girlfriends are exploring and experimenting with sexual stuff, and the joys they experience. And its all giggles and champagne, and I just can't relate to them, and feel estranged and awkward.
Ugh.
Sometimes I tell, but I hate the pitty.

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Re: Can anyone relate?

Post  Sarah001 on Mon Dec 05, 2011 12:03 pm

I think we can all relate unfortunately.
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Re: Can anyone relate?

Post  SimplyBelle on Wed Dec 07, 2011 8:29 am

I was just thinking that.... Sometimes, if you bring it up, someone else will relate to you.
I know I was at a sorority meeting a while back and the girls were nagging on me about not joining in on the converstation, and I mentioned my issue of very painful sex, and later that night, I had two other girls come up to me and want to talk about it because they too found sex uncomfortable. And while, it wasn't painful painful like it is for me - it was relatable and brought forward the concerning issue.... we just want to talk about what we think people want us to feel and think sometimes.

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Re: Can anyone relate?

Post  Mette on Thu Dec 08, 2011 5:49 pm

I think about that sometimes, when I'm in a group of girls... There might be someone here who has vulvodynia and who needs someone to talk to about it just as much as I do... But non of us will ever know because it's not something you talk about...

I've told a couple of my closest friends... to both of them I said that I have damage nerveendings and that it hurts when I have sex. That's the best way to describe it. It helps to have it said because it is a big thing in my life and it takes up a lot of my thoughts... It feels a little weird if they don't know, I think.
With my best friend I think I had a gyno-exam the next day and I told her I was worried about it because it is usually hell on earth. It wasn't as big a deal as I thought it would be... and know I can tell her if there's something going on with that, just like I tell her everything else that is going on...


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Re: Can anyone relate?

Post  Sarah001 on Thu Dec 08, 2011 8:37 pm

I agree with the last post, I too have two close friends who know about my V but the others don't. One actually had it for a while when she had pelvic instability issues and it went away once her pelvis stabilised but she didn't realise she had it at the time and thought she had a very persistent bout of thrush but after I told her about my problems she realised she'd had it for a few months herself. Quite encouraging really as hers went away!
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Re: Can anyone relate?

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