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    » Acupuncture advice please
    Today at 2:25 am by ryn207

    » New and need some help
    Today at 12:49 am by Sad

    » Please tell me this can get better
    Mon Feb 19, 2018 2:10 am by anon99

    » Lichen Sclerosus
    Fri Feb 16, 2018 2:47 am by ryn207

    » MAY HAVE FOUND A CURE- PLEASE READ
    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    » my rock bottom, psychological effects of vulvodynia, I told him he can leave me
    Wed Feb 14, 2018 6:43 am by renegade_magdalena

    » Some interesting information about nerve pain in general
    Wed Feb 14, 2018 3:58 am by Athena

    » Sore after using dilator for first time in a year
    Wed Feb 14, 2018 3:45 am by Athena

    » What helped me
    Wed Feb 14, 2018 3:38 am by Athena

    New and need some help

    Wed Feb 21, 2018 4:30 pm by LindafromNJ

    New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

    Comments: 1

    MAY HAVE FOUND A CURE- PLEASE READ

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


    after having a vestibulectomy with no success, I decided to visit …

    Comments: 0

    NO PAIN DURING SEX

    Sat Feb 10, 2018 12:18 am by rockylife

    I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

    Comments: 2

    Newby not sure where to turn

    Thu Feb 01, 2018 3:32 pm by Cerjo87

    Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 8

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 4

    Vulvodynia from #metoo media coverage

    Thu Jan 25, 2018 9:01 pm by dooleyhornberg

    I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

    Comments: 0

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4


    Heres Hoping .....

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    Heres Hoping .....

    Post  Alex on Wed Nov 16, 2011 3:05 am

    So I should probably wait until tomorrow to make this post, but I'm feeling somewhat optomistic. I missed both my doctors appointments, but had a telephone consult w my GP. She was unwilling to put me on Gabapenten without seeing me, but did up my Ami by a whopping 10mg, putting me at 20mg. I don't even notice the diff. And she also said she would refill the topical cream I've been using, which gave me immediate however just momentary releif. It felt cool when applied but other than that, no significant help. When the cream was delivered I noticed it was a different cream than the one I've been using. I phoned my pharmacist but she said this cream would work better for me. It's a Cortoderm Oiltment 1%, Hydrocortisone ..... and a vasoline texture. So no nice cool feeling when applying, however, I think, I'm noticing a decrease in my pain!!!!!!!!! Very Happy I will follow up this post in a day or two, and when I am completely certain that the cream is working for me.
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    Alex

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    Re: Heres Hoping .....

    Post  skippypie23 on Thu Dec 01, 2011 1:33 pm

    I hope the improvement continues Alex!
    Keep us posted Smile

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