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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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Vaginal Valium Suppositories

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Vaginal Valium Suppositories

Post  mars215 on Thu Dec 08, 2011 3:56 am

Hi there,

Just wanted to share that I have been on valium for over a week now... and I have really seen an improvement in my VV flares. I take them vaginally at night right before I go to bed. Normally, I will have my worst VV flare in the morning after I first go to the bathroom... but I've noticed that those flares have lessened... also, the flares I commonly get now are a slight discomfort...kind of like fuzz/numbness or something being down there, instead of a burning/raw/stinging feeling.

The only negative effects I've encountered so far are... a yeast infection (boo, my first one)... and not being able to do much after I take the valium. The lower half of my body goes numb so I'm pretty much restricted to my bed at that point.

Has anyone else had positive or adverse affects to it? I'm definitely sticking to it for now... just curious if there are other ideas/alternatives.

Thanks,
Mars

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Re: Vaginal Valium Suppositories

Post  JemimaSurrender on Thu Dec 08, 2011 10:44 am

I've never even heard of it! Are you from the States?

It sounds pretty interesting. I'd like to know more about how it works though. Does it make you completely dead from the waist down? Not that I can complain about a morning in bed every day, but it wouldn't be too practical for me.

Keep us posted on your updates though!

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Re: Vaginal Valium Suppositories

Post  Sarah001 on Thu Dec 08, 2011 12:04 pm

I know someone who uses valium suppositories for back pain (it's a man so pessaries aren't possible) and he swears by them. I think valium would help my pelvic floor spasm but it would leave me with no support for my joints so isn't an option unfortunately. Great that you're finding it helpful though.
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Re: Vaginal Valium Suppositories

Post  mars215 on Thu Dec 08, 2011 6:47 pm

Hi there,

I am in the States... I go to a practice in Philadelphia... it's not like my legs are completely dead... but they feel all tingly and numb. I can definitely still move them... but I also try to stay in bed so that the suppository doesn't slip out or leak. From what I remember from my uro, the valium helps to relax the trigger points and other tight muscles down there (I have PFD). She says that it should not affect being able to orgasm or have sex or anything like that (not that I am active right now!), and since it is not taken orally, it is less addictive.

It is a lil tough cuz I'm a student...so no more studying at night once I take it =P Still trying to figure out a new routine since my night-time routine is taken lol.

Take care,
Mars


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Re: Vaginal Valium Suppositories

Post  CJ on Sun Dec 11, 2011 11:54 pm

Hi my wife also has resently seen a new doctor and he prescribed a valium suppository. But she takes them Rectally every night at bedtime. She also has seen a great improvement in her condition. They are Diazepam 10 Mg suppositories. They also recommended she take Gabapentin 300 Mg pills, but has not taken them because she doesn't need them. The suppositories are doing the helping greatly.

If you read where I have made other entries, you can see many of the things she has tried over the last 12 years of having this condition.

She's seen many different doctors, some just said well you're not 21 anymore, others have tried to help her. But until now most treatments, most pills, creams have not been doing the trick. She still had daily discomfort and pain. A rawness, burning, chaffing. She wasn't able to exercise, walk long distances etc and riding in the vehicle, she needed to sit on a donut & move from one cheek to the other often.

She was told to NOT insert the suppositories in the vagina, the doctor felt that they could do more harm than good that way.

She has had pudendal nerve block injection. She has had pelvic floor treatments. She has tried many different creams, she still uses estradiol cream w/vitamin E base.

We hope this information will help you and others that suffer with this condition. We recommend you ask your doctor before changing the way you use the suppositories, we just want you to know what my wife was told & has been doing and the fact it helps her and she does not get yeast infections this way.

My wife level has dropped from a level seven to a level one or two.

Good luck.

CJ



mars215 wrote:Hi there,

Just wanted to share that I have been on valium for over a week now... and I have really seen an improvement in my VV flares. I take them vaginally at night right before I go to bed. Normally, I will have my worst VV flare in the morning after I first go to the bathroom... but I've noticed that those flares have lessened... also, the flares I commonly get now are a slight discomfort...kind of like fuzz/numbness or something being down there, instead of a burning/raw/stinging feeling.

The only negative effects I've encountered so far are... a yeast infection (boo, my first one)... and not being able to do much after I take the valium. The lower half of my body goes numb so I'm pretty much restricted to my bed at that point.

Has anyone else had positive or adverse affects to it? I'm definitely sticking to it for now... just curious if there are other ideas/alternatives.

Thanks,
Mars

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Re: Vaginal Valium Suppositories

Post  Aussie on Mon Feb 13, 2012 6:40 am

If you cant get vaginal valum rx'd for you just use regular valium about 5-10 mg should be fine. Insert about 2 inches in. I got docs here prescribing it now.

Works well.

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Re: Vaginal Valium Suppositories

Post  JemimaSurrender on Sat Jul 27, 2013 10:49 am

I was just Googling Valium pessaries/suppositories when this link showed up, having completely forgotten I'd already talked about it on here.

Anyway, I'd actually forgotten about this and I don't think I've even suggested it to my doctor. So, before I burst through their door next week, excitedly demanding I have a prescription for them, can I ask if anyone from the UK has tried them as a pessary or suppository before (not just a bog standard oral dose), as I'm not entirely sure if you can even get them over here?

I vaguely remember my doctor saying that she wants to avoid anything that will just take the pain away because she doesn't want me to end up having a relationship where my boyfriend can only have sex if his girlfriend is drunk or high, but at this point I don't care if I can even move, as long as I can have some form of sex life and save my relationship I'll do anything!

So, UK'ers... Any luck with these? How did you go about approaching the subject with your GP? Or did you have to get them from a gyno?

Help please!x

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Re: Vaginal Valium Suppositories

Post  Alana3 on Sat Jul 27, 2013 12:43 pm

That wouldn't make you drunk or high as it wouldn't pass thru your liver.... I can use them whenever and be fine.

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Re: Vaginal Valium Suppositories

Post  JemimaSurrender on Sat Jul 27, 2013 1:11 pm

Alana3 wrote:That wouldn't make you drunk or high as it wouldn't pass thru your liver.... I can use them whenever and be fine.
Oh yeah, I know that, what I meant was... When I was originally diagnosed and she was discussing what options I have she said she was keen to find something that would work so that I don't have to get drunk or high in order to have sex.

Has anyone had much success with 'numbing' things? I've tried Instillagel (briefly) but found it a hassle and didn't really think it made too much difference to the pain. I might give it another go though to be honest, anything just to be able to try it and not be in agony!

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Re: Vaginal Valium Suppositories

Post  Takver on Wed Oct 09, 2013 8:15 am

Valium is pretty damned addictive, and 10mg is by no means a low dose. I'm prescribed 2mg for occasional use for premenstrual anxiety attacks or as a muscle relaxant for muscular pain. I spoke to my gynae about it (I'm in Scotland) and she said she'd never heard of it, but since it gets into the bloodstream if uses vaginally, she couldn't see how it would be any less addictive. Can anyone report back on that side of things?
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Re: Vaginal Valium Suppositories

Post  Alana3 on Wed Oct 09, 2013 12:55 pm

Take them all the.time and can stop whenever I want. I havent needed them in over 3 months and stopped cold turkey. No problems

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Re: Vaginal Valium Suppositories

Post  Lms911 on Tue Dec 31, 2013 5:34 pm

Hi ladies, I just received these and I was wide ring if you ladies have burning raw pain. My doc ( I'm from phila) gave them to me because of a trigger point that was felt down my right leg. My leg pain comes and goes and is rather have the leg pain from time to time them the burning. Any advice? I'm worried they will make me burn more

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Re: Vaginal Valium Suppositories

Post  Alana3 on Tue Dec 31, 2013 8:48 pm

Try them and see what happens

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Re: Vaginal Valium Suppositories

Post  LT on Tue Sep 20, 2016 1:21 pm

I use them rectally also. I was getting more of a vaginitis ish feeling and I think they are even more effective. Maybe they stay in better?

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Re: Vaginal Valium Suppositories

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