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    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3

    New member desperate need of other vulvadynia sufferers

    Fri Feb 08, 2019 6:55 pm by Tfc13

    Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

    Comments: 5


    Vaginal Valium Suppositories

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    Vaginal Valium Suppositories Empty Vaginal Valium Suppositories

    Post  mars215 on Thu Dec 08, 2011 3:56 am

    Hi there,

    Just wanted to share that I have been on valium for over a week now... and I have really seen an improvement in my VV flares. I take them vaginally at night right before I go to bed. Normally, I will have my worst VV flare in the morning after I first go to the bathroom... but I've noticed that those flares have lessened... also, the flares I commonly get now are a slight discomfort...kind of like fuzz/numbness or something being down there, instead of a burning/raw/stinging feeling.

    The only negative effects I've encountered so far are... a yeast infection (boo, my first one)... and not being able to do much after I take the valium. The lower half of my body goes numb so I'm pretty much restricted to my bed at that point.

    Has anyone else had positive or adverse affects to it? I'm definitely sticking to it for now... just curious if there are other ideas/alternatives.

    Thanks,
    Mars

    mars215

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    Post  JemimaSurrender on Thu Dec 08, 2011 10:44 am

    I've never even heard of it! Are you from the States?

    It sounds pretty interesting. I'd like to know more about how it works though. Does it make you completely dead from the waist down? Not that I can complain about a morning in bed every day, but it wouldn't be too practical for me.

    Keep us posted on your updates though!

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    Post  Sarah001 on Thu Dec 08, 2011 12:04 pm

    I know someone who uses valium suppositories for back pain (it's a man so pessaries aren't possible) and he swears by them. I think valium would help my pelvic floor spasm but it would leave me with no support for my joints so isn't an option unfortunately. Great that you're finding it helpful though.
    Sarah001
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    Post  mars215 on Thu Dec 08, 2011 6:47 pm

    Hi there,

    I am in the States... I go to a practice in Philadelphia... it's not like my legs are completely dead... but they feel all tingly and numb. I can definitely still move them... but I also try to stay in bed so that the suppository doesn't slip out or leak. From what I remember from my uro, the valium helps to relax the trigger points and other tight muscles down there (I have PFD). She says that it should not affect being able to orgasm or have sex or anything like that (not that I am active right now!), and since it is not taken orally, it is less addictive.

    It is a lil tough cuz I'm a student...so no more studying at night once I take it =P Still trying to figure out a new routine since my night-time routine is taken lol.

    Take care,
    Mars


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    Post  CJ on Sun Dec 11, 2011 11:54 pm

    Hi my wife also has resently seen a new doctor and he prescribed a valium suppository. But she takes them Rectally every night at bedtime. She also has seen a great improvement in her condition. They are Diazepam 10 Mg suppositories. They also recommended she take Gabapentin 300 Mg pills, but has not taken them because she doesn't need them. The suppositories are doing the helping greatly.

    If you read where I have made other entries, you can see many of the things she has tried over the last 12 years of having this condition.

    She's seen many different doctors, some just said well you're not 21 anymore, others have tried to help her. But until now most treatments, most pills, creams have not been doing the trick. She still had daily discomfort and pain. A rawness, burning, chaffing. She wasn't able to exercise, walk long distances etc and riding in the vehicle, she needed to sit on a donut & move from one cheek to the other often.

    She was told to NOT insert the suppositories in the vagina, the doctor felt that they could do more harm than good that way.

    She has had pudendal nerve block injection. She has had pelvic floor treatments. She has tried many different creams, she still uses estradiol cream w/vitamin E base.

    We hope this information will help you and others that suffer with this condition. We recommend you ask your doctor before changing the way you use the suppositories, we just want you to know what my wife was told & has been doing and the fact it helps her and she does not get yeast infections this way.

    My wife level has dropped from a level seven to a level one or two.

    Good luck.

    CJ



    mars215 wrote:Hi there,

    Just wanted to share that I have been on valium for over a week now... and I have really seen an improvement in my VV flares. I take them vaginally at night right before I go to bed. Normally, I will have my worst VV flare in the morning after I first go to the bathroom... but I've noticed that those flares have lessened... also, the flares I commonly get now are a slight discomfort...kind of like fuzz/numbness or something being down there, instead of a burning/raw/stinging feeling.

    The only negative effects I've encountered so far are... a yeast infection (boo, my first one)... and not being able to do much after I take the valium. The lower half of my body goes numb so I'm pretty much restricted to my bed at that point.

    Has anyone else had positive or adverse affects to it? I'm definitely sticking to it for now... just curious if there are other ideas/alternatives.

    Thanks,
    Mars

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    Post  Aussie on Mon Feb 13, 2012 6:40 am

    If you cant get vaginal valum rx'd for you just use regular valium about 5-10 mg should be fine. Insert about 2 inches in. I got docs here prescribing it now.

    Works well.

    Aussie

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    Vaginal Valium Suppositories Empty Re: Vaginal Valium Suppositories

    Post  JemimaSurrender on Sat Jul 27, 2013 10:49 am

    I was just Googling Valium pessaries/suppositories when this link showed up, having completely forgotten I'd already talked about it on here.

    Anyway, I'd actually forgotten about this and I don't think I've even suggested it to my doctor. So, before I burst through their door next week, excitedly demanding I have a prescription for them, can I ask if anyone from the UK has tried them as a pessary or suppository before (not just a bog standard oral dose), as I'm not entirely sure if you can even get them over here?

    I vaguely remember my doctor saying that she wants to avoid anything that will just take the pain away because she doesn't want me to end up having a relationship where my boyfriend can only have sex if his girlfriend is drunk or high, but at this point I don't care if I can even move, as long as I can have some form of sex life and save my relationship I'll do anything!

    So, UK'ers... Any luck with these? How did you go about approaching the subject with your GP? Or did you have to get them from a gyno?

    Help please!x

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    Post  Alana3 on Sat Jul 27, 2013 12:43 pm

    That wouldn't make you drunk or high as it wouldn't pass thru your liver.... I can use them whenever and be fine.

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    Post  JemimaSurrender on Sat Jul 27, 2013 1:11 pm

    Alana3 wrote:That wouldn't make you drunk or high as it wouldn't pass thru your liver.... I can use them whenever and be fine.
    Oh yeah, I know that, what I meant was... When I was originally diagnosed and she was discussing what options I have she said she was keen to find something that would work so that I don't have to get drunk or high in order to have sex.

    Has anyone had much success with 'numbing' things? I've tried Instillagel (briefly) but found it a hassle and didn't really think it made too much difference to the pain. I might give it another go though to be honest, anything just to be able to try it and not be in agony!

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    Post  Takver on Wed Oct 09, 2013 8:15 am

    Valium is pretty damned addictive, and 10mg is by no means a low dose. I'm prescribed 2mg for occasional use for premenstrual anxiety attacks or as a muscle relaxant for muscular pain. I spoke to my gynae about it (I'm in Scotland) and she said she'd never heard of it, but since it gets into the bloodstream if uses vaginally, she couldn't see how it would be any less addictive. Can anyone report back on that side of things?
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    Post  Alana3 on Wed Oct 09, 2013 12:55 pm

    Take them all the.time and can stop whenever I want. I havent needed them in over 3 months and stopped cold turkey. No problems

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    Post  Lms911 on Tue Dec 31, 2013 5:34 pm

    Hi ladies, I just received these and I was wide ring if you ladies have burning raw pain. My doc ( I'm from phila) gave them to me because of a trigger point that was felt down my right leg. My leg pain comes and goes and is rather have the leg pain from time to time them the burning. Any advice? I'm worried they will make me burn more

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    Post  Alana3 on Tue Dec 31, 2013 8:48 pm

    Try them and see what happens

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    Post  LT on Tue Sep 20, 2016 1:21 pm

    I use them rectally also. I was getting more of a vaginitis ish feeling and I think they are even more effective. Maybe they stay in better?

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