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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Can anyone relate?

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Can anyone relate?

Post  Wanderluster26 on Fri Nov 11, 2011 5:53 am


As I watched all my girlfriends delight having intercourse, the joys of orgasm and craving the experience again I have always thought, "what is wrong with me". I would date guys I found attractive, be in the moment, and then... it would hurt. And I'll I could think about was how bad I wanted it to stop...

Of course I never said that, how could i? Here is this person I care about and who is treating me kind/gentle and tender and all I am thinking in the moment, a moment when he is trying to make me feel special, (hand/tongue/penis etc, it never matters) I am silently thinking to myself, "just grin and bear it" and physically can't find the words.

I describe it now to new people I meet like needing a root canal. You can be eating the best food in the world, it tastes good- you crave it- it satisfys you and you might be very in the moment and enjoying that meal, but then... suddenly your tooth reminds you that you need a root canal and all you can think about is the pain. :/

Its a hard conversation, but one I finally force myself to have when I meet someone I am seriously interested in.

Otherwise I avoid intimate encounters. It is a painful/awkward experience, every time. I find I am losing interest in persuing relationships, what is the point? Soon enough they will realize that what is an amazing experience for them is painful and hard for me and it will strain the relationship and both will walk away bruised and hurt.

Am I the only one who feels this way? What do i do?


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Re: Can anyone relate?

Post  Violet on Sat Nov 12, 2011 5:15 am

I can definitely relate. It sounds to me like sex is uncomplicated for my friends. I try to tell myself that everyone faces various issues with sex, at various times in their life. My therapist have emphasised this too. But it is difficult to be in a conversation with them and know that I am hiding something. It's not that it's not good, it's that the pain is there and I am still dealing with it / attempting to improve it / working out ways to make sure my sex life doesn't suffer.

Congratualations on telling people. I have a long term partner and have not been able to bring myself to tell anyone else, including my friends. Would love to hear from more people that have.

Unfortunately I do not have much advice in regard to new partners as I do not face that challenge. I wish you well and hope you find ways to keep enjoying yourself.

Violet

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Re: Can anyone relate?

Post  SimplyBelle on Mon Dec 05, 2011 6:51 am

I can relate too. I hate this stage of my life where all of my girlfriends are exploring and experimenting with sexual stuff, and the joys they experience. And its all giggles and champagne, and I just can't relate to them, and feel estranged and awkward.
Ugh.
Sometimes I tell, but I hate the pitty.

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Re: Can anyone relate?

Post  Sarah001 on Mon Dec 05, 2011 12:03 pm

I think we can all relate unfortunately.
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Re: Can anyone relate?

Post  SimplyBelle on Wed Dec 07, 2011 8:29 am

I was just thinking that.... Sometimes, if you bring it up, someone else will relate to you.
I know I was at a sorority meeting a while back and the girls were nagging on me about not joining in on the converstation, and I mentioned my issue of very painful sex, and later that night, I had two other girls come up to me and want to talk about it because they too found sex uncomfortable. And while, it wasn't painful painful like it is for me - it was relatable and brought forward the concerning issue.... we just want to talk about what we think people want us to feel and think sometimes.

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Re: Can anyone relate?

Post  Mette on Thu Dec 08, 2011 5:49 pm

I think about that sometimes, when I'm in a group of girls... There might be someone here who has vulvodynia and who needs someone to talk to about it just as much as I do... But non of us will ever know because it's not something you talk about...

I've told a couple of my closest friends... to both of them I said that I have damage nerveendings and that it hurts when I have sex. That's the best way to describe it. It helps to have it said because it is a big thing in my life and it takes up a lot of my thoughts... It feels a little weird if they don't know, I think.
With my best friend I think I had a gyno-exam the next day and I told her I was worried about it because it is usually hell on earth. It wasn't as big a deal as I thought it would be... and know I can tell her if there's something going on with that, just like I tell her everything else that is going on...


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Re: Can anyone relate?

Post  Sarah001 on Thu Dec 08, 2011 8:37 pm

I agree with the last post, I too have two close friends who know about my V but the others don't. One actually had it for a while when she had pelvic instability issues and it went away once her pelvis stabilised but she didn't realise she had it at the time and thought she had a very persistent bout of thrush but after I told her about my problems she realised she'd had it for a few months herself. Quite encouraging really as hers went away!
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Re: Can anyone relate?

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