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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Can anyone relate?

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Can anyone relate?

Post  Wanderluster26 on Fri Nov 11, 2011 5:53 am


As I watched all my girlfriends delight having intercourse, the joys of orgasm and craving the experience again I have always thought, "what is wrong with me". I would date guys I found attractive, be in the moment, and then... it would hurt. And I'll I could think about was how bad I wanted it to stop...

Of course I never said that, how could i? Here is this person I care about and who is treating me kind/gentle and tender and all I am thinking in the moment, a moment when he is trying to make me feel special, (hand/tongue/penis etc, it never matters) I am silently thinking to myself, "just grin and bear it" and physically can't find the words.

I describe it now to new people I meet like needing a root canal. You can be eating the best food in the world, it tastes good- you crave it- it satisfys you and you might be very in the moment and enjoying that meal, but then... suddenly your tooth reminds you that you need a root canal and all you can think about is the pain. :/

Its a hard conversation, but one I finally force myself to have when I meet someone I am seriously interested in.

Otherwise I avoid intimate encounters. It is a painful/awkward experience, every time. I find I am losing interest in persuing relationships, what is the point? Soon enough they will realize that what is an amazing experience for them is painful and hard for me and it will strain the relationship and both will walk away bruised and hurt.

Am I the only one who feels this way? What do i do?


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Re: Can anyone relate?

Post  Violet on Sat Nov 12, 2011 5:15 am

I can definitely relate. It sounds to me like sex is uncomplicated for my friends. I try to tell myself that everyone faces various issues with sex, at various times in their life. My therapist have emphasised this too. But it is difficult to be in a conversation with them and know that I am hiding something. It's not that it's not good, it's that the pain is there and I am still dealing with it / attempting to improve it / working out ways to make sure my sex life doesn't suffer.

Congratualations on telling people. I have a long term partner and have not been able to bring myself to tell anyone else, including my friends. Would love to hear from more people that have.

Unfortunately I do not have much advice in regard to new partners as I do not face that challenge. I wish you well and hope you find ways to keep enjoying yourself.

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Re: Can anyone relate?

Post  SimplyBelle on Mon Dec 05, 2011 6:51 am

I can relate too. I hate this stage of my life where all of my girlfriends are exploring and experimenting with sexual stuff, and the joys they experience. And its all giggles and champagne, and I just can't relate to them, and feel estranged and awkward.
Ugh.
Sometimes I tell, but I hate the pitty.

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Re: Can anyone relate?

Post  Sarah001 on Mon Dec 05, 2011 12:03 pm

I think we can all relate unfortunately.
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Re: Can anyone relate?

Post  SimplyBelle on Wed Dec 07, 2011 8:29 am

I was just thinking that.... Sometimes, if you bring it up, someone else will relate to you.
I know I was at a sorority meeting a while back and the girls were nagging on me about not joining in on the converstation, and I mentioned my issue of very painful sex, and later that night, I had two other girls come up to me and want to talk about it because they too found sex uncomfortable. And while, it wasn't painful painful like it is for me - it was relatable and brought forward the concerning issue.... we just want to talk about what we think people want us to feel and think sometimes.

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Re: Can anyone relate?

Post  Mette on Thu Dec 08, 2011 5:49 pm

I think about that sometimes, when I'm in a group of girls... There might be someone here who has vulvodynia and who needs someone to talk to about it just as much as I do... But non of us will ever know because it's not something you talk about...

I've told a couple of my closest friends... to both of them I said that I have damage nerveendings and that it hurts when I have sex. That's the best way to describe it. It helps to have it said because it is a big thing in my life and it takes up a lot of my thoughts... It feels a little weird if they don't know, I think.
With my best friend I think I had a gyno-exam the next day and I told her I was worried about it because it is usually hell on earth. It wasn't as big a deal as I thought it would be... and know I can tell her if there's something going on with that, just like I tell her everything else that is going on...


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Re: Can anyone relate?

Post  Sarah001 on Thu Dec 08, 2011 8:37 pm

I agree with the last post, I too have two close friends who know about my V but the others don't. One actually had it for a while when she had pelvic instability issues and it went away once her pelvis stabilised but she didn't realise she had it at the time and thought she had a very persistent bout of thrush but after I told her about my problems she realised she'd had it for a few months herself. Quite encouraging really as hers went away!
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Re: Can anyone relate?

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