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» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
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» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

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» Hello. In Need of Advice, Please and Thank You. Long Read.
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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Can anyone relate?

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Can anyone relate?

Post  Wanderluster26 on Fri Nov 11, 2011 5:53 am


As I watched all my girlfriends delight having intercourse, the joys of orgasm and craving the experience again I have always thought, "what is wrong with me". I would date guys I found attractive, be in the moment, and then... it would hurt. And I'll I could think about was how bad I wanted it to stop...

Of course I never said that, how could i? Here is this person I care about and who is treating me kind/gentle and tender and all I am thinking in the moment, a moment when he is trying to make me feel special, (hand/tongue/penis etc, it never matters) I am silently thinking to myself, "just grin and bear it" and physically can't find the words.

I describe it now to new people I meet like needing a root canal. You can be eating the best food in the world, it tastes good- you crave it- it satisfys you and you might be very in the moment and enjoying that meal, but then... suddenly your tooth reminds you that you need a root canal and all you can think about is the pain. :/

Its a hard conversation, but one I finally force myself to have when I meet someone I am seriously interested in.

Otherwise I avoid intimate encounters. It is a painful/awkward experience, every time. I find I am losing interest in persuing relationships, what is the point? Soon enough they will realize that what is an amazing experience for them is painful and hard for me and it will strain the relationship and both will walk away bruised and hurt.

Am I the only one who feels this way? What do i do?


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Re: Can anyone relate?

Post  Violet on Sat Nov 12, 2011 5:15 am

I can definitely relate. It sounds to me like sex is uncomplicated for my friends. I try to tell myself that everyone faces various issues with sex, at various times in their life. My therapist have emphasised this too. But it is difficult to be in a conversation with them and know that I am hiding something. It's not that it's not good, it's that the pain is there and I am still dealing with it / attempting to improve it / working out ways to make sure my sex life doesn't suffer.

Congratualations on telling people. I have a long term partner and have not been able to bring myself to tell anyone else, including my friends. Would love to hear from more people that have.

Unfortunately I do not have much advice in regard to new partners as I do not face that challenge. I wish you well and hope you find ways to keep enjoying yourself.

Violet

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Re: Can anyone relate?

Post  SimplyBelle on Mon Dec 05, 2011 6:51 am

I can relate too. I hate this stage of my life where all of my girlfriends are exploring and experimenting with sexual stuff, and the joys they experience. And its all giggles and champagne, and I just can't relate to them, and feel estranged and awkward.
Ugh.
Sometimes I tell, but I hate the pitty.

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Re: Can anyone relate?

Post  Sarah001 on Mon Dec 05, 2011 12:03 pm

I think we can all relate unfortunately.
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Re: Can anyone relate?

Post  SimplyBelle on Wed Dec 07, 2011 8:29 am

I was just thinking that.... Sometimes, if you bring it up, someone else will relate to you.
I know I was at a sorority meeting a while back and the girls were nagging on me about not joining in on the converstation, and I mentioned my issue of very painful sex, and later that night, I had two other girls come up to me and want to talk about it because they too found sex uncomfortable. And while, it wasn't painful painful like it is for me - it was relatable and brought forward the concerning issue.... we just want to talk about what we think people want us to feel and think sometimes.

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Re: Can anyone relate?

Post  Mette on Thu Dec 08, 2011 5:49 pm

I think about that sometimes, when I'm in a group of girls... There might be someone here who has vulvodynia and who needs someone to talk to about it just as much as I do... But non of us will ever know because it's not something you talk about...

I've told a couple of my closest friends... to both of them I said that I have damage nerveendings and that it hurts when I have sex. That's the best way to describe it. It helps to have it said because it is a big thing in my life and it takes up a lot of my thoughts... It feels a little weird if they don't know, I think.
With my best friend I think I had a gyno-exam the next day and I told her I was worried about it because it is usually hell on earth. It wasn't as big a deal as I thought it would be... and know I can tell her if there's something going on with that, just like I tell her everything else that is going on...


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Re: Can anyone relate?

Post  Sarah001 on Thu Dec 08, 2011 8:37 pm

I agree with the last post, I too have two close friends who know about my V but the others don't. One actually had it for a while when she had pelvic instability issues and it went away once her pelvis stabilised but she didn't realise she had it at the time and thought she had a very persistent bout of thrush but after I told her about my problems she realised she'd had it for a few months herself. Quite encouraging really as hers went away!
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Re: Can anyone relate?

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